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Starting chemo in September???

Bonnie8862
Member

Re: Starting chemo in September???

Good afternoon all
Just catching up on postings over the last day or two and welcome to new stars your most welcome but I wish you weren't here !!
Jo I notice you mentioned your in laws in brighton I am at gatwick which is not that far away I wonder where you are we might manage a meet up at some point ?
Good luck to you who are due onc and chemo starts soon and to stars who are expecting scans results . I am just about to have my head and thorax abdominal and pelvic scan this Thursday and bone scan Friday . Ill be a walking nuclear reactor by the weekend ,,
MY BNC seems to think ill start chemo within a couple of weeks so I am hoping all being well to be with you stars but ill update everyone as soon as I know . My post op mx and ANC going well have a small seranoma but manageable so far . Fingers crossed it stays that way ..

Take care guys and a lovely positive post past on by nikki from the may moonbeams .. Gives me a good vibe for my day thanks so much love to all x
Nikki49
Member

Re: Starting chemo in September???

Hi ptb, I've also been asking some of the old hands for tips/advice things they wish they'd been told when they started on this journey and had a lovely reply from one of the may moonbeams as follows :-

i am a may mmoonbeam . chemo is more doable then you think. I had Fec t. Just had last one on Thursday. I found Fec worse then t as I didn't enjoy the nausea but then I didn't take the right amount of anti sick tablets suggested by chemo nurse as thought I should cope! Take everything they offer! I found the t part much better and can still drive and appetite back although bones do ache a bit. Remember that we mostly post negative stuff so don't worry.
all in all my advice is drink lots, non alcoholic, make sure family are super hygienic around you, ask for help frofriends and family, don't try to be a hero, rest a lot, be self indulgent, remember your emotions will vary so warn people!
change your toothbrush every time you have nan other chemo. Flush the loo with the lid down so chemo wee can't splash up and affect family. Don't share any towels.
moisturise and massage your arm they use for chemo. Keep emergency snacks in bedroom for night times. Eat when you feel hungry before the moment passes.
Get some fresh air every day even if only in garden. Makes you feel better. Phone the helpline when you feel alone during the day. Take your temp regularly.
it will soon be over!
chemo is frightening at first but after number two dose, you will find it not so daunting. If you have Fec , it's administered by syringes and isn't very nice to look at so don't look! T is administered by drip and is much better to look at.
If I can get through it, anyone can, I am a wimp! I had two lumps removed by wle and then as had lymph node affected had auxiliary clearance. Never thought I I would still be in one piece but I am! Radiotherapy starts September.
good luck Remember to ask for help. Don't be a hero!
Guest user
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Re: Starting chemo in September???

Sorry, forgot to say welcome to the new Stars. As I've said before I can't believe how the number keeps creeping up. Until we get our list together we must keep posting our start dates so that none of us slip beneath the radar. I'd like to think we can all send love and virtual hugs on that all important first day. Talking of which, I'll be thinking of you Gold alongside Jo on Friday as you two seem to be first up. Lots of love to you both and of course to all you other Shining Stars without whom this episode in our lives would be much less bearable. x
elma55
Member

Re: Starting chemo in September???

Hi gold63, and welcome to September Stars!  Thanks for the seroma advice - I'm concerned that my chemo will be delayed if it hasn't dissipated but I'll know better when I meet my Onc tomorrow.  Think I'll go for a picc line, like you, as it seems to be the least hassle.  I had ct and bone scans 3 weeks ago but decided to wait for results until Onc appointment in case I needed to discuss any negative findings.  Great news that you got the all clear in the end!  Looking forward to many exchanges as we all move through this together.  Elma xx

 

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Re: Starting chemo in September???

Good morning Stars, hope you have all had the best possible weekend you could. Thought I'd let you know I have asked the Maisie's if they could give us some tips on what they found useful to have during chemo, apart from the sick bucket which I'm sure is on our list unless we are already using one! If any of you fabulous Stars already have any ideas I would be grateful to know what they are. Trying to get organised for next Tuesday. Love and hugs to all, keep smiling, won't be long now and we will all be off and running, well possibly not running but I'm sure you know what I mean. Lol. xx
gold63
Member

Re: Starting chemo in September???

