Wendy and Pixie, great news on your results!!
Vanns, so good to hear from you again, we have been really worried.
Gadgetgal, glad you had a good time away.
Sarah, really feeling for you. You are absolutely not a failure! Do what your body tells you to x
I have been away from the forum and busy again. Surgeon recommended CT and bone scans for peace of mind (?!?). Onc said it was completely over the top but to go ahead anyway. Bone scan clear just waiting for CT result.
I got asked to go back to my previous place of work as a contractor, three days a week (my request) for the foreseeable. I started back on Monday. It was nice to see people and do something "normal" for a while. A couple of the chaps had to stick their foot in their mouth after telling me my haircut was rather severe!
I have had my first haircut!! I must be a really hairy person. She shaped around my ears and neck and it has made such a difference. The little fuzzy bits that grew back during the chemo have gone as well. Eyebrows and lashes are back. I saw a photo out of the corner of my eye of someone holding toddler, and at first thought it was either oh or my stepson. Nice that I have almost as much hair as them, would be nice to feel more feminine though.
I coped really well on mon and tues, working full days then coping with toddler on my own as oh was away. Unfortunately everything went out the window on tues night when toddler was sick all night. I took her to the docs on weds morning and he phoned the hospital as soon as he saw her to tell them we were on the way. Turns out she has a bug and dehydration. Mum and Dad were on their way up anyway for her birthday (two yesterday), so have been a huge help. Since then both nights have been sicky so I am having a pj day today which I haven't done since chemo.
Sending big hugs bunnies the bunnies, Jill xx
Hi ladies, glad you had nice holiday gadget girl,and good luck with rads, great news for the all clear Pixie, but what a shame about the shoulder. Vanns welcome back, and I take vitamin B6 for my feet too, and also Lyreca and somethings working, not sure which pill but feet although still tingly and go red if walk too much, but thats soooo much better. Hope the vit B6 work for your feet, if not ask about Lyreca at the GPs.
Eyebrows..... mine are coming back now, but are blonde ?????????? not white, they used to be dark brown, so have to use pencil on them to make them show! eyelashes , well I can feel they are coming back, but if I try mascara, it seems to miss them, they are quite light coloured too, really weird! but my hair is coming back dark brown, which is good, as had thoughts at the ripe old age of 57 it might come back white or grey ! Our family dont go grey early, for some reason, and mine was brown still before chemo, so I am grateful for that ! Didnt want to start dying my hair yet !
Oh, well, just finished some long awaited gardening, havent done any all summer, except mowing the lawn, so you can imagine what a state my garden is in! My garden isnt that big really, so done 3 wheelbarrows of weeds and cut down grapevine, and thats my lot today !
Back to hospital agin on Monday for the dreaded top up of expander implant, thats if they can get it in this time, good news is I dont have to see surgeon till February now, for check up, so now the reconstruction to look forward to !
Well, best go and do some shopping now and get dogs arthritis pills from Vets, Oncologist reckons my painful hips are arthritis brought on by chemo, his is just arthritis due to 2 x cruciate ligaments being replaced and operation on front leg, so we are both old crocs now !!
have a lovely day ladies, and hope anyone with aches, pains, rads, feel better soon.
Hi, Margie and Southpool, I'm having and indulgent day at home too. I've been out and about every days this week, and I have nothing planned so it's recharge time. In addition, I'm knitting a christmas pressie for a friend and a hat for my mum. I made myself a lacy beret in pure merino and mum liked it so much she wanted one too!
I have a Scandinavian themed lunch club on saturday (in honour of the new series of The Killing). On Sunday I have a photography meet, the first one I've been to since chemo.
I don't know about HD eyebrows but I did get mine tattooed before chemo. What I did was pluck and shape them myself for a couple of weeks beforehand so that they were exactly how I wanted them. At the appointment, I asked the, to follow my eyebrows exactly as they were. That way, I made sure I got something I wouldn't regret.
My eyebrows are quite feint anyway, so even though they've back, i never have to pencil them in.
It seems with HD brows they work with what you already have, over a course of sessions? Seems like a good option to me.
MarGie just a quickie my acupuncture works on unblocking energy channels & Wednesday for about 3 hours after treatment my fatigue lifted for the first time in months. Definitely worth a try, the research says 6 sessions were proven to improve fatigue and so far I am hopeful.
Gaynor your pill is in the post this morning! Pleased you enjoyed your holiday and that it did you good. Like you I felt blissfully unaware last Christmas what 2012 had in store. Though I felt my lump 4 days before Christmas I was sure it must be insignificant because I'd been given the all clear on my recall after my November mammogram and told they'd next see me in 3 years. Ignorance can be bliss But reality set in in January when I had ultrasound and then the biopsy.
Vanns, thank goodness you've popped your head up again. We've all been so worried. So sorry to hear you have this soreness/infection, and although you are clearly still worried at least you are back in the radar. We have to put our faith in the medics sometimes and go with what they say. Easier said than done, I know. My last appt witmyths onc registrar was similar so I asked when they can say you are clear. He was eventually persuaded to say that 'we would say that you probably have no evidence of disease'. It was like drawing blood from a stone. Great that you have all the other treatments stacked up for feet, arm and head. We will all get straight eventually. Even Pixie!!
Pixie, you really do win the prize for unusual ailments. It is so good the scans didn't show anything sinister, but the Hils thingy sounds really debilitating - and we saw how your shoulder was at bunnyfeste So we know how it is affecting you. Keep us up to speed won't you, both on that and on the deep seated infection and on everything else. Pleased the root canal wasn't as bad as expected. Good news about Lorraine Kelly.
