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Starting chemo in June

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Re: Starting chemo in June

Funlady - Im afraid i lost all nails eventually , there does not seem to be anything we can do to stop it 😞

MERRY XMAS EVERYONE !!!XXXXXXXXX

funlady4
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Re: Starting chemo in June

wishing every a happy christmas all everyone will be pain free on that day at least................i finish my chemo on the 9th nov now im waitin on surgery ...can anyone help me i been of cheme but my nails change colour went to doctors who prescribe me antibotics as my nails were sore an slight discharge and smell,right now im trying tree tee oil can anyone please advise or even had promblems with they nails.

one again happy xmas to all god bless x

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Re: Starting chemo in June

Hi Ladies, I haven't been on here for a while, such a lot to catch up on!

My rads finished on the 1st December and they went pretty well, just a bit sunburnt and tender inside but since then I have tried to pick my life back up, taking friends up on their offers of lunch and coffees that I neglected during chemo. Not yet up to going back to work, but planning a staggered return in mid Jan which still feels very daunting.

Are any of you still suffering from the after effects of TAX the same as me? I feel a bit frustrated at times when people think I am well now that all my treatment has finished and I find myself telling them that I still have pins and needles in my fingers and toes and stiff joints, not a lot of energy (so hard to get out of bed in the mornings) and get tired easily BUT I hate saying it I am really not one to complain but I like them to know that it IS NOT all over ........... is it just me ?????

REXI I really hope that you are now on your way home, if not already there, to spend Christmas with your lovely husband and children. I had to have a seroma drained twice, can't remember how much but I remember how surprised the BCN was on the amount she drained off - I also tried for a few days before having it drained but luckily I didn't get an infection. I mentioned on here before that I am still having physio and that my arm and shoulder are still painful so I hope you heal quicker than me and do your excercises when you feel able.

BB so sorry to hear that they still did not manage to get clear margins and it now means another op for you! grrr just not fair!

Wishing all you lovely ladies a VERY MERRY CHRISTMAS and a HEALTHY AND HAPPY 2012, I for one can't wait for this year to be over and I expect you are all with me on that one 🙂

Lots of love Linda xxx

supertrouper
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Re: Starting chemo in June

Rexi - yes I am at home with the drain! District Nurse comes and checks it every day and empties it (yuck!) Operation was on the 20th and the maximum length of time the drain can stay in is 7 days so will be out Tuesday at the latest! I have managed to tuck everything under my jumper, looks stupid but so did carrying around a bag everywhere I went.k

BB - what rotten luck - all these ops that you start to heal from and then they cut you again! Just think what a party we will be able to have next Christmas! Roll on 2012.

Rexi
Member

Re: Starting chemo in June

After much sleep, a drip and more iv antibiotics, I woke up and definitely feel better. More with it. So hopefully they agree and let me go later.

ST - you are at home with the drain? Sounds creepy. Who checks it and changes it? When was you op and how long do you think you need to keep the drain in?
Totally understand about the separate room.

BB - I feel for you. I feel hard done by when they try to put the needle into my port 4 times - but having 3 operations sucks! I wish your next operation will be successful and you heal just as nicely. Virtual hug coming your way - *splat*. 🙂

Rexi x

BerthaB
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Re: Starting chemo in June

Hya all,

Rexi - oh no , last thing you want just before Christmas , I hope your out of there soon !!!

Super T - I keep waking my hubby up. poor man is getting tired. if it is not me then it is the kids.

I'm frustrated but the last op seems to be healing .. Started excercises yesterday. again !!!

My little girl greeted me this morning bouncing up and down - Mummy! mummy! only one more sleep mummy isn't it?

Hugs,
J.

supertrouper
Member

Re: Starting chemo in June

Poor you Rexi, hope you get home for Christmas. BB what a run of bad luck you are having! Hope everything gets sorted out very quickly for you. I am propped up on lots of pillows in the spare bedroom again - drain in left side makes it impossible to get comfy and I don't want to feel guilty about disturbing OH during the night. I don't feel very Christmasy - hope I don't spoil it for the rest of the family!

Rexi
Member

Re: Starting chemo in June

I am in hospital! I seem to have some infection - have cold shivers then temp of up to 39 degrees!