Hi elma55

 

Sorry to her about your seroma. There is enought to look foward to without this hurdle to overcome at the start of the journey.

I too had a seroma after the drains were removed. It was very uncomfortable and sometimes painful getting out of bed. Pillows did help.

My BS drained this once a week which was a massive relief. 8 weeks on and it has gone completely, hope you do not have to put up with this too long. It does seem it will never go. BS told me she had NEVER known this to last on anyone for a lenght of time.  xx

gold63
Member

Re: Starting chemo in September???

Hi all

I was diagnosed June - had mx 1st July. CT scan showed grey area on liver and after an agonizing 3 week wait and further tests was sooo relieved to have the all clear.

I am due to start chemo this Friday and after being relieved with the all clear thought I would be fine..but oh no, butterflies are back.

Still can hardly believe this is happening.

 

Looking forward to getting to know you all over the coming months.

 

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Re: Starting chemo in September???

Good luck with your strawberry tea, Sam. Hope the boobs behave themselves! x
Nikki49
Member

Re: Starting chemo in September???

Just a quickie to say good luck Sam with your strawberry tea today xxx
Jo43
Member

Re: Starting chemo in September???

Thanks Barbs, I"ll have the best of both with 2 groups and hopefully be able to share some tips in getting through SE's with you all. 

Been making the most of the bank holiday weekend and doing lots of socialising.

I have also been busy bulk cooking the last 3 afternoons, so that even if im unable to face eating at least other half and kids have some decent meals prepared. Not that OH cant cook , he"s a great cook but has an incredibly demanding job at times , so I'm just trying to make life a little easier for us all. 

 

I cant ever imagine being able to get back into a nice bra at present, but like you Barb , I dont have much to worry about. It"s just gravity has taken its toll lol 

 

Haha Nikki49 , I may have twitchy bum with you come Friday lol

Got pre chemo assessment on wed ready for friday ......Yikes!!!! oh well it"s got to be done!!! 

 

Good luck tomorrow Sam , hope the public are generous with their pennies and the weather is good to you. xxx

 

Love to you all "STARS" 

 

Jo xxx

 

 

Barbarella63
Member

Re: Starting chemo in September???

Nikki it is wired how different surgeons say different things! I would have loved temp implant boo😰 oh well, too late now! Will worry about the recon later, be something else we can go through together!! Hope the lump goes down soon! Could you bind it with a bandage? Barbs xxxxx
Barbarella63
Member

Re: Starting chemo in September???

Will do Sam! May have to do that with everyone if penny can't get the techie people to sort things out! Good luck with the strawberry tea it sounds fab 😀 Barbs xx
Nikki49
Member

Re: Starting chemo in September???

Sam - I did wonder if some sort of compression would help as it doesn't hurt so much if I put pressure on it with my hand, I was thinking maybe its a bit like when you want to stop breast feeding I.e u want to feed to stop it hurting but doing that u keep producing milk so you wrap up tight. The seroma is in the front part of my armpit so not sure how to compress it there 😞
Nikki49
Member

Re: Starting chemo in September???

Barb - CS said it wasn't clear prior to mx whether i would need rads or not , so on that basis I wasn't allowed a full reconstruction because rads would wreck it, so he suggested a temp implant to save the natural pocket. I will need further surgery once the cancer treatment is finished and surgery to the other boob for symmetry . I still don't know whether I will have rads as he still hadn't decided last time I saw him.
samjs
Member

Re: Starting chemo in September???

Hi ladies,

 

I have been busy today getting ready for the Strawberry Tea I am holding tomorrow in aid of Breast Cancer Care. I hope you have had a good BH.

I had a seroma and had it drained once but my consultant advised wearing a sports bra(I know very restrictive)  24/7following my third op. He said the restriction helps to compress the breast- only any good I gues if you have had a lumpectomy.