Southpool, good on you sorting out yesterday. You deserve your fluffy bunny day today. Ambarose, so sorry you are feeling so blue. You know you can let rip on here anytime. We are all there for you and you'll soon be on the up and there will be someone else taking your place in the blue room (Unfortunately for whoever that is). Southpool, m eyebrows are coming back. And I actually managed to use a little mascara on the lashes last weekend. It is the 'you know where' regrowth that is exciting me the most!!! id be very nervous of having Any sort of tattooed brows done or similar. I would be bound to hate them and then be stuck wi them for life.
must go and have a bath or shower now - oh is coming home late morning and we are popping in to a Christmas food and gift fair for a few hours, then I have 90 mins of reiki and reflexology to look forward to this afternoon. And I can't wait!! It makes me feel so much better. I feel at the mo as if my energy channels are blocked. No Zumba this week and no gym. Not had the energy after the grandsons weekend and my day out in London o Wednesday. Not surprising I suppose. I need to learn to pace myself, but this weekend we are off into the country tomorrow (dare I say that my oh shoots?) I go with him and walk what I can manage. Then Sunday we are off to Essex to see our second son and his wife and of course toddler grandson too. I love being a granny!
lots of love to everyone. Have a restful, enjoyable, peaceful, kind, gentle weekend.
Lovely to see you Vanns, good news on your lump Wendy & your shoulder Pixie.
Glad you had a good holiday Gaynor, that sunshine & break away from bc is such a tonic.
Nat thank you for the sage tea tip I am off to purchase some today as I am convinced stress is making my sweats worse, they were constant yesterday and I'll take anything to help.
Thank you for the good wishes for yesterday, it was a tough day but all the planning and hard work up front meant it went as well as it could do & my team were lovely & supportive. The nature of my job means I regularly have days like yesterday & they never get easier. That is one element of
my job I definitely won't miss when I finish in February.
It must have been free meal Thursday for bunnies yesterday as Lee I also got a free meal in Waggamammas last night because it was delayed. We went to a concert in Manchester cathedral & didn't get home until 12.30 so today I am like a damp dishrag. I do think acunpunture is helping the fatigue but it can't work miracles & yesterday was a long tough day. Doing nothing today!
Ambarose sleeping badly just makes everything seem worse so anything you can do to knock it back to normal must be a good thing. I'm with the Pixie theory of hormone tablets, they mess you up! Enjoy you tea with Lee. I'm meeting up with Libby in a couple of weeks and really looking forward to it.
Bunnies has anyone else got eyebrows on the missing list, my eyelashes are coming back fab & I love my hair but my brows have gone AWOL other than a few grey short bits. Am considering getting HD brows done but am nervous about ending up with scouse brows, so any advice would be welcome.
Love & virtual hugs
Ps Pixie I really like Lorraine Kelly & like Cherie Blair she has shown she is a woman with taste!!
Good news Wendy, and welcome back Vanns!!! You had us all worried. Fingers crossed that the anti biotics do the trick and you 'll soon be out on that golf course again!
Had a lovely day with oh for birthday; bit of shopping, free lunch in Brasserrie Blanc because the waiter madE a mistake with our order! And then a film ( Argo) at the screening rooms. My feet are stillseverely stiff all the time, but I try not to think about it. Good to hear that some of us are upbeat, but as has alWays been the case on this damned roller coaster, you never know when the next thing is going to bring you down. One day at a time..... Looking forward to meeting Sarah for a cup of tea tomorrow afternoon. Feel privileged to have made such lovely new friends.
Sleep well all, even if some of us need a bit of help along the way,
Good to see you back Vanns, we have missed you bunny.
Sarah, i am so sorry you are wobbly. Since i was taken off letrozole my quality of life has improved greatly. My energy is great and i am busy working, happy bagging and socialising. I have a theory about these hormone treatments, not medically based just Pixie logic.
Around my 50th birthday, for no reason,life started to get dark. I was anxious, tearful and easily felt overwhelmed. I was referred to a menopause specialist. She did blood tests and told me my oestrogen was low and this is why i was so wobbly. She put me on HRT and inserted a mirena coil and within a month i was back to myself.
Chemo rushes us headlong into menopause, add to hat tamoxifen and its no wonder we get wobbly. Because of my history and having to stop hrt immediately i was diagnosed, i was prescribed citalopram back in March. I continue to take just 10mg a day and i seem to be on an even keel most of the time. So Sarah, its not a sign of weakness, its about balancing the different medications to give us the est quality of life we can have.
Had root canal done. Was a doddle. Reckon cancer treatment has toughened me up.
Right big news and really bizarre news..... Saw onc yesterday and got results of all my scans... Wait for it...
1). I have been given the cancer all clear, am officially a NED
2). I have a deep seated bed of infection under portacath wound so am once again on nuclear strength anti-biotics
3)... This is the cracker... mRI on my shoulder shows no evidence of cancer, nerve damade, tendon or mscle damage. However, i have a Hils Sachs deformity and some other Latin names. Bottom line is i have a shoulder that is constantly dislocating in and out of the socket. No wonder its been hurting and clicking. So have urgent referral to orthopaedic surgeon for pre-operative assessment and another operation to look forward to. I was delighted. Honestly. I had been so worried it was permanent nerve damage or even secondaries in my bone that a dislocated shoulder is like a gift. Cancer really does change yor perspective.
Today gt cheery note, autographed phto and a tweet from Lorraine Kelly who is now a Pixie Appy Ag suporter. How fantastic.
Gaynor, glad holiday was good. Margie, you keep up that zumba lady... Waving to Mary and much love to all.
I have just been reading back through all your posts and sooo many of you havewritten lovely things. It's truelywonderful to have such good cancer chums ( much better than non cancer ones)
Lee never worry about email. It's fine by me.
P.s. my posts are like busses - never one when you need one then loads all at bloody once
Sorry I haven't posted. Apparently I have another infection in my cancer boob? ONC examined me and could feel a thickening which was tender/slightly painful but has decided that it's probably fine and is most likely an infection or scarring from rads. He didn't suggest any further scans which I'm a little perplexed about. However chemo nurse ( who is effectively my new BCN because one is off sick and one is all mixed up in this Ian Patterson cancer storm) has said if after the antibiotics it's still the same I'm to see the surgeon again and he will most likely ask for mammograms. I'm also a bit cross that my ONC has sort of signed me off but has not used any nice words like NED or all clear or remission. He said they don't do that? Clearly I begged to differ. He has also prescribed me vitaminB for my feet, physio for my arm and counselling for my head ! I have been a bit all over theplace for the last week so I haven't been on the forum or looked at anyone's postS but believe me I have felt your vibes.
