Hi Jingo_x, I hope your pain has eased and you are more comfortable now and not worrying overly - so much easier to say than do I know. I see we need to shuffle up on the finished-treatment-podium tomorrow for you .... 😀👍😀 yeah. We will be ready to do so. xx
Lainie, the way you are going you are going to scoop up multiple awards at the end of this! Glad that you are getting treatment and hope you will be feeling good very soon now they know what it is xx
Peta - I know what you mean about aches and pains that feel worse when we focus on them. The pain in my side is better today - yesterday it felt more like a pain inside me so I wondered if it might be my ovaries throwing one of of my last remaining eggs out! I had my coil removed 2 weeks ago and I guess there might be some gynae related changes going on inside. Sorry too much information for those of you having breakfast 🙂
We all have a moan about the NHS at times, but being called at nightime and whisked back in for fast treatment... when push comes to shove the NHS is doing us proud. LainieG I do hope your treatment isn't too awful xx
oh my goodness LainieG!
I am so sorry to hear you are back in hospital - I just hope you are in the right place for the treatment you need. My thoughts and prayers are with you. xx
Yeah, fabulous news LainieG - you're home and nothing extra horrible to deal with. The best news. 😃.
I have to say that i do believe that the pyridoxine for the numb and tingly feet and hands is having an effect...I've only been taking it for 4 days and the symptoms have eased - much more bearable. Cannot think why some onc's aren't prescribing....mine had no issues and was happy to do so. Maybe, try your GP's.
geeG, of course you can join the fb group (didn't want to be pushy so I haven't chased any non joiners but of course, all the posse are welcome) 😀. If you search for "The October Posse" (ignoring the group with a similar name) and request to join the group, either PETA or myself as admins will get you on board. (If your real/fb name is very different to your name on here you might want to pm us, so we know it's you as the group is 'closed' and therefore private to us). Look forward to you joining. Xx
Jingo good luck with the MRI Scan on Monday.
My breast care nurse agreed to call me as soon as the results of my scans and biopsy came through, and she did as promised, she called me about 5-7 days after each scan, as soon as the info came through. I didn't have to wait weeks until my next consultant appointment to find out the results. I did call her up a few times to see if the results were through yet, just to remind her. So maybe you can have a word with her and see if she will do the same for you, the waiting is absolute agony I know..
The pain in your pelvis - I had really bad pain in my hip all the time that my femur was under investigation. It started within a day of me learning that there was 'some kind of tumour' in my femur and it got worse every time I was waiting to go for a new scan and get results. It mysteriously disappeared when I finally heard that the tumour was benign. I know that yours may not be the same, but my pain was very, very real - I started walking with a limp and had to prop it up under my bum with a cushion at night to ease the pain. It went within a day of me getting the all okay, so it was almost certainly in my head, but I was utterly convinced it wasn't at the time. xxx
hi LainieG, I hope things are progressing well for you in the hospital, goodness knows you have spent enough time there! Hopefully you will be released soon and we won't have to get the posse helicopter out!
So sorry to hear of all the aches and pains everyone has, it never occurred to me that we would get different symptoms after chemo had finished! I thought once it was over it was over - more fool me.
Saw my surgeon today and he is very happy with his handiwork and says the incision is healing beautifully. Also saw the oncologist who told me that I have had "the best possible outcome" from the chemotherapy and the operation took out a lump that had no cancer at all! Finally I can going the "I had cancer club" it's seems like a long time. So onto rads now.
On the down side he refused me any medication for my tingling fingers, toes and heels saying it was the Docetaxol that caused it and it would go away over the coming months, same with the leaking eyes. The very mild hot flushes I have been having he put down to my body just recovering from the chemo.
So Madam I think you will finish after me but I will make sure there is space for you on the finished branch no matter what.
Love to all of you suffering at the moment and hopes that things will ease soon.
Lainie sorry to hear you are back in hospital again, I hope it's a short visit!
In 3 days time I will be joining the end of active treatment podium, still looking forward to it but this lymphodema thing is getting me down as my sleeve is so uncomfortable and my hand hurts (it didnt before they gave me a sleeve grrr)
had a shock yesterday as I received an appointment in the post for another MRI on my pelvis, although I knew it was coming it caught me by surprise. So that is happening next Monday and then I have an anxious few weeks wait to see what the experts think is going on in my bone. Already very anxious about it an then today I have had excrutiating pain in the side of my pelvis, so imagine what my head is doing. The pain came from nowhere so I am trying not to go into a tailspin about it and hope it goes away tomorrow!
hope the second half of the week is good for everyone xxx
Hi LainieG, that's pants you are back in hospital...as others have pointed out, you didn't actually need to consolidate your position for the title tho 😉 lol. Your care team absolutely need to be looking after you and finding out what's causing your back and chest pains. Hope you will soon be on your way home....if not, I've also got my tutu and dm's out the wardrobe ready 🙂 xxx
Linzz, horray .... we are shuffling along the finished-active-treatment- podium for you 😀. I hope you have a wonderful celebratory lunch out with your friend. p.s. I think histrionics are still in order when we are let down.. I'm certainly still very 'fragile' and apt to blow a gasget! lol. Xxx
Debtex, sorry to hear you are still troubled by sore and painful extremities. Are you on any meds or creams to help?
