Thanks everyone. I'm OK most of the time and then it just hits me hard. I have a week or so to clear her flat (sheltered housing) and the funeral is on Thursday. It's going to be a hard week, but I guess it draws a line under things to get it all done.
oh Linzz, so so sorry to hear this. We're all here for you no matter what.
My thoughts and prayers are with you and your family xx
Ladies, I have lost my dear old mum. She passed away in her sleep last night. I am terribly sad that her last months were full of worry for me. It was not unexpected, but it is a great loss nevertheless. I may not post here for a while, but I'll be back.
Linzz, when I saw my onc a couple of months ago she told me the internal chest pain I was getting was caused by the rads and would just take time to heal on it's own, possibly taking several months. It is now easing so she was right, I hope yours will too. But it did cause me a whole load of worry! But hey what's new ha!
When I saw the onc a couple of months back it was because I had had a major wobble and had had pains in my back, chest and ribs but she was not worried and despite me asking for scans for reassurance she wouldn't let me and just said the benefits did not outweigh the risks of them. I would have liked a scan though and I must say I still would!
I'm due my mammogram next month. What happens on the mastectomy side, does anyone know? Do they ultrasound the area at all? Not really sure what to expect.
Have had a very sore tum for a couple of weeks but doc says it is just my old ulcer flaring up phew!. Had a flare up during chemo but all has been good lately but now being it is naughty again, still if I am a good girl and take the tablets it should help!
Bettypoppet - Lovely you have another dog It certainly helps to take the mind off things and keep you busy doesn't it? I don't know where I would be without mine as he has helped me greatly over the last year. During chemo he was like a big cuddly hot water dog who seemed to know when I wasn't feeling great. i should add at this point that my hubby has been great too!
Hi lovely ladies....not been on for a while as I've lost my life to puppy Ollie....amazing distraction from all the inevitable anniversaries 😀. Still very tired at times (sneaking naps along with Ollie 😉), faulty thermostat (tamoxifen I guess), painful and stiff hands!?!?! and lumpy, itchy boob...but, feeling pretty good nonetheless.
It's pants so many are still having worries and scans and boob drains...really hope all is well and life settles for us all very very soon. Thinking of you all. Xx
P.S. like Murphy, I have an annual mammogram (Aug/sep) and annual onc review (May) and 'that's it'! I still have access to bcn and/or onc if required which is reassuring. xxx
Thanks ladies, you are a very calming influence
I'm not in full blown panic mode really, just when I wake at 3.30 am as I inevitably do (drenched in sweat - yuck) it's hard to stop your thoughts from running away.
That's good news you are making progress on the boob and on the scan LainieG. Looking forward to Saturday too. All we need to do is decide where - I'll go post on fb about it...
Hi Mystery Mouse
I don't think they do routine scans, other than the yearly one, unless there's something up. Are you due your yearly mammogram/scan soon? Is there a particular reason why you wanted a scan now, or would it just be good to have the reassurance? I had my yearly mammogram the other week, but I haven't had any other scans lately.
I had a chat with the onc about reoccurance signs, he said it was difficult because there were so many variations. The obvious one was changes to your breast or breast area, lumps swelling etc. Otherwise, any new problems, or problems that seem to be getting worse are worth discussing with your doctor, even if just for reassurance. I read that the vast majority of people who have secondary cancer, know it already or really strongly suspect - so if you're just worried, but not secretly convinced that you have it, you probably haven't. But I was very much told that they are very happy for you to go and be reassured by them as often as you need, because they understand how awful it is to live with the constant worrying.
Hi Linzz, I'm sorry you're having another bad time. It sounds like your GP is guessing, she'd have no way of knowing whether it was damage from the rads, and even more importantly if it would be permanant or not without even seeing the chest x-rays, even then she's unlikely to be a chest specialist. I had a very bad lung illness many years ago and it did completely heal with time, so take heart, it is only early days and even if your lung is sensitive now, you only just had extensive rads, so poor Linzz body, no wonder it's complaining. Try not to worry, you have only just had a CT as you said. I hope you get the Xray results soon so that you're reassured, worrying is the most awful thing and so easy to do.
Have a great time on Saturday!
Hi Mysterymouse, my CT was because I had hip pain, abdo pain and rib pain and the worry of all 3 together coincided with an onc appt. All was clear, the hip pain was explained by bulging discs, the abdo pain I resolved by eliminating margarine (!) from my diet, and the rib pain just went away. I know its very worrying not being offered any scans OR any advice on what to look out for. When I saw my CT report I saw the request described me as "high risk" so that freaked me out a bit too. Most of the time I keep The Fear in check but with the chest tightness I am worried that it needs some treating so that it doesn't get worse as I read scarring on the lungs can happen. GP didn't seem to think there was any treatment though hence her letter to the onc to check. Did you get any?
Hello ladies, not been on here for a while. Glad you had a great time on your hols in Turkey Murphy, I was there too and agree it was great to think about something other than what's happened Good luck for your body scan. Why are you having one? I wanted a scan but have been refused. So will just have to keep my worries in check.
