chin up Zelda, I am on the same as you T1 Day 7 and just in the last couple of hours I have started to feel better - mouth less furry, some energy returning, actually interested in what's going on around me....
I doubt I will be back at full energy levels tomorrow but I have defnitely turned a corner.
Hoping the same will happen to you soon as xxx
Well done NanaJane for getting through your doses - hopefully the next stage will be a walk in the park after all this!
Debtex - I know what you mean about wishing you could choose - I was suposed to have 4 lots of T+C but after being in hospital after the first lot my onc dropped the C - and I begged her not to - I might still ask for it to be added back in as I want to make sure I take the biggest hit I can, but lets not forget that our oncs have to make a judgement about how much our bodies can take and soemtimes they put us on a different course otherwise we might end up too damaged by the treatment.
Zelda I hope day 8 is better - it's when I start picking up and today (day 9) I spent a few hours doing cleaning and took my son to his 'snowball bop' at school (knackered now though!) - I couldn't have done that a couple of days ago.
good luck Lainie and Geegee for your doses this week, and hope everyone else post-Tax is improving by the day xx
Hi all, it's very scary for us November girls reading your posts - although very useful too! Side effects of Tax seem awful. I'm due to start 12 x weekly sessions in the new year, delayed a bit because of another infection. But spoke to my oncologist yesterday and expressed my concern. Although we all refer to it as Tax it appears there are lots of different types and he assures me that 12 sessions of Paclitaxel does not carry the bad side effects - who's on what and what are your experiences?
Morning ladies - tax + 1 day for me and I am feeling absolutely fab - no nausea, no fuzziness. I know its just the steroids and there are undoubtedly a few nasty days looming but for today I am flying - off out into the winter sunshine for some fresh air and more xmas prep.
My 'excitement' yesterday was being told my chemo was just about to be delivered to the ward, then they took my temp and it was 37.8 - blimey, I have never been above 37, ever. And I feel totally well. If it doesn't go down I won't get treated. Could it be something to do with the steroid-induced flushing + being sat sweating away for 3+ hours waiting for bloods and presccription from pharmacy in a plastic chair in full sunshine beaming through a large window with a broken blind? Yes it could. To cool down I took off as many clothes as decently possible, then went to the loo and took off my wig and splashed cold water all over my head and inside my ears (didn't tell the nurse that though LOL). Hey presto, my temp dropped siginificantly and I was treated. Mental note - make them take my temp early doors next time and avoid that seat at all costs!
Anyway, good luck to everyone starting tax soon, and commiserations to those of you still stuck in the s/e phase. I'll be with you and complaining about it soon enough! xx
Thanks PETA, just had another sneaky peak at the photo.... lolol cannot believe I have subjected you all to my blatent porky scratching baldy portrait in such a full on way.... it's was all about the lurcher girl for me and in my chemo fatigue fog i was being sooo 'i just don't care anymore' lololol. I hope you are feeling better day by day too and loving being in your new home... hopefully snug as bugs xxxx
Morning lovely ladies, day 9 and defo on my way up...planning to get dressed AND take a walk around the block! Wooo hooo, WTG 🙂 🙂 🙂 hope you are all bit better today too if you have been struggling along with me xx
Good luck for Thursday geeG. I follow you on Friday xxx
For those who are worried about their first Tax, try not to be...it is cr4p that's true but it's just a different kind of cr4p. There are positives - kinder on the veins, no nausea etc and the bounce back is much more gradual rather than that great bouncy feeling you have on week 3 of FEC, but I have decided to just give in to it - rest when I need to, go to bed early if I need to and if I am going to anything energetic like have a shower (:)) I do it in the morning so I can collapse in the afternoon. I am glad it is mid winter as I feel justified in 'hibernating'.
My worst side effects with Fec lasted 7 days and on Tax it has been about the same, so today (day 😎 I have felt a lot better. No crying, no nap, managed a walk and even managed to do some admin. Bit of hip pain and a headache, but both bearable in my case.
I now have pins and needles in my fingers which i think is another new se kicking in and my toenails ache of course.
I think what ever we are on the cumulative effects are starting to kick in but every day we get through takes us a day closer to finishing the course, so eye on the prize girls!
starting to wish I had a dog though..... 🙂
Oh ladies, this is a tough one. On FEC, a shower and getting dressed was my starting point each day..and most days I managed to at least make and eat lunch and or supper. Now I try and have a shower but like you AMDriver, on Saturday even that was a step too far! I'm giving in to it and going with the flow, but I'm not sure that that is what I should be doing - others do seem to be fairing better and getting out and moving about! I just don't believe I could. I think I have become a little dehydrated (which affects energy) with the vile taste and oral thrush making drinking a nightmare but I'm on to it today, forcing water and fizzy orange down 😕
LainieG, I'm sorry you are in such discomfort with your hand too. More to annoy and niggle at us. Also, I'm sorry that our tales of woe are making this sound worse...it has been said before, but worthy of repeating i think, we are all so very different and what hits one, doesn't always hit another. Please take heart. I hope you can really enjoy the rest of your week 3 and we will be thinking of you Friday.... here together xxxxx
Hope all other ladies are doing OK, <<<hugs>>> xx
Completely with you Zelda. I can't believe how much my fingernails can hurt!