Barbs- I will email my details in a bit. Then give you my start date next Monday. Barbs if I give you  my email could you eamil me our list so I can save it to my laptop  otherwise I miss people.

 

Sam xx

Barbarella63
Member

Re: Starting chemo in September???

Hahaha Nikki loving the bum twitch comment!! You're so lucky having an implant....I was desperate for one but they said a big fat NO due to me having to have radiotherapy on top of all the other crap! Looking at a year before they can rebuild me and the op makes the MX look like a walk in the park! BTW Jo sorry my last post said Mo....bloody predictive text! Grrrrr
Nikki49
Member

Re: Starting chemo in September???

Thanks Elma, I'll have a go at that tonight. If I still don't get a decent nights sleep I'm gonna have to get I drained tomoz, it's making me really miserable now, as well as knackered from lack of sleep..
Barbs I have taken the odd ibuprofen, I'll try to take some now & take every 4 hours see if that makes any difference.
at the time of the mx I had a temp implant so I do need some support, cs says I can wear a bra when I feel able but like you the thought of it at the mo makes my bum twitch! Lol
Barbarella63
Member

Re: Starting chemo in September???

Hi mo of course you must be a star and a Maisie there's a few of us with a toe in each camp! Anyway we are all looking at you as the pioneer seeing as you're first lol! Nikki have you tried ibuprofen I took that as its anti inflammatory? Hope it starts to feel better soon! Btw i havent got into a bra yet oooh the thought of it makes me cringe! ive got some support crop top things from sainsbury loads cheaper than marks and spencer, but ive only got little boobs ( well, boob now!) so dont need loads of support! i find the softee is like a blooming furnace, i keep having to take it out, worried ill leave it somewhere and traumatise someone hehe! Will try and get the list up when I get home! Hope you are all ok stars and enjoying the bank holiday as best you can 😀 Barbs x
elma55
Member

Re: Starting chemo in September???

Hi Nikki, as you know I'm 5 weeks post surgery with my seroma which started after the drain was removed but my BS was reluctant to drain it because of infection risk - it's getting smaller (very slowly) but it's also quite hard now and no longer goes flat when I lie down.  I find that sleeping on my back throughout the night is really uncomfortable so I start off sleeping on my good side.  I place an extra pillow on its side (lengthways) in front of me and hug it with my good arm so that it engulfs the wound site, I then lay my bad arm diagonally across the top of the pillow which helps to relieve pressure on the underarm and side swelling - I still wake up on my back every morning but I'm getting a solid night's sleep now.  Good luck with the scan tomorrow!  I should get my scan results and start date on Wednesday, here's hoping ...  Elma xx

 

Jo43
Member

Re: Starting chemo in September???

Pas-the-boss, thank you for good wishes for friday.....I"m feeling fairly calm at moment but I know I'll have wobbly legs on the day. 

 

Nicky49, I had WLE and ANC back in june and then had to go back for more node removal ( july) in same scare area due to them missing 2 positive nodes.

I have the cropped tops and m&s sports cropped top ,all 1 size larger for comfort but still no joy. They are ok to wear for a short while but I seem to swell up around my shoulder blade, underarm and boob. My nipple feels like its going to pop off, with the pressure. consultant says it will take time for fluid to find another route. I"m just a little surprised its taking so long and cant bare to wear anything by 3-4pm most days.

 

re-seroma the only info I can give you is that , some of the ladies on the August thread have had this and many found it slowed up after a few drainages. I feel for you though.... my mother had problems with this and it is so painful and uncomfortable 😞  Hope it settles down quickly for you. xxx

 

Love to you all xx

 

 

Guest user
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Re: Starting chemo in September???

Thanks Jo, I'll definitely be taking a look at that. x
Nikki49
Member

Re: Starting chemo in September???