I will catch up on all your posts over the next few days but thanks for your thoughts and private messages
Hi everyone ,
Ive just caught up on 60 posts so forgive me if I don't remember everything. I had a lovely holiday, weather was generally good and it was lovely to feel the sun soaking into my bones. It was also good not to think of bc for a week. I slept quite well so fingers crossed I can get back into sleeping better with the help of amitrptyline doc prescribed before I went away.
Sarah, I'm sure if you are not sleeping well it will be compounding things. I felt I was really struggling when I wasn't sleeping. I've been prescribed sleeping tablets in the past and they have helped. Do give them a go to try to get your sleep pattern sorted. Doc has given me amitriptyline this time as you can take for longer, so perhaps an alternative to check out.
Being in the sun made my brain think I was coming back to the summer so it has been a bit disconcerting seeing all the Xmas adverts and even the odd Xmas movie on some obscure cable channel! Suppose I'd better think about a bit of shopping. I was blissfully unaware of what the next year held at Xmas last year after having been dismissed by one of the gp's at my surgery when I went just before Xmas with a lump. Thank goodness for routine mammograms, my first early in the new year.
Take care everyone. Pleased everyone (hope I'm right) has finished rads. Margie I'll send tablet tomorrow, did wonder if we caused a drug bust sending stuff in the post! Vanns, hope you are ok, like everyone else worried not heard from you. Sorry cant remember any more, oh yes, pleased you are getting rid of the coconut shell before xmas Lee, looks like mine won't be till Feb or March.
Love to all,
Hope you begin to feel better Sarah, my friend recently started Tamoxifen and is having trouble like you, so must be related to it, as Ive read it troubles lots of people.
I dont have to have it as Im triple negative, so it wouldnt do me any good, one way Im pleased about that, the other way Im not !
Anyway, fingers crossed it gets better for you.
So nice to hear all the news and glad the results are good Wendy. Pixie i hope the tooth is settling down. i need some of your positive energy right now.
I am not feeling too good at all and have a) phoned BCN to ask if I could stop Tamoxifen in case that was making me feel so down-answer no, please keep taking it but come in for a session next week to talk through everything that has been going on. So I will. She said a lot of ladies feel like this!
b) made another appointment with my doctor today as opposed to locum of last week as things have not got any better and I feel low and anxious. We discussed anti depressents and I have a presciption for some and also for some sleeping tablets to see if that will kick start my sleep pattern back into some sort of normal rhythm and prevent the awful 3am lurch into wakefullness with anxiety churning around my head and body. Trouble is now I have them I do not know whether I want to take them. It feels such a failure and the thought of work nearly freaks me out and I actually work at a lovely place with lovely people. I just know I could not handle anyone elses problems or deal with any management issues without it being a huge problem.
This is not a good place to be so sorry for the moan. I cannot believe I am feeling like this as the time in treatment I felt quite positive if i remember correctly.
I might be meeting up with sammeelee tomorrow in Cheltenham if we can coordinate times in the afternoon which will be lovely. As you said margitee, it is lovely to have this new set of friends who we would never have known if we had not had the dreaded BC.
Anyway sorry again for the depressing post -I send everyone my love
Wendy - brilliant news. So pleased for you. Teabelly, nice to hear from you - hope the infections go away soon. Any idea what's causing them? Pixie, I'm thinking of you lying in the dentist's chair. Hope it has gone well and that the tooth fairy starts to smile favourably upon you from now on. Any news of MUGA/MIRA results? Nat, well done on finishing rads - and good luck with that conversation about the fazed return to work. Definitely the right thing to do.
Southpool, hope your acupuncture helped yesterday and that your day today has gone as smoothly as possible. Horrible having to tell people about redundancies. I only had to do it once or twice, but hated that aspect of management. My grandson, sad to say, seems to have forgotten I was ever a pirate!!! He never sees me in my scarves any more. Both of them kept stroking my head over the weekend and the older (pirate) one caught sight of Minnie the wig on her stand and asked if he could try her on. I think I know where she is going to end her days .... in a certain little boy's dressing up clothes. His latest outfit is a knight's armour. Better than the scary skeleton he had for halloween.
Sameelee, in case I don't say it at the time (because we are going away), good luck with your op. It will be good to have it behind you and you should be on the up for Christmas. Christmas shopping - I did 95% of mine online last year and plan to do the same this year - I vowed I wouldn't because it seems so much less personal, but actually I found I was still thinking a lot about each individual as I shopped so I've decided it's the way to go. As for OH presents though - I agree: impossible.
Big M your fluid problem sounds horrid. Hope it resolves soon and also that the lymphodoema doesn't worsen - hope none of us gets it badly. Your BC get togethers sound good - as do Libby's. I've not accessed anything like that. I did look online to see if there is anything like the course that Libs is on but can't find anything locally. I'm going to try again though. Not giving up.
I do wish Vanns would get in touch .... and Little Chick, we've not heard from you for ages ............. and Christine, how's everything going?
I feel we are a close knit little group of friends who really care about one another. It is a wonderful feeling, but how amazing that none of us knew each other less than a year ago - well, little more than half a year ago. We've come such a long way together and I think we all deserve a huge pat on the back, stroke of our ears, tickling of our whiskers.
It seems incredible that this weekend brings the start of my journey. November 18th was the date of my first mammogram - the one that led to my recall for the other boob, but nevertheless I feel it was the start of my cancer story. I think others in our group will have started around the same time. December 21st was the date I felt my tumour for the first time so I am looking to Christmas to be a celebration of the end of this traumatic year. I know I still have a way to go to get back to fitness, but I am so determined to get there. My day out in London yesterday, meeting college friends, left me totally whacked but I am trying to learn to listen to my body and to follow a day like that with a day like today when I have done nothing much except finish a book and do some emails. Strength will return to us all in due course and we just have to be patient. Of the group of six of us from college days, I am the 3rd to have breast cancer. The other two were in 2000 and 2002 and both are absolutely fine. It was good to see them yesterday and see how well they both are.
