Starting chemo October 14

[enzobenzo]

Am on day 3 of T and having a total duvet day. Feeling tired and groggy but hopefully will start to feel better soon. Achy, tired and generally not with it - think that's normally me anyway so not sure anyone will notice the difference ha ha.

Hope all you ladies are doing ok xx

[Peta]

Just a quickie, 

Zelda I'm starting to feel more human today.  This is day 8 of my first T - I had it Friday a week ago.  The aches started easing a couple of days ago, so around day 6 (everything ached, even my fingers and toes!) and today I'm still very tired, but I can feel myself starting to recover.  I felt terrible on day 3/4 too.  So, if you follow the same pattern as me you should start to feel a bit better in the next few days.  I hope Bettypoppit feels better soon too.  

Back later, I have to warm up some beans to give to super active unpacking husband Mark or he'll run out of energy and won't be able to carry on all day and into the evening.  Beanz meanz cunning ploy by me!  😉

[Zelda]

Welcome RiversideDawn and Congratulations Peta having finally moved in your new house.
4th day after Tax felt poorly during the night ached all over could hardly move my legs even my big toenails,hurt. Slumped on the Sofa now no energy legs ache I hope this will pass soon need to do so much.
Hoping every else is having a good day Bettypoppit let me know when your energy levels return as we are following similar paths. Xxx

[Linzz]

Nicnac, sorry to hear you've needed a transfusion - it'll make you feel so much better though - esp for your birthday. I also wish my periods would stop, I had a normal one, another 3 weeks later and now a much heavier one after only two weeks. Roll on my hormone therapy - I'm to get zoladex which will apparently stop 'em dead even if the tamoxifen doesn't. Every time I buy tampons I hope it's the last I ever need to.

Peta - congrats on the house! I don't think it's a bad thing to let your hubby get on with it 😉 though i expect you'll never be able to find anything you need lol.

I've had thrush every time and my gp gave me Nystan drops - work a treat, though took around 5-7 days to clear. Have been told you can use this any time you like for as long as you need, stopping and starting as necessary. Because its topical it just treats the thrush and doesn't affect you. The third time i got fluconazole tablets which pretty much stopped it from coming on BUT it made me feel continuously nauseous. So I wouldn't recommend those if you can avoid them. I've been using difflam and soda bic mouthwashes too. Corsodyl far too harsh. And also I have used Biotene toothpaste from the start which is for dry mouths. It definitely feels gentler than normal toothpaste, and I am firmly of the opinion this has really helped keep my mouth problems to a minimum. You can buy it from Boots online and get it delivered to store, if you can't find it on the shelves.

Bettypoppit - I think we're all thanking our lucky stars we bought comfy sofas. I find nothing more comforting than turning up the heating and retreating under a blanky on the couch. Hope you bounce back soon.

Greetings to evryone else, hope the weekend passes with minimum drama / poorliness

[nicnac15]

Feeling sorry for myself today came to hospital to get checked out feeling drained and theyve admitted me having blood transfusion at the mo as hb level went down to 67. This is probably due to the all over bloomin periods im having why couldnt mine just stop.
To top it off a bloke hit my car today just what i didnt need heres hoping monday is a better day as its my birthday and i want normality back just for a day at least.

[LainieG]

Congratulations Peta on finally getting your keys. It's a shame you're feeling so tired during the move but it'll be so much nicer for you to be in your own home. Good luck with it all. I've had the whomp whomp in my ears too. Like you it comes and goes and it gets worse if I walk upstairs. I've been suffering low blood pressure all the way through the treatment but I don't know whether that would do it. I've also had tinnitus, mainly just after treatment and for the first few days. Xxxx

Linzz good luck for Monday. I have my first D/T on Friday. Like you I feel like I'm back at square one and wondering how it's going to affect me. They just got the fec dose right and now it feels like going backward. Xxxx

Does anyone else have pain and swelling at the site of the drip? My hand is sore and red around where the needle went in. It's quite swollen too. Not sure if it's something I should flag up. Xxxxx

[jingo_x]

Re the Difflam I did use it during FEC and it was useful but my onc said it can be a bit harsh so in my case when my throat got sore there was a danger of it getting aggravated by the Difflam. By the way the Gelclair acts like a coating and the instructions say to use it an hour before eating so with a very sore mouth it sounds like it might be useful if you can get your hands on some.
Don't have the whomp, whomp in the ears but do get a pounding, pumping heart, and almost non stop tinnitus after every treatment!