Good morning Stars,

Jo, How long ago did you have your surgery? I had mx on 7th Aug then went back for ANC 13th Aug, I've got quite a nasty seroma going on at the mo and the thought of a bra puts me into a cold sweat 😞

However I have found that a little support helps alleviate things , I have one of those vest tops with the hidden boob support from M & S I did go up a size so that it wasn't too tight. I've also got a crop top/bra (not sure where this is from as my Mum got it for me, I can find out if you're interested) it's made from a sort of knitted/jersey material, again I went up a size, both these tops I put on by stepping into them as there is no way I can put over my head at the moment.

Anyone else suffering with seroma? I've been taking paracetamol & codeine, interlaced with ibuprofen, I know reflexology has been suggested but its Bank Holiday & I need a remedy or something nowish. I had a terrible night last night just couldn't get comfortable, I strategically placed 4 pillows around me but still woke up very uncomfortable as swelling is tugging at my stitches. I didn't really want to get it drained again because of the infection risk but I fear that I will cave in tomoz when I go to hosp for my ct scan & get them to drain it. Anyone got any tips to overcome this?

Jo_BCC
Member

Re: Starting chemo in September???

Hi pas_the_boss

 

After reading your post I wondered if you have seen BCC's Publication 'Breast Cancer in Families', if not you might find it helpful to read.  Here's the link: http://www2.breastcancercare.org.uk/publications/worried-about-breast-cancer/breast-cancer-families-...

 

If after reading this you have more questions, please don't hesitate to give our helpline a call, they're here to support you.  Calls are free 0808 800 6000 lines open Mon-Fri 9-5 and Sat 10-2.  (Today Bank Holiday Monday helpline is closed)

 

Take care,

Jo, Moderator

Jo43
Member

Re: Starting chemo in September???

Thanks for the welcome ladies ,

 

Would it be ok to have duel membership Barbarella63?

I have been with the masies a while now and am finding the group incredibly useful for advice ect but in terms of starting my treatment I"m nearer you ladies.

Happy to share any tips along the way and provide the support to each other along our journey.

 

Haha Sam, I"mnot storking you , honestly lol. 

 

Tacey your DX was exactly the same as mine , but I was given the choice of WLE or MX

 

Just got back from the inlaws in Brighton, lovely sunny weather there today.

 

Just curious ladies?? are you all back in you bra"s ?? Im really stuggling with bra"s still and cant find any that I feel comfortable in ......any suggestions??

 

Jo xx

 

 

 

 

 

Guest user
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Re: Starting chemo in September???

Hi there Stars, what's been going on here. Really does look like we have turned into online dating but so nice to get to know you all better. I'm with you Sam and Hazey, the more people we can make aware of this the better. When my sister was dx 11 years ago she only told her husband and went through a lumpectomy and mx before she even told her kids Although she was told it was unlikely this was in the family guess what happened. Here I am suffering the same anguish, but I am not afraid to share my experiences. My battle hasn't even properly started yet but if everyone who knows what is happening to me passes on this info to others then hopefully more of us will become breast aware. I always thought I was but unfortunately "Damion" caught me totally by surprise. Glad to hear you are having a fab hol Barbs. Enjoy the freedom while you can. Hope everyone else is having a great bank holiday. Good luck with the treatment Jo, we will be monitoring your progress very carefully I have no doubt as we all follow along behind you, and don't forget Tracey I'll be right there with you. Goodnight shining Stars. xxxxx
Barbarella63
Member

Re: Starting chemo in September???

Hi jo43 are you joining us? If so you will be first up I believe! We'll be looking to you for tips xxxx
Barbarella63
Member

Re: Starting chemo in September???

Helloooo from the lovely Lake District 😀 having a fab mini break lovely to be "normal" mind you it's been so hot I've had to take the bloody softee out but what the hell.......IM ON HOLIDAY yay! Don't forget if you want to be added to the list of stars PM me that way we will know who's up for treatment and when ! Hope you are all having a great bank holiday weekend xxxxxxx Barbs
tracey46
Member

Re: Starting chemo in September???