Onwards and upwards! That should be our motto.
Rachel, my hair seems to be growing like yours - onwards and upwards to the centre, though mine's still a lot shorter than yours was at Bunnyfeste.
Lots of love to everyone, whether or not I have mentioned you by name in this post. Keep smiling. Keep being kind and gentle to yourselves.
Had mammogram and ultrsound today on new lump I found, but been told its not a cancerous lump, this time, thank goodness ! they didnt do a biopsy on it, said they can tell from those results, I do hope so !
HI all, firstly Vanns hope you are ok please give us a wave, and Pixie good luck with the scan results. Well I had a fab Spa day at Hurlston Hall and met some lovely ladies, some in the middle of chemo, some like myself on the Herceptin and others who have been clear of cancer for a very long time, it was so good to chat and share experiences with them. Two lovely ladies start Tax in the next couple of weeks after having fec. It was good to be able to tell them what my side effects were, and also those of us on the thread, hopefully they will have a look at the forum tonight as I said its a fantastic support if you need it. Teabelly good to know you are ok sorry to hear you about your infections look after yourself. Southpool don't do too much its not worth it, and it will only set you back. Big M I am having my hair coloured tomorrow, had a good chat with the hairdresser, who said it would be ok, her sister also had bc and knows all about the effects of chemo on the hair, be sure to do a product test before you use the colour, to make sure you don't have a reaction. Soooo looking forward to having my auburn hair back again. Off out again tonight so will be back tomorrow. Love to all Elainexxxx
Re eyebrows and lashes - I have no sign of lashes but brows are on their way back. I had forgotten how unruly they are and was actually getting quite used to drawing them in in a neat line. Hair on head growing a bit more - anyone know how soon after chemo you are allowed to dye it? Being white/grey simply does not suit me!!
I am in the wars a bit, and sympathetic to all the others who are suffering. After I had my surgery in May, for about 3 weeks I had fluid on my back - bit like a hot water bottle effect. The BC nurses used to drain it every few days but finally they said I needed to let my body absorb it. This worked fine, but now suddently after 8 months, I have developed a bit sac of fluid on my back. It is so uncomfortable, and worrying. Also reconstructed breast and right arm ache all the time, which gets wearing. Saw the BC nurse today and she has measured me for lymphodema, confirming that the right arm is a bit swollen. She wants to leave it for a month then re-measure. SHe cannot explain why the fluid has come back and for the moment just asked me to make sure my bra covers it for support while it disperses. I see the oncologist on Friday so he may tell me more. It's such a pain when you have felt you were recovering well.
The nurse also gave me some drops for my dodgy nail beds. Its called Onicolife - anyone else used it?
Have been to a couple of BC support sessions which were great - therapies, lunch and chat with other sufferers. The surprising thing was that most of the people there had recovered years ago, they just keep coming back for the therapies, the chat and the good lunch. That explained why everyone except me had a great head of hair.
I am also worried about Vanns - it has been a while. VANNS - Can you hear us?
Pixie - I would offer to sew but I am seriously cack-handed with any sort of craft work - I can just about sew a button. That's why I found all the things you did for B Fest so awesome. You always admire the skills you don't have yourself.
Sarabee 2012 - Well done for getting back to workbut take it easy! It feels ok on Monday morning but by Friday afternoon you can be totally exhausted.
Must go - I am doing this at work which is probably not allowed.
Hi everyone, it is a quiet warren at the moment; Isuppose this is inevitable as we all get on with our lives and become busier. I am having a few wobbles about the whole. ' it was a year ago' thing just creeping up on me a bit. Feels like I have lost a year of my life! But i do feel better, apart from the aching bones and dry skin!
I had really good intentions about Christmas this year. In a little fantasy, I Woudl be full of joy and delight at having got through the last year, I swore that I Would embrace it and relish the lists, the shopping, the planning etc. In my head I was a Waitrose Woman. Well, that has lasted fivE minutes. Because I am having my op in early December, I thougt I'd make the most of thetime to do my Christmas shopping. Really unlike me as I usually leave it until a few days before. So yesterday I Trawled the shops and then got grumpy at the commercialism of it all. So, looks like it will be last minute shopping again this year. And don't talk to me about television adverts! Or magazine articles on how to cook the perfect Christmas dinner that come out in September!!!! Ok. Rant over.
All else is ok- Southpool, make the most of yourlazy day- you clearly deserve it, and good luck with the meeting. Horrible thing to have to do, especially in the current climate. Good news about the rads, Nat, and fingers crossed for pixie for scans. Just off to find a birthday present for OH. Why are men so hard to buy for? Or is it just mine!
I am worrying about Vanns still; she has been too quiet and her last post sounded worried. I drafted an email to her, as we now have email addresses, but wondered whether this was too intrusive..... So I didn t actually press send. She will post again when she is ready, but you can't help worrying can you?
Love to everyone,
Just a quick hop in. Nat congratulations on finishing rads, well done bunny. Please don't let work stress you, your doctor is right going in full time before the new year would be too much. I am only working 3 days a week and by the end of working two days on the trot I am like a damp dishrag so am listening to my body and saying no!
Pixie good luck with your results today & I will be ordering some more Xmas bags tonight. OH auntie wants them to send to family instead of Xmas cards.
MarGie your weekend with your grandsons sounds lovely, are they disappointed you are no longer pirate granny!
Campo make sure you hunker down in front of that lovely log fire at the spa and look after yourself, chest infections can be nasty.
Sarabee glad your return to work went smoothly, please take care though and see my advice for Nat x
I am taking my own advice today and am at home today typing this in bed. I have had two 12 hour days and am knackered so am pleased not o have a 6am wake up. Have my second acupuncture at 11am as I think the 1st one may have improved my fatigue slightly. Did bugger all for my sweats though! Tomorrow I spend the day telling my team who still has a job & who is being made redundant, which will be a really difficult & stressful day I am dreading.
