Hope you all had a good weekend. Hope SE's ween't too bad for those who started chemo in the last few days.
I'm at day 11 now. Most SE's have gone apart from tiredness and some finger stiffness and nail beds are a bit tender. Haven't had nausea apart from after the Neulasta injection.
Attended a Children's cancer fundraiser on Saturday and £600 was raised for the Children's Cancer Ward at Yorkhill Hospital in Glasgow. It always feels good to be helping others with the disease.
Sunday was busy and eventually I had to lie down and sleep.
Good luck to everyone who is starting this week. Hope it's not too bad for you.
Hiya April Bunnies,
Day 3 still not too many SE's just a bit of a sore mouth, constipation - eating plenty of fruit and drinking plenty still. Had some nausea this morning but it had gone by lunch time.
Appetite is ok at the mo but some cooking smells make my tummy turn.
Glad to hear lots of positivity from all the ladies on this thread.
We can beat this terrible thing and the chemo is helping us in the battle.
Many small SE's to ladies that have started and good luck to all the ladies that are starting very soon.
I am starting on wed and so is teabelly so we're all in this together, hope your infection clears up in time. I'm making more wig calls tomorrow as i havent found one yet either, bit of a short supply in my neck of the woods 🙂
Hi all, just caught up with the mighty thread after returning from a few days in north Wales which was great.
It's fantastic to hear that all the early starters are doing well and providing such support for those to follow. I start my chemo on Wednesday and is it me or are there quite a few of us starting on or around the same day? Let's hope we do as well as the first trail blazing bunnies!
On a less positive note my wound infection has only just started to get a little better. I might not even get to start on Wednesday which would be rubbish now I have worked myself up to it. Anyway I have not even contemplated a wig yet but listening to everyone I think I better had as its clearly a must have chemo purchase. I am back to the hairdresser tomorrow for my first buzz cut. Weird but at least I'm still in control.
Re nice juices, has anyone tried Cawstons apple and ginger juice. I'm not a ginger lover but can manage this and you can easily freeze it to make cubes or lollies.
Keep going everyone - stay positive
Hi all, well its day four, no side effects only that I cannot get to sleep, so I am not complaining. I really do think that the milk thistle is working as it is helping my liver flush out the nasties, which can make you feel iffy. Well on another search this week for a wig, just in case the cold cap does not work. Although I havent had any side effects, today I felt very down and had a good cry on the way to the garden centre, got there with streaks down my face, tried to pass it off as hayfever. Maybe I should slow down a bit. Anyway sorry if I am not making much sence, think my brain is not functioning as it should so I will sign off before I waffle. Love to all Elainexxx
Dear PPixie, I have just read your post of the phone conversation with your mum. It made me laugh so hard that I cried. Sounded exactly like a conversation I had with my nana. Thanks for the aughter medicine. Apart from cake it's the best cancer cure xx
Tracy I think anything that cools the mouth is good, cooler the better tho. The woman next to me on Wed had a home made lolly that looked good. Then she got a small frozen block in a bag out - not sure what these are called but they are available for kids in all supermarkets, but completely thawed. My hosp offers to put frozen things in their fridge but this neighbour of mine hadn't taken up the offer. I'd say be self sufficient with really hard frozen stuff, whatever takes your fancy. Easy with cool bags, ice blocks, thermos.
Pixie, my bloods can either be taken at hosp regular blood sucking dept on Monday before Wed chemo or at my GP Monday morning. Blood results get to chemo nurses Tuesday and I assume if too low they would phone to postpone. Like you I'm really hoping to stick to every three weeks. Sadly I think my hard won Olympics tickets may not be used by me but I'm hoping I manage to get to my events on Aug 3 - last chemo should be July 25. See, already the endis in sight!!!
Keep at it bunnies. Back tomorrow I'm sure!!
Thanks, Margietee- I was a bit sceptical about the ice-cubes, but I will definitely take them now! Welcome Campo; it is bad enough dealing with this stuff at home- I can imagine how stressful it must all be for you. GMT- good to know that you are off work as well. I had my MX in February and they gave me compassionate leave in January after the diagnosis, so I haven't been at work since then. I have no idea when I'll be able to go back, which is a bit of a worry really. I am trying not to stress about it, but wondering whether there will still be a job by the time I am finished with all this- what with recovery, radiotherapy and then reconstruction!!!
Only two more days to go before CDay and half an hour till the last episode of Homeland!
Take care everyone,
Margietee i read somewhere you can suck Calipo ice lollies instead of ice cubes do you know if thats right i hate ice cubes but if it stops mouth ulcers ill give it a go
I have got a temporary chemo bag but going shopping tomorrow after my pre chemo tour and chat so might have a new one this time tomorrow hopefully in my bag there are tissues, mints, book,and towel Anyone tell me anything else that need to go in
Welcome Campo glad you came and joined us
Well i dont know whats up with me i have cleaned the whole house today then the car inside and out i just cant stop cleaning think it must be to take my mind off this week
Lots of love Tracy xxx
hope it all goes to plan for you. I'd love to continue working but still only 4 weeks post mx and my work revolves around illness so was told i'd be putting my already hampered immune system at greater risk, nothings ever simple is it.
