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Starting chemo in September???

Nikki49
Member

Evening Stars, has anyone else here had ANC? My armpit is...

Evening Stars, has anyone else here had ANC? My armpit is still quite painful, I had 150mls fluid taken out yesterday at check up appointment after I complained it felt like I had a house brick in there, which did give some relief but now it's just as bad. Op was only 9 days ago, so am I expecting too much?
Nikki49
Member

Re: Starting chemo in September???

 
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Re: Starting chemo in September???

Start with help, then my settings and follow the instructions from there. Haven't changed mine yet but that van will definitely have to go. pas_the_boss
chezzap
Member

Re: Starting chemo in September???

hiya stars

you are growing real quick

 

good luck to those of you starting soon

Pip just to let you know Im at Chrisities too if you ever wanna meet up etc pm me.  Ive just had my second cycle.

catch you later stars xx

Cinderssarah
Member

Re: Starting chemo in September???

Ooooo was able to change my avatar to the giraffe but that was about the best I could do 😞  I tried one of my own photos too but the file size was too large on all the ones I tried 😞   Have we an technical whizz amongst our stars who can help??

Nikki49
Member

Re: Starting chemo in September???

You can change the avatar in edit my profile.
Cinderssarah
Member

Re: Starting chemo in September???

Evening everyone nice to be back to our normal threads 🙂  I'm with Barbs the man van picture has to go!!!! Have you worked out how yet Barbs?? I'm off to try 

Barbarella63
Member

Re: Starting chemo in September???

Our little band is really growing! We may have to copy the Maisie's and make a chemo list so we know where everyone is!
Barbarella63
Member

Re: Starting chemo in September???

How the heck do you get your photo on here! And what's with the man van picture...not very girlie!!
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Re: Starting chemo in September???

Ill be starting FEC-T on the 4th September
Barbarella63
Member

Re: Starting chemo in September???

Hi frenchfancy I've had my eyebrows tattooed and I LOVE them!! Not cheap but hey anything that helps with the old confidence! If you want to know the details pm me. You need to have them done before you start chemo by the way! Welcome to the stars I know we are gonna be a great support to one another.
Barbs xxx
pips64
Member

Re: Starting chemo in September???

Hi Everyone ,

 

 

Will actually be starting in September too, Having lovely Hickman line in next wekk..Woot Woot happy time 🙂

 

Story so Far :).

 

Fab at forty 😉 1 daughter whos 22 , who recently had a baby. So now at Nannie to the lovely Erin who is only 10weeks.

 

24 mm Idc with mm Dcis

Grade 2

Trip \neg

WLE & SNB

No Nodes

Having 6 Fec T

Then Rads

 

Under christies Manchester

 

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Re: Starting chemo in September???

Hi there Barbs and all the rest of the September Stars. After oncology visit yesterday I now have my start date . First session of six begins on the 3rd so I'm officially a "Star". I have grade 3 interductal agressive type tumour which is being treated before surgery. Feel so much more settled now I have my treatment plan. It's three cycles of F.E.C. followed by three of Taxotere, and until I read and digest all the literature given to me yesterday I have very little to say on the subject. The only thing I really know for certain is my hair will definitely fall out once they start the Taxotere so there seems little point in trying to save it with the cold cap. So looking forward to a change of hairstyle. Might as well do something outrageous to kick this event off. Having it cut on Saturday into a style to base a wig on and we'll go from there. Find out more about NHS wigs at my first session. Only just over a week to go so I have been busy booking, dental, optician and GP appointments to get them all out of the way before I get started. The way things are going I'll be exhausted been before I even start the chemo! Have been storing up info from The Maisies which hopefully will help me get through the next few months and I will certainly be dropping back in on their postings from time to time to see how they are all doing. But it looks like it could be quite busy for the Stars too. There seems to be quite a few already. Looking forward to sharing , caring and having a giggle with you all. Love to hear from anyone going through this unfortunate blip in our lives. Hopefully together we can make it through the worst and the best of times. Try and keep smiling everyone even on those days when you don't even feel like emerging from under the duvet. Gosh listen to me rabbiting on, bet I'm the first to give in to tears!! Love and hugs to all. pas_the_boss
rachelr
Member

Re: Starting chemo in September???