Hi Jo I also had a dent in my boob no lump, they told me i had two masses in my left breast, i had a mastectomy on the 23rd of july, they found it in 2 of my lymph nodes and now i will be starting chemo on the 3rd of sept xxx
samjs
Member

Re: Starting chemo in September???

I am here too jo 43, welcome aboard you star.

Have to say how different people approach having bc. My mum initially didn't want anyone to know except immediate family. I was the total opposite because I wanted it to make  everyone I know more breast aware. I didn't think things like this happened to people like me and when I was diagnosed I thought, if it can happen to me it can happen to anyone. So all my friends have have become avid boob checkers!

 Xxx

 

Jo43
Member

Re: Starting chemo in September???

Hi there , September Stars 🙂

 

I hope you dont mind me hoping over the fence from the August group, its just that my first cycle of FEC-T will be on the 30th August and i have been reading the posts in this group out of curiosity.

 

Anyway , I just wanted to eco what Hazey has said about being more breast aware as a result of friends/family members having experienced BC 

 

I didnt feel any lump but I did have a very slight indentation on my boob.

I wasnt concerned about it but knew from my own mothers experience 3 yrs ago that it needed checking just to be on the safe side.

 

The week of my appointment I finally felt what I thought was a pea size lump. I was shocked to discover on the day of tests that in actual fact , I had 2 lumps in same breast and positive lymph node biopsy.  now I say to my girl friends , any change in breast , however slight, go get it checked out. we know our bodies and only we will be visually aware of any changes with or without feeling a lump. 

 

Night night all.

Jo xx

Hazey_85
Member

Re: Starting chemo in September???

Blimey samjs sounds like you're both going through it in different ways, strange how its exactly the same time. Like you say sometimes it takes someone to be dx with this for others to start checking themselves and at least you did and acted on it so now you can kick its ass xx
Cinderssarah
Member

Re: Starting chemo in September???

Adding me into the online non dating site - i'm 47 been married  (second time round) for two and a bit years - OH and i got married two years to the day after he suffered (and survived lol) a brain haemorraghe just six months into our relationship (we actually met in on an dating site ). I have two children a son 23 (regional sales manager for a medical supply firm who actually supply the lines that they use in hospital - son gave me my own to take in for last op as they had used a cheap one on me previously) and a daughter 19 (studying law at university). OH has an 18 year old daughter off to uni in September.  I'm a higher level teaching assistant in our local Primary school teaching years 3/4 and I love it  - so much so i'm aiming to work as much as I can through treatment, but watch this space.  I love being outdoors but also have lots of inside hobbies, reading, sewing, cooking and recently card making (thats a good one for those of you looking for a new sat on your bottom hobby I made all my christmas cards last year - dead easy and sooooo effective).  Like the rest of you a like socialising and feel I'm only about 30 Robot Very Happy  

 

Sam glad the plug has stuck this time hopefully tha'll be an end to your legendary leaky boob saga Smiley Happy though I will miss the updates 

samjs
Member

Re: Starting chemo in September???

Hazey, me and mum are having different treatments as we have different diagnosis. Mum had DCIS intermediate I think. She had to have mx as it was so large, RADs and  is now on Antrozol(spelt wrong I am sure). I had high grade DCIS, IDC grade 2, lymph node involvement and vascular invasion. I ahve had two WLEs a third op due to a haematoma which they removed and an  aspitaion for seroma. I am having chemo, RADs and Tamoxifen. Mums treatment, whilst it was a more major op, has been straight forward. But I feel like she had to get it  for me to  find mine if that make sense. If I hadn't of found it when I did, god knows where it would have travelled to by  the time i did. So mum says, So I saved your life! And yes she possibly did but not in away you would wish on anyone. xx

Nikki49
Member

Re: Starting chemo in September???

Ok so about me.
I'm 49, divorced (for the 2nd time, 4 yrs ago), have 2 daughters aged 25 & 16 the 25 yr old is married with 3 children with another due in October, I'm pig sick that I'm not gonna be much use to her this time around.