Just read your other post about positivity ..... if its down to positive mental attitude OH tells me i'll be fine as i'm positively mental and have lots of attitude 🙂
love sharon xxx
Well once I get this portacath fitted I will be a one woman drive up for Dracula!!
Thanks for the info, its what I expected but reading some of the posts on other forums, ladies who have been going longer than us, they are getting bloods done 3 days before chemo dates and if white cells are not at a certain level, chemo is cancelled.
Hope this never happens to me as i am continuing working the 3rd week in every cycle and would be a real difficulty to have to cancel clients at short notice.
regarding blood taking, i know all hospitals and centres vary but where i am they ask you to go to the hospital haematology dept an hour before chemo is due, they take the bloods and report to chemo suite before session is given. As i said, may not be the same where you are but lets hope you dont have to DIY and post it lol
love sharon xxx
Good afternoon bunny girls
Sarah you are sounding so positive and i am really thrilled your SE's are not too debilitating. I have bought a smoothie and juice maker. Idea is, even if I feel sicky, I can make up a smoothie with rice milk and lots of organic fruits so get some nutrients in me. As for prodding the lump - I had to giggle at that one as was terrified that I could 'break it' and make it splatter all over the place. My onc told me 'it's a cancer tumour, not a boil and you can't burst it, splatter it or do much else to it as its not filled with anything, its a hard dense mass'. So prod away, girl!
No-one has told me anything about ice cubes, ginger, sore mouths... but shall now take a flask of ice cold ginger ale with me (whey hey! at last something to join the solitary packet of tissues in voluminous chemo bag!)
This BC is costing some serious money thus far - and I haven't started chemo yet! Spent £100's on 3 wigs, a very sassy but expensive 'chemo bag', a pure goose down duvet and pillows and just been out and bought an ipad3. OH is out but by the time he gets back, I will have thought of some reasonable justification for purchase of ipad. (I have a Mac desktop, a MacPro notebook, 2 other laptops, a kindle, an ipod, an iphone... so am going to have to come up with a real goody this time - usually use the fall back of I can off set it against my tax bill, - giggles)
Have been hearing a lot about the taking of bloods prior to chemo sessions and white cell and red cell counts... Does anybody know where this actual blood letting is done? Is it at the chemo unit or does one go to the GP surgery. or perhaps one just draws off a couple of vials oneself and pops them in the post?
Last night, I had yet another 'chemo dream'. In this one, 2 nurses came up to my hospital bed wheeling a trolley with 3 demi-johns on it full of liquids - one bright pink - and yards of tubing... I dread to think what this whole business is doing to my sub-conscious. I have had cancer dreams ever since the day of diagnosis so I must be inwardly anxious even though I don't feel it when I am awake.
Enjoy the rest of your Sunday bunnies and good luck to all who are starting this coming week:)
Good afternoon Ladies
Day 3 and I'm doing okay! Yesterday I felt sick and nauseas most of the day and didn't do much! Not sure if it was because I didnt drink enough - the taste of water was making me feel sick so I must admit I couldn't get much down me! However carried on with my antisickness pills and was feeling better by midnight - unfortunately I was wide awake by than and than couldn't sleep. Today regardless of the taste I'm trying to keep drinking and not sleep during day! I found a fantastic juice orange, carrot and Ginger that really does help with the sickness! It's in Sainsburys and to be honest before this I hated Ginger but can definitely stomach the juice!
I admit I've lost my appetite and am constipated! Don't fancy any food but forced some tinned prunes, a slice of mango and a dollop if yogurt down me to try and get myself unblocked.
But too be really honest this is nothing as bad as when I was pregnant a few years ago! Unfortunately I got whole day sickness for 9 whole months and was constantly throwing up even at the smell of certain foods! And I got through that with no anti sickness tablets!
I keep thinking about what the medicine is doing hopefully zapping those nasty cancer cells. When I first found the lump I kept poking it and touching it hoping it would just go away! But now am worried all that poking might have caused cells to break free and escape- sounds silly but now focusing the drugs will get any strays!
Denise its knowing I'm not alone that's helping me I am still very scared. My hairs all chopped off and I can't bear to look in the mirror but my little boy came to me and said "mummy you look beautiful" that made me cry. My OH told me the I'll always be beautiful!
The ONC nurses said tiredness Is a cumulative effect so sounds like towards the end of treatments is when fatigue will settle in so gonna try and make the most of the first few sessions!
So glad you other ladies are doing okay with SEs.