They are not quite sure what the cause of the infection is, however they did drain the Seroma - with the help of ultrasound -
The bcn tried to drain it, but couldn't get any out. Turned out the liquid is deep and in several pockets and it was very gloopy, not liquidy - that's why the ultrasound. They drained 345ml. - it feels so much better

Hope you are all doing well!

Rexi

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Re: Starting chemo in June

Aw BB , you must be shattered (())..They will def get margins with an MX, though when you didnt think you were getting that it must feel daunting

Take Carexxxxxx

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Re: Starting chemo in June

Oh BB! What a HUGE pain in the bum. So sorry to hear that you've got to go in AGAIN! Grrrr.... not nice to have this all dragging on and being in and out of hospital. What a pain. 3rd time lucky.

Rexi - hope your seroma's OK.

Lorna - hope rad's are going well? I'm now 10 days after my final radiotherapy and nothing to report apart from a slight tan!! I had a slight swelling and pinkness at the beginning, but that went pretty quickly. So all good I hope. I've been embracing the end of radiotherapy and throwing myself into the festivities and have been partying ALOT and now having a bit of a guilt-fest today as know that booze is one of the things they KNOW increases your chance of recurrance... But it was fun - and so nice to feel NORMAL for the first time in SUCH a long time. Have also dyed my hair a festive red (it was always blonde - so thought I'd have a bit of fun now that it's short). See my surgeon in Jan to discuss reconstruction as the plastic surgeon said I'd be able to have it in March or April...but my surgeon said I'd need to wait longer. I'm keen to get everything over and done with - am finding the recon op (which will be a monster op - 20 hours and 2 weeks in hospital to recover) really daunting and a much bigger deal than the mastectomies - which is crazy seeing as that's the life-saving op. I would love to get it done so that it's finished by the time I finish Herceptin as I don't feel I will even be able to think about "moving forward" until I've finished having IV drugs and get my portacath removed and have my new boobs...

Anyway - I am whittering!

Have a wonderful Christmas all. We all deserve a fab one - whether it's nice and relaxing - or party central!! Hope Santa brings you lots of goodies!

x

BerthaB
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Re: Starting chemo in June

Hello All,

Results were not good there are still bits of the monster in the margins due to the shattering.
Next op MX on the 12th or 19th Jan.

3rd time lucky I hope !!

Going to enjoy Christmas with the kids

Hugs,
BB

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Re: Starting chemo in June

Hiya Junies- What are you all up too ???? Im day 5 of rads , god its tiring getting up at 6.30am , however gets me moving this week when ive lots to do. Im one busy elve !!!!

Hope ure all ok, BB how are u ??

xxxxx

Rexi
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Re: Starting chemo in June

BB - glad you are out and ok. Will cross my fingers for you for the results in a couple of days!
Hugs,
Rexi

Rexi
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Re: Starting chemo in June

Hi nooshka,
I would definitely get it looked at.

My sloshing has turned into a huge bulge ( i cant cover it by my whole hand) above my breast and towards the arm crease. That showed up on Friday night. It has not turned red, or hot, nor is it strictly speaking painful - but doesnt feel nice at all, quite annoying and it makes me feel vulnerable ( and even more useless, since it really handicaps me - sorting things in the new house and I have handed over Xmas dinner coking to OH and daughter). I am moving my arm gingerly and it feels it would hurt if I am not careful. The physio exercises are not comfortable at all - when I do them - not as often as I should, I am sure 😞 .

The surgeon and the bcn had a look at it today and they both agreed - it doesn't look infected and if I can cope, then they rather leave it be. Apparently, if they remove fluids, my body will just produce more and refill. There is always an added infection risk of sticking a needle inside - and eventually my body should get the message...
however, if I don't cope, I can come any time and they ll take some out - which after what they said earlier, I don't see the point of.

I feel much better now, that the professionals have had a look. For me it looked massive and weird, but they were not impressed at all 😉 I will just stick with it and hope it doesn't get worse.

Rexi x

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Re: Starting chemo in June

Hi Nooshka- I would be getting it looked at , its hard as we are not experts and to be told its normal ishard when its you thats suffering it!!