Just to give you a quick update......saw oncologist tonight, I am to go ahead and have my last rads session tomorrow as planned. I will then see him in a months time. I asked him about returning back to work and what I should and shouldn't do and he said that I shouldn't go back full time until the new year and should faze my return until then.....can't wait to have that conversation with work.
VANNS!!!!!!! Come on bunny, let us know whats occuring..
Real quickie from me as today i launched the Xmas Sacks for a 4 week period and orders are rolling in so am a very busy Pixie. If you want any, please order in the usual way - am hoping to get to £6000 by the end of the year.
Tomorrow I am off for MUGA heart scan in morning and then onc appointment in afternoon to get results of MIRA.
Feeling really well and buzzy - good job as am busy as santa on xmas eve!
Quickie post this time I think. Just waiting for OH to come home for lunch and then we are off 'dahn souff'. He's got business in Surrey tomorrow and I am going into London to meet up with a group of college friends. Forgive me if I've said this before and am repeating myself. I can never remember what I've said to whomthese days. I should have checked back on my last ost to see what I said last time!
We've had a fantastic weekend with our grandsons, son and his wife. The two little ones are so entertaining - now 3 and and half and 21 months. They've certainly kept us on our toes but it's been really enjoyable. All quiet now they've gone.
Lotrs of bunnies seem to be going to see Skyfall. We went last week too - it is really good so if you've not yet been it is to be recommended. Best Bond film ever I reckon, not that I've seen them all.
Lots of talk of itching and rashes - I was given hydrocortisone cream for itching and found it worked for me. I'm stressing about a pain I've got at the moment ... early on in my chemo I developed a pain just below my ribs, around the diahragm on the cancer side. This was the reason for me having a CT scan to check there was nothing else going on. Well, the pain has never really left me - it sems to move around a bit, in a small space, but it is always impossible to tell exactly where it is - whether it is above or below the diaphragm. It's never gone away but is a bit more troublesome again at the moment. I'm sure it's nothing but I sure wish it would go away.
Campo, sorry about the chest infection. Hope it's improving. Nat, so pleased to hear you are feeling a bit brighter. Gaynor, hope you've had a good hol (think you are back tomorrow????) I WILL send that sample celecoxib. Just keep forgetting, but I am so interested to see how yours differs from mine. Pixie, mother and auntie continue to entertain us all, even if they do drive you bonkers! Well done with the doll's house. Enjoy the new mattress!!!! Everyone else, too many to mention by name this time, well done those going back to work, sorry for those feeling down. Thinking of you all.
Well I am starting to feel a bit better, had a lovely weekend, saw Skyfall on Saturday and then went Christmas shopping yesterday with the OH. It was nice picking all the presents out for our nieces and nephew and better still, we didn't spend anything as we doubled up the Tesco vouchers.....good old Tesco, lol.
I saw oncologist for my weekly catch up on Friday. I have been seeing him every week whilst on Rads. I am now sporting a lovely red boob and I am very red and sore under my arm as well. He gave me 5 days of antibiotics as he was concerned I may have an infection in my lymphatic system again (I have no lymph nodes and suffer from mild lymphoedema) and wants to see me again tomorrow night. He will then decide if i am to have my last dose of Rads on Wednesday. So I may finish tomorrow or I may finish on schedule, who knows. I can't really understand what difference one will or will not make.
Pixie, the little birdy is probably right re me overdoing it slightly. I have been going into work during Rads on the odd afternoon (max two a week) and some of those have turned into late evenings. I was hoping to have next week off before returning back to work properly the last week in November. We are off to Centerparcs for a week in December so it wouldn't be too long before I get a rest again. Work had agreed to this but today said that due to the fact that I am having the week in December, would I consider having next Monday off and then going in for half a day for the rest of the week. Me being me said yes, but now not so sure.
Girls with the itchy rashy boobs/under arms, I suffered with this after my operation and was told that it is sometimes our bodies way of dealing with trauma. It goes into extra sensitive mode. I got some antihistamines from the GP and then used Calendula Lotion on my skin. It worked a treat and cleared up the rash within a couple of days.
Vanns, where are you bunny?
Southpool, I would be up for doing one of the ribbon walks to, just let me know where and when.
Campo, glad to hear that you are keeping the Punkawallahs nice and warm, hope you are looking after yourself to after all the running around you have been doing lately.
To all other bunnies, hope you are well and sorry if I have missed any of you.
PS. Am also tossing and turning in bed throwing the duvet on and off. OH tells me I've always done it but I can't remember being quite so hot... lol!!! Planning to redecorate the bedroom next year in cool colours!
Hello bunnies! First day back at the office and so far so good. Felt shattered afterwards but managed the time in the office okay so fingers crossed. Sarah - take the time you need to rest. I stayed off for longer because I didn't feel I could cope. Still got brain freeze but getting there.
Wendy - didn't itch during the rads but back on the anti-histamines. Now got a fetching red rash as well under the arm so might need to call the doctor again. Hope the other boob is okay too... try not to worry.
Hyzenthlay - I missed my eyebrows more than my eyelashes. Lost one completely and one partially so looked surprised most of the time. The good news is that they came back pretty quickly though - a month or so at worst. Have now got plenty of hair on my bonce too and now strolling about without the wig! It will be okay by Xmas... lol!!
Hilary - fond memories of the spa and the idea of a warmed up winter version is just as lovely. Keep the punkawallahs warm! Keep yourself well too.
Pixie - can see that you are taking the dolls house very seriously. We did one for my daughter when she was very little and we ended up decorating more than once over the years. She was lucky enough to have two - the other one was made by my dad for her (now passed away) and has lights and a garage. Something she will keep forever and pass on to her kids I expect. Re. the dog blanket squares - would be happy to help out with the stitching if you need me. Paul O'Grady can be found via Battersea Dogs and Cats Home as he's now an ambassador for the home and they always need blankets. The Twins must have watched his dogs programme shown a few weeks ago. Again, if you wanted I'd be happy to take the finished articles to the home if you want. I have to say I started a blanket before my op with the intention of doing it while convalescing. Still on the second square lol!!!
Vanns, Big M, Jill, Chrispie, Southpool - big shout out to you all and hope you're all well.