[Peta]

Thanks Jingo, that really helpful.

I've been given deflim ? Mouthwash and biotin toothpaste and some anti fungicidal tablets, rather than a paste or gel. I'll get some Corsydyl though for next cycle, I'd rather not be taking even more tablets unless it's absolutely necessary. My throat is a bit sore, so I'll try the salt gargle too. Thanks.

By the way, has anyone else got intermittently pounding ears? It just switches on and I can hear whomp whomp whomp and then it gives away again. I don't have high blood pressure so it's not that.

[jingo_x]

Congratulations Peta on finally getting hold of your keys, you must be very excited about getting in now - shame you will have to do it with no energy!!

I had oral thrush after first D/T but it cleared pretty quickly using Corsydyl mouthwash.  because I also had a throat infection last time my onc suggested using salt water mouthwash/gargle from the day before treatment. I have been doing this 3 times a day and also using Corsydyl twice a day and so far no thrush this time.  Onc also gave me a prescription for Gelclair just in case but I havent used it yet.  Hope yours clears quickly as I know it stopped me drinking and eating

xx

[Peta]

Hi all

Well, I'm now a homeowner! We haven't moved in yet, but we've been there all day today having people like BT turn the phone on and all that palaver.

I'm now on day 8 of T and all I can do is lay on the sofa. I managed some walks earlier in the week, but I jumped around a bit too much yesterday on completion day and I'm paying for it now. My mouth is very sore and after two days of mouth pain - my husband runs away if I stick my tongue out it looks so red and gross - I got the white fluff so realised I'd now moved onto oral thrush. I emailed my doctor a photo of my tongue and I've got prescriptions now, so hopefully that'll help soon. jingo you had it earlier didn't you? Do you remember how long it took to clear up? I can't really eat now, I've moved onto soft stuff only.

Zelda and Bettypoppit you sound pretty similar to me, I'm not super bone pained up, but I do take paracetamol at night because otherwise I toss and turn with back/pelvis aches. I don't think the White blood cell boosting injections do me any favours either, i always feel much better when I've stopped them after 8 days, so roll on Sunday.

Riverside I'm sorry to hear about your inplant, that must be so uncomfortable and that's all you need right now. I hope you get it sorted really soon. Xxx

Linzz good luck with the Tax - I've had arthritis since age 30 and it hasn't affected it, so perhaps you'll be okay, I hope so. Can I borrow your good week while you're not using it and have a good week next week please, my poor husband has had to do absolutely everything with the move while I slept on the sofa in the next room (once the sofa arrived that is!)
It's great that you're now lined up to see the prof - that's awful that she lied and brilliant that you moved, bloody well done for forcing the issue.

Murphy, thank goodness you're home at last and really good luck with sorting out your care and treatment in the next few days and weeks.

I'm going to crash out again, really not up to much at the mo. Good luck everyone! Xxx

[bettypoppit]

Hi Linzz, great to hear from you AND that it has been going ok for you...that's just FABULOUS and absolutely not to be feeling guilty about! 🙂

I confess that D/T has completely wipped the floor with me and i haven't even showered or got dressed today...still in my pj's on the sofa...but NO sickness, nausea, or bad pains to report (a bit of oral thrush has kicked in tho). So, we are all different and it isn't a fait accompli for all. Good luck for monday and really glad you have sorted out getting the proper head honcho support going forward...a huge relief I'm sure. Xx

[Linzz]

