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Starting chemo in February 2012

Wolsty
Member

Re: Starting chemo in February 2012

Goldie - so sorry to hear about Blue - hope there was some positive news from the vets this afternoon.

Sarah- glad surgery went well and wish you a speedy recovery. I am 2 weeks post my op - still sore but not as bad, bruising spreading down my torso looks quite spectacular but new boob looks OK (just makes my other one look very saggy!)

Jo - fingers crossed for good results from bone scan - the waiting is definitely the worst.

Jane x

Wolsty
Member

Re: Starting chemo in February 2012

Goldie - so sorry to hear about Blue - hope there was some positive news from the vets this afternoon.

Sarah- glad surgery went well and wish you a speedy recovery. I am 2 weeks post my op - still sore but not as bad, bruising spreading down my torso looks quite spectacular but new boob looks OK (just makes my other one look very saggy!)

Jo - fingers crossed for good results from bone scan - the waiting is definitely the worst.

Jane x

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Re: Starting chemo in February 2012

Goldie - really sorry about Blue - please let us know how you have got on at the vets. I totally understand what you are saying, we have a little chihuhua and honestly since I've been diagnosed and off work he has become my little baby, he was before all this but even more so now! Pets are family and I really, really hope and pray he's going to be ok?
Sarah - excellent news about your nodes, you must be very pleased.

I've had the dreaded bone scan today, feel really really scared about my results, just have an awful feeling that I have cancer in my bones and I really don't know why I feel like this? Cos I've not had my op and never had any tests / scans to check for spread I think I feel worse! If I did have cancer in my bones then would then chemo i've had got rid of it?? It's going to drive me mad having to wait till Tuesday for my results! Trying to keep strong but inside I feel like breaking down. My daughter home from school and it upsets her to see me upset so holding it in the best i can at the minute!!
Going to a friends for a girlie night in tomorrow night so hopefully that will cheer me up!
Jo. X
Goldie112
Member

Re: Starting chemo in February 2012

Hi Sarah - glad you are feelingokish albeit sore. I found the drains really uncomfortable, hope you get them out tomorrow. Brilliant news about your nodes, must be a relief. Hope you can rest easy til Tuesday.
Thanks for your support about Blue. I think it's just that he's so loving and always been there through tough times for us with a waggly tail and a cuddle !!
Xx

Stitchyboy
Member

Re: Starting chemo in February 2012

Goldie - so sorry to hear your sad news, i can totally understand your upset, I have everything crossed that tomorrow's x-ray isn't as bad as thought, good luck. I'm sure your radioologist will understand you're upset. Sending hugs to you and you're husband.
Had my op yesterday, back home now, the district nurse is coming out tomorrow to hopefully take the drain out. Swelling and bruising feeling sore and uncomfortable and a very sore throat but all in all not too bad really. Had good news that my lymph nodes are clear, I go back to hospital next Tuesday for tissue results and radiotherapy plan.
Hello and love to all.

Sarah x x

Goldie112
Member

Re: Starting chemo in February 2012

Thanks Twinky.
I really appreciate your comments. Glad your new Bunnies are good company - they look so cute and gorgeous. - it's amazing how attached you get though isn't it ?
I just can't imagine being without Blue, and it's horrible seeing my husband so sad, he just asked me 'why is everything so sh@t'? And said that I really had to get better. He's been such a rock but I think this has just knocked us both for six.


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Re: Starting chemo in February 2012

Oh Goldie I am so sorry about your news. I know exactly how you feel. I too have been robbed of the chance of a family & my pets mean everything to me. Sending you a massive hug & some big soft tissues for the tears. My favourite bunny whom I bought towards the end of my chemo first time around had to be put down just days before I started again this time. I was beside myself but the remaining two have been mysaviours especially since they started sleeping under the bed & keeping me company bless them. There's not a day I don't miss no.1 bunny though.

Twinky x
Goldie112
Member

Re: Starting chemo in February 2012

I don't know if anyone is there today?
I thought I was doing ok with radiotherapy, then I came home and my dog had developed a big lump in his shoulder.

I thought he had disclocated it (he's been a bit lame recently but we'd thought it was his paw not the shoulder), rushed him to the vets and it is highly likely it's bone cancer. He's having an x ray tomorrow but I don't think they will be able to do anything.