Love Sarah x
yeah i know Campasol, been a few times, mom n dad lived there until 2008, they were up on D. Mom is still in touch with a lot of friends there, she only sold the villa last july.
Hi Sharon - I used the name Campo for Country however, you are right I am on Camposol - you obviously know Camposol - how? Love Hilary xx
Morning all april bunnies.
Hilary does your name suggest where in spain you are ie Campasol? Just curious.
Have a good day everyone
Morning Girls - Thanks to Tracy she pointed me in the right direction of the April thread - Thank you Tracy. I start Chemo this Thursday. Had the lumpectomy and lymph nodes removed. Read a lot about side affects etc. but a case of now wait and see. Now I have a confession - I am not based in UK but in Spain. I am a Brit living in Spain, just now. Just reading from the posts on this web site UK and Spain do things diferently. Spain does throw everything at you treatment wise but no BC Nurses and of course although I speak some Spanish it is never good enough for the medical world so I have a translator for Onco appointments etc. With regard to hospital stay hubby did what the nurses would do in the UK. Yes we are talking bed pans etc! Families members are expected stay with you during your hospital stay. So when you mention chemo bags, cold things for head - I dont know about these things. So if it is alright with you all - even though I am not in the UK I hope you dont mind if I read the posts and ask questions. I had long hair which has now been cut in preparation for the "glamourous bald look" and I am busy trying to track down a wig. If anyone knows of a good wig maker who is happy to correspond on line that would be very helpful. Much love & positive thoughts to you all. Hilary xx
Sameelee, I'd give the ice cubes a go from the first session. I did and have had no mouth soreness. Whether or not I would have done without the icecubes is another matter but at least it made me feel I was doing something to help myself be in control of something. And the chilled water was comforting.
The only thing I felt of the drugs going in was that my forearm started to feel cold a few mins after the red drug started going in. The nurse was expecting this and brought me an electric arm wrap which was warm and also comforting. Red wee was entertaining! Didnt last long tho.
I had a really quiet day yesterday catching up on i-player and today am feeling much more my normal self. onwards!
Happy bunny sunday one and all.
I might be getting ahead of myself ( no pun intended) but I have a very close friend who lost her hair permanently at 21 and she is taking me to her wig lady on Friday ( don't start FEC till 26 th) . Thort this may be of interest to anyone in the Birmingham area, she is supposed to be really good, I'll let you all know how I get on and pass on details if anyone is interested.
This crappy stuff is still sinking in and I keep finding myself in floods of tears. I think this is the worst I've felt about all this, it just seems never ending and I haven't really started!
Tho I just have to keep remembering what the RAC man said to me when he came to fix my car a couple of weeks ago, he knew I was going to be ok as he'd known people who had died of cancer and I didn't have 'the look'. So that was very comforting and will share with the onc when I see him next !
Are many of you working ( re Sameelee' s post) I'm also a teacher so will not be working for the foreseeable .
Going to see my sister in Barnet for a few days to get a change of scenery, she fell 2 weeks ago and broke her hip! My dad who is 81 can't believe what a pair a crocks he's got for daughters!
Have a good Sunday everyone, the sun in shining in Stourbridge, hope it's shining on you.
Lots of love GMT xx
It feels like ages since I posted and how this thread has grown! I have just read it all from the start again, trying to hold everyone's names in my head, but failing miserably. How do you all do it? Easter came and went for me down in Eastbourne with my sister. Got a bit sad about the fact that I will miss my nephew 's wedding in May because of the chemo; it's in Italy, and my onc said best not to travel so soon after the 2nd dose. Started wailing ( back at home) that I won't be in any of the photos, but OH suggested photoshopping us in later.
Anyway, am back home in Cheltenham now and like you, Tracy, am on countdown to Wednesday. Haven't yet done any wig stuff; forgot to take down numbers at the hospital today. Thanks for all your stories pixie! Really admire all of you who are working ( are many of you still working?) whilst having treatment; I'm a teacher so the school needed to get someone in to cover me, which meant that I could take the time off. I also have only recently found out that I need chemo, and I felt the same as you, GMT. Now I just want to get started so that I can actually deal with it rather than imagining it all.
I asked the nurse today whether you feel anything as the drugs go in, and she said not; I had also read about the ice cubes. Does this really help on the first dose, ot just the later ones?
Have embarked on a few Pilates stretches at home remembered from a course ages ago, in an effort to keep fit, and because my 19 year old son has been worried that I' m not oxygenating my body enough! If only it were that simple!
Have resolved to catch up with you all more often, or I will lose touch again with who's who. Congratulations to everyone who has had started the treatment you are all my role models, so keep posting. Good luck to anyone who's suffering any SE's. I tried reminding myself of all the hangovers I have suffered in the past as a result of over- indulgence, in an effort to get some perspective. Remembered winning a bottle of whiskey in a raffle many years ago, sharing it with friends back at my flat, after a gentle evening drinking lager and lime, and being completely unable to lift my head off the pillow the following morning. Is nausea different if it's self inflicted. I guess so!