I have to say sorry to everyone, this has been my so-called "good week" and I have been dealing with feeling more or less human again by working and pretending everything is a-ok and avoiding the forum and all things C related. Now that I've been catching up on how everyone is, I want to send big hugs to everyone! Too many names for me to remember, lest I forget someone, but hospital admissions, delays, surgery, side effects... gawd

It's docetaxil x 1 for me on Monday. I'm fearing the worst re aches and pains as I have a bad back and a dodgy knee already which I suspect might be affected. I am also worrying about taking a reaction during the infusion. As for side effects I was reasonably OK on FEC (I feel guilty about that too when I'm reading other people's experiences) so I also worry this will come back to bite me and sods law I'll be more sicky on this new stuff. It's like being back at square one again. Not sure how I'd be getting through without you all, especially the ladies a few weeks ahead leading us through.

One good result for me this week was I asked my bcn about changing to a new onc. I couldn't bear the thought of being under her "care" for my hormone treatment for the next 5 years, when her "care" has been such a source of worry and disappointment to date. Turns out the onc is not a consultant, despite having introduced herself as one - why does it not surprise me that even her first sentence to me contained a lie? Anyway the bcn was totally sympathetic and contacted the onc AND the professor in charge of the onc, and I am delighted that my next appointment has now been swapped to the prof instead. It's a huge relief.

[jingo_x]

What a roller coaster ride some of you lovely ladies are on at the moment - I am so sorry that you are having these problems and know you must be feeling very upset at shifting treatment plans and schedules.  Such a worry with all the different onc opinions too, I hope you are coping with all the uncertainty.

It makes me feel enormously lucky to 'only' be dealing with SEs.  Day 5 of D/T #2 and tired, temperature up and down - packed a bag for hospital again last night but didn't quite reach the magical 38 so stayed in my own bed.  Hoping to go for a short walk if the DN gets here - wish I was brave enough to do my own injections.

Love to all the group today - I think we all need it xx

[Zelda]

After the high of the steroids Tax day 3 now feeling shattered no energy following you Bettypoppit symptoms wise .Not sure I'll achieve a lot today but I'll keep on trying.
All for now hope every one else is feeling ok today Hugs to all xxx

[riversidedawn]

It is do strange how all treatments are so different. A appreciate we're all individuals and no two cancers are the same. But if the first four treatments are the most important why the change of drugs for some of us? I had 4 weeks between 1 and 2 now it'll be about 6 weeks before FEC 3 but onc told surgeon it won't affect things because of the way he's planned my treatment. So many questions! First is will I be up to seeing onc on Monday??

It's great to share with you girls, but is our growing knowledge dangerous?

[LainieG]

Riversidedawn thinking about you for tomorrow. What a rotten time you're having. Good luck and I hope things get back on track for you soon xxxxx
Murphy what a shock for you. Make sure you ask lots of questions when you see your onc. The difference in advice between you and Debtex is quite worrying. It's this postcode treatment again isn't it. We really need the experts to get together and decide on treatment protocols that are consistent. It's scary when you see the differences across the country. Good luck with your meeting with the onc xxxxx
Nicnac sorry you've had such a rotten time and at least they're doing something about the horrendous period trouble you've been having. I know it's scary but you'll know what the problem is soon and hopefully it'll be something they can fix easily. Thinking of you xxxxxx
Bettypoppit hope you're feeling better soon. The D/T drug seems to be affecting everyone so differently doesn't it. I have my first one next Friday so I wonder how it'll affect me. They just got the dose right for the fec and now it's back into the unknown Xxxxxx

[Debtex]

Riverside dawn good luck for tommorow thinking of you and big big hugs . Xxx

[bettypoppit]

Hi lovely ladies and what a rubbish time some are having....Murphy I'm so glad you are home and comfy, but what a bombshell conversation you had with your bcn. Debtex's info is very illuminating, really showing up the possible different takes on best treatment. We are all different, but it gives another side to the possible options for you and knowledge and clear information and expert guidance are what is needed for you to move forward so all my fingers and toes are crossed for your onc review next week.xx

Riversidedawn, that's pants for you..more surgery and delay, but, you will get through this... A cliché but one day at a time 🙂 xx