I know it sounds silly if you don't have dogs, but he's really kept us going and makes us a family (immediately the joys of infertility from the treatment return to our minds) and I just don't know how I will cope without him.
I'm seeing my oncologist tomorrow for a mid radio review and I don't thi k I can keep it together, can't stop crying.

Hope everyone else is having a better day. X

Goldie112
Member

Re: Starting chemo in February 2012

Hi Jo
Good luck for Thursday!
I know what you mean about feeling down. Think it's the post Chemo blues.
I try to read something positive and think of everything I'm grateful for (sometimes it works better than others).
Lots of love
G x

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Re: Starting chemo in February 2012

Afternoon Ladies - Jane what excellent news!! So pleased for you.
Well I have just been contacted re my bone scan so I'm going for that doing this Thursday - feel bit anxious about the results to be honest but think it's because since I started on this horrible journey I have never been staged or had any op to see if the cancer has spread so feeling a bit scared about the results even though I have been through chemo! Also booked in for a CT scan on the 17th July.
Waiting for my oncologist to come back from his hols next week so I can see him re me starting on Herceptin, not quite sure I'm looking forward to that either! Don't know what's wrong with me at the minute.....still keep crying and feeling down, think I'm fed up as I have been working inbetween my chemo and now I have clots the doctor won't let me work so getting a bid fed up I think! Need to learn to chill and do nothing I think!
Quite a nice afternoon here in Burnley and if I wasn't so breathless think I would have gone for a walk!
Big hugs to all.

Jo. XX
Goldie112
Member

Re: Starting chemo in February 2012

Kathryn - sending you a big hug.
Jane - woo hoo that's brilliant news. I'm so pleased for you.

I've just pigged out on chocolate, so much for being healthy now Chemo is over. Also every time I exercise my ribs hurt, which is now doing my head in, (but obviously not a big deal).

Hope everyones having a nice evening? I'm watching Andy Murray and biting my fingernails (goes well with dairy milk!)

Xxx



Wolsty
Member

Re: Starting chemo in February 2012

Been to see my surgeon today and pathology results in. All remaining nodes that were cleared are cancer free, lump and all remaining DCIS removed so now cancer free - hooray!!

Kathryn - Are you having reconstruction at the same time as your mx? I am sore after my op but no that I just have rest. Comfy, soft pillows a big help!! Hope it goes well.

Jane x

Hilly1
Member

Re: Starting chemo in February 2012

Hi Ladies,
I agree with Twinky the preoccupation with chemo keeps the mind busy and the 3 weekly routine is helpful in a strange way, I think it must be the regular contact with the medics does it. Now I'm down to just over a week to MX and dreading it more and more. I think chemo almost put the actual cancer itself to the back of my mind but now the prospect of loosing a breast is too big a dose of reality.
Jane a good cry is very therapeutic, believe me I've done a lot of it recently. Glad surgery went as planned, take care with recovery. I've read so many tips but is there anything new you have thought of that might help?
Giddy you do such a good job of remembering what every is going through, I'm impressed.
It's just started to rain here, too much to ask one day without rain.
Love Kathryn

Giddy
Member

Re: Starting chemo in February 2012

Hi all

Fran- hope you enjoyed your LGFB session. The rads have been fine so far.

Kathryn- they can do fantastic recons nowadays.

Twinky- sorry to hear about your cellulitis.

Sarah- enjoy your break and good luck for the 3rd.

Jane- glad your surgery went well.

Ann- I can see you at the top.

G- a support group sounds like a good idea.

Rosie- hope you're feeling better.

Gill- hugs re your meltdown.

Jo- I had clots too. The injections are a pain but they work. I wasn't breathless but I had pain on breathing and had to go to a & e.

Hugs and prayers Chris xx

Goldie112
Member

Re: Starting chemo in February 2012

Ps reiterate what Twinky says, the anaesthetic does take it's toll.

