Junash, great that you are home and resting and relaxing.... Fabulous. Xx
Hi Jingo_x, absolutely nothing to be feeling bad about...I say, yippee your doing great :). I do know how you feel mind as because of my treatment delay, I'm now blessed with 'time off' and can start to enjoy a week with my hubster and lurcher girl....I'm wishing we were all on this schedule.xxx
Evening posse. OH got home this evening. He works away for 2 weeks then 2 weeks home. Both boys here and so far everybody getting on great. Long may it last. I am watching Sky fall but afraid he just does not do it for me. I know I am probably the only women in the country that does not fancy Daniel Craig. Hope everybody as lovely day tomorrow. Happy Christmas.xxxx
Hello ladies - keeping a low profile again this week as I feel like I am the only one doing ok at the moment and sometimes that makes me feel very bad! I can't quite believe the long list of complications, change of plans, hospital admissions etc that everyone else has been going through - makes me wonder if anyone ever manages a 'normal' 6 cycles of chemo ever!
Huge amounts of love and respect to all of you for coping so well with all of these problems. I know we all get sick of people telling us how 'brave' we are, but I really think that those of us in the chemo club know just how much grit it takes to keep going through this treatment and never more so when you just don't know what is going to pop up and send you off to A&E at any minute.
I am hoping that anyone trying to escape hospital gets released today and that tomorrow is as good a day as it can be for everyone, next Christmas will be so much better for all of us.
I am due cycle 5 on Mon 29th (D/T #3) and really don't mind missing out on New Years Eve, so again I am feeling very lucky about how my treatment dates have fallen.
Happy Christmas to all you amazing ladies and your families and anyone else who is supporting you right now (and those dogs and horses that mean so much to many of the group!)
LainieG, bl***y fantastic you're home, yeah 🙂 I hope you can really get some proper r&r now and have a good Crimbo. I had a couple of hypnotherapy sessions to help me cope with the needles and all the stuff that goes on and it has really helped me..it might be worth looking into. I'm with you as there is still no way I could inject myself -OH offered to learn for the filigrastim, but I declined the offer as he looked FAR to keen 😉 lolol. xxxx
Lovely to catch up with you this afternoon Zelda and great that we both got to see THE head honcho..such a difference to how I feel about the review meeting. Hoping you have some answers and meds sorted for your se's, so you are ready for dose #5 next week...getting there 🙂
Ladies, a little bit of levity from some others in our predicament... the Younger Breast Cancer Network on Facebook have been decorating their chemo-brows for crimbo
ps Murphy - please stop sayin the word HUGE !!!
So good to hear from you Murphy. We were all getting concerned. xxx
Such a relief to hear from you Murphy - we were all really worried!
Glad you are back home for Christmas.
So glad you're OK Murphy! Also good to hear they've come up with an alternative treatment plan for you really quickly.
I think I'm to have those ruddy huge needle injections too (I am NOT too happy about that).
Lainie. Hope you get out this afternoon. Think that is 3 days now we haven't heard from Murphy. Last year I got a phone call from my eldest son to say not to worry he was okay. Didn't know what he was talking about. I was all tucked up in bed and the helicopter had come down on top of the Clutha. His flat is right beside it. Yesterday missed 3 calls from him as I was doing my supermarket shop. This time he was in George Sq on the way up to Strathclyde Uni when it happened. I think it is time he moved back down here. Terrible thing to have happened. Hope all the injured pull through. Love to all.xx
AM Driver. Way you go girl. Fantastic!!
Lainie and Junash thinking of you in hospital tonight.xx
I wish Murphy would post. Hope she is okay.
Love to all this evening.xx
Hi lovely ladies, I have finally managed a couple of gentle miles with my gorgeous lurcher girl this morning and met up with a few dog training friends... I even had a silly Christmas tree wholly hat on! Oh my, the joy of chatting and laughing with friends 🙂
AMDriver, so good to hear from you and GO GIRL... nothing to loose and fab you had a nice evening and your going to out again. Yeah 🙂
LainieG, you really are being put through the mill, but sounds like you are a big step closer to getting home. I cannot believe that you are having to stay next to a coughing machine and listening to the wailing...you are being a saint...I'm with Zelda, think you need to voice your discomfort. Thinking of you and also thinking a few posh canapes are required in my posse raiding bag to soak up the champers, or we will be tipsy in charge of the reindeer! Looking forward to Greg joining us in a tutu...being loud and proud with her pork scratching baldy head....brilliant lolol xx
Zelda, don't you be hurrying your appointment ... It takes as long as it takes. I always go armed with a long list but it is our one and only chance every 3 weeks so it needs to count. Day 15 for me and my taste buds are definitely much improved, although according to OH, I spoilt our pasta supper tonight with far too much black pepper...which I couldn't taste! Oh well, there are worse things to screw up I guess lol. I so relieved that I can start drinking a decent quantity of water again...for me, water has tasted sooooo vile that I have really struggled to drink anywhere enough.