Day 4, #4, first D/T and I have had trouble moving - literally, due to heavy legs, confused brain - complete and utter fatigue.... Miserable :(. On the upside mind, no sickness or nausea (so hoping I'm passed that point now and not even carrying my emergency bucket around with me lol) and no muscle or joint pain....yet!!! Getting back to weaping at a drop of a hat tho and with far too easy access to internet shopping - bankrupting us with donations to dog rescues - oh and too many toys, new beds and snuggle sacks for my lurcher girl lololol. Need to get my energy back before we end up in the poor house 😉 lolol

Take real good care my friends and here's hoping for a good nights sleep for us all and a better day tomorrow for those having a rough time today xxxxx

[riversidedawn]

Thanks murphy, you too x

[Murphy1963]

Hi debtex, I will defo be asking many questions. I defo don't think I will have treatment next week, I'm really weak and still have the infection. I hope you are feeling a lot better now. When do you start your weekly treatments? Yes the finishing line has changed for a lot of us.

Take care xx

[Murphy1963]

Riverside, so sorry to hear that you are having to have an emergency op tomorrow, but glad things are getting done to sort you out. You're also going through the mill. I have you recover well and quickly with this op and get back on track with your treatment plan.

Lots of love and hugs to you xx

[riversidedawn]

My finishing post is slipping away too . Emergency op tomorrow to remove infected implant. FEC 3 due next week, already delayed for previous infection. Should have been starting tax on 2nd nan now will be lucky to have FEC then. Will then have to have 2 more ops either side of radiotherapy which now looks like May time! What a week for us all. Here's hoping for better times to come x

[Debtex]

Hi murphy . I'm really glad your ok x I'm sure you will ,but get a second opinion on that . I was hoping my onc would tell me that 4 was enough , but no way . He said he wanted me to have more of the tax based drugs and has booked me in for 6 - 9 weekly doses . He was adamant that I should not stop at 4 but understood that I couldn't manage another 2 docetaxel so offered either to reduce the dt by 10 percent or put me onto weekly taxol . The taxol does not take bloods down as low as the fec or dt so I don't need the neulasta jabs which were causing the problems . The downside is the finishing post is moving further away and I am going to have to face 6 more drip trips including one on Boxing Day ! I hope you get some good advice . Debtex xx

[Murphy1963]

Thanks ladies for your lovely good wishes, I'm so glad to be back in my own home.

I had a phone call today from my breast care nurse. I was saying I hoped my treatment wouldn't be postponed next week. She said well we'll have to look at options actually, one being no more chemo for me. She said we need to weigh up if another 2 would out weigh the benefit of me becoming so ill again next time, which she said could happen. She said the benefit comes from the first four treatments, the last two are top ups, so we have to discuss whether in the longer term I might do myself more harm. Was a bit gobsmacked tbh, scared not to have the rest but relieve if I don't have to. So I will look forward to Tuesday when I see the oncologist to discuss what's going to happen

Hope all my friends are as well as can be xxxxx

[nicnac15]

Hi to all of you not been here for a bit had hell of a week last week after 3rd fec so tired and poorly but this week is different back to feeling normal finshed my immune injections tue sure they do some good.
This morning ive cried again though thought it was too good to be true feeling ok letter appears in post from hospital the gynae department want me back to do a hysteroscopy this will be due to the non stop periods im having so now i think the worse that ive got something else wrong with me and this procedure isnt taking place till mid january. Happy xmas to me !!!

So glad to hear your out of hospital murphy and hopefully u can start planning for xmas.

Im treating myself to my wig on mon as its my 39 birthday i still have some hair but very thin and patchy cant style it.
Ive lost track with whos got whats going on, sorry got some reading to catch up on here hope everyone is as well as can be though. Xxx

[bettypoppit]

Hi Zelda, glad you are feeling a little better this morning and have had a good sleep. I do find it strange how we all have differing se's and even differing strengths of se's reactions... As the Monty python saying goes "we are all different". I'm struggling with the thought of getting up, but I'm going to make myself and at least have a shower!