Good Luck

xxxxx

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Re: Starting chemo in June

Hi all,

Still sloshing! To get it sucked out or not? That is the question!

Its not causing pain but it is horrible, I left my last lot of sloshing on the other side and now have a weird tissue like mound to the side of my scar, just above where the drain was taken out, I am now wondering if that was because I didn't get it sucked out? anybody else have a strange mound above the drain scar? Any advice on whether to have the slosh removed on my new scar side? I know the bc nurse will say to leave it but that's because it's not her body!

Thanks again,
Noosh

BerthaB
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Re: Starting chemo in June

Hello Girls,

I got out of hospial yesterday but was not realy with it until today !
2nd op over. Bit more painful this time but they said it may be. Results on 22nd, all I want for Christmas is no more ops !!!

Nooshka --I'll leave the others chat about sloshing

My Husband has been fab as well, 2 young kids, own business to run, he has been to every appointment with me, dealt with my needle Phobia. I have found a superman card for his birthday in Feb... can not wait to give it to him.

Hope sloshing goes away on its own for you guys..

Hugs,
BB

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Re: Starting chemo in June

Rexi- Dont think it can burst the scar. Mine burst as it was infected . Oh its typical that it waits till a Friday night !!My ward said i could contact them in an emergency , Oh what to do ?? Hopefully by the time you are reading this its better.

xx

Rexi
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Re: Starting chemo in June

Day 11 of Seroma watch: Now I do know where the water has collected. It looks huge.
Unfortunately it's Fri evening and a whole weekend is now ahead of me.
Why did it wait till now to show itself. I am still hoping it will stop and go down by itself. Can it burst the scar still or do we think it's healed up well enough after 11 days?
Ninja and lorna, resident seroma experts, wha tdo you think?

BB - are you out of hospital yet? How did the op go?

Rexi
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Re: Starting chemo in June

Re Nooshkas comment 🙂
Maybe we should have a threat: Ask the June Girls !

Together we probably had most variations and seemingly fulfilling answers 😄

Rexi
Member

Re: Starting chemo in June

Hi,
I can also add to post op comments now 🙂
They removed my drains after 4 days ( op on Mon, drain removal on Fri). The drainage bottle was getting still way more than they wanted to see.
After 8 days I heard sloshing / water in hot water bottle sound. Checked with bcn, who said if it causes lots of discomfort, come in they ll sort it, but if it's not uncomfortable, it won't be a problem ( - I suppose unless it leaks and then gets infected, as experienced by Lorna).
I came of all painkillers on day 9 - the sloshing continued and it was more uncomfortable, but no definite bulging spot as such. Phoned bcn again, same answer and she reiterated, that the body can reabsorb the fluids, also that by removing it, the body will continue producing it - of course if it hurts/ is uncomfortable, do get it removed. I don't like the idea of more needles either, but the surgeon said that that area is still numb from the op and that helps.
Today, day 10 - the sloshing continues, but still no one definite spot and it doesn't seem to be as sore overall as yesterday.

That's where I am at - not sure what the next days bring, but I really hope it will go away by itself...

Nooshka, it must have been a hard decision to have another operation! Good luck with the recovery!

Rexi xxx

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Re: Starting chemo in June

Hi Nooshka - It doesn't hurt getting it drained , they take a fine needle with a syringe attached and drain it out , i never felt a thing. I never had the sloshing but did have the seromas. If it doesnt get any worse they will leave it. The rule of thumb seems to be that if it causes you extreme discomfort they drain it. However mine was drained at scheduled appointments , they never caused me discomfort

xxxx

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Re: Starting chemo in June

Hi Ladies,
Sorry to butt in (again), I always find your information and advice much better than anyone else's, including the hospital! I had my first mastectomy and lymph clearance before I started chemo in June, I finished rads in Nov. I have now had my 'good' boob removed as I wanted to be balanced and couldn't face recon. My question is about seroma, I think some of you had problems with it but I can't remember. I didn't have any seroma with my bad boob op but I seem to have a sloshing bit round the bit they pulled out my drain. My op was 4 days ago, did anyone else have this? When did they drain it, or did it go by itself? Does draining it hurt!
Thanks for your answers, balanced and boobless in Carlisle! X

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Re: Starting chemo in June

Rexi - Cheers to that !!

supertrouper
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Re: Starting chemo in June

Sorry to read that some of us are having family/friend issues. Nothing I can really add to this other than to say it's not our fault. I have an older brother that I wasn't particularly close to until my dx - which has led to us communicating more. My only other relative (apart from my children and grandchildren) is an Aunt who is 97 - I haven't told her about my bc and I won't until I get told I have NED.