I felt v flat after surgery. Twinks, I think counselling is a good idea, I'm thinking of it too, also thinking of joining a group or something.
Xxx

Goldie112
Member

Re: Starting chemo in February 2012

Jane, I know what you mean about holding it in. Also i kinda know what you mean, re it suddenly hitting you. I think sometimes there is so much to deal with throughout the whole 'journey' that you can't take it in all at one and then it just hits you almost when you least expect it.
I think it sounds like you're doing the right things.
Good luck with the pathology results and keep on resting!!
Xxx

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Re: Starting chemo in February 2012

Big hugs for you Jane. Don't forget the anaesthetic that you've just had will be making you tearful as well as everything catching up with you so cry away..it's fine x I keep thinking I might lose it a bit soon. The chemo experience is evil & keeps your mind occupied & I must admit I feel a bit vulnerable as I move onto another step - rads. I will probably seek out some counselling when this is over, just to give me the chance to have a bit of support & get my head straight, especially when I go back into an environment ( ie work) where no one will understand what I've been through.

Hugs to everyone feeling a bit tearful at the moment.

Twinky x
Wolsty
Member

Re: Starting chemo in February 2012

Being very lazy after my surgery and in a reasonable amount of pain. Doing my exercises regularly though. Also a bit of an emotional wreck. Feel I have held it together very well during chemo but having the surgery seems to have really brought it home to me that I have breast cancer which I know sounds ridiculous!! Have had a few tears but I think they were needed.

Have an appointment with my breast surgeon tomorrow - she thinks she might have the pathology results.

Sarah - have great holiday and good luck with your mx. I am hoping to get away sometime in August.

Gill and Jo - sorry you are feeling so emotional too - I think we hold it in for such a long time that once you start it's hard to stop. Nothing to be ashamed of though xx

Sleep well everyone - I am full of painkillers and surrounded by pillows!!

Jane x

Goldie112
Member

Re: Starting chemo in February 2012

Gill
Don't beat yourself up. You are not a fool.
It could be the tamoxifen, it does play with your hormones so much.
I understand why people feel a bit flat after Chemo is completed, it's like the harsh reality of it all comes back and I think sitting on the radio table somehow emphasises it - maybe it's because you're led on your own?
Big big hugs. Please don't beat yourself up though. I think it's quite a normal reaction.
Xxxx

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Re: Starting chemo in February 2012

Hi All
Have been fine all day and then entered the radiology dept and started again. The staff are really lovely ,but I feel such a fool, cant even say what it is that sets me off!
I cant do this for the next 8 sessions ( cry that is) they'll ship me off to the funny farm!
Im now putting it down to the Tamoxifen!
As you say goldie 2 days off now
Sarah - have a lovely break, hope the sun shines
Jo - have a lovely evening, hope you enjoy some food and your daughter has had a lovely birthday

gill x
Goldie112
Member

Re: Starting chemo in February 2012

Hi Sarah - hope you have a fab fab fab break!
Jo, hope you have a lovely meal, glad youre feeling ok.
All fine here, glad to have a couple of
Days off from radio 🙂
Hugs to all.
G x

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Re: Starting chemo in February 2012

Sarah have a lovely break you damn well deserve it after all you have been through! Enjoy and all the very best of luck, hugs and wishes for your Mx.
Well today feeling quite normal (well more normal than I have been of late) no tears yesterday for the first time in what seems like ages! Daughters 12th birthday today so going out for some tea this evening, just hope I can manage it as not been up to eating properly for ages.!
Hope all you lovely ladies are doing ok?
Take care. Jo. XX
Stitchyboy
Member

Re: Starting chemo in February 2012

Morning all,
Just wanted to send hugs to all before going off on our break in a bit, when I get back I am in for Mx the day after so will check in with you all when I get home.
Sarah xx

Goldie112
Member

Re: Starting chemo in February 2012

Gill, I hope you're feeling ok?
I find I'm far more prone to melt downs since all this treatment! I think it's good to cry sometimes.
Haha 50 Shades sounds interesting! Yes everyone is reading it aren't they! I guess I'm missing out haha
Lots of love to everyone xxx

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Re: Starting chemo in February 2012

Had a total melt down today at my Rads, but managed to get through it. cried all the way home and for about an hour afterwards. Where did that come from?? someone left at work today so ive put it down to that!
Jane - i agree with twinky do those exercises, i did mine religiously and have full movement.
goldie - well what can I say about 50 shades. Its been refered to as mummy porn and I have to say is very explicit! It took a while to get going but by chapter 8, Oh my. Everyone I speak to seems to be reading it. The're even talking about making film of it,but Im not sure how!
Gill x
Goldie112
Member