Have a good day ladies, if you can and catch up later xxx

[AMDriver]

Glad you are home Murphy - it so much nicer to be in your own bed.

Good news that they have a solution for you Debtex, hope it is easier for you.

I'm on T1  day 2, slept better than expected, have been awake since 6.30am. Don't seem to ge the energy burst that others are getting - keep hoping it will come but in the meantime I will write my christmas cards.

Picked up my wig yesterday - Is till have some hair left but it's extremely thin with patches of scalp showing through. The wig lady said not so shave what I have off as it's difficult transition to be bald and it's pyshcologically better to keep what I have as it's not bad enough to be shaved off. Very happy with it though and feel that it gives me a lot more confidence to go out and about in fact looking forward to gong to the shops later today with it on!

Hope all se are minimal and hope it goes well for anyone going to the bar today.

xx

[Zelda]

Hi Ladies Feel a little better this morning I slept until 6.30 after a Piriton and sleeping tablet .I have taken 2 steroids instead of 4 I'll see how I feel later I know I shouldn't reduce my medication but yesterday II felt so ill on this high steroid dose and I will mention this to the Oncologist when I go but advice from nursing staff is inconsistent .
My eyelashes and brows have thinned I'm putting lash growth serum on to them to try to save any that I can I've also painted my nails with dark polish as The Tax reacts with sunlight to cause nail problems.
Having no nauses is such a relief it means I can drink and eat small amounts although my taste is affected.
Hope all Ladies are ok today and Debetex it's good they have reviewed your treatment my Dosage was reduced because of illness and if we can take these drugs in other forms it is better than nothing.
Hugs to all xx

[Debtex]

Morning all and murphy glad you are home now. X just to confirm I am continuing with chemo but am switching to weekly paclitaxel still by a drip . I think it's a case of little and often as obviously the mega 3 week dose was not for me .

[bettypoppit]

Morning lovely ladies, day 4 after 1st D/T and amazingly slept through to 6.45 when OH back from night shift - woo hoo. No sickness or nausea, but SUCH an effort to get out of my pit for a wee...straight back to bed. I've just spent the last 2 hours reading through our forum from the off... Wow we have come on such a way and haven't we done well! I bl***y well think we have 🙂

Hope all doing OK and se's minimal.

PETA, is it tomorrow all systems go for your move? Hope it goes well and that your new home is all you have dreamed of...oh and your own lovely bed....wonderful 🙂 xx

[bettypoppit]

Yeah, glad you are home Murphy and have had great care whilst in hospital. So so pleased for you and admire your Christmas spirit. Hope you have a fabulous sleep xx

[LainieG]

GeeG glad you seem to be feeling better and I don't envy you and your dog going out in that awful wind and rain. I delegated. My son took Judy and was caught in the thunder and lightning lol xxc

[LainieG]

Thanks ladies. OH and me still not talking but I'm sure we'll be fine by tomorrow. It's so hard isn't it. We get frustrated and upset and someone else gets the backlash. 😕
Murphy soooooo happy you're home at last. Yes I was on a general medical ward but in a side room. People were supposed to wear aprons etc but very inconsistent. 😊

[geeG]

Wow! Murphy! You're HOME! Fantastic! No posse required tonight after all then! Get a great night's sleep… x

[geeG]