I am with Rexi when she talks about her husband and his love and support. I too have an amazing OH who is my rock and been by my side every step of the way.

Rexi
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Re: Starting chemo in June

Totally agree with BB - re surround yourself with supportive people.

Sandytoes, your sister - uncalled for behaviour

Aaah - I was waiting to get my whinge of my chest. 🙂
Another loss due to BC - but maybe bc was just the catalyst to the divorce of a relationship already in jeopardy.

In the end I am extremely happy and grateful to my husband and how fantastically he has been dealing with everything, and to have his love and support. And that of Other family members, old friends and new friends that have unexpectedly turned up due to bc. Feel blessed to have all of them :).

BerthaB
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Re: Starting chemo in June

Rexi -- Just seen your post. that sounds dreadfull--- people can be so odd -- realy not what you need when your going through this.

BB

BerthaB
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Re: Starting chemo in June

Hi All,

Pam - Sorry to hear your down, I have Rads to come. I am just impatient to get them started !! Not sure how I will feel when I get to this point.

Rexi - So good to hear your good news on the margins... your under arm is sending you a message ... rest please...!!!!

Sandytoes - Rads done - fab ... try not to let anothers behaviour upset you, get out there and enjoy yourself, perky and happy you should be, don't hang around with people who make you feel otherwise.

Hugs.
BB

Rexi
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Re: Starting chemo in June

Whilst on losing friends - I have two sisters, both live far away in Germany, so I don't know really how they would have dealt with the dirty details on a more regular basis.
However, I have a closer bond with my younger sister and she's been great - normal, straight forward, supportive, she has been here and was great in that week. The other one is more air heady and doesn't seem to get it sometimes. I have a neutral ish relationship with her anyway- would generally not talk greatly about feelings etc - we are on a different wavelengths.
But, she got closer to my BFF of 30years, they live in the same area in Germany. Since June my BFF became more and more distant and disinterested and after a weird email exchange in Nov, when the tension got to me totally, I received a lot of ridiculous accusations: the way I behave towards my sister was unacceptable (seriously nothing had happened, but yes, I didn't want her suddenly as my new best friend, there is history and I don't trust her - and so? - its MY relationship with MY sister, what's it got to do with my relationship with my BFF?), my need to get attention and demands to be pitied by everyone? - which apparently is the only reason why I am going to work?!, publicising my 'situation' on Facebook should be rethought?! -- Accusations based on mails and text message contact since dx, since she has not actually seen me or talked to me on the phone (another story) since before the dx!

I really couldn't believe that after 30 years she would think of me that way. I am not that person she portraits. I did even start to self doubt and checked with my closest friends here, and hubby and no, absolutely not - it's not the way I am seen or there is nothing I have done wrong in the way I am dealing with everything. I decided I don't need a person like that around me - not now when I am quite vulnerable or ever.
So - I am no longer in contact with her. I feel better than second guessing for months what the problem is, which was making me sad and upset in the process, but I still can't believe the circumstances...

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Re: Starting chemo in June

No, it feels like she's out to punish me and hurt me as much as she can - and I don't know why.

The ONLY time I asked her for any help during my treatment was for a lift one day. I asked her a week in advance - she said yes. Then I got a text the morning she was meant to collect me saying she'd been out until 2 in the morning and was too hungover to come and help. No apology nothing. What hurts the most is that I would drop EVERYTHING for her if the situations were reversed. For years I did put her first and looked after her and out for her when my mum died but she kept pushing me away. I guess I assumed that a cancer diagnosis might have brought us closer together again. But no...

Hey ho. Like I said on another thread I had a moan on. Silly sisters.