Managed a shower this morning (having one was just a pipe dream at the weekend), put a load of washing on and had to sleep for the best part of two hours!
Not sure what to do other than give in to the tiredness and hope that it gets better soon.
Hi Zelda, I do sooo agree and this is one tough coctail dose to deal with, but hang on in there because - one day at a time we are doing this and doing ok and it's the long game we need to focus on. We're both coming out the tunnel now - woop woop and fresh air, energy and dog walks will be ours really soon 🙂 Hope poppy is cuddling up with you, big big hugs, xxxxx
Your photos are lovely Bettypoppit. Your lurcher is gorgeous and looks very comfy on her mummy's lap. Dogs are great companions and they seem to know when we're not very well don't they. Judy is really gentle with me when I don't feel good, making sure she doesn't jump at me.
Hi bettypoppit - your pooch even has a sympathetic look on her face Can you please ship her to Edinburgh for a couple of days to keep me company at the end of next week when the tax hits me? Pretty please???
Glad to hear that some folks are only having short lived aches/pain - proves its possible. I am keeping my fingers crossed. Codeine makes me really sick and stupidly dizzy and every other analgesic apart from paracetamol makes me ill one way or another. I have therefore been told I can take paracetamol if I am careful about checking my temp before I take it. Only problem is that if the word 'excruciating' is what I'm feeling paracetamol aint gonna do the trick. Not looking forward to this week! Having a lovely pasta dinner tonight though, as 'last supper' before treatment, I may even indulge in a beer!
As we hurtle towards xmas (yay. NOT.)... good luck for the week ahead everyone
Lovely ladies, be warned!!! I have managed to upload a couple of pics and one from last night when lurcher girl came for a cuddle, but, I'm in my full pork scratching baldy posse state lololol. You have been warned!!!! 😉 xxx
Hi Riversidedawn, I'm sure you will have a great handle on dealing with your T regime by the time you start and can go full steam ahead with pills, potions and ways to stay as comfy as possible - taking as much info as you can from us all on all threads.
Yes I'm on 3 weekly cycles, which was FEC and just switched to D/T - 3 weekly cycles again. I had no idea until a number of other ladies started to deviate from this regime that it could be adjusted or different, but that does mean that we are being reviewed and cared for individually, which I think is a really positive thing. Your regime may be weekly, but it could very well (in fact I'd imagine very probably) be a different strength/set up so it isn't inevitable that you will suffer the same!??! I'm sure you will find out more soon and that will take away some of the unknown angst that bugs us all at times. Keep looking after yourself...you need time to heal. Xxx
Hi Jingo_x, spot on for me too -day 4 and 5 bad, but day 6 yesterday and the worse pelvic pain ever, BUT since waking earlier this morning, I'm definitely on the up - yeah - so it seems I should be able to take comfort from knowing it's only likely to be 24 hrs...thank the heavens above 🙂 I'll start the codine much earlier next time and spend 24 hours away with the fairies 😉 lolol
I'm also getting constant miserable hot AND cold sweats! Dripping. Any thoughts?
Hugs, hugs, hugs and hoping for a good relaxing day for all xxxxxx
p.s. my lurcher girl keeps seeking me out for a cuddle which is sooooo nice - she defo knows I'm not well as she would normally just launch onto the sofa and camel plodd all over my head.... thankfully she is a 'Whippet x' and not a 'Deerhound x' lolol
Just seen that you are getting out for a walk everyday, that's just brilliant, but a step too far for me - I just couldn't myself...can I have some of what you are on please? lolol xx
Hi Riversidedawn, I'm sorry that your dates are getting pushed out, im sure that is difficult to deal with. This journey has far more twists and turns than we imagined I guess and it is one hell of a road trip. By hook and by crook, we will get through this together, so please rest up and get well after your op and we are all here for you xxx
I cannot deny that D/T has been dreadful these last few days, but, I do believe the abject pain and stiffness in my legs and pelvis are finally - either easing or being zapped by the Codine I switched to last night. Either way I am - thankfully - much more comfortable this morning :). I'm already taking some positives that #1 my bone marrow production must have been on overdrive to hurt so bl***y much and #2, forwarned is forearmed so I'll be much better prepared for the next dose 🙂 🙂 🙂 we CAN do this ladies oh yes we can 🙂 🙂 🙂
Zelda how are you doing? I hope not still having it really bad too. Xx
Jingo_x, I think we are on the same treatment day (sorry I've got total addled brain ) and wondering how you are doing too?xx
Takecare ladies and rest up if you can xxxxx
My brain is addled
Hi lovely ladies, nothing different to report...sooooo tired I can hardly move, aching really badly now and not moved out if pj's in 2 days but did manage a shower this morning....phew. Temp spiking but despite 3 thermometers I can't get a true reading!!!! I hate that others are suffering this too, but at least we know it is 'a norm', which is a comfort in a strange way.
Congrats PETA for your house move.
Hugs to all xxxx and here's hoping to improvements for us all very soon
Am on day 4 of T1. Still in bed with pjs, socks, dressing gown, and two hot water bottles and still cold! Legs ache, can't get up the energy to eat anything, mouth feels furry......can't wait for this to be over...
Hope you other ladies are faring better