Happy birthday AMDriver and welcome to the Podium People really have no idea do they? So far I have managed not to thump anyone. Given a few hard stares though LOL
Ooh Madam, sounds sore - I hope it soon starts to ease for you - are you at least on decent painkillers?
I hope the new nipples look great Lainie!
Good news on getting some relief for your feet Debtex even if you are now constantly on the move....
I finished my rads yesterday so I can come onto the podium. Boob is a bit red but doesn't hurt but been told to keep slahering it with aloe vera get for at least two weeks.
It's my birthday today and I received loads more cards than in a usual year, and more texts too. However, one acquaintance on hearing that I have been told I am cancer free wished me a happy birthday and said how good it was that "cancer is not what it used to be". I know you will all be honest with me and tell me if I am overreacting but my first thought was to say "you try having it" and then i just wanted to thump her!
Lolol great description Madam, but ouch ... sounds very sore and I hope you are healing and will be much more comfortable, very very soon. Also hoping you are home, being looked after and enjoying your kids xx
Excellent LainiG - must have been a bit surreal!
Great stuff LainieG, way to go girl and big bonus no pain for the gain 😀xx
Just been catching up and group hugs definitely still needed <<hugs>>....good luck today Murphy and hope you can recover and get the results quickly. I stood looking at my face yesterday in the bathroom mirror, admiring my eyebrows....what a difference they make - I had no idea before all this! 😀😀😀. Other than the fatigue - I'm still being defeated by this every day, oh joy of joys my numb tingling feet and puffy, aching hands are easing....I'm still as stiff as a board mind and when I can find the energy I think yoga will be a good idea....but I truly, fingers & toes crossed, hope that things start to ease for all the Posse gang soon. (I'm 3 months on from last chemo so I think I was one of the first out the tunnel).
Junash, hope you're doing ok and Madam you had a comfortable night and will be on your way home today - thinking of you both xx
Good luck for your wee op tomorrow Murphy. I hope the biopsy results come back quickly so you can put this scare behind you. Lainie I'm so sorry to hear you are in such pain. I am crap at dealing with pain and when my back hurts I always wonder if this is what the rest of my life will be like. It has always got better (touch wood) and I think yours will too. It's very hard to see beyond the now isn't it?
I would agree about complaint-fatigue setting in. My OH hasn't even asked how I got on at my appt yesterday and so I haven't mentioned it. I can see him tune out sometimes when I've got started. He's been marvellous, but he's like everyone else - thinks now that I'm back at work it's all over. Wish that was true.
Work is whole other issue. Chemo laid such waste to my digestive system that I am finding it physically impossible to get out the house at a decent time in the morning. Sore back and flushes are keeping me awake at nights too. I am meant to be back up to full time hours within the next couple of weeks. Not sure how I'm going to manage it.
But, as Lainie says - there is a bright side - eyebrows and lashes. Mine are getting really long now and I am loving them. Going to try to get to the hairdresser this week too. It's still thin and overly short on top but the sides and neck need attention so I'll get her to tidy it up. She can take off a quarter inch round my ears and it'll feel like the best haircut ever
Thanks everyone. I saw a lovely registrar today who was very sympathetic. She told me she wasn't worried about any of things I was telling her but she has ordered a CT scan "just for completeness". So, whether she was trying to keep me calm, or whether she really thinks there's nothing to worry about I don't know, but at least if the scan shows nothing wrong I can start to work out how to live with the SEs I'm having. And if it does show something... well, I'm not going to go there for now. WIll take a few weeks though for the appt to come through by the sound of it. But at least I feel something is being done.
Good luck for getting home tomorrow Madam And virtual hugs to everyone else who has worries and pains (that's probably all of us!) x
Madam that truely is great news...so often it's getting to talk to the 'right' person that can make ALL the difference. Hope your drain sorts itself out and your bp goes down, so you can head off for home comforts tomorrow. Don't forget that if they won't let you go tomorrow, the tutu's and Dm's are on stand by 😉 xx
Good luck Linzz, fingers crossed that you get some answers to settle your worries. Oh, and that you get to see your oncologist! x
Can I pile in with the group hug please? I'm off to final onc appt today and have questions about some symptoms that are scaring me. I'm hoping they're se's of the tam, but of course my mind is taking me to dark places. Can't help but think nothing short of a set of investigations is going to convince me its OK, but having tests is in itself stressful. Struggling a bit this morning to keep myself under control.