Hello Ladies, can I join the September Stars? I'm actually due to start chemo on 29th August but that's practically September! I was dx with a grade 3, 12mm, triple negative lump which was removed on 25 July (no nodes involved). I have been waiting for an annoying seroma to reduce before chemo can start but it does look like it is finally on the wane. I am due to have 4 x FEC and 4 x T, followed by rads. So far the worst bit has been waiting; waiting for results, for the seroma to reduce, waiting for a start date for chemo. It sounds really odd but in a way I'm looking forward to chemo just to have something definite being done  - I don't like sitting around feeling that precious time is being wasted. I'm in Reading - not sure if any other ladies are being treated here?

Rachel

Nikki49
Member

Re: Starting chemo in September???

Hi Barbs, I too will be joining the September Stars (great name by the way).

My story so far - i'm a single parent of 2 daughters one aged 25, the other aged 16, I was diagnosed 17/7/13 invasive dc, grade 3, 2.8 cm plus a grade 1, 10.5 cm (yes that is cm!) dcis. Right MX & sentinel node removal on 7th Aug, ANC on 13th Aug as cancer found in sentinel node. Yesterday (21st Aug) received the fantastic news that all 11 nodes removed last week are clear :). I'd convinced myself that I would be hearing the worst news possible so on hearing this I almost collapsed & was a blubbering mess for the rest of my appointment. If you knew me you'd know that I rarely cry.

Next Tuesday I'm off for a CT scan (just to sure I'm told). I'm currently awaiting an appointment with onc, I've been told by my consultant that chemo will start in 3 weeks time, I will receive a dose every 3 weeks receiving 6 doses in total.

I think it's so important to be able to chat to someone actually going through this awful situation we've all found ourselves in, at the same time. Best of luck everyone Nikki xxx
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Re: Starting chemo in September???

Hiya i start chemo on 3rd September, 3 of FEC followed by 3 of Tax. I have opted to try the cold cap method...not sure if that is a good idea or not ? I am also in the process of sorting a wig out but having a bit of trouble finding blonde ones 😞 

samjs
Member

Re: Starting chemo in September???

Morning Stars,
Welcome new ladies. Cinderssarah, yes the wig is amazing.
I have a friend who like you Penny added two weeks on to her treatment.
Frenchfancy I know what you mean about wanting to get it started. I feel like I have been waiting for ever. Hoping my call will come this week. If I haven't heard by Wednesday I am ringing them. x
frenchfancy
Member

Re: Starting chemo in September???

Hello ladies, another 'star' in waiting here. Have my Onc appt on Wednesday and hopefully will be able to join you all on this (fingers crossed not too..) bumpy ride. Don't know which SE I'm dreading the most but from the sound of it could be a good selection to choose from. Here's hoping none of us get too many or too severely. One thing I've found so reassuring on here is the wealth of experience that everyone is able to share. I know,for me, it helps to know that everyone is looking out for each other. Some great ideas I hadn't even thought about yet, tattooing eyebrows (not sure how that works!? but will deffo look into), annabandana (seen this mentioned by a few ladies) and the PICC line I'm thinking is the way to go (been like a pin cushion so far with pretty much non-existent veins and was terrified about going through the same every time). Not sure if its the right thing to say but can't wait to get started so can kick the behind of this nasty b***er.
Sending positive vibes and best wishes to everyone going through this and about to start
xx
Barbarella63
Member

Re: Starting chemo in September???

Hi austigirl welcome
piggsytrotter
Member

Re: Starting chemo in September???