Here's to a restful night; take care and stay strong. You are all doing brilliantly to shake off this nasty stuff.
Good evening April Bunnies.
Hope everyone is well and those who have started chemo are having minimal SE's.
Thanks Denise and Tracy for your comments, weeing is in shades of red / pink and soon goes back to normal.
Day 2 still feeling fine with minimal SE's - no nausea or sickness. Just felt a bit flushed earlier that was probably the steroids and I have a touch of constipation ( I would rather be constipated than have the trots), will get something tomorrow to help me out.
I have been drinking water like crazy and weeing for england. Mouth is a bit sore but appetite has not been affected yet.
Hope the rest of the weekend goes well for all the ladies and hope next week does go well for all ladies starting chemo.
thankyou for that. I am an FEC girl or should i say i will be 🙂 I have a soup flask somewhere, will need to dig it out.
all other advice very welcome
Sharon, can't remember if you are one of the FEC girls. If so, one of the three fec drugs is prone to give sore mouth probs and I was advised to take in ice cubes to suck while this drug was going in. Hubby put ice cubes in a thermos and they stayed solid. You either need a wide top thermos or stainless interior for ease of getting them out when needed. we had a second flask of iced water which I found a great advantage. Margieteex
Glad you all seem to be doing OK.
Libby - welcome to the joys of Chemobrain! That slightly fuzzy and detached feeling - and you find yourself putting the wahing up liquid in the fridge. A good word for it (and yes, it is a real word) is discombobulated!
Ambarose - I wore contacts all the way thru chemo with no probs. I use daily disposable so they are really comfy. As always, be guided by your body - if your eyes get gritty, dry, etc - stop for a while.
Hoping you're all having a good weekend
I'd like to second teabelly on congratulating all this weeks starters on how well you've all done. Hope we can do as well next week.
I havent got a chemo bag yet but found a great link on here this morning, was under the "undergoing treatment-chemo" heading, tips for chemo. I printed it out and have just been shopping, brought baby toothpaste, a soft brush, cosodyl, bonjela, baby shampoo and oh yeah the prunes lol. Also got mints n pineapple juice, lots of flavoured water. So at least i now feel ive made a start in preparation. If anyone thinks of anything else pls let me know.
Popped into work while i was out and one of our young apprentices asked me if i minded her doing "race for life" in my name, i was really choked by it.
Love sharon xxx
Afternoon everyone, well dare I say still no side effects, just a bit tired, I think I may have gone overboard with the painting yesterday. Mind you this morning got up early to get to the shops, I live in Southport and its Grand National day, so wanted to get to the petrol station , waited in a long queue took the petrol cap off, went into pay, stood in another long queue to pay, and hadent put the bloody petrol in. The woman looked at me and said " dont worry its your age" I nearly jumped over the counter and hit her. Sorry I am not usually like this, but she really took great pleasure in shouting this. Anyhow hope everyone is having an ok day. I am having trouble remembering peoples names so forgive me for not reffering back to messages,brain not functioning to well. so love to all Elainexxxx
Morning Bunny girls
Natalie Hope you have a good time at brighton bet you will get a good chemo bag
PPixie your stories make me laugh i cant wait for the next post and still havent found a chemo bag and i start on wed im going shopping on monday with my mum after pre chemo tour so i sure i will find one
Well done Tash You are all doing so well im also having FEC-T on wed didnt know i was going to wee red I hate being sick so will take whatever drugs they give me
Im on countdown 4 more days to go want to say you all have done well this week lets hope we all do aswell next week
Lots of love Tracy xxx
Hi bunny girls!
I'm chillin' today. A friend said to me when she heard I had to have chemo: be kind to yourself. I think that is the best advice ever and I'm doing it today. Hubby had to go out so he bought me tea and toast in bed, then I watched all of Saturday Kitchen live and other things that followed. How wonderfully lazy!
I'm feeling much better today - honestly my SEs have been very minimal. Yesterday was my worst day 2 days after - less queasiness than overnight on Thurs, but I was totally exhausted, but I think part of that was that I did a bit too much including going out to choose my wig. That's done. Gone for a short style in similar colour to my own - perhaps a bit boring but it's the one that felt right. I might now get a couple of fun ones but we'll see. Chrisp I enjoyed hearing about your headstrong experience. Looking forward to mine on wednesday when I shall be both model and technician!
GMT and Amberose, welcome! GMT I think your BCN is yours for the duration and if you have a good rapport with her I'd keep in touch with her throughout. Like pixie, my chemo team of nurses are much more down to earth than my BCN was and I can identify much better with them. I think it's down to you how you play it. I've been really impressed with all the medical team so far with my BCN being the weakest link (oops) but she was helpful in some respects I hasten to add! GMT like you it was a real shock to hear I needed chemo as my surgeon said from the word go that he didn't anticipate it, just rads and hormone therapy, but then they found cancer cells in one of the 4 sample lymph nodes and when the onc said we couldn't tell where they might have 'seeded to' and also gave me the stats for potential recurrence of the bc, secondaries etc, it was a total no brainer. It's all so horrid really, but we can do this. I keep thinking of all the children who go through chemo and cope and that helps spur me on.
