Hello ladies, I wonder if I can join your thread for some support having commenced chemo in March. I usually post on the secondary forum because unfortunately when I was diagnosed three years ago I had spread to my bones. Had been well on hormone tablets since diagnosis until recently but now need to do chemo to kick into touch and then hopefully control with herceptin. Am having 6 cycles of docetaxol, herceptin and perjeta another drug. Have found both cycles quite tough - now day 8 of second and very tired but I was really well in the last week before the cycle so thats keeping me going. Hair all gone now - but the wig and the numerous scarves I bought are serving me well. One of the thing I find hard is boredom! Never been one to sit down and watch daytime tv so am so glad that we are going through this during the spring / early summer because I love being out in the garden.Jackie x
I took 2 domperidone x 4 daily for the first 4 days...then weened off.....ths meant that I also took it alongside the emend......the nurse said to take the domperidone to ward off sickness.......so that you get through the first few days ..... x Donna
I had my first chemo in March - next one is next week. I'm on FEC x 3 then will switch. Can't believe someone else has a prickly scalp - every hair root hurts. I thought it was my new short hair cut. I'm not cold capping as I go to the loo all the time whilst they give me the chemo! Embarrassing. I asked for the emend tablet before chemo as I didn't want to be really sick. I still felt really awful the first night of chemo. What I'd keen to ask you, ladies, is on the day of chemo, having taken the emend before chemo, then the other tablet in the evening can you also take the tiny "dom perignon" tablets. I didn't, but I'm wondering if they'd help.
Wishing everyone on this thread HUGE positive outcome results.
Number 2 done here also! dh my onc also prescribed me some emend this time round, had to take one an hour before they did the chemo and have 2 more for the next 2 days. I did have some nausea by about 6pm but its worn off now. I just cannot sleep! I think its the steroids keeping me awake, they gave me double dose this time.
i had pain in my breast and node removal too .....some days my breats felt harder than others.......good luck for Friday x
Thanks guys. Good to know that Im not the only one that had palpitations. It is really frlightening.
Feeling much better now but hoping its not the calm before the storm. Scared enough of these hospitals.
Going wig shopping tomorrow. I got my hair cut really short so to get an idea of what the wig would be like on my head. Met some one at hospital who just shaved all their hair off - such an upbeat and lovely lady. A real inspiration.
Hope everyone doing okay tonight.
sorry to hear you are feeling sick 😞 ........as for the palpitations...I had those.........they say common side effect
.I have only just got home from hospital this morning...Awoke at 2 am hot temp over 38.....Pulse 110.......... Lots of blood tests later...Not neutropenic.....infact the opposite high white blood cell levels ......which they think is due to infection or viral.somewhere........had ecg, chest x ray and urine tested.........Eventually sent home with oral antibiotics.......Feel a lot better now . Hope you start to feel better soon......and everyone enjoys mothers day xx
Love to all and lots of strength going out to you all that are loosing your hair. My feeling more human statement ended me up in hospital chemo emergency with high temp on day8 friday. Was discharged today after lots of treatment and lots of antibiotics,am on temp watch still,watch this space.They did e.c.g ,chest scan etc ,blood checks,nothing to nasty infection but interesting listening to the advice nurses give to people like us ringing the chemo emergency line(my bed was right near ear shot ;-).... My male nurse for the night did have a kip in the bed across from me during the night !!!!! What a journey we are all on xx
Well considering how awful my first chemo went I was dreading round 2 yesterday, however, with the adjustment in my steroid dose I can't believe how good I am feeling. I seem to be waiting for that sledgehammer moment but its not arriving! Yipee! Just tired all the time, dosing every couple of hours.
Just waiting for the disctrict nurse to turn up now to give me my white blood cell booster.
Ali24, Did you end up having your first treatment yesterday after? How are you feeling?
Eitaki, sorry to hear your news, I hope your chemo can continue on tuesday, we all want to get through this as quickly as possible!
Donnaandfamily, can't say my bowel movements have been normal! Bit all over the place really, but as long as I'm not sick and drinking lots of water I'm not that worried about it.