Evening all, July Junkie popping in to try and give a bit of reassurance to those who will be on FEC-T. I'm on Day 3 cycle 2 of the FEC bit. So far, and not wanting to tempt fate, I have hardly had any SEs at all. I have been given Emend, which is the gold standard anti-nause drug, as a matter of course plus 3 others, and I've not felt sick at all. I also give myself 5 daily injections of something from Day 5 that boosts stem cell production and thus reduces risk of infection. (Not every hosp gives either as a matter of course, but I'd recommend you ask for Emend if it is offered.) The jabs made me feel like I had flu for 24 hours as well as the squits which immodium sorted out. The reality is that it is scary, I cried as they put the first lot of chemicals in, but I've certainly found the FEC bit is very doable. Oh, and I had a PICC line fitted which means I don't have to be jabbed every time. I'd recommend that if it is offered. And if you've got shy veins like me, ask if it's possible.
It's so much information to take in but your Oncologist and chemo nurses will tell you all you need to know. And the ladies on this site are tremendous sources of information once you know the questions you want to ask.
The hair loss is the biggie and we all deal with it the best we can. But there's no getting away from it, it is horrible. However, it's not forever. And that's the thing to hang to.
Good luck, may all your SEs be little ones. x
Cinderssarah
Member

Re: Starting chemo in September???

Oooo I didn't realise that was the wig in your picture Sam 😄 wow. I actually ordered one from the site after I read about it o the August posts (good grief I sound like a stalker - i'm not honest), it hasn't arrived yet - lol like my appointment with the oncologist, perhaps they're lost together in the Royal Mail. You have my sympathy over ther germolene thing - still it could be worse it could be TCP, every cloud........

Welcome to the new stars - we'll all be twinkling in no time 😄
Austigirl
Member

Re: Starting chemo in September???

Hi there. I should be starting chemo in Sept. Had mx and reconstruction 11 days ago and have appt on tues to get results and hoping they will tell me then when I will start. They said it would be 4-6 weeks post surgery. so looks like I will be a sept star. Will jump on again once I have dates. Getting nervous now. Had surgery to distract me until now, but chemo is looming 😕
samjs
Member

Re: Starting chemo in September???

The website for wig is http://www.ebay.co.uk/itm/190847765786?ssPageName=STRK:MEWNX:IT&_trksid=p3984.m1439.l2649 they are in China but it didn't take too long to come. They don't have loads but there are plenty of others on there at about the same price.If you go on their shop on ebay its a bit strange as they sell pictures and furniture too!!! All very random!
Legendary boob is still being a pain. Still leaking. But worse is the fact that when I changed my dressing today I took the dressing off and it took a load of my skin with it. So now it is so so sore. I have had to take my bra off for the afternoon and have germoline on it, so I smell wonderful too now!

XX
Hazey_85
Member

Re: Starting chemo in September???

Hi All thanks for the tips no haven't got a wig yet have ordered wig stand and have tried scarves on but like you Barbs i feel like an egg head and my little girl keeps trying to yank them off my head lol! Will check out annabandana. Was thinking of getting eyebrow tattoos myself-this may be a dumb question but are they permanent or do you have to have them redone?? Leaking boob eh Sam dare I ask why?, you're wig does look great I'd also be interested to know where from?? Sorry to hear neutropenia has delayed your chemo Penny hope the rest if your cycles are smoother. Tracey will definitely be looking to you to tell us how you find the first chemo visit 😕 hope things go as well as can be...for all of us xxx
Barbarella63
Member

Re: Starting chemo in September???

Sam I'm loving your wig! Which supplier on eBay did u get it from? How's the boob? Hi penny that's rubbish adding weeks to the process what are you like?? Mental note no lilies lol
Penny47
Member

Re: Starting chemo in September???

Hello all you September Stars and Legends, from a May Moonbeam. Although I started in May I have been enjoying myself so much that I have managed to add two weeks onto the process...by getting neutropenia twice and thus having had to postpone twice. At this rate I may be finishing the same time as you lot. Anyhow the only advice I have for you today is don't accept a gift of lillies and then wonder (as I have been) why you are sneezing all the time. No need to panic that you are coming down with a cold! Good luck to all and may all your side effects be tiny ones.
samjs
Member

Re: Starting chemo in September???