The 16 yr old lives with me, is lovely but a typical teenager.

I work full time as a financial controller. I went on annual leave 18th July , joined my family in Spain for a relaxing holiday to power up ready for this fight - surgery has kept me busy since my return but but now I'm bored & we've got what? another 3 or 4 months of this? so I'm definitely gonna need a hobby - have no idea what though. I've always worked so am at a complete loss as to what to do with my time. I'm not really into soaps, can't stand BB , I like a lot of American tv, csi, ncis, re runs of friends, action & adventure films - god this is beginning to sound like a dating site lol
Take care xx
Nikki49
Member

Re: Starting chemo in September???

Thanks for all the hugs & advice - i will deffo try to find if someone local does reflexology.
I've dosed myself up, had a small Smirnoff ice & eaten half a tub of Haagen Dazs Baileys ice cream so feeling much better for the moment.
Hazey_85
Member

Re: Starting chemo in September???

Hi stars

Samjs- glad your boob has stopped leaking thank goodness, lets hope that's the last of it!!! Can't believe both you and your mum have been dx so close together thats rough 😞 are you having the same treatment??

barbs- thanks for tip on shaving head. Hope you enjoy the lakes.

Nikki- Sorry you're suffering hope you get something sorted with seroma soon I'm going to try reflexology for mine next week so will see if that helps me as still having drained twice a week nearly a month post op, however not too painful anymore.

Its nice to get to know all of you better, sounds like you lead very interesting busy lives. I too am a social butterfly.

I'm 28 a nurse, was diagnosed a day after my birthday in July, so missed out on my first weekend away without my little one since she was born damn it!! Will be making up for that next year hopefully. Only one in my family with bc so hoping i don't carry faulty gene.
I live with my husband and 15 month old little girl who had heart surgery this feb for a hole so not enjoying 2013 family wise either. However she has been fine since op so that's a blessing.

Thinking I will take up painting as hobby if se's aren't too harsh- something my little one can join in on too. Love watching a bit of trash telly too to switch off after busy days.

Enjoy your bank hol weekends stars whatever you're all up to.

Xxx
samjs
Member

Re: Starting chemo in September???

A little about me.  I am 46 and like you Barbs still feel about 30. I live in Northants with my partner of 6 years, my two sons (21 and 19) and his son and daughter(22 and 14). We also have two boxer dogs and a cat. I am a primary school teacher and have been for 10 years. 14 years ago I was a hairdresser and decided I wanted  career change so  off I trotted to college  to get A levels and then Uni. I love my job, it is so rewarding and every day is different. I taught  years5/6 for 9 years and for the past year  I taught year1/2. I was gutted I wasn't there for the last half term with them. I love lunches with friends and OH and we have quite a good social life. We both love Ska and reggae music and once a year  put on a charity ska night in memory of a friend. This year the monies raised are going to a local breast cancer charity. My diagnosis came a month after my mum's diagnosis with BC.  I checked myself about 10 days after she told me she had it and I found a lump. I thought I was going mad and making the whole thing up but every time I checked it was still there. So it has been a bit of a year for our family!! But we will get through it. xxxx

Bonnie8862
Member

Re: Starting chemo in September???

Oh nikki. It sounds very uncomfortable for you . I do hope you get something sorted soon . It's all a bit much to deal with at once . But you are not alone honey .
I went to my dentist and he prescribed me some special Fluoride toothpaste for use when having chemo gave me a script for four tubes which with my nhs card was free ...
Need a project too for when I'm off work thought about writing as was a member of a writing club once but I'm a bit bored of reading and writing . Anyone got any ideas please share .
Take care x Pauline
Barbarella63
Member

Re: Starting chemo in September???

Just noticed Nikki, I already told you about the reflexology before!....see I have a fried brain already! Hope you get something sorted as I know how horrible it feels! Big hug xxxx
Barbarella63
Member

Re: Starting chemo in September???