Re: Starting chemo in February 2012

Hi quinny
I didn't have a picc line but I had a port. I didn't get indigestion for it.
I did get indigestion from Chemo though, initially I just used rennie and gaviscon, then my oncologist gave me ranitidene which I took foe the duration!
Hope that helps - if you're suffering tell your team theyvan usually help you x

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Re: Starting chemo in February 2012

hi ladies sorry to but in your thread but as your more experinced i thought i would ask i have intergestion and had pick line fitted tue as any one had picc line and had it few days after? and what have you took? xx
Goldie112
Member

Re: Starting chemo in February 2012

Hi Everyone
I'm so sorry I haven't been on for a while. Had a mini procedure to take my port out (under local - surprisingly ok just lots of bruising after) and then started radio the day after - it's a three hour round trip and that with having people to stay at the weekend has made me so tired this week! Ridiculous.

Where start - Jane, well done on the surgery, sounds like you're doing really well and have been really brave. I hated my drains, they made me feel really poorly, but you sound really positive which is fab.

Twinky, hurrah for the end of tax, hope the antibiotics have cleare your infection and it sounds like you're raring to go for rads. I have been finding it ok, don't care about having my boobs out at all (which surprises me). I had convinced myself that I had secondaries in my ribs as a few days after starting tamoxifen I had really bad rib pain (and read the bit about tumour flare in the leaflet) but I think I'd probably just overstretched and I have a friend who's a Chemo nurse who said that people tend to have a lot of rib pain which is just after affects to Chemo. Will of course talk to my doc about it when I see her though.

Rosie, I've been putting aloe Vera gel on my head (as well as my boob for radiation) and hair is coming back soft (but a bit patchy).

Jo, sounds like a long wait til your next surgery. Just wanted to send you a big hug really. Fingers crossed for the scans and hope your daughter has a lovely birthday tomorrow 🙂

Gill, my friend only mentioned 50 shades of grey the other week - is it any good? I am reading 'good omens' by Terry pratchett and Neil Gaiman and really enjoying it (when I can concentrate).

work is looming too, I decided not to try and work with radio and so far I've been glad as I've been so tired. Also doing that whole, 'getting my head around life after all this' thing, which is hard. I live on between Milton Keynes and bedford so thinking I may join a support group or something.

Sending big hugs to everyone
G xx

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Re: Starting chemo in February 2012

Morning Ladies
Jane - so glad to hear you are doing well, betw you can't wait to get home tho to the comfort of your own bed! Take care of yourself. X

Well I met with my surgeon yesterday following on from their MDT meeting and I won't be having my surgery till January when I will have finished the treatment for the blood clots on my lung, said it's too dangerous to operate on me at present so they are arranging a bone scan and CT scan for me I think to put my mind at ease and to check for possible spread. Just waiting for an appt with my oncologist now and they plan to start me on Herceptin asap. My breating still quite bad so just have to rest and take it easy but hopefully these daily injections will start to work soon!
My daughters 12th Birthday tomorrow so taking her and some friends to the Sandcastle in Blackpool for the day on Sat and then a sleepover so busy weekend but she's a good girl and understands the situation so I know I won't have any bother!!! My poor hubby will no doubt be in need of a drink on Sun!
Good luck to all those starting or having rads, unfortunately mine won't be until prob Feb / March next year now!
Jo. X
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Re: Starting chemo in February 2012

Jane...so glad you're going home soon. Be good & do the exercises. It really is worth the pain & effort doing them now. I have full movement back and no issues with my scar after doing all the exercises I was given. This means I have no discomfort with positioning for rads or wearing my prosthesis or anything like that so be brave and do them!
We'll hold hands together Rosie through the rads. My unit & staff are really nice (met them today) so not worried about going now. I'm sure I'll be well looked after. Have decided to strip off in the room itself. After two ocurrences of breast cancer & surgery etc I have become blase about the exposure...lol....what a tart!
Twinky x
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Re: Starting chemo in February 2012

Evening all
Twinky and Lindyloo - Thank you for advice about my hair will try some gentle shampoo on and stop using my e45 cream
Twinky - I am having rads in early July so will keep an eye out if new thread starts, my second time but was 17 years ago my first time . Bet it has all changed since then .
Woltsy - Good news you are going home and your own bed sheer bliss after a hospital bed .
Going to be a hot night for trying to sleep .