Elaine - yes, like you I've been given a whole stack of different anti-sickness meds. An anti sick intravenous dose during chemo, steroids for 3 days, and the domperidone which they said to take as a matter of routine for 3-4 days irrespective of how I was feeling. I realised yesterday that I under-dosed on the steroids on Thursday - dose is x2 twice a day and I took x1 twice so I'm wondering if this is why I got the queasiness. Who knows. Important thing is it's not there now. I'm going to look out for that milk thistle. Sounds good. And I demand a bottle of Dom Perignon when this is over - yes domperidone does sound like it but no comparison!!!!
Well done everyone that's now started and good luck to next week's bunnies.
Last comment for now - pixie - your mother - what an absolute hoot!!!
Love to all. margieteexx
Good morning all.
Pixie you have just had me in stitches reading about the bubbles, i was reading it out loud to OH whilst laughing and crossing my legs as i needed a pee, thanks for the laugh !!
I could visualise that situation, so funny, just one question, were you tempted to start singing, "i'm forever blowing bubbles" springs to mind. Lol
Have a good day everyone
love sharon xxx
Good Morning bunny girls
Denise - you are awesome, how ever do you manage to remember what everyone has posted? I do the scrolling on the pink bit but only get the last few. Anyway, big thank you for being our most inclusive bunny:) Have just ordered goose down duvet and pillows from John Lewis. OH said "and how much were they" - again I told him the equivalent of £15 a chemo/herceptin session. (he will work it all out eventually)
GMT - I was also lead to believe that I wouldn't have chemo. Stage 1 tumour, clear margins and nodes, grade 2 and 8/8 ER+..... but, (there always has to be a blooming but..) I am HER2+. Onc told me that without chemo my prognosis is very good, and he wouldn't give me chemo if it wasn't for the fact, I can't have herceptin without doing chemo first. he told me that by doing the chemo and herceptin, with my other factors, my prognosis changes from very good to excellent - that I will be shut of this once and for all.
Knowing all that still left me reeling and very upset but found that the ladies on these boards, particularly the old-timers, gave me all the strength and support I could have wished for and within a couple of weeks moved on to acceptance and 'lets get on with it attitude'. I am now finding that there is so much fun goes on here, I would feel short-changed if i wasn't part of the bunny girl gang!
My BCN has sort of faded away - no great loss as she would talk to me in a soft voice with her head permanently tilted to one side as if I was a blooming half wit - and kept patting my hand! Find my chemo lot much more earthy and suit me better.
Natalie - enjoy Brighton! I love it there and am sure there will be the perfect chemo bag for you - when we meet up we can bring our chemo bags with us! Some years ago, I booked a boutique hotel in Brighton for husbands birthday. All the rooms were themed. We ended up in the Mandarin suite. OMG - it was like sleeping on the set of Aladdin - everything was dark wood and red and gold and great big carved dragons on the four pillars of the four poster. The easy chairs were 2 big carved dragon thrones in gilt and red. W had a huge jacuzzi in the bathroom - also in gilt and adorned with dragons. So I turned on the taps, added sensuous bubbles and then turned it on to jacuzzi and went back into the bedroom to enjoy a glass of something with my husband whilst this huge tub filled.
After about five minutes I got up to see how the jacuzzi was doing, opened the bathroom door and was faced with a solid wall of thick white bubbles that proceeded to spill into the bedroom. OH shouted 'what the hell have you done'... told him I had turned on the taps, added the sandalwood bubbles and turned on the jacuzzi. I am far too much of a lady to repeat what he said.
Of course whist we are debating, the jacuzzi is doing its stuff and filling the bedroom with bubbles. He had to dive into the middle of it all and get to the taps and the jacuzzi controls. he had to do this by touch as the bubbles were so think - and I am thinking, OMG, I am going to be on the 6 0'clock news for having suffocated my husband by bubbles. meanwhile, I have opened the bedroom window and am throwing out handfuls of bubbles onto the pavement below. We spent the whole of the evening getting rid of this thick white foam and by the time we had done, were exhausted and passionate lovemaking was about as far off the agenda as you could get. Natalie, I hope your weekend is suitably more restrained!
Had another HRT withdrawal rotten night and look like I have been dug up this morning. Off out to lunch with friends so will liberally apply the slap - and may take one of the wigs for a test run... now shall it be Roxy, Tallulah or Coco... decisions, decisions..
Have a wonderful Saturday one and all, those who have started may your SEs be teensy weensy.
