Thanks for the info jingo I will contsct them 🙂
The holding the breath technique sounds really good. Mine was my left boob too, but I think it's all to do with angles and where the lump was, so it sounds like a good thing to do if it looks after you more carefully! You said you were crying Madam, are you feeling a bit more positive now? It's all such a shock to the system isn't it?
I'm looking forward to meeting you in London shortly! 😄 xx
Hi MM - call Eurotunnel. I paid that for an annual policy including winter sport for 5 of us. no tricky medical questions you just have to be stable and not waiting for treatment.
Morning lovely ladies 🙂
I wonder if anyone can advise on holiday insurance? I have been given a quote for £115 for a 2 week holiday (this is just for my insurance does not include husband). Have tried the ones previously suggested and they seem around the same price. Seems expensive. Anyone had a good quote which is more reasonable?
Thanks in advance 🙂
What utterly dreadful past experiences you have all had and it must have made going through the bc treatment, all the more difficult. Bl**dy well done all xx
Thanks Linzz, anything that makes us feel vulnerable and undignified is so wrong if we are in hospital we are either ill or visiting someone else who is so we really don't need and further stress or hurt. Just don't know why some nurses go into the profession. Sue xx
jingo_x, codiesue and mysterymouse I am so sorry to hear about these awful things that have happened. What I described is nothing compared to what you've each been through.
I guess my greatest loss of dignity was whilst hospitalised with a full leg cast. I was left on a bedpan whilst staff went for a break and was discovered unconscious legs akimbo 20 minutes later. I suppose that's a hilarious image, but at the time I could have died from embarassment. I was refused a shower (it had been 4 days by this time) for no other reason than it was too much bother to find something to protect the cast. I complained about that and a lovely male nurse came with a bin liner, taped it over my cast, then left me to myself to wash. I can still remember that shower vividly as it was the first shred of privacy I'd had since my accident and I sobbed my heart out - not about the broken leg, but about how awful I found the whole experience. I vowed I would never be admitted to hospital again. Little did I know...
Anyway, I wanted to send big hugs to everyone xxx
Sorry to hear some of you have had problems with lack of dignity. During my rads I was often seen by 2 young men and felt very vulnerable lying naked on the table with my one good boob all exposed. They were very professional but not a good experience.
Many years ago (26 and 25) I lost 2 sons to stillbirth and then premature and was not treated very well at the hospital I was in and like some-one else was just put in with other mums. I was also made to feel like I was being a nuisance when I had concerns which turned out to be justified and was told I had constipation when in fact it was labour. I still battle with hospital fears and of course with everything that has happened with the bc you have to trust in the medical team but it's hard.
My sight has alos been damaged by the chemo and now have to wear glasses for distance and reading. I was hoping things were going to improve but have been told it's not. Oh well at least I can see with the glasses on only trouble is because they are varifocals I keep feeling sea sick with them! 😮
Thinking of colouring my hair with a semi-perm colour. Have got a L'Oreal one called Berry Red just trying to pluck up the courage to do it!! 🙂
Hi just browsing from November and wanted to say Linzz and Jingo so sorry to hear of your awful experiences with nurses who have no empathy or feelings. I had an awful experience with nurses 5yrs ago when my 79yr Mother was told she would have to wet the bed as they were to busy to take her to the toilet!! She had last my dad the week before and when I complained they said sorry they din't know the trauma she had been through! What the **** has that got to to with it, (My Mum passed away the following week)I had several meetings with Nursing manager and asked fro a restorative justice conference she was shocked but agreed. When the day came she informed me they were not the nurses on duty that night when i asked why she said "I have to protect my staff" pity she couldn't protect the patients! The outcome was further training would be put in place, I told her all the training in the world will not teach them to care that comes from within and if they haven't got it they should not be in the job.I am glad you complained they need to be aware of this callous behaviour.
I have had great care from NHS over last 9 months but sadly some staff do bring it down. Take care sue xx
OMG, how totally awful Jingo_x and I'm not surprised you were upset yesterday either Linzz...just want to give you both a big loving hug xxx. It is a terrible shame and wrong that much more thought and care doesn't go into the decision making to allow for patient dignity and respect. I couldn't agree more regarding why go into a nursing profession, if treating patients with understanding isn't part of the deal.
OH Linzz I can imagine how upset you were - I don't know why patient dignity is so hard to achieve it usually costs nothing. I am having MLD every day this week as a sepcial one off, but the room in which I get naked also has a store cupboard so throughout my treatment staff pop in to get things, have a chat to my therapist and then pop out again. i am there lying on the bed naked with a towel over me!
I am still mentally scarred from 2 awful miscarriages 5 years ago, having been admitted by ambulance with heavy blood loss I then had to go for a scan in the ante natal ultrasound department. they parked me in a wheelchair in the waiting room with my drip, wearing a blood stained gown with dried blood all down my legs and over my feet and sitting on a blood stained Pampers mat. I was sobbing having lost my baby and I was left alongside all the healthily pregnant ladies and their partners for over an hour waiting for my turn. Awful for me but also awful for all those healthy pregnant ladies around me. The second time I begged them not to leave me there again so they brilliantly parked me in the Reception area alongside the queue of people checking in. I got over the miscarriages but as you can see I am still hugely upset about the lack of thought for my dignity. I did complain and it did make me feel better!
