Just a quickie,
Zelda I'm starting to feel more human today. This is day 8 of my first T - I had it Friday a week ago. The aches started easing a couple of days ago, so around day 6 (everything ached, even my fingers and toes!) and today I'm still very tired, but I can feel myself starting to recover. I felt terrible on day 3/4 too. So, if you follow the same pattern as me you should start to feel a bit better in the next few days. I hope Bettypoppit feels better soon too.
Back later, I have to warm up some beans to give to super active unpacking husband Mark or he'll run out of energy and won't be able to carry on all day and into the evening. Beanz meanz cunning ploy by me! 😉
Nicnac, sorry to hear you've needed a transfusion - it'll make you feel so much better though - esp for your birthday. I also wish my periods would stop, I had a normal one, another 3 weeks later and now a much heavier one after only two weeks. Roll on my hormone therapy - I'm to get zoladex which will apparently stop 'em dead even if the tamoxifen doesn't. Every time I buy tampons I hope it's the last I ever need to.
Peta - congrats on the house! I don't think it's a bad thing to let your hubby get on with it 😉 though i expect you'll never be able to find anything you need lol.
I've had thrush every time and my gp gave me Nystan drops - work a treat, though took around 5-7 days to clear. Have been told you can use this any time you like for as long as you need, stopping and starting as necessary. Because its topical it just treats the thrush and doesn't affect you. The third time i got fluconazole tablets which pretty much stopped it from coming on BUT it made me feel continuously nauseous. So I wouldn't recommend those if you can avoid them. I've been using difflam and soda bic mouthwashes too. Corsodyl far too harsh. And also I have used Biotene toothpaste from the start which is for dry mouths. It definitely feels gentler than normal toothpaste, and I am firmly of the opinion this has really helped keep my mouth problems to a minimum. You can buy it from Boots online and get it delivered to store, if you can't find it on the shelves.
Bettypoppit - I think we're all thanking our lucky stars we bought comfy sofas. I find nothing more comforting than turning up the heating and retreating under a blanky on the couch. Hope you bounce back soon.
Greetings to evryone else, hope the weekend passes with minimum drama / poorliness
Congratulations Peta on finally getting hold of your keys, you must be very excited about getting in now - shame you will have to do it with no energy!!
I had oral thrush after first D/T but it cleared pretty quickly using Corsydyl mouthwash. because I also had a throat infection last time my onc suggested using salt water mouthwash/gargle from the day before treatment. I have been doing this 3 times a day and also using Corsydyl twice a day and so far no thrush this time. Onc also gave me a prescription for Gelclair just in case but I havent used it yet. Hope yours clears quickly as I know it stopped me drinking and eating
I have to say sorry to everyone, this has been my so-called "good week" and I have been dealing with feeling more or less human again by working and pretending everything is a-ok and avoiding the forum and all things C related. Now that I've been catching up on how everyone is, I want to send big hugs to everyone! Too many names for me to remember, lest I forget someone, but hospital admissions, delays, surgery, side effects... gawd
It's docetaxil x 1 for me on Monday. I'm fearing the worst re aches and pains as I have a bad back and a dodgy knee already which I suspect might be affected. I am also worrying about taking a reaction during the infusion. As for side effects I was reasonably OK on FEC (I feel guilty about that too when I'm reading other people's experiences) so I also worry this will come back to bite me and sods law I'll be more sicky on this new stuff. It's like being back at square one again. Not sure how I'd be getting through without you all, especially the ladies a few weeks ahead leading us through.
One good result for me this week was I asked my bcn about changing to a new onc. I couldn't bear the thought of being under her "care" for my hormone treatment for the next 5 years, when her "care" has been such a source of worry and disappointment to date. Turns out the onc is not a consultant, despite having introduced herself as one - why does it not surprise me that even her first sentence to me contained a lie? Anyway the bcn was totally sympathetic and contacted the onc AND the professor in charge of the onc, and I am delighted that my next appointment has now been swapped to the prof instead. It's a huge relief.
What a roller coaster ride some of you lovely ladies are on at the moment - I am so sorry that you are having these problems and know you must be feeling very upset at shifting treatment plans and schedules. Such a worry with all the different onc opinions too, I hope you are coping with all the uncertainty.
It makes me feel enormously lucky to 'only' be dealing with SEs. Day 5 of D/T #2 and tired, temperature up and down - packed a bag for hospital again last night but didn't quite reach the magical 38 so stayed in my own bed. Hoping to go for a short walk if the DN gets here - wish I was brave enough to do my own injections.
Love to all the group today - I think we all need it xx
Glad you are home Murphy - it so much nicer to be in your own bed.
Good news that they have a solution for you Debtex, hope it is easier for you.
I'm on T1 day 2, slept better than expected, have been awake since 6.30am. Don't seem to ge the energy burst that others are getting - keep hoping it will come but in the meantime I will write my christmas cards.
Picked up my wig yesterday - Is till have some hair left but it's extremely thin with patches of scalp showing through. The wig lady said not so shave what I have off as it's difficult transition to be bald and it's pyshcologically better to keep what I have as it's not bad enough to be shaved off. Very happy with it though and feel that it gives me a lot more confidence to go out and about in fact looking forward to gong to the shops later today with it on!
Hope all se are minimal and hope it goes well for anyone going to the bar today.
HI EnzoBenzo - welcome to our posse!
I had my first T today and have not side effects at all. TIred from not sleeping last night and don't expect to sleep tonight and tomorrow. Most worried about Friday and Saturday as coming off the steroids and having the GCS-F injections on Friday I think will hit me hard... hope no though! I hope you get to enjoy some of your wedding anniversary, it must be really difficult
Murphy, I really hope you are doing better and your neuts are getting better - found it strange that they waited so long to give you the injections.
Ladies, I need to reconvene the Porkscratching Posse - a golfing acquaintance of mine sent me a message saying that he hoped I would soon be over "my setback" - I doubt I will see him soon and I so want to wrap my driver round his neck - so we need to go round there!
Hope you all are doing well / better and se are minimal - will keep you all updated on T se.
welcome enzobenzo, looking forward to getting to know you. I also got switched early from FEC, but due to heart problems after the first two cycles. had D/T #2 on Monday and doing ok so far apart from an ever-increasing bald patch 🙂 Sounds like you still have lots of uncetainty about your treatment plan which must be very hard to handle - lots of us have had minor/longer delays and it really takes it's toll mentally, so hope the D/T does what you need!
From my last cycle I remember that tomorrow is where i went downhill so hoping for better this time around. Lost my taste buds today and everything tastes like soap...yeuch. Lots of gargling and mouthwash trying to avoid thrush, ulcers etc this time too.
Lots of love to all those suffering infections, roid rage, swollen boobs, deflated boobs and of course the babbling brook. Hope all the Scottish ladies still have electricity after todays weather 🙂
Another day getting ticked off for all of us xx