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Re: Starting chemo in June

Sandytoes - Aw , that sucks . I have a sister and she is the one who i have struggled with through this , she doesn't understand or is scared so is simply quite dismissive with me at times, pretending its not happening. It does hurt , i hope her reasons are sincere for letting u down . I know u will bounce back though !!!

xxxxxx

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Re: Starting chemo in June

Hello Junies!

Pam, so sorry you have to worry about kids being cruel to your son. Kids can be horrible sometimes! My mum had cancer when I was at school and kids used to tease me about my mum not having any hair etc. Not nice.

Rexi - I didn't have drains, so can't help, but if I were you I'd get it looked at as you want to be all healed up for Christmas. And sit down and take it easy!!!!

Yup rads done, and I was feeling really perky and happy - and then my sister (only close relative left) really upset me by cancelling coming to spend Christmas with me and also cancelling our dinner we had planned to celebrate the end of my treatment. 2 of the things I'd really been looking forward to and had put a spring in my step. Feeling really rejected and upset - but trying not to dwell on it and get back into my perky Christmas spirit again!

x

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Re: Starting chemo in June

Rexi - If u are concerned keep phoning as i didnt get to the sloshing bit as i never had a boob , lol , but with the seroma i actually began leaking fluid threw the scar , which then got infected and has only just healed. It sounds good that u have normal arm movement , good on u..xx

Pam - U sound like me soo much , i too am an emotional wreck .Lets see how i cope with a month of rads. !!!!!! Keep the pretend smile plastered on...

Katie - I hope u are having a ball/ "Wish upon a star" for us all in the magical kingdom !!!!

Oor Sandytoes - I hope u have a smile plastered to ure face...well done.xxxx

BB - Hope the op goes well and u get clear margins , thinking of u.xxx

Take care All

xxxxxxx

Rexi
Member

Re: Starting chemo in June

Hiya,

My rest came to an end when I finally got home on fri eve ( op was on mon). They were reluctant to let me go as I was draining still loads - after it looked like I was following some textbook on wed morning when the fluid measured only trickles. a couple of hours later the bottle was up to almost 200ml! Some gunk seemed to have blocked the drain, got pushed out and it was a steady flow from then on.. So much to 30ml in 24 hours. On fri they let me go home despite the, I don't know, 150/180ml in the previous 24h?
They explained several times that the drains themselves sort of produce fluid, also a bit of fluid buildup can be absorbed by the body itself, it sort of has to figure it out.
It felt fine for the first few days at home, but I think I did to much ( cooking dinner, moving stuff about, i did rest too, honest, but it makes me feel like a lazy cow, when there is so much to do in our new house!) and yesterday I decided I need to do less - couple of places in my underarm scar are slightly bleeding :(. And I have the sloshing boob syndrome - freaky! So obviously there is fluid sitting around making noises! I phoned the bcn, who said not to worry until it becomes really swollen or uncomfortable. I just don't exactly know, when that point is - will I know? How long can you hang around with this before it could become infectious? Does it become infectious?

BB - what a bummer - another op! Totally feel for you 😞 - it sucks. Another lumptectomy, right? Will it hopefully just be a day patient job?

I had my results this week too: got clear margins of 16mm, 4 of the 20 lymph nodes had cancer cells or scaring - which is pretty good, as we already knew about at least 3 nodes affected! The lump was still sizeable, despite some misleading info before that it was almost gone. But it's out now!

Have good arm movement and am using my arm almost normally, but need to do more exercise as everyone says that's the big downfall - to do less of it when it goes well.

Sandytoes - super - one more big step done!
Pam - awh - your son is so nicely protective, but poor little mite :(. It's a huge thing for them. I only get glimpses in what's going on in my children's head, when I hear from other people that my children have commented on something, which shows how much they do think about bc, although they might not have mentioned anything at home.
Lorna, good luck with the radiotherapy!
Katie - enjoy enjoy enjoy!
Love to everyone else!