Aw Hilary, bless you, I just adore the idea of the punkawallas in thermals and bobble hats. On the flight over to the States last week, I watched the film 'Magic Mike' and from now on, thats who the punkawallahs are. Hope the chest infection clears soon - just shows that when we do to much, our body will do something to force us to rest. hope you have a few gntle weeks now, and enjoy the Bllomfeld cat!
Vanns, i have your address and shall come and flush you out bunny... do let us know whats going on, even if its pants, we want to now cos we luvs ya bunny 🙂
Well Dolls House is now temporarily assembled. OH remarked that its the biggest blooming dolls house he has ever seen. It's not that big - i was going to get a mansion - live out me delusions of grandeur in miniatures. have bought lots of wallpapers paints, plaster bits and pieces but can't do anything until it is all properly glued together and clamped. And I don't know how to do that. Oh is very good at woodworky stuff but he is taking some blooming motivating here. This afternoon he remarked i have still not unpacked from holiday .... no i haven't dear but i have been out working and earning and in my present 'condition' i can do one or t'other. Anyay, everything in case is clean as i bought lots of new things as we go away in February, there isn't much point in unpacking is there? Giggles.
Today we have ordered a new bed, well to be precise a new mattress. Current mattress is roasting me alive - we have one of those memory foam things that reflect your body heat, whcih as you can imagine with constant hot flushes is like sleeping in an incinerator. OH not slept alongside me for months as I am so hot and am twitching about all night chucking the duvet on and off, then I wake up shouting as i have rolled onto me dicky arm... Anyway, new mattress is by appointment to her maj and has 2200 individual pocket springs, cost a Kings ransom so hope it works out okay. Think OH coughed up as we seem to have left Mrs Mojo back in new Hampshire. i told him, we are going back in February, he can meet up again with her then.
Mother and auntie, well i could klonk them one. It's the dog blanket fiasco. I got a parcel today - I mean a great big blooming parcel. It was all soft and squishy so suspected new knitwear or something in flanelette. but no, out fell over 200 knitted blanket squares. Rang mother and asked what this is all about. Am told how much they enjoy the knitting but they don't like sewing up so I can do that. Each square has to be sewn on all 4 sides. each sqaure is 6" square... each blanket has 36 squares... have you any idea mother how long that will take? Not long she says. then tells me its winter so don't leave them laying around. I then ask, so lets suppose I sew them all up, what then? They are for Paul O'Grady I am told. And how do I get them to mr O'Grady mother? Mother doesn't know but reminds me I have a degree and will be able to work it out and she has to go as the fish man is tooting his horn.
Life is back to its surreal normality here in Pixies Palace.
First Big Hugs to all bunnies as I feel I have been away from you for ages. Missed your furry butts! Vanns I am also shouting how did it go - are you alright? To all those itching hope it passes soon - antihistamine is the answer for those really suffering. I am still on antihistamine after the reaction to chemo which is now 5 months. Will stop once skins does not look like Mr Blobby's when I scratch or rub with towel. I am on 1mg of anitihistamine and apparently you can stay on it for a very long time. For those with droopy ears and whiskers bigger hugs to you bunnies. Pixie hope ONC has encouraging news for Wednesday re the Porthcath issue.
Well in laws ensconsed in new home so fingers crossed that they remain happy there. Said farewell to Mum in Law and I was upset - we have been through so much together. So on Saturday afternoon I crashed but on the road up again. Got back home full of chest infection etc. but starting to get better slowly but surely.
Returned home yesterday to find White cat had taken up residence on our front terrace and demanded attention. Cat was obviously lost and in a lot of distress. So have taken cat in much to the disgust of OH & Dog in Heat. Cat is now allocated to spare bedroom until I find her Mum whilst OH & Dog in heat grumbling.
I thoroughly enjoyed being back in the UK although it was exhausting getting the in-laws settled. Still have not found place or house for us to settle in. Next February intend to drive across and stay 3/4 weeks looking.
Returned to a very soggy wet Spain. Punkawallahs were freezing so have issued them with thermals and woooly hats. Dolphins of course are in their element. The Spa's log fires haves now been lit, all the windows closed and the curtains drawn in the evening so it is nice and cosy. The candles are lit and ready for you bunnies when visit us.
Hello Bunnies, I have a week and a day of rads to go, no horrible effects so far apart from starting to feel more tired, though I was out seeing Jack White on Thursday and managed OK - though I was looking up at the balcony and wondering why I hadn't got tickets which included a comfy seat!
I also went to the Maggie's Centre Edinburgh 16th birthday bash (Edinburgh was the first one) and met a lovely lady who was brimming with enthusiasm about her breast reconstruction and whisked me into a quiet corner to show me!
Really missing my eyebrows and eyelashes. Have other people's grown back? My hair's been growing for a while, but it's quite patchy on top still. I'm hoping to get from "receding hairline" to "stylish short hairdo" in time for Christmas.
Well The Killers were fabulous one of the best bands I have seen live & I have seen lots! Also managed to boogie & stay awake until 11pm, which is a result. Off to see Tim Burgess & Peter Hook at Manchester cathedral on Thursday night so hope I will be able to keep awake for that as well.
On the itchyness, I have a very itchy chest & neck and have broken out in freckles & a spotty rash. I am alternating 99% Aloe gel & aqueous creme and both sooth it temporarily, but find myself absent mindedly rubbing it. Fortunately it is my breast bone rather than my scar area so its ok in public.
Sarah if work is stopping you sleeping it makes sense to take some time off and let your body recover.
Pixie glad your Christmas arrangements are underway, do the twins bicker their way through Xmas? My Nans used to bitch & jockey for position every Xmas which was very irritating at the time but funny with the benefit of hindsight.
Vanns wave a paw as I am worried about you know. Wendy fingers crossed your lump is nothing.
Libby I have sent you a message about meeting up & your spa day sounds great, have a lovely time.
Thanks for everyone responding on the walk looking forward to a walk & talk.
Thinking of all bunnies whether you are in the up, feeling down or waiting for results.
