Hi all - sorry I've been quiet for a while but I've been feeling sorry for myself!
Vanns - we seem to have been affected in a similar way by the TAX. My swollen legs are subsiding a bit now, and I keep them raised when I can - but if they're down the feet start to swell again. My feet still feel odd - sort of numb and yet not numb at the same time. Still, the good news is that I've lost 6lb since water retention eased.
Same problem with fingers - nearly all my nails are lifting off by various degrees and my fingers are sensitive so a lot of tasks requiring pressure are difficult. Cracked one forefinger nail right near the base just putting washing into the machine. One thumbnail almost ripped off whilst topping up tyre pressure - very painful! Have got it stuck down with nail glue for the time being, but don't think that will work for long.
Muscles in my thighs feel really weak - even climbing the stairs seems a huge effort, and they get sore if I try to walk anywhere. I read in another thread that the leg swelling etc can be delayed reaction to TAX, kicking in a few weeks after last treatment.... it just surprised me as I hadn't heard of it as a TAX SE before. Like you, I've been wondering if/when I'm ever going to feel 'normal' again and it's all very frustrating. I feel absolutely fine when I'm sitting down - but as soon as I attempt anything requiring effort, I feel very weak still.
Still not a glimmer of hair regrowth, 7 weeks after last TAX. I know I was having the maximum doses of everything as I'm a large person. They usually calculate doses using height/weight but the dose is capped at a max level, and I was on that. That might explain why I have all these lingering SEs... perhaps it will take longer to clear my system.
Will finally get my results today, so fingers crossed they'll be clear. Scars seem to be healing pretty well. When did you all start using moisturisers etc? So far I've only used soap and water in the shower as didn't want to put anything on that might cause irritation/infection. Did you wait until the scabby bits disappeared?
Drove again for the frst time for nearly two weeks yesterday - what a relief to be mobile and independent again!
I'm glad that everyone seems to have finished chemo at last.... hope the TAX truck rolls away pretty soon. Also pleased to hear that a lot of you have been able to take holidays, get on with gardening and housework and are feeling more energetic.... although it does make me feel jealous!
Pixie, hope you're OK - you've been very quiet, but I think you had training sessions planned so perhaps you've been busy with work. Your portacath saga gets worse and worse. Did you ever make a formal complaint about that initial insertion? I think it's important that the person responsible is retrained so that they can't inflict the same amount of damage on anyone else... it's outrageous what you've had to go through.
Hilary - hope you enjoy your Yorkshire trip - but also hope you're prepared for the temperature drop - it's got quite cool and breezy now - definitely autumnal. Would definitely have to be an indoor spa over here!
Lee - definitely a good idea to split up during shopping trips! I don't like shopping at the best of times and absolutely hate having to trail around after someone else especially if they're dithering. I think I have a male attitude to shopping - go in, get what I came for and leave! I think I would have disowned your OH too if he was causing that much havoc with the mattress!
Anyway, need to sort myself out ready for hospital appointment. Take care everyone.