Hi Ladies- Sam The Legend with the leaking boob(still) here. (Northants)
Hello to all you other ladies who have now joined the group. My OH found the forum for me, he thought it might help me and he is so right, especially when I am having a bad day.
Barb I am having Rads too, and Tamoxifen (dreading that for 5 years). Lso my picture is me wearing my £7 wig!!! It's fab not sure the one I will get from NHS will be any better to be honest. I ahve also brought loads of stuff from Annabandana.
xxx
Barbarella63
Member

Re: Starting chemo in September???

Hi Hazey and Tracey 2 Morefor our little gang! I reckon Tracey you will be first up so as you are leading from the front you're the benchmark we are all gonna be comparing ourselves to! Whatcha having at the chemo cocktail lounge? I'm having 3 cycles of FEC (appropriate name as I wish it would all fec off lol) and 3 of Tax am starting to feel a bit scared! They gave me some leaflets outlining the lovely side effects I'm just hoping they are do able! The lovely August ladies are coping really well so I'm determined we are gonna too! Has anyone got a wig yet? I'm going next week, tried on some scarves at home....OMG I look like an egg! Had envisioned a sort of bald Jackie O reality was very different! More like Matt Lucas lol Don't think it's gonna be a good look for me! I have had my eyebrows tattooed on though and I LOVE THEM!!! at least thats one set of hair that will not drop out! if i could do my whole head i would! Guess we are gonna need a BIG sense of humour to Get through the next 6 months or so! Btw I'm in Lincoln anyone else near at all? Hope you all have a lovely Sunday doing nice things whilst we still can xxxxx Barbs
Hazey_85
Member

Re: Starting chemo in September???

Hi everyone I too would like to join the September stars (great name) I had a mx and ANC on 30th July for triple Pos 45mm grade 3 idc, 24/43 lymph nodes affected. Am seeing onc on 28th Aug so should be starting chemo etc soon after. sorry that we all have to be in this horrible place but hopefully can support each other to make this journey less dark and lonely. I live in Warwickshire. Hope you are all ok today under circumstances xx
tracey46
Member

Re: Starting chemo in September???

Hiya all, I am starting chemo on the 2nd of september. So that means i can join your gang xxx
Barbarella63
Member

Re: Starting chemo in September???

Hi Jenny welcome to the club no one wants to join! Got a bit trigger happy with your post lol it's gone on about 5 times hehe
Barbarella63
Member

Re: Starting chemo in September???

Yes definitely need some humour inject to get us through it!! I too have read all the Augustposts and wanted to be in their gang but now I'm not starting till Sept it seemed a good idea to start a new thread! Chezza check in whenever you like gotta admit to still reading your August threads! Sam your leaking Betty boob is indeed legendary....you're famous! Lol! yesterday I got a letter inviting me for a smear test! Deep joy that's both ends out this week wtf???
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Re: Starting chemo in September???

Hi I think I will be starting chemo in September like you I have seen onc but as yet not given a start date not that I am in a hurry scared stiff!! In fact.I am 65 and you just seem to think you got life sorted and it comes and kicks you up the bum!! I hope we coath help to get each other though this. Jenny xx
chezzap
Member

Re: Starting chemo in September???

ha ha yes theres loads of us though
You will have a great group in Sept.
It may help you reading our thread too as we will have side effets few weeks before you. I find reading June thread prepares me for the crap to come!!!
Ill keep bobbing over and see how you are all doing as Barb was gonna be in August first too so still like to keep a virtual eye on her and see how she is doing
keep shining bright stars
Cinderssarah
Member

Re: Starting chemo in September???

Lol chezzap you're right there - mind you so is Brenda's roadkill. At this point I must confess I really wanted to be in August (in a funny sort of way) as you all have such a giggle. I think September must set itself the target of giggling more 😄
chezzap
Member

Re: Starting chemo in September???

Sam your leaky boob is legendary on this website ha ha!!!!!
just popping head over fence for a gossip from the August lot!!!
Cinderssarah
Member

Re: Starting chemo in September???