Thank you for all the welcomong support. Can anyone tell me if wearing contact lenses is possible/suitable during chemo?.
Welcome to the thread. Sorry you're having to have chemo and it's completely understandable how you're feeling just now. I think everyone feels like that at the prospect of how chemo will affect you. I started chemo on 5th April and although I didn't feel too good for the first week, I'm much better now and just get tired if I do too much. Whatever medication they give me, e.g. anti-sickness meds, I take them routinely until they are finished and certainly this time I've had no problems. Some chemos are harder on you than others but they can always give you meds to combat SEs. Some ladies have very minimal SEs. I want to say try not to worry but you will anyway. Try to enjoy that iPad - I'm quite jealous! - and use it ti distract your thoughts and not just to research cancer,etc. To cheer yourself up, read pestering pixie's posts. She's an inspiration and will keep you smiling if not crying with laughter!
Pesteringpixie, I've just read your phone conversation with your mum. It's every bit as funny as when I read it yesterday! Thanks for your upbeat attitude.
Hope everyone has a great weekend and that those who have just had chemo this week are not suffering too much!
Hi, thanks for your comments and support. Havent slept much tonight, can't get the chemo news out of my head.bless my sister for the iPad she so generously bought me which lets me read horror stories, kind words and look at wigs! Just a short question about BCNs, after I saw surgeon who felt my treatment would be minimal , my bcn said well that was all good etc and I got the feeling that was the last I'd see of her. Can I keep in contact now I'm on the treatment path or do I just speak to chemo nurses etc, hope this doesn't sound stupid!
Sorry another question, I've got my pre chemo chat on same day as my first chemo, I'm wondering if should try to change it as I don't know what should eat before hand, take with me etc.
Hope everyone has a good weekend,
Sarah, can't believe how far you've come since your post on 3rd, you were so worried about everything and look at you now, your first treatment out of the way with minimal SE's and feeling fine - well done you!!
Hi GMT & Ambarose, welcome to the April gang.
GMT sorry you've had some unpleasant news, I thought I would only be having radiotherapy but after lumpectomy I was told much the same as Margietee , that my tumour was grade 3 and would also need chemo to reduce the risk of a re-occurance, so I know how much of a bombshell that is. Whatever road you decide to take you can be sure to get plenty of support from the great ladies on the April chemo journey and please don't apologise for the language, believe me I've described it MUCH less politely. 😮
Ambarose, it takes a while for the soreness to go completely, mine's still quite sore to the touch so don't worry too much. You will certainly find some first class tips here together with lots of support so you can be sure your not alone.
Ppixie I can personally recommend the goose down duvets, got one just over a year ago and wouldn't change it for the world, John Lewis do a really good selection so worth giving them a look.
Hi Tash, so good to hear another positive 1st time lady. Like you I'm paranoid about sickness but am now feeling so much more reassured by you and the other ladies who have had minimal problems. You can be sure i will also be taking the nausea meds on a VERY regular basis, where me and sickness are concerned its definitely a case of prevention being infinitely better than cure!! Its great that you're able to have your treatment at home and that you're feeling fine, had no idea I would be weeing in technicolour though, is it just one shade or can you request variations 😉
Saw BCN today and we've agreed on a tour of chemo unit on Wednesday then starting treatment on Friday, so am down to London for a couple of days of the stress relieving pursuits we've already mentioned and will be making the most of a great Malaysian Rendang from the Selfridges food court, think it might be the last one for a wee while :o(
Also found out from my wig lady that we are all entitled to get wigs VAT free so means a saving of 20%....can't be bad!
Well done to all the SE free ladies and a great weekend to all
Hi April bunnies
I just wanted to wish you all a very happy weekend. I hope you all have a good time whatever it is that you may be doing.
I am now in Brighton and have just retired to our room after fish & chips and a walk on the pier. I am off shopping tomorrow and I may just look out for that chemo bag Pixie, lol.
Will try to keep reading your posts over the weekend from my iPhone, but will definitely touch base with you all again when I get home.
Hope the SE's stay away girls, you have all done so well this week.
Love and hugs
Just wanted to pop in from March to say keep going. I've just had my third FEC of 6 and se minimal, just slight nausea.
Wanted to actually say what a great poster you are Pixie, so many stories and your mother what a hoot, i love the idea of a poltice, i remember my sisters mother in law used to plaster them on my nephew when he was tiny and ever showed signs of a cold, it drive my sister mad. Im sure oncologists, and medical research are missing something here. My mother in law is a similar age and she keeps saying oh your so wonderful, an inspiration, your parents would have been so proud of you. Bless , it's not as if I've found a cure for this. I had an 81 year old next to me yesterday during treatment and he was also such a hoot.
Keep going ladies you'll get there in the end and I'm sure Pixie will keep you going.