Welcome enzobenzo! This really is a brilliant thread with a fabulous crowd of great ladies who just keep us all coming back for more! I for one would be a bigger wreck without y'all… Good to hear nausea is def less on docetaxel… and interested to see some of you are taking antihistamines to help control nausea as this has not reached me previously… also good to hear folk have found a prescription for dry skin … none of my hand creams seem to be doing anything to help (including extra strength cream for dry feet! LoL!) - so I shall explore this with the nurse next week…
Peta - thanks for saying that you take all your high dose steroids by midday - I wasn't sure if that would be ok - sounds like worthwhile for getting a good night's sleep…
LainieG - thinking of you so much recently - be gentle with yourself and with the OH - this journey is so demanding on everyone…
Debtex, Zelda and Bettypoppit- good to catch up and hear you are doing so well despite all… and Junash, riversidedawn, Jingo and AMDriver… and I'm sure I've forgotten someone … I am hopeless… maybe we should convene the posse to whisk Murphy out of her hospital bed and off to Somewhere Preferable - here's hoping tomorrow your neutrophils are up Murphy and you can get home … HUGE hugs… x
Weather outside seems windy but dry - OH did my Hickman Line dressing for his first time tonight and did a great job - Bless him - I am sooo grateful he volunteered - but he was wasted after and has now gone to bed - so I need to awaken this sleepy dog and get her out… oh boy … she's gonna love this… !
Hugs to Everyone … x x x

[Murphy1963]

Yay, I'm out of hospital. My bloods yesterday were still not good neuts went up to 0.2. This afternoon my bloods increased significantly with neuts 2.3!!! The blood transfusion has benefitted me greatly too seemingly. So I'm on oral antibiotics for next 8 days. I'm hoping that my treatment will go ahead next wed, but I know it might not so wil just need to wait and see. I'm defo asking for these immune boosting injections and they might reduce my dose the BCN said. I don't want this happening again. It was pneumonia I had. Be vigilant ladies, better to be safe than sorry xx

Debtex I am so pleased you have been offered alternative treatment and you are going ahead with this. I was worried you would stop so glad your not. So what happens the next 4 weeks, is it tablets you are getting or just the same as our other regimes?

You all seem to be coping well with your change over. Fingers crossed it continues. I'm looking forward to my comfy bed tonight. I have to say the care at my hospital has been outstanding. I was in protected rooms in a&e, then the acute assessment, and then up in the ward. I think they put you in a general ward lainie, germs everywhere. My room got disinfected and thoroughly cleaned every day, all staff and visitors had to wear aprons on entering the room and use hand gell. It seems to be a postcode lottery, I agree with however said there should be a uk directive on treatment, everyone getting the same.

Think I'll have an early night. Things to do tomorrow, Xmas cards, tree up, and maybe some wrapping. Need to get some Christmas cheer in this house. Love to all xxx

[LainieG]

Debtex glad you have your treatment sorted. Hope it works out well for you and glad you're not giving up chemo altogether. 😊
AMDriver I'm ready and waiting for the posse call. I'm getting scarier looking by the day with eyebrows half gone and patchy spikes on my head lol. Just say the word. Hope you stay SE free after your tax today. 😊😊

[bettypoppit]

Hi Zelda, you are sounding 'wired' - could you pop round to mine as I've gone the other way and can hardly move...plenty of chores going begging 😉 lolol. Irritable I do have by the bucket load oh and the flushed red face 😕

Really really pleased that D/T has gone better for you and fingers crossed you will be doing OK still tomorrow xxx

[Zelda]

Well these high dose steroids have kept me active all day woke at 4.00am got up at 5.30 and have hardly stopped moving around since. I have managed to achieve so much in one day but at the same time my head is confused and I feel irritable. I am thinking about reducing the dose myself tomorrow as its the last day.
Had the White cell boosting injection and my face is as red as a turkey .
On the good side I'm not nauseated I think Emend helps a lot but the Tax has been much kinder to me than the FEC.I hope Everyone is Ok I carnt remember names at the moment as I hardly know what day it is.oh well roll on tomorrow not sure if there's any point going to bed Arrrrh sorry for the moaning it's my agitated state xxx

[bettypoppit]

Hi LainieG, sorry about your bust-up .... All this 'stuff' is fuelling my total intolerance fire and I feel like a tinderbox... truely hope I haven't stoked any fires elsewhere with my confessions of being a miserable snap dragon!? 😉 xxxxx

AMDriver, what a kn*b and by bl***y text - my beanie is off and my porkscratching posse baldy head is looking a treat....where and when and I'm on my way 😉 xxx

[bettypoppit]

Junash, it might not come to pain and flu like symptoms - fingers crossed. I'm day 3 and nothing like that...just completely wacked as on FEC, so sat on backside being idle for most of the day! I've been munching black pudding and spinach - both for iron. X

[bettypoppit]

hi debtex that's great and well done you for going for it, giving up on the pipe dreaming and marching on, on, on and up :). Respect. 🙂 xxxxx

Oh yes, hope the lovely north of border ladies are safe and snug as bugs in rugs 🙂 xx

[AMDriver]

HI EnzoBenzo - welcome to our posse!

