Hope you are all doing well. I haven't been on in ages. Just trying to work through with things. Struggled emotionally at the beginning of treatment. Thought things would feel more in control when starting treatment but sometimes it doesn't work that way. Feeling much better now thought. Did okay on the first two of FEC but struggled with the last one. In bed most of the time feeling exhausted. Getting 3TAX along with Herceptin next and dreading it, as have read the side effects can be worse, but at least should not have the nausea the same. Not looking forward to the pains in joints and muscles. I have been told it will take 6 hours to administer as it is a loading dose and have also been told that I need to inject myself the day after chemo (I get chemo on a Friday). My mouth is awful (liked the scouring pad description). Have been eating pineapple by the load. Have also been told that grapefruit quite good. Haven't enjoyed any food since the start of chemo but trying to hold on to the fact that I am half way through. I still have some of my eyebrows left albeit they have thinned out a bit. Same with the eyelashes.
Stelwah - good luck with the exercise regime.
I hope you are all keeping well and managing treatment okay. Always feel better when the sun shines.
Mel found your post really helpful as I'm ER 8/8 too (I'm Her 2-). My tumour is large and isn't really shrinking although I do think my breast is less heavy. I didn't know the high positivity could mean it takes longer to respond so that was helpful. I wonder why they are not switching you to Tax. I was on FEC 100 - grim honey so will be thinking of you tomorrow. Ask them for EPEND anti-sick pill if you don't already have it. INSIST 🙂
I haven't been on in a while - I hope everyone is getting on okay.
Having had 2 sessions of FEC my tumour hadn't shrunk at all (I'm having chemo before surgery). Really disappointed. So my oncologist switched me over to Taxotere early. I found it much easier to deal with in terms of the nausea etc. I got really bad stomach pains all through my gut on day 3 and 4 but they wore off. My only other symptoms have been sore/numb fingers and my taste buds aren't working. I am due to have chemo 4 - second round of taxotere - on Thursday. I am still not aware of any tumour shrinkage but desaparetly hoping. What are the risks of the cancer spreading if my tumour doesn't shrink by the time they do surgery?
The other down side was that I got admitted to hospital on day 5 with an infection. My arm is now buggered from all the cannula and blood sites. I'm nervous about having yet another next week. It was awful being in hospital - but was for the best I guess. I've been on strong antibiotics at home but finish today!!
I actually feel well - I haven't had the joint pain and the muscle pain others have had.
Hi girls. I had my first tax and subcut herceptin on tuesday. All going well so far, taste buds left this morning, waiting for the bone aches i keep hearing about. Havent been given any pain relief so no idea what to do if the pain gets horrendous. For now I feel fine just a little tired. Hope everyone is doing ok!
thank you for your post.......... it helps us prepare mentally as we swap over onto the Tax and herceptin xxx
well....bloody typical about hair not coming out on Tax....... I still have yeti legs with toe hairs.....so can anyone tell me how to attractively french plait my leg hairs lol 🙂
I started my fec3 yesterday..doing alot better on it at mo than 1st two. I also start tax and heceptin in 3weeks time. dreading the change but was told that tax overall tends to be better than fec although as you know thats just a general and they cant guarentee that for each individual !! Thay said tax tends to hit 3-4days after and symptoms im now used to will be shuffled with possible added pain !!! Also told me that hair tends to stop falling out with tax but just does not grow!!! Maybe i should of held onto my hair knowing that....bit late now !!
hope you all as well as can be and looking forward to the long weekend
Had my 3rd FEC yesterday.....next one TAX and Herceptin. Its horrible when just got to grips with FEC side effects...now to start a new bunch...oh well as long as it does the trick!
Herceptin loading doose have to be there for 6 hours...then have first tax the following day
I was due to have gynae appointment on same day....but luckily that has been cancelled until july.......... I have 10cm ovarian cyst which they monitor and will hopefully remove once completed chemo.....
Sending hugs to everyone who is feeling under the weather ......xxxxxx Donna..
Hi ladies just popped in from december angels to wish you all well on your chemo journey.
Mel51 &lollymum I too had fect prior to surgery and finished 20th march. After 2nd fec I was told by my oncologist that my lump was shrinking but not as much as they would have hoped and therefore wanted to optimise this by putting me on to taxotere straight away rather than wait until after 3rd fec, i was also dissapointed and scared at the time that chemo wasnt working the way it should have, however tax had most certainly done the job as I was told after op that the tumour had shrunk from 27mm to 8mm and they got clear margins( Yippee). so I hope my news helps you to be more positive.
It is also unlikely you will be sick on Tax and I did not need the antisickness meds but side effects may include joint and muscle pain,sore mouth,constipation followed by tax trots etc but it is do-able. Try and get lactulose for constipation from your gp as this helps.
