hi ladies well i had my first zapping of radio this afternoon - all went well and process took about 20 mins after they could get me lined up properly, but came out feel well miffed off to say the least originally i was having the 15 sessions and today a radiographer informs me and says to me "you know your having an extra 5 booster sessions at the end" ! erm No i didnt ! they cant tell me why until i see my onc consultant and said you will see her in 3 weeks - i dont think so ive demanded this week, no ones give me a prescription for tamoxifen
yet and ive had to ask for that also. the whole process of after chemo care has been rubbish.
sorry to moan i know its only another 5 but i had in my head my finishing date and its now going to wreck another half term with my little ones grrrrrr.
Hi PETA, encouraging to hear your thumbs up for the flamazine.... first creaming done as soon as I got home....ouch!! :/). The cream is only viable for 7 days so I'm hoping that means it is fast acting. 5 weeks is a herculean run of rads Peta, which must be daunting and I think we can all understand that you are feeling - quite understandably blue about it. The end will be coming into view pretty soon - nearly halfway through already 😃 and we're getting ready for you to join us on the podium 🐧🐧🐧:) xx
Jingo_x, glad your appointments went well this morning and I shall be keeping my fingers and toes tightly crossed that it's good news. Xx
LainieG, hope you are doing OK tonight and are comfortable.
It is a relief to hear I'm not the only one struggling with a lack of energy still. My onc said it could take a good 6+ months, which I truly hope not as it is doing my head in already. I had just started to get going again too! 😕
"One sodding day at a time" 💖
Jingo fingers crossed you get good results.
BettyBoppit I think I finished my rads the same day as you and my skin is also very very sore now too. It looks like I have been burnt with an iron and goes all up to my neck. Thought my skin was going to be fine but then started t get sore 2 days after last session. Oh well grin and bear it I suppose.
Talking of eybrows mine are now virtually all gone apart from maybe 3 hairs on each brow. Luckily I went to the Feel Good Look Better session a few weeks ago (brilliant) 🙂 and they showed me how to draw on but I have to laugh at night when I take off the make-up as my face just seems to disapear! 😞 Hair on head is continuing to grow tho and am now rocking the Sigourney Weaver in Aliens look! Ha. You'd think all the hair (eybrows and head hir would grow the same). No eyelashes yet though! 😞
Spring is here at last which makes me feel optimistic! 🙂
thank you all for thinking of me today - MRI done, second attempt at lymphodema appointment done with more informative therapist, and a session with the integrative medecine doctor done - busy day for someone who has finished treatment!
Lainie very glad to hear your bloods are clear, but obvioulsy a shame that they are getting you to clock up a few more days in hospital. Bettypoppit I also have very sore skin now I am post rads (and a bit of a bumpy rash too). The rads nurse gave me some foam to put under my bra to stop it rubbing and I think it helped a bit, but really the best solution is to leave the bra off I guess. I am using tons of aloe vera and aqueous cream and so far the skin is holding up. Peta your long stint of radiotherapy must feel very daunting even now and the days will drag for a bit longer I'm sure but once you get past the half way mark it will start to feel doable.
The fatigue gets me down too, and the pains in my hips and knees and my bl**dy useless right arm. I am supposed to be out on two evenings this week and I am worrying about it already.
Also very sad to wave goodbye to my eyebrows and I am now down to one eyelash on my bottom lids...one! I am tempted to pull it out.
LainieG I just cannot believe the lengths you are going to, for your award 😉 and although I expect you are (understandably) fed up with being trapped in hospital again, it's good to hear that they are looking after and out for you so well. We'll have to keep shuffling around till you rejoin us 😉 xx
Well I just about picked up over the weekend, in no small measure due to the wonderful support from the posse. Thanks girls 😁 xx
My skin is red raw sore under my radio'd breast and the rads dept have recommended both 'flamozine' (cream/gel/oint?) to aid healing which I'm getting via GP this afternoon, and, to expose my chest to either a fan or hairdryer to get air to it to dry the skin out. Well that's what I'm up to now.... I suggest you don't hold that thought too long! lolol. Anyway, i thought it might be worth sharing the prescription info for those posse that still have rads to go.
Can I ask if energy levels are returning yet? Mine aren't and that's really adding to my being a bit miserable. If I walk out with lurcher girl for more than half hour, my legs stiffen up and I then do the 90 year old sofa thing that others have mentioned (which in fact is my starting point each morning). My head is full of stuff I want to do, but my body just isn't willing :(.
Hi Jingo_x, I hope the scan goes well today, I am sure it will. I guess the results will take a while?
