Ohhhhhh how cool im the leader of the gang 🙂 I went for my pre assement yesterday for chemo, I start mine on the 3rd sept .... it all seems good. I am going to try the cold cap see how i get on with it. I have been and got my wig today, ooohhh its so lovely i like it better than my hair haha ..... How is everyone else getting on ? xxx
I have just played catch up on all the posts. See some people did night shift last night- i just hate that. Thankfully Diazapam sorts that out when I get them.
We are certainly a large group already. It amazes me and to think there are many more who do not access these forums.
Leaking boob suggestings from helpful males: Dad suggested a plumber yesterday and Oh suggested getting some felt(he's a roofer) however that was cross wires as he thought I was talking about our leaking bay window!!
Saw the consultnat again today(thankfully he didn't suggets either of the above) and both holes had scabbed over by the time I saw him, and he wasn't too concerned. He did prescribe more antibiotics though due to how long wound had been open and the fact it is bank holiday and they are not open again until Tuesday. He says to just use gauze dressings no sticky dressing as my skin is so sore. He also asked nurse to fax my referral to oncologist again with a note attached saying I haven't heard any thing yet. He was quite surprised I hadn't seen him. So hopefully this will move things along especially as I was first diagnosed mid April!!!
Take care sparkling stars xxx
Just to let you know my details for adding to what is looking like a long list of Stars:
Dx was grade 3 idc 12mm - WLE on 25/07/13 and SNB (no nodes affected).
Chemo will be FEC x 4 then T x 4 and then rads. Ist chemo will be on 29/08/13. Will be trying cold cap.
Being treated at Spire Dunedin in Reading.
Hope this is all you need.
Thanks for organising this Barbs - it is reassuring to see how other people in the same boat are getting on and to, no doubt, compare notes on what seems to inevitable SEs with the chemo.
Barbs - I see a business opportunity if we can find a technical whizz lol. But sadly if there was a glamourize button and an add it on button someone removed it from my computer Never mind I've decided my odd chest now makes me unique (one huge and looking at the floor, one now smaller and pointing out, one smooth and one with crators and volcanoes - you don't get given a look like that unless you can giggle at it)
PTB - I laughed at your naming ceremony too. Hubby and I did the same thing with mine, we called him Clarence and he was an illegal immigrant who was put on a plane with a one way ticket (lumpectomy) on 10th July. Unfortunately he left some luggage (positive SNB result) but we popped that on a later flight (ANC) on 23rd July and they have now been reunited in that well known least liked destination - The Incinerator
As for coming down just remember stars stay in the sky they don't fall, odd bit of shooting across the sky allowed only
Nikki - its looks easy but boy it took me ages, its sooooooooooo tempremental. I clicked on browse images and was able to choose from pictures on my computer (I used the laptop - always do in the face of adversity lol). However for some nothing happened, for others it kept telling me the picture size was too big and then miraculously it uploaded three random pics Once the picture is there it allows you to crop to get rid of any unwanted bits. There you have it, i won't be changing mine anytime soon lol. I'll keep my fingers crossed you're able to do it (and snigger at the thought I don't have to go through it again)
Will be starting chemo in Sept too methinks but haven't seen oncologist yet, chasing appointments, breast care nurses etc, umpteen calls.
I can understand all the humour & joking that goes on in this forum because I think we really do have to block it out of our minds as much as possible.
It's a brave decision to go through chemo but it's the right one.
I've done it 😄 lord knows how I just did - I was in avatars thingy on top of the profile thingy and managed to upload a photo by clicking on browse and swearing a lot 😄
Sam not a good day for you - are you sure you haven't had your boob replaced with a sieve???? As for the oncologist i've been waiting three weeks for an appointment (easier to get an audience with the Queen I reckon), it finally arrived last yesterday for next Friday - the bonus feature will be the will they/wont they chemo debate will be settled oncce and for all.
Barbs I love the giraffe too but I want a picture (stamping my feet VERY hard on the floor)!!!!!!!
Nicki hearing you loud and clear 🙂 and yes you are being impatient, patience is a virtue honestly. Its four weeks today since my ANC (carried out two weeks after a lumpectomy and SNB) and Its only really been the last week or so that I feel like its returning to normalish - the swelling has gone (yipee) and the scar is now a flat line which seems to be fading daily. I actually felt myself spraying deoderant onto it this morning, though its mostly numb togther with the top of my arm. Hope that puts your mind at ease, any other queries feel free to shout 🙂
Welcome Beam67 to the stars 😄
Hi everyone, I have a meeting with Onc next week to discuss further treatment but have been told chemo will start sometime in September. I had MX and ANC on 18 July - 5.5cm tumour with node involvement - Grade 3 IDBC Triple Negative. Hoping to share this unexpected journey with others and exchange useful tips and advice along the way. Thanks, Elma
I spoke to soon yesterday about the boob not leaking. This morning another hole appeared and it leaked then the old one started leaking too! I do have an appointment at the hospital tomorrow so that's something good at least.
i wonder how many stars there will be..... I hope we do not break the Maisies record that would actually be quite sad- says the competitive one!! xx
When trying to upload an image just drag box over the best part of your picture, don't try to enlarge it as that doesn't work.
I will definitely be a Star with dual membership to the Maisies as i rang nurse yetserday and she said they have my referral but oncologist hasn't looked ta it yet. Apparently it is 6 weeks from results to seeing him, then chemo starts 10 days later. So I should have 2 more weeks to wait to see him so chemo should start mid September! Not a happy bunny.