Well done NicNac on doing the Race for Life. When I did it I found it very uplifting but also emotional. Well worth it.
Very sorry Junash to hear about your mum. I'm sure it will help her that you have been through it but what an awful thing to happen.
Linzz I too have had a tight heavy feeling in my chest. Sometimes feels like bad indigestion. It does cause me to worry about it but trying hard not to. Onc said it was caused by rads damage as I had very bad burns straight through to the other side. Please remind me why did you have the CT in June? I didn't have any routine follow up scans at all and my oncologist won't let me have any. I'm seeing onc again in a couple of weeks so will ask again.
I haven't been made aware of signs to look out for of recurrance. Has anyone?
To all the girls meeting up on Saturday, have a great time!
Hello all. I am having another panic I'm afraid. For a few weeks I've had a tight feelng high in my chest. GP sent me for a chest x-ray to rule out spread, so waiting for results of that. She said its probably lung damage from rads and i will have to learn to live with it. I didn't take this well so she has written to onc too. The only way to get through this week is to assume its not spread (my CT from early June was fine, could something really have sprung up since then???) and hope its just damage. "Just". I really thought I'd gotten away relatively unscathed (you know, apart from the massive scar and missing boob).
I imagine the Posse are sitting on a giant set of scales - on one side all the good stuff in life returning to us and side effects wearing off, and on the other side all the worries and on-going stuff. I seem to be leaping from one side to the other on a regular basis. Sigh.
Turkey sounds fab Murphy. Excited to be meeting you and the other girls on Saturday!!!
Oh Junash that's rotten news about your mum
Her "sod it and went out for a fag" response did make me smile though
Hope her scans are all good xx
Oh Junash, that's awful. I'm truely sorry to hear that... one sodding day at a time now for your mum. Like you and your family haven't been through enough already. Big hugs xx
I've that for several times day for at least 8 if not 10 weeks now - though it does seem to be a bit better this week. I get it in my arms and legs and it's a slightly less severe than the perpheral neuropathy I have and fortuately doesn't last long when it comes. I just assumed it was nerve damage from the Docetaxel and haven't seen anyone about it.
Good to hear of last herceptin injections and good mri and mammogram results.....at last the good news seems to be greater than the bad. Not to belittle the eye situation, swollen boobs , or bad pains etc at all......but it does seem that we are all slowly mending. Although my memory is still shot!
I'm going to my daughter-in-law's nan's 80th party on Saturday and then i guess watching wimbledon on Sunday - quiet weekend for me!
Hi nicnac - could it just be prickly heat? Its certainly the right weather for it. It's easily treated. Might be best to get it looked at by your GP to put your mind at ease/get some cream. xx
Yey to your last Heperin injections Lainie and Murphy! :-)
NicNac well done on your all clear, what a relief!
I'm sorry to hear that you have an extra worry at the moment Murphy, did you have a bone scan when you were initially diagnosed? I think it's probably a good sign that your rib pain has become intermittent, I'd think it would get worse not better if it were something serious. I'll be thinking of you. I hope you have a fabulous holiday in Turkey with your family, I love Turkish food, I went to Kalkan a few years ago and it was just lovely. :-)
So, I got good results too. I had the mammogram results and all is normal, which is fab. My first mammogram and biopsy when I was diagnosed was today (although I didn't get the results for a week), so I guess that today is my anniversary and I can tick off year one, which feels good.
They think the swelling on my boob was a late after effect from the radiotherapy, of which I had rather a lot, so I guess it's not that surprising. They thought it odd that it swelled up so fast, over about two hours, but as it has mainly gone down again, just a bit left, they say they're not worried. Thanks for all your good wishes and positive vibes!
So, back to not fretting for me, well for a bit anyway!
I hope you're all well and not cooking too much in the heat, it's so hot down here in the South! Whew! My husband is bringing his boss here in a few minutes and we're going down the pub, so I guess I should go and put some clothes on. ;-)
Thanks, that's very helpful to know - that makes sense doesn't it? I'm sure my boob has huge bits of scar tissue in it and all sorts of swellings and bumps now. I guess I'd rather they took their time and looked at the scan properly rather than rush things. I'm really glad you said that though, I won't be grumpy if they haven't finished looking at it now.
On a good note, I've just heard my parasol and garden furniture arrive on Friday. The hottest day is tomorrow, but I guess it will be good to have the parasol by the weekend. That does mean that it's almost certainly going to rain at the weekend though, sod's law! :-) This sentence dedicated to "Think of nice things, don't get worried about your boob, think of nice things, don't get worried about your boob".... ;-)
Have a good day in the sun ladies. :-D
Good luck today nicnac, I hope you breeze through it like Debtex, whose consultant had a good old rummage and came out smiling! I love the phrasing Debtex! I'm seeing my Onc Consultant later today too, so we'll see what he has to say. I had a mammogram yesterday, I thought my poor old sore swollen boob was going to pop, it bought tears to my eyes! I might get the results of the mammogram today too, but they said they couldn't promise to get it looked at before I see the consultant, which seems a bit pointless to me, but there you go.
I hope you all have a good day!