Best wishes to everyone
Haven't been on for a while as I've been getting lots of anxiety so trying to blank out altogether! I had poor results yesterday in that my tumour hasn't shrunk on the FEC. I'm gutted as I've lost most of my hair and felt really rough the first few days of both cycles so to know the cancer hasn't really been shrunk has really brought me low. However my swollen lymph node has disappeared so that's positive.
So tomorrow instead of my third FEC I'm going on to Taxotere. I'm so nervous. Are the symptoms / side effects worse on this one? I'm dreading it. I have all the anti-sick pills they can give but I'm worried about how I'll get the steroids down as it says to take with food but on FEC I couldn't eat or drink for about 4 days. I wasn't sick but felt sick if that makes sense. No appetite at all. Water tasted foul too so I had some kidney problems as I wasn't drinking enough.
Anyone else had the Taxotere?
Hi Mel51. I had really bad heartburn on chemo one and I found broccoli and most of all purple sprouting broccoli really, really helped. I even wanted it for breakfast the heartburn was so bad. My oncologist suffers and he's been ordering it by the bucket load from organic farm 🙂
Hello ladies just dropping in from the March 2013 thread to wish you all well. One bit of advice I got coming up to second lot of chemo was to takeboth ondasetron and domperidone 30 minutes before eating – this seemed to help. (not sure why I wasn't told this from the oputset and there was nothing on the patient info leaflet...)At the time the chemo seems to go on forever but the time will pass. Be kind to yourselves.
Hope you are all doing OK, at various stages in your Fec T journey. Thinking of you all
GCSF / Filgrastim / Pegfilsrastim / Neupogen / Granulocyte Colony Stimulating Factor / Neulasta and some other names will be out there. The unit where i had my Chemo use one large dose 24hrs after Chemo.. Hips / Lower back / upper thighs all really painful within 24hrs of administering the injection. Some units use a very low dose for 3/4/7 days and some units only use it where patients are struggling to fight infection / build up white blood count.
It is strange that all units work differently and use of GCSF doesn't seem to be standard practice.
Take Care Gilly x
Mine are called Lenograstim, also 1 a day for 7 days to raise white cell count and hopefully reduce the chance of me becoming neutropenic again.
About hair...I shaved mine off when it started coming away in handfuls and I was sick of finding it in my coffee/food etc, it was 15 days after my 1st fec...never did try the cold cap. My sister shaved it a number 2 all over and i developed 2 complete bald patches, but the rest of my hair is still there. I dont get it, i thought it would all come out. Im hoping this doesnt mean the chemo isnt working as well as it should.
Hi everyone. Onc allowed me to have chemo yesterday, seems my bloods recovered enough. Im now on daily injections for 7 days that me/hubby have to do. I gotta be honest, im **bleep**ting myself. Neither of us have ever had to use a needle and syringe in our lives! District nurse was too busy to add me to the list and i didnt fancy having to travel to the chemo unit every day (they are shut on the weekend anyway so id have no choice). Also been given more antisickness meds on top of emend. And! That was my last fec! Onto taxotere next round.
Had my 3rd round of FEC on Saturday. Feeling pretty yuk but nothing like the first 2 rounds.
First time I spent 3 days in bed & severe vomiting but on day 3 they changed my metoclopramide to cyclizine & this stopped the vomiting.
2nd time they gave me emend but kept me on the metoclopramide. This stopped the vomiting but still felt nauseaos and took to my bed until I spoke to them again & switched to the cyclizine again.
This time I have had both the emend & the cyclizine from the start and this had worked much better. I wish I had queried this last time & asked them to change the other meds but you don't always think to question them.
Next round is the docetaxel. They are not giving me emend for that because they say it does not make you sick but have told me to expect severe pains after about 4-5 days & have prescibed strong painkillers so I am not looking forward to that at all.
Best wishes to everyone else going through the same journey.
Had no temp at all and felt perfectly fine. I was seeing my brrast surgeon coz my breast was red and sore, they ran blood tests to check for inflammatory markers which come back high, was admitted to hospital right there and then for iv antibiotics. Thats when they found out my neutrophil level was stupidly low.
Hi all, im meant to be having 3rd chemo on tuesday but spent 8 days in hospital with neutropenia. Levels went right down to 0.2 but yesterday they rose to 0.6. Normal is 2.5. Highly doubt they would have recovered enough by Tuesday.
Well, it is now day 3 after fec3 and I am yet to go to sleep! Felt nauseous much quicker this time around and had crazy hot flushes on my face and painful cramps in both thighs on day 1. Felt tired and nauseous yesterday, day 2, but still managed walk on beach yesterday afternoon with friends; ate fish and chips too! Didn't feel great but feel better in myself just getting out in the fresh air and seeing friends.
Mel51, my scalp was also painful when wind blew hair but it feels so much better now hair shaved and I feel less stressful.
Projectile, I have already been given steroids to take before chemo 4T.my chemo nurse did say that fec side effects were usually worse but to expect aches and pains with T. Guess we just have to see how we react individually but we are now halfway through!