Projectkylie, Wig shopping is easier than you think, I never thought I would find one that I liked but I ended up with the second one I tried. I was adamant that I wanted a two tone/highlighted one but slightly darker than my usual bleached blond look that I've had for years. I thought it best to go more on the natural looking side so it didn't stand out. The parting and hair line are made of a see through mesh and are so clever when on, it really looks like the hair is coming out of your scalp.
Love to all Buttercup01 xx
Evening all............. I too suffered the burning in throat and chest and was prescribed omeprazole........ worked overnight..............had day of bright yello stools (sorry graphic) Mac nurse said to keep an eye on incase of infection...luckily brown today......... my poo seems to be all over the place.....fsoft one day loose the next........ anyone else suffer the same? I eat lots of fibre and drink plenty.....
hi ladies. For those people who have mentioned annabanada for headscarfs...ive ordered a ton of bandanas from there and can recommend them highly.
Well I had to go see my breast surgeon today, turns out i have breast lymphoedema but its also looking like i have some infection going on there too (boob is red and hot). I feel normal and not ill, so this is a bit of a surprise. I have been put on antibiotics for 7 days. No idea if this means my chemo will be delayed next tuesday. Hope not 😞 took long enough to get the green light to start it.
Just thought I'd check in before I take my first Lorazepam to chill me out ready for tomorrows 2nd dose of FEC. Feeling extremely apprenhensive, especially as my meds have been changed to try and eliviate the anxiety I felt last time.
Went for a facial today (a treat from the bestie), it was amazing! Does anyone know if I can have body massages? The spa were a bit concerned as it increases blood flow etc...
Dh, feeling for you with the hair loss, I shaved the remains of mine yesterday, I couldn't handle it all falling out anymore. Felt much better after (although it does show up the patches more) and gave the house a good hoover through. Cleaning is good for the soul I say!
Looking forward to the head scarves arriving which I ordered from Annabandana (recommended by a fellow March lady).
I'll post again in a couple of days, let you all know how I get on with Round 2. Love to you all xxx
Hello Everybody,thank you for all your replies,i am feeling more human today thankfully. Its day 6 after fec. I tried the water but felt so sick it was hard to keep drinking.so does drinking lots reduce sickness ??? I have lost 7lbs in 6days !! I was given amend for first fec cause i suffererd with bad morning sickness when pregnant but still was feeling bad on it. The nurses did tell me it was rare to have amend on your first fec. Concerning fec,i was told fec-t was worse than fec!! Id be happier to hear that im having the worst now.I also have to start herceptin half way through chemo too. How are you all today? Soz got chemo brain so have not addressed you all by ya names. Am glad i was not the only one with head and neck pains,thats good to know cause i thought it would turn into an emergency at one time. I had bout of D&S one evening both ends at same time,soz to be crude but comparing notes and all that. Lol Love to all x
Dh im the same, handfuls coming out. Bald patches appearing. Totally had enough by yesterday. My sister is coming to shave mine off at 4pm today 😞 really is sad.
I have a picc line which was put in the day before I started my chemo. The thought of having it done was worse than the actual process. I had 2 nurses as one was in training. They were both lovely and talked me through each step.
You can't feel the line once it's inside you. It did feel a bit uncomfortable on my arm to start with but after a while you get used to it. The nurse comes once a week to clean and flush it through which doesn't take long and is no bother. It's a bit unsightly but I just make sure I wear clothes which cover it. Showering is a bit awkward because you musn't get it wet but they give you a cuff to wear over it.
I asked the breast nurse before I started how quickly would I start to feel unwell......she said your journey is yours and everyone is different....with some people not feeling unwell........... I kept that thought....drank 2 lltres of water the day before.....on the day and the second.day....actually I contimulaly try to hit the 2 litre level daily..............folliwng the advice of these lovely ladies who went before me........good luck x
when I went last week for my first cycle .....I arrived at 9am......they gave me emend and steroids 1 hour prior to administering the chemo...at 10am.......I left the unit by 11:30........so hopefully your time frame should be the same...........