Rexi xxx

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Re: Starting chemo in June

Hi girls
Have been AWOL for a while but keeping up wit everyone's progress.I have started my rads and have the third one tomorrow and must admit I quite hate it.Not quite sure if it's the actual treatment itself or the total inconvenience of going up and down to hospital every day that is getting to me but every time I think about it I feel my BP rising.Dont know about you lot but my times are all over the place and it seems like anything I asked for they have done the opposite.Im sure this is not the case but in my highly emotional state of late it feels a bit like that.And as for the pen marks drown all over me !!!!!!!!!!!!!!!!!,!,
Had a horrible afternoon on Friday .Got a call from my sons guidance teacher to say he had been fighting so up to school I go.It turns out that the guy he was fighting with had been bullying him calling him names etc for about two months and because of my illness he didn't tell me as I had enough to worry about.In fact his teacher said he begged her not to phone me as I was going for radiotherapy and had enough on my plate.Fourteen years old and having all this to deal with well you can imagine how I felt.Anyway the school who obviously know my situation were very kind and are going to sort it all out.Just another worry to add to the list.
Anyway have spent the weekend decorating the house and making it all Christmassy.My oh comes home on Tuesday and we are growing a party on Friday so will hopefully be full of Christmas cheer.
Bertha b - really sorry that you need more surgery but at least you will be sure it's all out so good luc
Rexi-hope you are recovering well
Katie have a wonderful holiday
Sandy toes and Lorna -hope you are both ok
Love to everyone else
Pam

BerthaB
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Re: Starting chemo in June

Kate.
Hope you have the best time ever !
Look forward to hearing about your hols when your back!

Hugs
BB

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Re: Starting chemo in June

ENJOY !!!!!!!XXXXXXXX

worthks
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Re: Starting chemo in June

well I am all packed with 2 very over excited girls!
Got some steroid cream for the burns (hydroquarterzone cream) and miraculously all cleared up today!!
BB - Good luck for next week, how frustratng to have it all again but better out than in!
Rexi - welcome home, no more rest and pmapering for you now!
Lorna - good luck for starting rads next week and Sandytoes 2 more now?? congratulatons for next week
I wish you all a very Merry Xmas and heres to a Happy and most importantly Heathly 2012.
I will log in if I can while I am away
Lot of love
Kate xxx

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Re: Starting chemo in June

BB , THAT SUCKS . !! However u healed well the first time so will again. I had 9 of 24 nodes still with cancer at op , i just thought well at least 15 were clear... At least they are away now and u will def have clear margins this time .

Take Care xxxxx

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Re: Starting chemo in June

Yeah - I can understand it must be really frustrating. Grrrr.... But good news that the chemo had exploded the gremlin!!

You'll need to treat yourself to lots of Christmassy goodies!

BerthaB
Member

Re: Starting chemo in June

Hi Sanytoes,

I was very pleased with the Mamoplasty. It was a very neat job and healing so well... The consultant explained that the Analysis of the lump taken out shows that it has shattered(Sounded Dramatic to me!) What this means is that it has shrunk down with the Chemo from the original from 7.5Cm but as it shrunk it has left bits in the area it once took up.

Feeling better about it than yesterday. The most frustrating this is that I am busy healing here and it will all be undone on Thursday ! Grrr

hope all is well in Rads land.

Hugs,
BB

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Re: Starting chemo in June

BB. What a pain that you have to go back in for clearer margins - although this seems quite common with lumpectomies. Are you pleased with your mammoplasty in general? X

BerthaB
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Re: Starting chemo in June

Hi All

Rexi - Glad your enjoying your "mini break" It must feel like chilling after your house move the week before !

Good to hear people finishing Rads ... Sandy wa!! hoo!! before Christmas finish...

I am doing fine and healing well but found out results today.
My margins were not clear in two areas also 5 lymph out of 17 had Cancer. So I will be having the same boob op again next Thursday to try to get clear margins.

Not the best day for us ...

Looking forward to getting a Christmas tree on Sat with the Kids and School play next week too before op...

Hugs
BB

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Re: Starting chemo in June

Thanks Wandy! Interesting how it can get worse after isn't it! My onc said it would peak 10 days after and then would suddenly get better really quickly.

Oh well, what will be will be...!

Thanks for the tip about the honey. Sounds...sticky...! Will have to do it in private or my OH might think I'm getting a bit kinky and start having ideas. The dog too.