I started my chemo today. I am having FEC-T treatment (3 cycles of FEC (Fluorouracil,Epirubicin and Cyclophosphamide) and 3 cycles of Taxotere). All is well so far. I was a bit apprehensive before my treat as I had it at home and not until 2:30 this afternoon so had a nervy morning. Having my treatment at home was very relaxing and the nurse was very good.
The nurse had a few problems getting the red drug (epirubicin) with my thin veins and had to resite the cannular twice, she is recommending that I have a PICC line inserted before my next treat. I have also been left with several different anti-sickness drugs (ondansetron, domperidone and also metoclopramide in injection form). Also got 3 days of steriods (dexamethasone) also to help with anti-sickness.
Feeling ok at the mo with just numbness in the mouth and a slight metallic taste. Having red coloured wee was a bit strange at first but it is already going back to normal colour. I am def going to take the anti-sickness even if feeling ok as I cannot stand feeling or being sick, so fingers crossed it will be be controlled.
I have already ordered two wigs of which I can choose one and I should get it in about a weeks time. I have also got some scarves and caps for sleeping in.
I hope any of the ladies that have already had treatment have minimal SE's.
Hi I am starting chemo on May 2nd 2012 so I too feel apprehensive about this. I am still very sore from WLE and SNB on March 30th.
I have found reading the top tips useful but also find it difficult to imagine that my appearance is going to changw so dramatically over the next few weeks.
Sorry to hear you had a couple of mild SE did they give you tablets to take if you felt a little queasy. I take the Emend first thing, they also gave me Domperidone (sounds like the champagne) to take whenever I feel a bit sickly. So far I havent had to take them. Nurse came to give injection and was ok after that as well. I dont know if it helps but I am told it does, I also take milk thistle 3 times a day, this really helps the liver get rid of the nasties . I hope you are ok tomorrow, I am just hoping that I can continue to feel ok.Tracy you will be fine and I will be thinking of you on the day, dont worry about the cold cap, it was really ok.
Had to laugh at Pixies mum, my mum swears by wapping all types of sore throats, back ache, my dads gout in his toe with silk scarfs!!!
GMT I hoped not to have chemo but it was explained to me that as the tumer was grade three and over a certain size, that they would advise me to have it. This would be like a mope up job so to speak, I am also one of these people that if I did not have it, I would never rest thinking it may come back. It could but having the chemo will reduce the risk. Love to everyone I am just hoping I will sleep tonight , if not I will be hear later.xxx
Hi GMT and welcome to the gang. Sorry to hear your news but we can all do this together.
Teabelly i;m on the isle of wight but know nottingham well, i went to beeston college, grew up in long eaton many moons ago 🙂
Love sharon xx
i go to hosptal on mon as well which hospital you at im at city in nottingham
love tracy xx
Hi everyone, can I join in? Saw onc today and told he would advise me to have chemo, definitely rads and hormone treatment. This has all been a bit of a shock as surgeon told me two weeks ago it was v unlikely I'd have to have chemo, possibly rads and most likely hormone treatment. It's been a complete turn around. He's given me a week to think about chemo, got another appt next Friday, but made a provisional appt for chemo to start 26th April . My tumour was 8cm so that is why he said chemo is the best road to go down. I'm feeling this is a no brainer and should just go with it. My mum died of ovarian cancer at 47 and being near her age (50) , i know how devastating this disease is for everyone involved. I'm a bit shell shocked to say the least. All the way through from first diagnosis, consultant felt surgery would prob be enough with hormone treatment. Would be good to know there are others going through the same shitty stuff ( sorry about bad language but really mild compared to what I'd like to say!) and also give my support if I can.
Love to everyone,
Pesteringpixie - your mum sounds a bit like mine! Only we spend our time trying to dig her out of the hole she's dug herself into. Doesn't think before she speaks at times and told me when her friend was diagnosed with bc a few years that it's too bad having to go through that when you're 78. I reminded her that I was only 47 when I had my primary but she said that I was better able to deal with it. I was a single parent with 2 distraught children!
margietee: I went to headstrong today. I took my daughter with me and my mum invited herself as she thought it would be quite interesting! She is 81 and partially sighted. Don't know how much she took in but don't reckon I'd ask her to help me tie a scarf. poor mum. She is a tower of strength in other ways. Anyway you get a free scarf for going!!!! You can buy a square scarf for £3 and a contrasting scarf for £1. They show you ways to tie the scarves - I was the model so my daughter was tying the scarves and they give you ideas on how to dress them up a bit. I thought it was quite good but like everything else you don't take it all in at one time. You can make an appointment to go anytime throughout your treatment to get more ideas but you can find ideas on youtube as well. It seems a good wee centre and I've been referred for complimentary therapies as well.
love to all xxx
OMG, PPixie... I love your mother! Laughed so much at your post I nearly needed to get some tena pants!! And definitely didn't realise that a poltice was all we needed lol!!! My old Nan used to make me bath in Dettol when I was a kid (god rest her soul) and I bet she'd be having me up to my neck in hot water and full of John Collis Brown's medicine which she reckoned cured EVERYTHING.
