I had a PICC line fitted a week ago and have pain/sensitivity over my chest and collar bone. Its more a sensitivity/ache than pain. I'm on FEC too and on the Sept chemo thread. Could you let me know what your onc said about it today? Thanks
My consultant was a little concerned that I was getting discomfort from the PICC line along its length, but said it wasn't unheard of, and I was just unfortunate. He asked if I would prefer to have it removed, or continue and see if it calms down. I said the alternative of a cannula and lots of vein hunts for bloods wasn't viable, so I am sticking with the PICC.
He said I should take some Ibuprofen or Paracetamol, and apply a heat pad to the area to ease the ache. If it gets worse or unbearable, I am to contact oncology in case it is an infection.
It isn't bad today - like a dull ache just to let me know it is there. After my last FEC it became more painful and the discomfort woke me at night, so I would get up and take some paracetamol and put a heat sac on it, and then get back to sleep. It remained irritated for several days - especially if I bent over to pic something up from the floor, but slowly eased into a tolerable dull ache that doesn't get worse due to activity. I simply know it is there now rather than be totally unaware of where it runs.
I have allergies anyway (many cosmetics are not usable by me), and I have a rash from the clear PICC dressings and a red line where the blue PICC tube bit that is outside the body rests against my arm skin... it seems I might be reacting to the actual tube material too!
So I gues the answer is, make sure it isn't an infection where the PICC incision is, and take medication and use heat to ease the pain. Or, you could go back to having cannulas if that is better for you. But it isn't unheard of that people can feel the inserted tube, though most don't.
Hope this helps reassure you - but do mention it to your own consultant when you next go for a check, as they can make sure there isn't an infection and advise you according to your own health needs.