Night all
Love Rosie xx
Wolsty
Member

Re: Starting chemo in February 2012

Having last 2 drains removed in the morning and then going home after a week in hospital. The nurses have been brilliant bto I am really looking forward to leaving now,

My hair is growing back too, quite dark and soft.

Surgeon said yesterday I might not have to have rads but will wait for decision from my onc when I see him in a couple of weeks. In the meantime just going to concentrate on my exercises to get full movement back ASAP.

Hope SEs passing now for everyone. We are getting there hopefully ....

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Re: Starting chemo in February 2012

Hi All
Well Im halfway through my radiotherapy and so far its not been too bad. Starting to go a little pink on my boob but slapping the aqueous cream on morning and night. I also returned to work this week mornings only. it has been a struggle getting up in the mornings after months of not rising before 9 am! Today has been my first afternoon when i dosed on the sofa after getting in.
Suffering still with heartburn, so swigging gavisgon!
Rosie re hair - I'm the same as twinky all through chemo i have washed my head with a hair loss shampoo and conditioner, felt a bit daft at times but ive not had dry skin or itching at all. now washing the white fluff thats growing, and when the wind blows i can feel it through my my fluff!!
Sarah - mine was uneven more on top than at sides, but is now beginning to come. Too slow for my liking. I keep thinking its all going to fall out again. I wear my wig sometimes but am getting more confident of going without it. never thought at the beginning that I would. You see some people take a second look but most just walk on by. Im finding its too hot with it on ,could be my flushes!
Jane - glad your through your surgery and up and about, don't do to much too soon x
Rosie and Twinky - hope you are both improving, you seem to both be suffering .
Twinky - when I started my rads i looked for a june thread but didnt find one, so ive stayed on here.
Off to read my book about Mr Grey!! have any of you read it?
Gill xx
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Re: Starting chemo in February 2012

Hi Rosie
Throughout I've been using Simple Shampoo & their conditioner too on my regardless of whether I had any hair or not & haven't noticed any irritation or indeed dryness. It what I used last time & my hair grew back without any problems. It's really nice to see some regrowth now & there is colour too so that makes a different ( even if that colour is mainly grey lol). Worth a try. Maybe gbe moisturiser is blocking the follicles a bit & causing the itchiness. Try stopping it for a while.
Been at the hospital today for my rads planning scan. Now that radiotherapy is on the horizon I ought to go look for a thread in the undergoing radiotherapy section. Maybe there's a starting in July thread I can join. It's my first time so shall be glad of advice!
Hope everyone who still lurks here is ok.
Hugs Twinky x
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Re: Starting chemo in February 2012

Morning All ,

Twinky - thanks for message feeling a little better today but still very tired ... Hope you are feeling a better and eating a bit more .

Is anybody suffering the same as me with hair regrowth . My hair is starting to grow back but it is so itchy . I am washing it every other day and still putiing E45 cream on my head. Is any body doing anything different to me or any ideas.

Have alovely afternoon. We have some sun in Nottingham for a while before showers kick in later.

Love and hugs Rosie xx
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Re: Starting chemo in February 2012

Oh poor you Rosie x big hug! Lousy being on antibiotics. I've still not finished the ones for my cellulitis & don't think they're helping the oral thrush or the Tax trots situation....one viscous circle! I do feel a bit brighter today though but I need to force myself to eat or I will keel over when I take myself to the hospital tomorrow for my planning scan for the rads. Never thought I'd be forcing myself to eat....I l
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Re: Starting chemo in February 2012

Afternoon Ladies ,
Over cast in Nottingham this afternoon , Jane make sure you get plenty of rest and well done with all your attatchements and going for a walk .
I am feeling fed up today , Starting to feel normal yesterday after ten days of side effects with Chemo , only to get up this morning feeling not normal and so out of breath. Trip to doctors and now I have a ear and chest infection another bag of tablets and the poor doctor asked how I was today only to get no reply and me in floods of tears ...
Thought things were going to get better after finishing chemo not in my case so another quiet week for me again.
So going to do some internet shopping instead ..
Have a good afternoon
Love Rosie xxx
Wolsty
Member

Re: Starting chemo in February 2012

Just been for my first walk along the corridor complete with 4 drains, catheter and morphine drip! Now safely back in bed. Feeling a little better just very incapacitated but so good to know that chemo and now surgery are done! Not sure how long I will be in hospital but to be honest it isabsolutely fine, have my own room and nurses are wonderful.