Have managed to get to read the posts and try to get all the news and sorry for being a bit down but I have finally succumbed to visiting the doc and being signed off for 2 weeks as felt overwhelmed at work(despite considerate boss) and was just running around like a headless chicken. Its the nights that i find so difficult when i wake up with racing brain at 4am. now in separate bedroom so can read or listen to music in the small hours. Hope this will pass fairly soon as I do not like feeling like this.
To all feeling upbeat-stay there and enjoy and to anyone else not feeling too good , we are there together.
Hi everyone, itchy ladies........... I had 15 rads, and havent itched at all, I used Aloe Vera straight from the plant from day 1 and when that dried I used the aquous cream,did that twice daily, I am completely healed and no itching at all, and had last one nearly 6 weeks ago, so maybe try Aloe vera on it ?
I do have a great tan accross my chest, but it hasnt itched at all, or peeled like some do. Try it, it is so soothing and cooling. If you have any trouble getting a real plant, I will post you a big leaf of it to try. PM me if you want one as my plant can spare some as it is quite large !
Pixie, would be lovely to meet up for lunch one of these days, let me know when you are free, as I can usually be available most days as not gone back to work yet ! see if you can squeeze me in your busy schedule!!!
On a bad note, I found another lump on Friday on other boob, so going to ring BCN tomorrow and see if I can get it checked out, hoping its nothing.............:(
Hi everyone , back on line now I have had terrible problems with the broadband and have had no connection for four days so catching up on posts. Pixie glad you were ok having the MRI , I hated it as I don't like being confined, hope the results are ok. Vanns hope you too get good results, I have been thinking of you the past few days, hope your ok. Margie yes I still have a blue boob I am quite attached to it now lol. Sara and Sammilee sorry to hear about your itching ,maybe your doctors could give you something stronger, be careful not to break the skin as it may become infected. Anyhow now feeling too bad, legs still feel like lead weights, 5th Herceptin tomorrow and they usually get worse after that, oh joy!!!. My breast care nurse sent me an invitation for a pampering day at Hurlston Hall Golf club in Lancashire on Wednesday so looking forward to that, its a really lovely place and its a whole day of treatments, I know two other ladies who had the cold cap with me so should be quite a good day. Also started my physio, its made so much difference to my veins, they feel so much better, the physio has also been treating my shoulders, apparently I had loads of knots in them, and she has worked wonders on my back, I feel so much more relaxed. Sorry if AI have missed anyone out, brain still not too good,actually its really bad cannot retain anthing. Southpool did you get my message re meeting up. Anyway love to all, sorry if I have missed anyone, big wave to Big M and Campo Elainexxxx
Vanns, come on bunny, please let us know how you are... The warren is worrying.
Sympathy for all you itchy bunnies, suppose rubbing a dock leaf on it wouldn't help? Only joking.... Though my mother wouldn't be. I have been so fortunate with rads, no redness, itchiness or anything. About time something went right.
Pleasd you have op date Lee and a nice maleable boob for xmas. Like the new pic Wendy, I am in Suffolk so perhaps we can meet for lunch one day?
Had the MRI scan done. Its ever so noisy, like being in a venerator, but didn't freak out, cancer treatment has battle hardened me.
Well today I did it again, invited mother and auntie for xmas. I go on such a gulit trip. They told me that they would be okay and that Bernard Matthews does a nice small turkey joint..... Like Tiny blooming Tim in duplicate. SoI invited them....this time they are coming on 23 rd and going home on 27th, so only have the 3 full days with them and they so enjoy it as we take them to carol services, a pantomime, hand bell concert... Then on the 30th they head off to Blackpool to whoop it up for the new year.
Thats about it for now, hope Margie is not too exhausted and Sally-Anne is not all concerted out.
Big hug to Nat, lots of bunny good vibes to Vanns, big wave and smile to Mary and much love to you all.
Just a quick visit - it's such a lovely day here it would be a crime to stay indoors.
Vanns, please let us know how you are after your check-up on Thursday - getting concerned about you. Pixie, hope you survived the MRI experience - I'm claustrophobic too and was in bits when I had mine, so can sympathise. Hope they get to the bottom of what's wrong with your shoulder/portacath site. Christine and Nat, sorry you've been feeling so low.
Lee - sorry to hear about your neck - I only had a rash during chemo, not since. However, I'm putting aqueous cream on my neck every time I do my boob, because the skin had got really dry and wrinkly. Do you find that even aqueous cream irritates it? I think I've used Eurax cream before with some success for itchiness. Sarabee, sympathies on the itchy boob - mine is too and is driving me mad, and the nipple area is ultra-sensitive. As someone said - was it you? - (sorry, can't go back to previous page to check name), I can hardly start scratching when I'm out and about, so it's worse then! Maybe not a good idea to try Eurax on boob at the moment, so have bought an aloe vera plant - bargain at £1, and am going to try the fresh gel from the leaves to see what happens.
Margie - your 'granny duty' sounds delightful even if tiring. Lee, your jewellery sounds interesting - I bet it's quite absorbing and difficult to worry about anything else while you're engaged in it. Southpool - your pink ribbon walk sounds good, but I really don't think I'd be able to walk that far due to back problem, unfortunately. GadgetGal - sounds like your break is really relaxing - hope the weather is as good there as here at the moment. Wendy, good to hear from you again, albeit briefly. Lee/Southpool - I used to like 10CC and played 'I'm not in Love' endlessly when it came out - but also would prefer the Killers nowadays. Nothing like a good rock band to lift the spirits! I like all kinds of music and don't think I'll ever lose my taste for rock, despite my age - although nowadays I prefer to enjoy watching it on BBC4 or Jools Holland from the comfort of my armchair rather than going to festivals! I find that most of my contemporaries haven't a clue about 'modern bands' as they call them.... I think they're missing out really.
Well, I'm off out to enjoy the sunshine. Love and a wave to all bunnies.
Changed profile piccy, thought this appropriate ! for a while ! obviously I must get dressed and stop playing on computer !
Hope everyone is on the "up", cant say well as I kniow we all are feeling a bit droopy !
Have a nice day everyone .......