Thanks to all the ladies popping in to say hello from the other threads, you're really inspiring and I think it's fair to say that we are all really nervous until we get that first chemo session under our belt. Congrats to all our April girls who started this week - go girls, you're blazing a trail for the rest of us slackers! Tracy and Sharon - I'm on for Wednesday next week too, so will be thinking of you two at the same time.
Had a bit of a wobble yesterday as I did a little bit of work from home... okay I did a lot and was exhausted and tired and a little cranky by the end of the day. I'm trying to balance things carefully but sometimes I forget that I'm still only a couple of weeks from my surgery.
Talking of which, I'm back at the hospital on Tuesday for a check up of my wounds - one of which is not quite healed enough which might delay my chemo session. I'm due to have blood tests and meet up with the onc again but haven't really been told about the chemo sessions - how long they last, what I need to bring in, where I need to sit and I'm a bit in the dark about it at the moment. I guess they'll go over it all on Tuesday or I might have to ask!
In addition, this week I'm going to sort out my wardrobe for some nice positive clothing to wear (the new smaller boobs have made a huge difference as I can now do up my blouses!) and a proper bag to take with me. I've got a lot of handbags and had settled on a nice orange floral one that might do but will have to see how much I can get in there!
Finally, today's been a good day and with the sun shining I had a little outing to have my hair cut. After stressing about it last night, I have a very stylish new pixie short cut and I look fab! Well, everyone says I do, and I even look a bit younger so with the new boobs I'm definitely doing okay!
Have a lovely day everyone,
Hi all, glad its going well.
Teabelly i start on wed too and like you feel more encouraged by these brave ladies who have already started.
I have an "education" session on mon at the unit, was told they will then tell me what to take etc.
keep the positive posts comming girls 🙂
love sharon xxx
Elaine so glad all went well for you and still feeling ok i was thinking about you all day how long was you at hospital for? im on countdown 5 days to go but you have made me feel better about starting hope you carry on feeling well
Well done sarah and Margietee you are all doing so well im not half as frighten about starting next week well ask me on wed morning bet i will be petrified but you all are doing so well
P pixie you make me laugh i cant wait to read your post to find out what you have been up to im going to buy myself a chemo bag such a good excuse but what are we putting in this bag ???
Good luck to anyone starting
Lots of love Tracy xxx
Well done Libby and Margietee so pleased your doing well.
I had my first dose yesterday was so scared going in at one point really wanted to go home! However I survived!! I was perfectly fine but must admit I kept counting the hours done 1 hour nothing got to 6 hours nothing so went to bed. But than woke up at 4 in morning feeling sick and quesy quickly took my anti sickness tablets and no vomitting. I also didn't get Emed but got 3 other tablets for sickness including dexamethasone.
I feel fine now Other than a flushed face and a slightly quesy stomach in fact all the stuff Margietee described this morning. No where near as bad as I'd imagined. But can't help but worry about the nasty SEs kicking in at some point later on.
Getting my hair chopped off today was intending to go for a shorter Bob but definitely going for a much shorter pixie look now because I was so hot last night due to all my hair.
Good luck to everyone starting soon love Sarah x
Love the Hibiscus margie 🙂
Just posted this on the "what makes you happy thread' but thought I would include it here - as you get to know me, you will inevitably get to know by proxy my 82 year old mother and her twin sister who live in the north of England and ring me every evening. This was last nights phone call..
She phoned last evening to tell me she had been 'thinking' - it went something like this...
M: "I've been thinking'
Me: That's nice.
M: When you were little you had whooping cough and the doctor told me we had to keep your chest warm, so I used to make a bread and mustard poultice and put it on your chest every night to draw it out.
Me: I remember. My skin was so yellow people thought I had jaundice.
M: yes but it worked, you haven't got whooping cough now have you? Anyway, why don't you make a poultice and put it on your, you know on your...
Me: On my what?
M; You know, where you had that lump thing, that they took out in your operation.
Me: Mother, are we talking about ,my breast cancer here?
M; I don't like that word, its not nice.
Me: What, cancer?
M. No not that word, that's all right, that other word you said.
Me; What, breast?
M. (sigh and a tut)
Me; What do you suggest we call it then?
M; We never called it anything in my day! We didn't use those sorts of words.
Me: (loosing the will to live..) so, what is you have been thinking about the lump that I had removed from an area between my belly button and my chin?
M: That you should put a poultice on it, to draw it all out.
Me: All what out?
M. The cancer of course, Aren't you listening?
So there we have it, all the millions that are being raised for research when all they need to do is buy a large white sliced and a tin of Colman's English!!! Shall ensure my onc is fully informed.
The hibiscus won in the end - from my garden at my house in France!