Jo - sorry about your clot, just so unfair that other problems are thrown your way. Hope they sort out a plan of action on Wednesday. It is always easier to deal with things when you know the course of action.
Twinky hope tax SEs are moving on

Jane xx

Wolsty
Member

Re: Starting chemo in February 2012

Just been for my first walk along the corridor complete with 4 drains, catheter and morphine drip! Now safely back in bed. Feeling a little better just very incapacitated but so good to know that chemo and now surgery are done! Not sure how long I will be in hospital but to be honest it isabsolutely fine, have my own room and nurses are wonderful.

Jo - sorry about your clot, just so unfair that other problems are thrown your way. Hope they sort out a plan of action on Wednesday. It is always easier to deal with things when you know the course of action.
Twinky hope tax SEs are moving on

Jane xx

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Re: Starting chemo in February 2012

Afternoon Ladies - Jane, glad to hear your op all over and done with and hope you start to feel better soon. XX
Sarah / Rosie - many thanks for your lovely comments, I will hopefully feel better after Wednesday when I know what they plan to do with me.
Daily injections in my stomach going ok thanks to a wonderful hubby who has to inject me every evening as I can't bear to do them myself! I'm such a softie!! Managed to get out today for a few hours, nothing to exciting but nice just to get out of the house for a few hours, went for a drive then managed a bit of walk so feel loads better for it. Was hoping to be back at work by now but not for at least another 4 weeks according to my GP. I know it makes sense in the long run, need to be able to start to breath properly again before I rush back.
Well an afternoon snuggled up on the settee for me I think !
Enjoy the rest of the your day - and lets hope England win. X
Jo
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Re: Starting chemo in February 2012

Afternoon ladies
Jane - Well done on operation xx Take in easy and rest

Twinky - hope the week goes quick and you are feeling better soon
Knoxybabes - Sorry about your clot on lung , Hope you get the answers you want
Having another lazy day sat in the conservatory listening to the rain on the roof . My whole week has been lazy with side effects from last chemo . hoping to be feeling a little better tomorrow as want to nip out and get some fresh air . First time out in 7 days
Have a lovely evening
Love Rosie xx
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Re: Starting chemo in February 2012

Jane....congratulations on completing the surgery! Get lots of rest. Knoxybabes....they wouldn't let you out if they thought you'd do that x
In bed still feeling very yukky. Antibiotics working on cellulitis but got a cluster of sore spots around my elbow. Mouth is evil so using drops to tame the sludge. Just want this to be over. Feet still feel pretty horrible with numb patches but can stillwalk ok. Must get in the shower today & get hubby to change the bed. Almost given up on eating. Enjoying nothing 😞 just got to remind myself that in a weeks time it's all behind me...

Twinky x
Stitchyboy
Member

Re: Starting chemo in February 2012

Well done Jane, bet you are glad that the surgery is done, another tick off the list! Have you been told how long you will stay in? Rest up and take care.
Knoxybabe so sorry you having to go through this, as if you haven't been through enough already! Good luck for Wednesday, they will get you sorted.
Sarah x x

Wolsty
Member

Re: Starting chemo in February 2012

Surgery done. Back from ICU In room. Had to have blood transfusion and very sore but at least it's done xxx

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Re: Starting chemo in February 2012

Twinky - thank you so much for your postive comment, I have a meeting arranged for next Weds so I will hopefully know a bit more then in terms of what they plan to do with me now I can't have my op! Will hopefully feel a bit better after that. I have also asked for an MRI scan to which they have also agreed so at least things are on the up!
Can't get this feeling out of my head that I'm just going to collapse anytime soon and thats it? XXX
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Re: Starting chemo in February 2012

Hi Knoxybabes
So sorry to hear about your big clot! I too managed clots on both lungs after my first MX & pleased to report am still here! Remember being given injections when diagnosed & then was on the old rat poison for about 6 months afterwards. Scared me too when they said I could have popped my clogs! In fact the BCN that I rang when the symptoms manefested still remembers where she was when she took the call! I wasn't aware at the time she was panicking. I didn't even realise I had clots. Anyway am fine & hope they sort you out soon.