Had my pelvis/abdo/chest CT yesterday, and get the results next week. Trying not to worry. I found the whole experience quite upsetting - I guess I had put all the medical stuff behind me to some extent and having to be cannulated and be in a hospital setting again just hit me quite hard. Also, they expected me to sit around in a public waiting room with other patients (of both sexes) with no bra (and hence no boob) on. I spoke to two female nurses about it to voice my disquiet and got not a shred of empathy from either of them. Their response was that the through-put of the department was too high to have things any other way. Don't get me wrong I am very grateful for what the NHS provides, but when a unit is too busy for patient dignity I think that's very disappointing. And I'm not sure why nurses become nurses when they are clearly so lacking in people skills. It didn't help that just before I went in there was an elderly man in the scanner screaming in agony and the same unfeeling nurses physcially restrained his equally elderly wife from entering the scanning room to help him and were very rude and dismissive of her. Awful.
Hi Madam, lovely to hear from you and don't you worry we are getting ready to shuffle up 🐧🐧🐧 a little more, for you to join us on the podium....you're on the home straight now 😀.
I only had to breath normally and keep still, whilst striped to the waist bareing all! Not especially dignified but at this point in the proceedings i guess that doesn't matter too much. I had to go braless for about 2 weeks as my skin totally broke down underneath. I had some cream, but it was slow to work so i did eventually visit my gp and the nurse sprayed something on my skin....possibly with silver in??!?? and that seemed to help. I was slathering on the emollient cream all through rads, but it didn't stop the breakdown. Like any of the treatments, we all react differently and i don't think everyone suffers....I really hope you don't. Good luck for Friday xx
Don't worry, we're keeping your podium space warm for you!
Good luck for radio on Friday. I didn't have to do any special breathing thing, but I've heard that other people sometimes do. Did anyone else have to do a special breathing style when in the machines? I was just asked to breathe normally and not move at all.
Do you know how many radio sessions you are having? Not too many I hope.
Bras, I bought a completely soft non-wired bra from Mark's and Spencer. It's a kind of sports bra shape and it's very comfortable. If you buy it a bit too wide around the back you will have room to get something soft like a new soft flannel or a very soft silk scarf in there, to cushion any sore bits that are chafeing.
You might have to take the bra off for the actual radio session - I don't think they'd allow you to wear a bra with any metal at all in it, and they need to be able to find and see your tattoos to position you correctly.
Very good luck, you'll be fine! xx
Hi Debtex, my big toe nails are yuck too...they both look like they are going to come off they haven't - as yet. I wish they would so I can have some new nails grow. Like you I'm not planning on wearing sandals or flip-flops anytime soon! I think any exercise 'ploddy' or not is good for the mind, body and soul ....onwards and up 😀.
I did a thank you card to my onc, chemo nurses and rads team - the NHS seem to get more than its fair share of criticism and I too am greatful for their care and I wanted to say thanks. I inadvertently missed out my surgeon tho....that part of my treatment seemed already in the distant past (and another building)with so much gone through with chemo. I should put that right. xx
Hi LainieG, blooming docetaxal has had such an impact on our general health, but great news that you are now getting some answers. xx
Debtex, great to hear that your feet are improving as you've had such a bad time of it. xx
Me too on the painful and lumpy boob and I've also had it where it seems to have a pitted line dissecting it in half....weird and a worry, but I'm back on planet denial so haven't made it to the gp's.
I have the breast and underarm pain too. Sometimes the pains feel quite sharp and stabbing. I was told that it's the nerve endings restoring themselves, so nothing to worry about. I'm the same on feeling for lumps though!
Good luck with your appointment today Lainie. 🙂
On no Lainie! That's pants, how can they have not known? I really hope they can sort something out for you soon. When do you see your two eye consultants? I hope they at least can help. Is part of your eye still greyed out, or is it improving? I hope it goes away, never to return!
Junash well done! An empty diary is a delight isn't it? 😄
Junash - get you out on the razz the same day 😉 lol. Congratulations on coming out the tunnel of treatment 🍻 It's great to be cosying up on the top podium 🐧🐧🐧 xx
Oh my word....I would have flipped LainieG... I'm so sorry to learn you've been let down like this. So what happens next? Big hugs xx
LainieG - that is un-expletive-believeable!
Oh for goodness sake! You would have thought they would have known that beforehand.
What did you do?/ I think I iwould have burst into tears with the sheer frustration of it all.
Hi LainieG, hope your MRI went well this afternoon xx
Good luck Lainie
I hope it goes really well and they don't keep you hanging on for results. Let us know how you get on. I'll be thinking of you. xx
You might have had your last one by now. Huge congratulations on getting all the way through to the other side. Well done, you've done it.
Yeah, go girl...Junash, ring that bell...amazing marathon of rads you have endured and now you are almost done 😀. We're shuffling up ready for you to join us (again?!!?) on the podium 😀🐧🐧😀🐧😀 xx
Hurray Junash! Hope you have something nice planned to mark the occasion