Nikki sorry to hear of your probs with seroma I had it too after my first lumpectomy had it drained 3 times, I went and had reflexology and she did a lymphatic drainage on my feet don't ask me how it worked but honestly I've had no further problems with it, the lump just disappeared overnight! I've carried on with it once a week and even after I had to have a further 2 ops including am MX it never came back! I'm lucky my friend is a reflexologist but I understand you can get it for free at your local hospice if you have a critical illness! Might be worth a try, I'm the worlds biggest skeptic but I've found it great! If nothing else it will relax and destress you!
Yay Nikki and Sam AT LAST!! Just waiting on my start date letter.....STILL grrrr! Sam glad boob is behaving too gosh you won't know yourself hehe! My birthday was June too....the 1st what's yours? Awesome that you're getting married next year CONGRATS 😀😀 that's something brilliant to look forward to? Ru having the works? (Big white do) when I got married to my lovely OH we went to Key West in Florida jus the two of us (both been married before...complicated etc) it was lovely but very different to the first one! I think stars we should get to know a bit about each other not just the cancer bit as I know there's more to us all than that! So ill start.....I'm 50 (shhhh don't tell anyone) although I truly believe I'm only 30 I don't feel grown up enough to be any older. I work full time in a bank one of the big four...boo hiss I hear you say, sadly I'm one of the little people no big fat banker bonus for me! I've been married twice got 4 children (only gave birth to 2) between me and the OH , they are all grown up now and are brilliant. All left home but visit lots and one daughter just lives near which is bliss. Got a mad cat called Timothy. My dad was in the army and I always said I'd never marry anyone in the forces...then did it twice wtf? OH now out of the Airforce and is a photographer and also a country house estates manager. We live in Lincoln after travelling all over the world, we have lived in some mad places such as the Falkland Islands! Oh yes and I LOVE watching crap tv program's, if its got the words soap,fat or reality I'm there! My brain has been fried already so I'm not worried about chemo brain LOL that's prob enough to be going on with Barbs xxx
Nikki49
Member

Re: Starting chemo in September???

Seroma really getting me down now, had it drained once since surgery but CS doesn't want to do it too often cause of infection risk. Really I'm not a wimp but I'm fed up, it's sore, it feels like I'm carrying a house brick under my arm, arm movement not only hurts but is now limited & & & I'm just fed up. Anyone got any advice? Please
Guest user
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Re: Starting chemo in September???

Hi there Stars, Bank Holiday weekend and it's already rained. Typical. Good news Sam and Nikki that your appointments have finally arrived. At least that's another thing you can stop fretting over. Like you Sam I booked a dental check, going Tuesday so that will give them time to sort out any problems I might have. Because we really need more problems don't we? Lol. You are right though, treatment should be free. Luckily because I live in Wales I don't pay for prescrptions so that's one thing I won't have to sort out. Today's the day for the haircut and tomorrow I am going to treat it to a colour just so it looks ok while I still have it. Shoulder length hair down to short bob today. Also having my wig reshaped slightly. Could almost get excited about it all if it wasn't all so bloody awful. Luckily my son's ex partner is doing the honours for me so at least we should be able to have a laugh about it. Today is also the day we have chosen to tell my darling little Grandaughter about forthcoming events. Not looking forward to that one bit, but as she will be there when I am having my hair cut it seems an appropriate time. She will absolutely love my wig because I have bought one almost the same colour as her hair. Think there maybe tears today, mine not hers. I have no doubt she will take this all in her stride. She is a very bright four (almost) year old handling Type 1 diabetes and that doesn't phase her one bit. So hopefully she will handle this too. Talking about parties, that's one thing I will be missing this year, her birthday party. Boy, like the rest of you,will I make up for that when all this is over. Re being lonely Nikki and Helen my o/h works away from home, has done for over 35 years and is right at this moment so I understand what it's like to be on your own. He hasn't managed to be around much since my dx and possibly won't be in the months ahead and I do feel very alone sometimes,but I have a daughter and son who are absolutely wonderful and of course there is this brilliant forum. Anyway this posting is rapidly turning into a novel. love and hugs to all. x
Nikki49
Member

Re: Starting chemo in September???

