Hi Donna ,thanks for the tip...anything that helps.Start my jabs tomorrow that put me in agony. Day 4 of fec2 today and not as sick as last time but still not great. Hair nearly gone now .didnt bother with cap 2nd time. Excuse memory and writing,def have chemo brain lol x
Hi again Deb....
regarding raising white blood cells (WBC).....my daughter bought me from Tesco online LifeMel Honey...made in Isreal...you can read up on it.......it claims it boosts WBC and is research backed..........it is 2 teaspoons at each morning and at night ...is a bit expensive xx
Mel My hospital told me about a plastic arm sleeve (cost £14 from the shop in the oncology centre) which is great for showering. It also means I can have a bath (bliss) (obviously keeping arm out of water). I also have a PIC line and agree it is a bit difficult with some clothes. Having to wear the same things with looser fitting sleeves.
Not sure what Chemo regime you are on. Sadly i lost all my hair despite the staff at the unit doing everythng they could (they really were just great) and me using the Paxman. I had a high dose and it came out about 50% after the first FEC and the rest was everywhere so i had it shaved just after the second.
Not sure if this is your regime or if you are aware that generally it is the FEC that causes the hair loss and usually it starts to get a downy covering when you go onto Taxol. Just a thought as it might be worth giving the Paxman another go if you've hung on to most of your hair so far.
Good Luck with the rest of your treatment. Take Care Gilly x
I had a cold when I started my first course....so hopefully they will still go ahead.......I did have high temp day after finished injections...after all tests.....they put it down to the cold......had antibiotics and sent home ...so fingers crossed x
I'm now getting a cold !!!! Will they go ahead with my chemo friday? IIve had such a bad 3weeks since fec1.Saw my onclogist yesterday..i have to start iron and have the injections for my white count on day 4,5,6, next round.Usually its for 7days but because they put me in agony he is just giving me 3days for now.Dreading friday xx
hope everyone is well.....................can anyone help.....my wig cap keeps riding up under my wig and I end up with a nipple on the top of my head....how do I stop it riding up?????
I use my grandaughters oilatum junior cream for dry skin and ezcema ....and I bath in oilatum which coats your skin lightly......its ideal for sensitive skin....I did put onmy face which initially was fine...then had sensation......may have been hot flush but didnt put on face again .......... The summer is coming and you can enjoy the weather......
We have just bought off ebay an old campervan.......we went out at the weekend and ate our food out...so didn't have to worry about what I was eating and how it was made.......its great when we are out and need the loo or feel tired......No holiday this year so we put it into the van .......xx
didn't take the plunge and cut it off.....still have a covering and fringe.....wearing turban in doors with fringe showing ........but wig when out........like you say while its here Im hanging on.in......still have legs like a yeti.....xx
Hope you are all well....as can be .....
Most of my hair fallen out now...so wig on all the time now ....
My next chemo is on Thursday......blood permitting......... not looking forward to it but onwards and upwards...........
I still keep having one side of my face hot flush...weird.....and I have a zit the size of a plum on my chin........hubbie didnt know which head to kiss first.....joy ohh joy......x
Hi everyone, its day 10 for me of the second fec. I am now feeling a little normal and less tired/weak. Debs it must be hard, I like you ended up in hospital after the first cycle of FEC and thought I could not cope with this. The second cycle you seem to know what is going to happen (appreciate that you had a chest infection to deal with alongside all the other side effects that chemo gives you) and are more mentally prepared.
Hope everyone else is doing well, I did have my head shaved last week before I had second cycle. Mum saw me today and I think I scared her because my head was not covered:)
Has anyone else got a rash/spots on the scalp since losing the hair - I have and was wondering if you have any tips?
Also after second fec my arm has been so painful - corded and won't straighten out - any tips to ease this because I am not looking forward to cycle 3 (same vein will be used again). xx
Its me again,im day 16 after my first fec..had cold cap but hair starting to come out a bit today. Have not been on here as ended up back in hospital for a week !!! chest pains and breathless,had infection and count was so low amongst other things i have not the energy to write right now. Been awful for me since day one of fec.The injections i had to have to higher my white count also put me in agony up my back,head and chest and morphine did not work !!Been quite poorly really but met some great cancer patients in hospital. am weak and tired right now but out of pain(for now) Start my next fec 11th april if im well enough but they are talking of lowering my dose.all the best be back when possible.x
Ohhhhh thank you buttercup
it appears my hospital hold it once a month ....I wil ask when next there ....never thought to look on google,,,,thanks x
Hellooo all, hope you are all well
Can anyone advise how or where you getthe "look good feel better course"?
Keep hearing about it but dont know how to het it or where?
Thanks x Donna
Morning All. My hair starting coming out in handfuls after my first dose so had it shaved off - just found it awful waking up with hair everywhere. Had second dose now and still have eyebrows/ lashes - hoping they will stay round for a little longer. But I have got used to wearing my wig about now - bought two one like my own hair and a shorter cheaper one that I thought I could wear under a hat to take my dog for a walk - found this one more comfy so now my preferred hairpeice! Buttercup I found my skin very dry and bought a skin oil to rub in by Jennifer Young - which seems to have really helped. Now 10th day since 2nd dose and feeling much better, ended up having to have anti biotics for chest infection but 2 down 4 to go as Buttercup says a third of ther way there. Hope evrybody has a lovely weekend. Jackie x
Haven't posted since last Saturday (following 2nd FEC on the Friday), the sledgehammer hit Sunday morning!
Felt totally wiped out all week but started to feel myself again yesterday So that's 2 down 4 to go, a 3rd of the way through!
The worst side effect for me this time around was the that my skin felt so sore and bruised, like I'd been beaten up! That lasted Sunday & Monday - has anyone else felt this? I'm not sure whether its because I chose not to take the steroids after the Chemo?
I've been keeping up to date with all your posts and notice quite a few (if not all) of us are losing, lost or shaved our hair! So much for the cold cap eh?!?! I shaved my head just over a week ago now but still have my eyebrows and lashes at the mo. Wondering whether round 2 of chemo will get them this time?? I'm armed and ready with the brow pencil and false lashes if it does happen! Lol.
Best wishes to those due round 2 shortly xx
I think it's the worst thing losing your hair. You know it's going to fall out but the speed it happens it's quiet amazing. I ended up getting it all shaved off as it was looking such a mess. I got a NHS wig but also had a Heather's Hair weave www.heathershair.co.uk and ended up wearing that all the time rather than my wig. Hope the chemo treats you all kindly and your hair will grow back...the feeling of wind in my hair now is something so special I would never of even noticed before. All the best to you all. It's a long journey.
Hi Donnaandfamily, I feel better now I've a short crop, at least it's a style and fun and funky. I went from past shoulder length, to a long short style, to a short style, but when the loss got going it was a mess. The wig shop cut my crop about an inch all over. I'm still shedding even after 2nd FEC both with cold cap. Go with what's best for you. x
Day 14 and hair now coming out in handfuls..........I think at the weekend I will take the plunge and have to cut it off......... makes me feel so low...... wish it were time to wake up from this nightmare........ its hard trying to stay strong at times......... but i am so lucky because I have a fantastic family ....hate seeing them suffering too ........
Wecome Porkie......... glad to hear you are doing well despite having to undergo chemo again....... but its worth it x
Like you say we are allllllll looking forward to the summer to make the day brighter