Right putting the DMs and Tutu on right now, it sounds like you need entertaining if not rescue!
How are you feeling Lainie? Do you feel poorly? I had backache all the time through chemo, don't they just think it might be that? I hope it is just another one of the aches and pains we've all had to live through lately, and it will just pass and they'll let you home. That'd be nice, we've all had enough now and you've had more than your share.
Thanks Murphy. GeeG and Zelda for the info about rads. 🙂
I've finished my first week of rads now, so only a month to go. 5/25 *twiddles thumbs!*
GeeG I'm sorry to hear your husband isn't well. I hope the chest X ray provides more info and it's something simple and easy to treat.
Laine, I don't believe it, you're back in again. what a complete pain. I guess its good that they're checking you out really thoroughly just to make sure, it does sound like you are being well cared for. I hope you get home real soon.
Linzz, yey you're done! Enjoy your celebratory lunch, you have certainly earned it.
Please make room on the finished-active-treatment podium - my last zapping was yesterday YAY! Skin is only mildly 'tanned' and not sore, and fatigue is not too bad. They do say it can all get a bit worse for a couple of weeks, but hopefully not. We went out for a lovely lunch to celebrate. I'm having another celebratory lunch with my friend tomorrow - she is a 20+ year bc survivor herself and has been a great support to me.
This morning I got my first zoladex implant. The GP had prescribed me numbing cream but not the dressings that you need to put on after application for it to be effective and then when I turned up not pre-numbed the nurse couldn't find the alternative, numbing spray. You'd think after everything I'd be better at keeping the hysterics at bay by now, but nope. Anyway, just before the tears started the spray was found and it worked a treat.
So I have no more appointments for a month now. Wow.
Lainie - I can't believe you're back in hosp. You had already secured the "most hospital admissions" award, you didn't need to consolidate your position! Fingers crossed they let you out very quickly after your scan
Thank goodness for all of you on this forum, I don't know how I would have managed without you all. Hugs to everyone who has continuing aches and pains and worries and problems
geeG fabulous that you are nearly finished with the rads, but truly sorry to hear that your hubster is not well and you are not getting the deserved let up just yet. I think we have all had a touch of the doldrums recently and I suspect that a lot of that is, as you say, a result of being over tired...hoping you feel brighter tomorrow. xx
How bad was the fatigue during rads for others? I've now completed week one of five, and don't feel too bad (nothing like chemo anyway) but I wondered if the fatigue was going to get worse as the weeks progress?
Lainie I hope your chest is fine and they don't drag you in again. I'm hoping they just send you home, so do let us know how you get on, I've got my fingers crossed that it's just a prescription and home again for rest for you.
Hi LainieG, has your GP managed to help with your chest? I really hope so, as you certainly don't need another stay in hospital. As you are two weeks out, hoping your white blood cells will be high enough to avoid this. xx
Spandau Ballet.....get you, 80's rocking chick 😉 lolol xx
Zelda, fabulous you have finished rads now, the fatigue will get better and I'm hoping that it will be sooner rather than later for you. I shall miss bumping into you at hospital - you take great care xxxxx
Morning Posse 😀 pyrodoxine I think is B6? I had a bit of tingling feet through the last 2 cycles of D, but the whole foot numbness, tingling and the numbness/tender fingertips came on big stylie over the weeks after last dose.
My post radiotherapy skin is just about holding up, but sore. Onc recommended to go without bra and wear a loose top to get air to the skin. This does help, but, sooooo uncomfortable for a big girl like myself, so i only manage a couple of hours at a time. Skin should start to improve in 7-10 days 😃.
I had a full on trip out yesterday with OH, woooo hooo, to The Lowry to see Al Murray (The pub landlord). Fantastically funny show and we enjoyed a scoff at Wagamama's after a good wander around the quay, beforehand ...excellent way for us to mark the end of endless trips to hospital and to set the scene for us getting on with stuff......life, I suppose! I'm utterly pooped out this morning mind. lolol
I hope those still on the treatment treadmill are doing OK..it will come to an end.....I'm still here and thinking of you. xxx
mine started a week after the end of my last chemo cycle - i.e. 4 weeks after the last chemo date. they have got better but still have numb/tingling in my thumbs, forefingers and big toes....seeing the onc on Weds hopefully..... so looking for a solution then