Wandy
Member

Re: Starting chemo in June

Sandytoes,

Just nipping in from May girls! Saw your bit about rads. I was fine right up until a few days after they had all finished and then got very very burnt and sore with weeping open skin. Sorry all if tmi and you are all having tea!
Anyway tried lots of creams and dressings and nothing was working. Then was reminded how fab Manuka honey is topically as well as eaten and started slathering it on!! Miracles, within days it had all cleared up and looks a bit pink but v healthy now!

So just to remind you and anyone else, don't forget Manuka! Hopefully you will be fine.

All best June girls

Wandyx

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Re: Starting chemo in June

Hi Guys - Ure right to try and enjoy the break Rexi , it will no doubt be hectic when u get home . Take Care and do the exercices !!

Stoes - I am nearly there , almost healed so i have till next Thurs so i should be ok. Im pleased u are nearly finished, a real milestone eh? We struggled to see this day coming back in May !!!!

Love to all

P.S - If im not back on line yts because the house has blown away , u ought to see the weather here....eeeeek

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Re: Starting chemo in June

Hi Rexi! Is your husband getting the house all sorted for when you get home,,,?! Or are you actually superwoman and have already unpacked etc? Sounds like you're doing the right thing - taking the opportunity to chill out and relax! Hope the food's good.

I had full lymph node removal and both breasts removed. Funny how different surgeons do things differently. I was quite pleased as am very squeamish so not sure I liked the sound of drains! And my surgeon also said there's less chance of seromas with no drains, and I had no probs at all.

Only 4 rads left for me now and then I can get properly excited about Chrimbo! So far, touch wood, boob OK. A bit pink and swollen (but am completely numb since the op so no pain!) but apparently you keep 'cooking' (not sure that's the technical term!) for a while after. I'm hoping it doesn't get too bad as would like my first expansion of my implants before Christmas.

2 sleeps to go Katie! How are your burns?

Lorna - are you all mended now? You start rads next week don't you?

X

Rexi
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Re: Starting chemo in June

BB - you were out so quickly - well done! How are you after a week now?

Super trouper - will you get the lymph nodes out, too? I think that's when the drains are mainly used. I reckon better out than in. A little bit of liquid can be absorbed, but with lots they try to get the most out with drains.

Sandytoes - did you have lymph nodes out as well? I can't remember? And no drains?

I had loads of liquid come out since the op - all together over 400ml - gets measured regularly and removed daily, can't imagine where that would have gone instead...

Katie - oh your holiday is just around the corner - you will have a wonderful time!

Linda - definitely taking your advice to heart. Exercise, exercise, exercise... They don't want to start radiotherapy, if the moving range is not good.

My surgeon injected a blue dye into my arm - the idea seem to be that the 'arm' lymph nodes are then blue and he will avoid taking them out, whereas the 'breast' lymph nodes are being removed. It may help reduce the potential occurrence of lymphodema, but apparently it's not proven. I am sure somebody mentioned a blue nipple before, was that for the same reason? Has anybody else had that procedure?

Rexi xxx

Rexi
Member

Re: Starting chemo in June

Hiya,

Yes operation is over. With the moving last week, I gave myself barely time to think about it and only packed the eve before. It got delayed by a bit on the day and was back in the room in the evening.
Had lumpectomy and node clearance, with drain and I am still in hospital.
Looks like I am going to stay till fri, as there is still a lot of liquid coming out and they won't send me home with the drains or if it's more than 30ml in 24h or so.

My children are well looked after and we have been talking on FaceTime every evening, so we have seen each other. I don't mind hanging out here - whatever it needs. I have a quite nice room with view of the Thames, nicely cooked meals, telly, books - bit like a mini holiday 🙂
Pain is controlled by various tablets, which I started to reduce a bit today, it seemed like there was a constant stream of tablets coming my way today, I want to see how many I really need.

Rexi xxx

Guest user
Not applicable

Re: Starting chemo in June

I have seen that thread and cannot even begin to understand where they are coming from ?? Its a no brainer for me...
Oh thats good that u seem to have the same , i also have had noooo flushes.

I hope this continues .....was interesting as Jennifer Saunders was talking about how tamoxifen made her feel instantly old and depressed , i am kinda watching my mood but hope its a blip.

xxxxxx