Samjs - snap mine came through too for the same date xx
samjs
Member

Re: Starting chemo in September???

Just a quicky- oncology appointment has arrived Monday 2nd September!! At last xxx

samjs
Member

Re: Starting chemo in September???

Boob update- I forget (ridculous I know when all I have talked about for 2 weeks is the flaming leaking boob.) Both holes have plugged themselves (fingers crossed). No need for my dad to call the plumber or OH to get his felt and gas gun out!

Like you barbs I missed out on a trip to London for my bday in June, I  wanted to go up the Shard. Also lost two holidays, Turkey and Portugal. I am having a mega party next year as we are getting married. xxx

Barbarella63
Member

Re: Starting chemo in September???

Sam no leaky boob update??? What's going on lol take from that its still ok 😃 I had my long hair cut off before my first op was upset but actually like my bob now and easier to manage even got a wig the same style! Wig lady told me when the time comes to get the clippers out to not go lower than a number 3 as the wig can rub on the stubble and give you a rash! Thought that was a top tip!!
I'm a social butterfly too love a good paaarty! Had to cancel my birthday party due to this rather unwelcome gift but I'm planning to have the mother of all parties once this is over ! I'm off to the lakes tomorrow for the bank holiday looking forward to a lovely time! Hope all you stars are ok today and making the most of feeling good xxxxxxx
samjs
Member

Re: Starting chemo in September???

Morning stars,

Hope you all slept well, I didn't as I was drinking with friends and alcohol sleep is never good for me. I am  so making up for all the times I will not feel like going out once the chemo starts. I am social butterfly and I think I will really struggle with the limitations that chemo can cause. My MiL has told me to  start some sort of project for when my immunity is low to keep me busy.

Welcome all new Stars. Helen, we will all  keep you company, don't worry.

Free prescription card- the hospital  gane me the form when I was first diganosed. Can't understand why dental can't be added to it especially when it affects your ability to work so  you  are likely to have reduced pay  at some point.

Ladies you chould have a dental check before chemo starts I picked up on this from other groups. I had mine a couple of weeks ago. The dentist said the healthier you mouth is prior to chemo the better. Was told to use floss, mouth wash etc daily. The mouth really does go through it as the chemo kills all fast growing cells and we have those in our mouths. If you need any dental treatment this should also  be done prior to chemo because of the risk of infection.

I have a wig and several purchases from Annabandan as I expected to start chemo in August- The wig I brough was £7 off ebay and is fabulous- not sure the NHS one I will get which is worth £80 will be any better. My hair has gone from shoulder length in  May- to shortish layered bob. I  am having the length cutt a bit more today. Gradually getting short in the hope I don't have a complete melt down when I need to shave it!!

 

Have  a good day Stars xx

 

Nikki49
Member

Re: Starting chemo in September???

Thanks Barbs I had no idea about the free prescription card, will get on that first thing Tuesday
Nikki49
Member

Re: Starting chemo in September???

Hi Helen, sorry that you have found yourself here. I haven't been here long but have already found it comforting. I too am 49 (50 in Jan) and a divorcee so am a wee bit jealous of those with OH at home. I have a 16 yr old daughter living with me who whilst lovely is a typical teenager, so not a great deal of help lol. Guess it keeps me from taking to my bed feeling sorry for myself :-). Where in the country are you? I live near Fareham, Hampshire
Barbarella63
Member

Re: Starting chemo in September???

Just a quick update
I've been spying on the Maisie's and Penn who does their list is having a nightmare getting it to appear correctly on their forum, I'm going to wait till she sorts it then she can tell me how to do it! The moderators are looking at it for her but with it being a bank holiday it may not be sorted till next week! Keep sending me your details and ill get something started in word ready to post when I find out how! Xxxxx Barbs