Wendy xx (pepihorse)
Pixie, hope all goes okay with the MRI today and Nat, Christine and Vanns - all of you in my thoughts today. MarGie - pirate granny - try not to over do it either.
Southpool - if you do the Richmond Park walk, would be delighted to join you. Am already committed to the Marsden March (just the 5km part) in March but any exercise is going to be good!
Lee - you mentioned about bra sizes. Have had to buy a new bra but still can't find the right size. My surgeon said she'd made me into a 40C but on trying one on in that size it was way too big. Am probably going to have to go to M&S to be fitted up. Also skin issues.... under my left arm where my lymph nodes were taken from I have developed a very very itchy rash. To the point where I am nearly ripping my skin to pieces especially by the end of the day. Am about to take some anti-histamines to see if that helps at all. And I need to find a decent soothing lotion - any suggestions anyone?
Am starting to make in roads into the dog training business and hoping to be doing it full time next year. Back to work on Monday for 3 hours a day - having had a good meeting with one of the bosses, the other one has now decided to move the goal posts again but frankly, I'm not going to stress about it. I might even go in and bang their heads together!
That's it for now. Got a puppy social walk tomorrow morning which I'm looking forward to. Have a good weekend everyone and I'll hopefully post to let you know how I get on at work during the week.
PS. Lee - my OH is off to see 10cc this week - tickets were a present from the kids for his birthday. Not my cup of tea but he is looking forward to it.
Thank you for all your supportive words in response to my whingeing; I gave myself a good talking to and have been reasonably productive since. I have a date for my surgery- 4th December, so I will be happy to have new, soft boob for Christmas and get rid of the coconut shell. Will be a bit strange to be back to being a. 34 B instead of a 36 C!
I was interested to hear you Write about skiN issues, pixie; as I write, I am suffering from a horrible neck rash. I think it has built up over theyears as a result of perfume spraying! I made it worse by using a night cream and now it's got to the stage now where I can't put anything on it at all, and the skin is so tight and sore. Probably time for a GP visit. always try to self- treat with healthy measure of common sense, but the comes a time...... I'm also wondering whether the Arimidex has made me more hyper sensitive.
Have been working on jewellery frames, and loved my 3 hour pottery sesh on Friday. I'm making small textured tiles with different glazes that I will mount on glass. And last night we went to see 10 CC locally. ( Would much rather have gone to see ' The Killers, Southpool, without a doubt! )Average age of the audience was 5O, I reckon, but they were really good-all brilliant musicians. By the end of the evening the wole audience was up on zimmer frames, rocking in the aisles. I had forgotten how clever their lyrics were.
Enough of me: Christine, stay strong: yes, get those meds sorted! And let's hope it makes a difference. Vanns, let us know how you got on; Southpool, count me in on tHe walk. Will be good to have a fitness goal ofsome kind. Warm thoughts to Nat. Plan some lovely treats to look forward to.
Waves to everyone and hope you all have goodweekends.
It is quiet in the warren. Hopefully this means bunnies are getting on with life. Give a group wave!
special thoughts to Vanns, Nat, Christine - and in fact to everyone.
I'm a bit shattered. My oldest son arrived this afternoon with his wife and two sons. he and dil have gone off to have an overnight stay at a two star Michelin restaurant to celebrate their wedding anniversary and we'vhaves a fantastic few hours of quality grandparent time. Wonderful. But exhausting!
southpool, I definitely will do a pink ribbon walk. Don't mind which but Blenheim Palace would be favourite, followed by Twickers, but any would be great, whichever the most of us can do. I'll be there. 10 miles rather than 20 for me!!! Any. Sort it!!! Can't wait. It'll be really good. Quality natter time.
Lovely to get a wave from Nat - a little bird tells me you bunny have been over-doing it.... REST! Rads even got me having afternoon naps and you have that horrid round trip to Romford every day too...
Margie lovely to hear from you - shall think of you now as madam Zumba - especialy as i start my phsio rehab exercise classes this month... I am so stiff, I need WD40.
Vanns - give us a wave bunny, we are all thinking of you and wondering how you got on yesterday.
Southpool, I will check the dates of the walks and if am in the country, will definitely join in - wearing my ears of course. So Liverpool now has a HN? I used to be an absolute beauty counter junkie but about 10 years ago, I had a really bad reaction to an Estee Lauder cleansing bar - I mean an A & E reaction.... swollen face, eyelids puffed, lips like collagen trouts... anyway since then, my skin is really really hyper-sensitive and I am now very limited to what I can use so I can no nger spend a happy afternoon collecting free samples and generally having a real girlie time. So I can be with you in spirit and know just how much fun you will have.
Been working again today and am finding I am back in the buzz zone - had a great group and lots of fun and best of all I get paid!
This weekend i have the MRI and feel a bit anxious about being in a tunnel for 40 minutes. I get claustraphobic at the best of times so being in a fairly narrow tunnel for 40 minutes, having hot flushes, wll not the best way to pass an hour is it? Still, have been put through as urgent so onc will have results for next apt on Wednesday and then we may have a better idea of what is happening with my shoulder and portacath debacle. Its oozing - again.
Big hugs to Christine... big smiley wave to Mary and much love to you all
I am off work today & am meeting a friend for lunch, before heading off to the concert. Acupuncture felt ok but the jury is out on wether it has had any effect or not, but I have booked some more sessions so fingers crossed. I did work a full on 12 hour day yesterday & don't feel too bad this morning so you never know.
Nat & Christine sending you hugs and hope you have good weekends. Lee your jewellery idea is fabulous & is completely unique so I am sure you will be able to get it up & running as a business. I am proud to be one of your first customers.
Has anyone seen that bcc have announced the date & venue of their pink ribbon walks next year? I really fancy doing the Blenheim Palace or Richmond Park one & wondered if any bunnies would like to join me in
talking & walking for several hours? Let me know & I am happy to
Vanns let us know how you got on xx
Hopping off to nip into town to visit the brand new Harvey Nics Beauty Bazaar which opened yesterday. Two whole floors of make up & products, it's got to be good!