p.s. Murphy and Lainieg - I'm loving that you have partied hard last night and are feeling the pain today..... 😉 lolol. Go girls xx
Oh Junash, bl***y hell..big hugs to you too .... here it comes <<hugs>> <<hugs>> <<hugs>> xx
Hi Madam, sounds like you could do with a big posse hug....here it comes << hugs>> <<hugs>> <<hugs>> - gently of course. It must feel like a terrible knock back, when you have been enjoying a break and getting on with stuff, to be back in hospital, sore and fed up. Sounds like the nursing staff are agrivating things too 😕, fingers crossed you can have a better few days. Personally, I think 'coping' has 2 meanings and often its that 'you're' doing a blooming good job at fooling everyone that everything is good when it's not! You've been through so much and you've just had major surgery, so please ease up on yourself...if you feel like tears and anger... I think go with it as I believe it is better out than in! You will be joining us soon on the podium 🐧🐧🐧
Debtex, re the new bc drama - from the trailer I've seen it looks like she's been having lots of fun through her treatment......mmmmm don't get that! 😕😕😕
Hahaha good for you Junash, much better for the soul to be 'fighting' back than imploding....go girl and fingers crossed that 60 minutes or much much less becomes the norm. You are now several steps closer the end. I've got my tutu out of storage just in case you need to call in the posse 😉.
I too have now abandoned my beanies and am going out and about frightening the natives with my 1cm long charcoal grey head... feels good doesn't it 😀 except for the double takes from some!
We're still enjoying some extremely nice weather here in Staffordshire Moorlands and I hope you are too xx
Junash - that's just awful. I wonder if you end up having to lie for a long time again, whether you should demand that a more senior rads person can come to assist (if you haven't already). Surely you can't be the first woman to be a wee bit oddly shaped! I know my hands started to go numb and my shoulders started to hurt within just a few minutes, so what you're having to endure must be torture. Actually, if all else fails call for the Posse, we'll come and sort 'em out for you!
AMDriver, such good news for you - enjoy your champers
AMDriver that is fantastic news, clink those champers glasses and celebrate ...wonderful and soon to join us on the podium....it's getting really cosy on here lol xx
Madam, you sound in good spirits after what must be quite an operation and I hope you will soon be more comfortable and on your way home. xx
oh Junash, how absolutely horrible - my first session was 35 minutes to get me lined up and I felt like crying then - I would definitely have been in tears if I had to wait 1hr 20 minutes. I really hope it gets easier over the next sessions.
Great news Debtex - I'm really pleased for you, that must be such weight off your mind!
And well done Nicnac for giving your children somthing great to look forward too after all they have been through over the last few months.
Bettypoppit so sorry to hear about your appointment but well done on insisting on seeing the right person - after all you have gone through and are still suffering you would think they would at least familiarise themselves with your case before speaking to you. How rubbish!
I still have tingly and numb fingers and toes, though the fingers have got better with the acupuncture and I will be having some more next week - despite how excruciating it is, because neither my onc nor my gp are willing to presctibe anything.
Saw my onc today for a review - I have 3 rads to go next week - and he told me that the lump they took out had no cancer in it at all! So I have an excellent prognosis and he thinks that it is highly unlikely to re-occur. No promises of course, but he was really very pleased. I was with my daughter so we were both very happy and we went and bought some champagne to celebrate this evening. Just waiting for dinner to finish cooking before we open it.
Looking forward to joining those of you one the branch next week..
PETA, I'm wondering how you are doing and is your skin holding up after your marathon of rads? I hope so. x
Hi Junash, that is just awful for you. If you're having to lie prostrate, arms above baring all - and I'm assuming you are - for 1&1/2hrs!!! well I'd be sobbing too and feeling very fed up and absolutely NO, that is not pathetic. I found the lying prostrate half naked in an empty room with a big buzzing machine moving about me, very disconcerting....surreal. I'm sure others did too. You will get to the end and the sessions might get easier as you cross them off. Don't forget, we're still huddled on the podium waiting for you to join us 😀🐧🐧🐧 hugs xx
That's fab news Debtex, what a relief. And well done Bettypoppit for cutting short the pointless consultation. What a joke!
So far with the tam I've had two boxes of one kind and just started on a different one. Some of my abdominal pain has gone already, so I really to wonder if it was that. I had begun to cut out food stuffs to try and work oout what the problem was (previously similar symptoms resolved when I stopped eating margarine). It's hard to imagine the amount of excipients in these wee tablets can affect us so much, but I really think they can do. Bad news is that the next box will be the third brand I've had. I guess at least I will be able to evaluate the SEs of each and then get the GP to add my preferred brand to my script.
Off out into the sunshine now. To go to work