Bettypoppit, I am sorry I wasn't around to support you when you were feeling down - I was out of internet access for three days, otherwise I would have been.
On Friday my eyebrows started burning again - like they did with the FEC and sure enough, the few hairs I had left fell out on Saturday. Instead I have dark marks like bruises where my eyebrows should be - my son thought that I had put make up on to substitute! But I noticed that my leg hair is growing back - how does that work? fingers and toes still hurt thinking of going to my GP as the oncologist won't give me anything. He says I should increase my exercise but it hurts!!
Peta, are you finishing your rads this week? It will be great to get another person on the branch.......
Thanks bettypoppit...I figure I won't get an answer quickly and we are hoping to go away on the 28th so part of me doesn't want to know the answer before we go! Hope you've had a good weekend x
LainieG you are really going to extraordinary lengths to ensure your winning of 'most complicated and rare illness linked to chemo including enforced r&r in hospital time and time again' prize and I would urge you to give up on any more bouts of this.....the prize is yours! 😉 lolol. Hope you are still doing good and being well looked after this morning. xxx
P.s The posse penguins are shuffling around still, waiting 😁 lol
Debtex, you're on the final leg of treatment now and we will soon be making room for you on the finished-treatment-podium. I'm thinking we are like penguins....shuffling around - hudled tightly together keeping each other warm and safe as new penguins latch on and cuddle up (mmmmm finally lost the plot I think lol).
Madam, I think in your shoes - if my temp was up at the magic number or i felt particularly rough I would call - even though our bloods should have recovered I would think we are still probably still more open to infections getting a hold. I hope not and your body battles on and you are soon feeling better. xx
Morning Posse, I really don't know what I'd do without you all and such nice things you have said. I've had a good sleep, despite the 'real' bettypoppit camel plodding all over us all night (very unlike her to be unsettled). Feeling like the tears have gone, so I'm hoping for better day 😃. Hugs to all you wonderful ladies. Thank you. Xxxxx
LainieG, really hope you are well on the mend and you get special permission to escape today and enjoy your sons 21st. xxx
Riversidedawn, I'm really sorry to hear you are having a really tough time getting on with your treatment. It certainly is a very up and down time and so difficult at times to get the energy and wherewithall to get on with it. It is soooooo draining, but the end is in sight and you will get through it. Be good to yourself this weekend and hoping you will feel ready for your next step, come Monday. Hugs, xxx
Oh Bettypoppot I do hope you are feeling better this morning. I always find that if I am sore or feeling unwell that's when I feel lowest, and I know you've been left sore after rads. Its hard to think positive when every move reminds us of what's happened to us. You are always on here with comforting words for everyone else - I hope you realise how much this means to all of us, and I hope you know that if it would help for us to get in the Posse chopper and hightail it to you to cheer you up with a tu-tu and DMs/uggs/slippers dance routine we most certainly would do it
Anyone got any expertise in choreography???
Not liking myself very much tonight. Crying and feeling sorry for myself and a little bit alone. I truly hope my posse friends are doing better. Hugs to youall xxxxx
Morning posse 😀 LainieG I hope you are as comfortable as possible and that you can escape for your son's birthday celebrations... keeping my fingers & toes crossed.
I'm a week on from finishing rads and I have a very hot, red and sore boob....the skin has broken down underneath (where my bra is) and is rather painful. I'm slapping on the aqueous cream which does help a little, but any suggestions as to any other creams we are able to use that might heal the open skin? Aloe vera mixed with the aqueous cream, is the only recommendation I can find elsewhere on the bcc forums.
Good luck to those on their last zaps today...Jingo_x and I think geeG. We are shuffling up getting ready for you to join us xx
Lainie what a pain that you might miss your son's party, sounds like they are going to try and let you escape if they can though so I hope they do, missing these landmark moments is upsetting isnt it.
thanks ladies for checking on me, i am ok, hip still hurts a bit but it is easing. very sore and tired after rads today but only one more to go!
I was looking forward to a week of no appointments but on monday i now have an 8.30 am appointment back at the lymphodema clinic as my sleeve is too tight, then 9.30 I have my long-awaited appointment with the integrative medicine doc, then 11am MRI of the pelvis. Not exactly a free day is it!?
Madam I hope the counselling works for you - I spent a few sessions blubbing but think it helped sort my head out a bit in the end. My 6 yr old is the same and always makes me laugh with his take on cancer. This week he asked me if it was called radiotherapy because they have the radio on. Big day at his school tomorrow for comic relief so hoping i make it home with enough energy to join in!