I had my first T today and have not side effects at all. TIred from not sleeping last night and don't expect to sleep tonight and tomorrow. Most worried about Friday and Saturday as coming off the steroids and having the GCS-F injections on Friday I think will hit me hard... hope no though! I hope you get to enjoy some of your wedding anniversary, it must be really difficult

Murphy, I really hope you are doing better and your neuts are getting better - found it strange that they waited so long to give you the injections.

Ladies, I need to reconvene the Porkscratching Posse - a golfing acquaintance of mine sent me a message saying that he hoped I would soon be over "my setback" - I doubt I will see him soon and I so want to wrap my driver round his neck - so we need to go round there!

Hope you all are doing well / better and se are minimal - will keep you all updated on T se.

xx

[enzobenzo]

We're all here for you xx

[LainieG]

Hi ladies. All that talk of arguments and I've just had a huge one with the OH. And I don't even have the steroids as an excuse. He's still not speaking to me and won't even sit in the same room. The worst part is I don't think I care. Ah well. Life goes on as normal even during chemo. Never mind I've got you lovely lot to talk to lol. Xxx

[enzobenzo]

Thanks for the warm welcome everyone.

I'm really nervous about tomorrow. So much so I'm not hungry for dinner. Not a good sign. It's also our 3rd wedding anniversary tomorrow so joy a great day for chemo. We had a nice afternoon tea out today to celebrate.

Looking forward to being able to support all you lovely ladies and having a good laugh here xx

[Junash]

Hello Enzonbenzo - glad you're here :-).we met at our chemo clinic so I told her about our posse and told her how lovely you all are!

Day two after 1st D/T - nothing major yet but really tired - think rubbish sleeps due to steroids and also anemia - not terrible but iron is dropping after each session. Any natural suggestions - red meat and spinach today would be fab, don't really want to take iron tabs as they can make you constipated and I don't need thst on top of any other side effects.

Hope you're all doing well as possible - am nervously waiting for aches, flu like symptoms etc. !!!

Tea and early night to try and grab a few hours as I've been up at 4 last couple of morns! Xx

[Debtex]

Hi all and welcome EnzoBenzo ! Well I am not being allowed to get off the chemo bus just yet but the pipe dream was nice while it lasted . Instead oh lucky me I am switching to Pacitaxel ......weekly ! So that's 6 in total ( maybe 9 if I'm really good !) and a lovely bonus one on Boxing Day .... Yay !!! The plus side is the effects SHOULD be easier and I won't the neulasta which onc thinks called the back spasms . I'm not sure how I feel but I'm a bit more settled as I was worried about giving up and possible consequences . Murphy hope you are doing ok now . X

[jingo_x]

welcome enzobenzo, looking forward to getting to know you.  I also got switched early from FEC, but due to heart problems after the first two cycles.  had D/T #2 on Monday and doing ok so far apart from an ever-increasing bald patch 🙂  Sounds like you still have lots of uncetainty about your treatment plan which must be very hard to handle - lots of us have had minor/longer delays and it really takes it's toll mentally, so hope the D/T does what you need!

From my last cycle I remember that tomorrow is where i went downhill so hoping for better this time around.  Lost my taste buds today and everything tastes like soap...yeuch.  Lots of gargling and mouthwash trying to avoid thrush, ulcers etc this time too. 

Lots of love to all those suffering infections, roid rage, swollen boobs, deflated boobs and of course the babbling brook.  Hope all the Scottish ladies still have electricity after todays weather 🙂

Another day getting ticked off for all of us xx