Twinky x x
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Re: Starting chemo in February 2012

Morning Ladies,
Well what a day I had yesterday! Unfortunately I have now been diagnosed with a blood clot on my left lung, but oh no it can't just be a small one it has to be massive! On my discharge note from the hospital it states extensive embolic disease.
In plain english it is a large build up of multiple clots within my left lung and I was told if I had left it then that would have been it. Very, very frightening and I'm totally scared out of my mind at the minite, can't get my head round it. In Feb when I had my op and that went wrong and I was told I very nearly ended up on a mortuary slab and now this. I definately won't be having my op on 9th July now and although I have finished chemo I'm petrified the cancer will return before I can have my op. I'v rang my BCN and just waiting for her to ring me back as I'm wanting a meeting with my oncologist to sort out a treatment plan as I presume I won't be able to start rads either.
Has anyone else had this happen - any advice / comments would be much appreciated as I'm back to struggling once again and very tearful.......can't believe this is happening. X
Lindyloo49 - please, please go and see your GP re your shortness of breath - that's what I visited mine for, walking upstairs was a struggle (and still is) and I'm quite breathless just hanging washing out etc. Best to be safe than sorry. X
Stitchyboy
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Re: Starting chemo in February 2012

Oh Twinky, hope the antibiotics do their job nice and quick for you. I know exactly what you mean about the bad mouth it to made me feel really miserable not just with the ulcers etc but no taste buds is just awful as you say one of our only pleasures during all this is food! Hope you managed to enjoy your pizza through the power of imagination! My taste buds took took longer to come back on the last one, just coming into week 4 now and they are coming back.
Ann - nice to hear from you, I see you at the top of the mountain, I am giving you a wave!
Jo - hope you're ok and they get you sorted, must be frustrating.
Knoxybabes - great news your lymph node biopsy came back negative.
I now have a date for surgery it's the 3rd of July, my surgeon agreed a mx is best for me and will possibly have recon further on down the line. we get back from our break in Sherwood Forest then it's the next day, feel quite nervous but at least have something nice before hand.
On the hair front mine is coming in very un even, i have more on the sides than on top, so looking like my dad at the mo! Some is white some is dark, getting very impatient for it to come back, very fed up with putting my wig on every time I go out. Is any elses coming back in even? I still also have a few bold patches too.
Well must get my daughter sorted for school.

Love to all

Sarah xx

Guest user
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Re: Starting chemo in February 2012

I am home with my antibiotics but been blubbering because my mouth is typically post tax & nothing to eat it drink tastes good. Makes me so miserable which is a bit pathetic really but it's comforting to eat/drink & there's no comfort if it tastes bad! Watching an episode of the Hairy Bikers didn't help as it all looked so delicious. Hubby bless him has just gone on a 20 mile round trip to Puzza Hut for me after he found me blubbing on the sofa bless him.
The weight loss & getting fit obviously temporarily delayed....but I will do it. Hate being so unfit. All this huffing & puffing. Longing to have hair again. Been having a growth spurt whilst on Tax & even some colour to it but there's a long way to go!

Hugs to you all....the stragglers from the Feb thread! Missing the rest already!

Twinky x
anng
Member

Re: Starting chemo in February 2012

Hello ladies,

Have not been on here for quite some time. So good to read many of you have reached the top of tHe mountain. I am there too (do you see me)

I go for my muga scan Monday and onc appt is on the Friday. I then start herceptin the following Monday. PICC line still in, veins are STILL playing up and that's with them not being used.

Oh the weight issue - it is slowly coming off but i have had to work hard at it.

Twinky - hope all goes well and you get hoMe okay.
Jo - hope you are okay after getting your results today.
Gill - I am hoping to get back to work on a phased return after my second herceptin. Can't wait!

Hope everyone is doing well.

Ann
Xx