Thanks Poemsgalore I have been following the August thread (and poor Sams leaky boob saga) as I was originally told I would def have chemo before they did anc so thought I could sneak into their gang - September is now looking like being more likely.
Barbarella, i've got my hand up for the radiotherapy after the chemo (if it happens - small moan about the delay in the onc appointment) followed by tamoxefen
poemsgalore
Member

Re: Starting chemo in September???

Oh dear, so sorry to hear you are all waiting to start chemo. I wondered when a September group would be formed. I'm from the February Valentines, and we are all now great friends.
Here is a useful thread, which gives helpful tips on coping with chemo:
http://www.breastcancercare.org.uk/community/forums/top-tips-help-get-you-through-chemotherapy

Barbs, have you considered trying 'Cold Cap' to try to avoid losing too much of your hair? Here is more info about it from the Macmillan site.
http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Symptomssideeffects/Hairloss/...
This link takes you to information about chemo side effects.
http://www.breastcancercare.org.uk/breast-cancer-information/treating-breast-cancer/chemotherapy/sid...

Hope reading this information helps a bit.
It might be worth reading one or two posts from the July or August thread, or even ours (although we are all finished with chemo now and moved onto other treatments).
Wishing you all well, try not to worry too much. It really isn't as bad as people expect it to be.
Big Hugs
Poemsgalore xxx
Barbarella63
Member

Re: Starting chemo in September???

Hi Sam and Sarah! Four of us already and we are only half way through August! Wonder if we will end up as large as theAmazing Maisie's! Lets hope not as its so sad to see how many people find themselves in this awful nightmare of a situation! Sam I hope you get an Onc appointment soon, you must be so sick of waiting, and Sarah hopefully you will escape the dreaded chemo but if not, rest assured we will all be here for you as we tackle the b*gger together!! Sam I thought once I saw the Onc things would happen really quickly but for some reason I've got to wait another 3 weeks to start! No idea why!! Am booked in for an echocardiogram on 30 August but not got an actual chemo start date......frustrating! Is anyone having radiotherapy afterwards? Big up to us stars I'm sure we will get through and come out the other side together
samjs
Member

Re: Starting chemo in September???

Barbarella,Simon the August group but think I will start in Sept so will have duel membership if thats ok? September stars sounds great. Still waiting for my onc appointment but I know once you have seen him everything starts very quick.xx
Cinderssarah
Member

Re: Starting chemo in September???

Hi both, jury is still out on if i get chemo or not (DCIS, lumpectomy, snb, then anc and only sentinel node affected)
Go to see Onc next Friday and if she decides chemo is the way forward i'll be September too . Really fed up of the wait to see if I need chemo
Regards
Sarah
Barbarella63
Member

Re: Starting chemo in September???

Yes definitely Sue it is so nice to know you're not the only one going through this! Had my appt with the Onc yesterday and signed the consent form so no going back now! Felt very real when they gave me the form to get the wig prescription I've been putting off buying hats and stuff but guess I'd better get on with it! Am feelinga mixture of wanting to kick cancers ar*e and being scared to death about what the chemo is gonna do to me! at least we can do it together! Xxxx Barbs
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Re: Starting chemo in September???

Hi Barbarella63

Im expecting to get a September start date for chemo, i live in Kent so onther end of country to you. be great to have someone to trade notes with

Sue
Barbarella63
Member

Starting chemo in September???

Hi everyone just wondering if anyone has a September start date for chemo? I thought I was going to start in August but now looking very like September. The lovely Amazing Maisie's have such a large group I thought I would defect and start a September thread. I have had 2 WLE ops then an MX as didn't get clear margins! Had lymph nodes removed with 2 out off 16 positive, now after meeting with onc today am expecting to start chemo round about 4 September and would really like to trade notes with anyone else unfortunate enough to be doing the same. I'm thinking September stars but if anyone's got a better idea I'm cool with it! I live in Lincoln and it would be great if there was anyone nearby going through the same sh*t!!! Barbs