Murphy, really hoping you are doing OK. Thinking of you too. Xx
Really sorry that so many of you ladies are experiences infections and complications with recons and hope you are all sorted soon.
BIG HUGS to you all and hoping everyone is comfortable tonight xxx
AMDriver, go for it girl! What a great bit of news, hope he's lovely!
Junash, I had my implant out 10 days ago. I didn't realise how sick it was making me, I felt so much better as soon as it was out. I have had repeated infections since the mastecomy and in truth was one infection which never really went away. I hope you feel heaps better once it's out, I had a late op last Friday so stayed overnight but had full mobility straight away and was driving a week later. My 3rd chemo has been delayed by 2 weeks to allow the wound to heal and I'm seeing nurse tomorrow to remove stitches. Unfortunatley boobie doesn't look pretty, but we'll deal with that post chemo.
Gosh Ladies, what a lot has been going on since I was last on here! I wish more of it was better news.....
LainieG so sorry you are back in hospital and I hope your scan has already been done and you are out asap. I'm in the posse with a reindeer costume and home made goodies.
Junash - what a nightmare! I bet you will be glad to get the infection out - got to be better out than in.
Peta so pleased you are in your new home for Christmas, that must be a great feeling.
Zelda hope you are feeling much much better - I have got better every day since last Tuesday when i turned a corner and managed a good 4 mile walk yesterday.
Murphy - I hope you have called the helpline - I don't think there is much point in waiting, i would do it straightaway.
Bettypoppit have you been out today with lurcher girl?
Can't remember who mentioned crying buckets - well I reckon I have cried Lake Windermere by myself and think the bucket measurement is a too small!!
But how about this ladies? I had a date last Friday!!
A friend of one of the guys I golf with asked me out - I was not at all sure about it, not because of him but because of me, the BC, having never worn my wig out etc etc, but then I thought, why not what do I have to lose? So I accepted and was treated to a really nice dinner out. He wasn't fazed at all by the BC, the treatment and SE's etc and wants to see me again. That was an unexpected early Christmas present!
Sorry if I have missed any of you ladies having treatment this week or recovering from last week. My next session is on NYE - joy! xxxx
riversidedawn - one surgeon refused me an immediate recon and the other said she'd do it but said there was a 1 in 3 chance it would fail during rads. I therefore decided not to have recon. I believe I have to have 4 or 5 weeks rads, so the additional worry of 'will my boob survive' just wasnt worth it to me. I have an appt for next Sep to look at recon. At the mo I am lucky enough to have a well healed, tidy scar and feel my boob is the least of my worries as I move through my treatment. I stick my prosthesis in and no-one can tell I'm any different. When I'm dressed I myself don't even feel that there's much missing. (Ha, perhaps because there wasn't much to begin with lol). Perhaps you could consider letting everything heal for now and put off recon again until you are recovered from everything else? Though I understand that might be an impossible thing to consider. Everyone is different, and what's right for one of us isn't right for another. Do you know yet how many weeks rads you are getting? I guess perhaps your surgeon and your radiologist need to confer to look at risk before they can advise you.
Lainie - good luck for your scan. The NHS just before xmas is 100% geared to discharging people.. You'll be home for xmas for sure. Though I would REALLY like to see the CCTV footage of the posse breaking you out
Everyone else - my fingers are crossed for a lull in side effects and set backs for just a short while over crimbo - kind of like the xmas day football game in France during WWI, we just all need - and deserve - a bit of peace and quiet (or noise and hysteria if that's your xmas thing) for 24 hours. Here's hoping...
Hi Zelda, ouch! That does sound very painful :(. My feet are OK skin wise - did you manage to get your hands on the dermol500 cream? I do occasionally use specific cream for cracked heels (due to effects of excessive hours spent in walking boots) which is made by compeed and it works like magic, but I've no idea if it would be suitable. Thank goodness, your review meeting is tomorrow.
Was wondering about you Murphy and how you are doing?
LainieG, hope you are OK too this morning and fingers and toes all crossed that your scan will go ahead presto pronto and you can get any necessary treatments and meds and get discharged home, but me and the Elf (and we would only be the advance posse raiders as the rest of the posse are limbering up) are ready if not 😉 xxxxx
Also, AMDriver...how are you doing?
I know, I'm rather nosey 😉 lol. Going to try and get back to sleep now - it is very rare but lurcher girl work me needing to go out...she's now fast asleep on my feet and I'm wide awake....OH will be getting up very soon for work, so I will probably fail! Oh well.