Hi gold63, and welcome to September Stars! Thanks for the seroma advice - I'm concerned that my chemo will be delayed if it hasn't dissipated but I'll know better when I meet my Onc tomorrow. Think I'll go for a picc line, like you, as it seems to be the least hassle. I had ct and bone scans 3 weeks ago but decided to wait for results until Onc appointment in case I needed to discuss any negative findings. Great news that you got the all clear in the end! Looking forward to many exchanges as we all move through this together. Elma xx
Sorry to her about your seroma. There is enought to look foward to without this hurdle to overcome at the start of the journey.
I too had a seroma after the drains were removed. It was very uncomfortable and sometimes painful getting out of bed. Pillows did help.
My BS drained this once a week which was a massive relief. 8 weeks on and it has gone completely, hope you do not have to put up with this too long. It does seem it will never go. BS told me she had NEVER known this to last on anyone for a lenght of time. xx
I was diagnosed June - had mx 1st July. CT scan showed grey area on liver and after an agonizing 3 week wait and further tests was sooo relieved to have the all clear.
I am due to start chemo this Friday and after being relieved with the all clear thought I would be fine..but oh no, butterflies are back.
Still can hardly believe this is happening.
Looking forward to getting to know you all over the coming months.
Thanks Barbs, I"ll have the best of both with 2 groups and hopefully be able to share some tips in getting through SE's with you all.
Been making the most of the bank holiday weekend and doing lots of socialising.
I have also been busy bulk cooking the last 3 afternoons, so that even if im unable to face eating at least other half and kids have some decent meals prepared. Not that OH cant cook , he"s a great cook but has an incredibly demanding job at times , so I'm just trying to make life a little easier for us all.
I cant ever imagine being able to get back into a nice bra at present, but like you Barb , I dont have much to worry about. It"s just gravity has taken its toll lol
Haha Nikki49 , I may have twitchy bum with you come Friday lol
Got pre chemo assessment on wed ready for friday ......Yikes!!!! oh well it"s got to be done!!!
Good luck tomorrow Sam , hope the public are generous with their pennies and the weather is good to you. xxx
Love to you all "STARS"
I have been busy today getting ready for the Strawberry Tea I am holding tomorrow in aid of Breast Cancer Care. I hope you have had a good BH.
I had a seroma and had it drained once but my consultant advised wearing a sports bra(I know very restrictive) 24/7following my third op. He said the restriction helps to compress the breast- only any good I gues if you have had a lumpectomy.
Barbs- I will email my details in a bit. Then give you my start date next Monday. Barbs if I give you my email could you eamil me our list so I can save it to my laptop otherwise I miss people.
Hi Nikki, as you know I'm 5 weeks post surgery with my seroma which started after the drain was removed but my BS was reluctant to drain it because of infection risk - it's getting smaller (very slowly) but it's also quite hard now and no longer goes flat when I lie down. I find that sleeping on my back throughout the night is really uncomfortable so I start off sleeping on my good side. I place an extra pillow on its side (lengthways) in front of me and hug it with my good arm so that it engulfs the wound site, I then lay my bad arm diagonally across the top of the pillow which helps to relieve pressure on the underarm and side swelling - I still wake up on my back every morning but I'm getting a solid night's sleep now. Good luck with the scan tomorrow! I should get my scan results and start date on Wednesday, here's hoping ... Elma xx
Pas-the-boss, thank you for good wishes for friday.....I"m feeling fairly calm at moment but I know I'll have wobbly legs on the day.
Nicky49, I had WLE and ANC back in june and then had to go back for more node removal ( july) in same scare area due to them missing 2 positive nodes.
I have the cropped tops and m&s sports cropped top ,all 1 size larger for comfort but still no joy. They are ok to wear for a short while but I seem to swell up around my shoulder blade, underarm and boob. My nipple feels like its going to pop off, with the pressure. consultant says it will take time for fluid to find another route. I"m just a little surprised its taking so long and cant bare to wear anything by 3-4pm most days.
re-seroma the only info I can give you is that , some of the ladies on the August thread have had this and many found it slowed up after a few drainages. I feel for you though.... my mother had problems with this and it is so painful and uncomfortable 😞 Hope it settles down quickly for you. xxx
Love to you all xx
After reading your post I wondered if you have seen BCC's Publication 'Breast Cancer in Families', if not you might find it helpful to read. Here's the link: http://www2.breastcancercare.org.uk/publications/worried-about-breast-cancer/breast-cancer-families-...
If after reading this you have more questions, please don't hesitate to give our helpline a call, they're here to support you. Calls are free 0808 800 6000 lines open Mon-Fri 9-5 and Sat 10-2. (Today Bank Holiday Monday helpline is closed)
Thanks for the welcome ladies ,
Would it be ok to have duel membership Barbarella63?
I have been with the masies a while now and am finding the group incredibly useful for advice ect but in terms of starting my treatment I"m nearer you ladies.
Happy to share any tips along the way and provide the support to each other along our journey.
Haha Sam, I"mnot storking you , honestly lol.
Tacey your DX was exactly the same as mine , but I was given the choice of WLE or MX
Just got back from the inlaws in Brighton, lovely sunny weather there today.
Just curious ladies?? are you all back in you bra"s ?? Im really stuggling with bra"s still and cant find any that I feel comfortable in ......any suggestions??
I am here too jo 43, welcome aboard you star.
Have to say how different people approach having bc. My mum initially didn't want anyone to know except immediate family. I was the total opposite because I wanted it to make everyone I know more breast aware. I didn't think things like this happened to people like me and when I was diagnosed I thought, if it can happen to me it can happen to anyone. So all my friends have have become avid boob checkers!
Hi there , September Stars 🙂
I hope you dont mind me hoping over the fence from the August group, its just that my first cycle of FEC-T will be on the 30th August and i have been reading the posts in this group out of curiosity.
Anyway , I just wanted to eco what Hazey has said about being more breast aware as a result of friends/family members having experienced BC
I didnt feel any lump but I did have a very slight indentation on my boob.
I wasnt concerned about it but knew from my own mothers experience 3 yrs ago that it needed checking just to be on the safe side.
The week of my appointment I finally felt what I thought was a pea size lump. I was shocked to discover on the day of tests that in actual fact , I had 2 lumps in same breast and positive lymph node biopsy. now I say to my girl friends , any change in breast , however slight, go get it checked out. we know our bodies and only we will be visually aware of any changes with or without feeling a lump.
Night night all.
Adding me into the online non dating site - i'm 47 been married (second time round) for two and a bit years - OH and i got married two years to the day after he suffered (and survived lol) a brain haemorraghe just six months into our relationship (we actually met in on an dating site ). I have two children a son 23 (regional sales manager for a medical supply firm who actually supply the lines that they use in hospital - son gave me my own to take in for last op as they had used a cheap one on me previously) and a daughter 19 (studying law at university). OH has an 18 year old daughter off to uni in September. I'm a higher level teaching assistant in our local Primary school teaching years 3/4 and I love it - so much so i'm aiming to work as much as I can through treatment, but watch this space. I love being outdoors but also have lots of inside hobbies, reading, sewing, cooking and recently card making (thats a good one for those of you looking for a new sat on your bottom hobby I made all my christmas cards last year - dead easy and sooooo effective). Like the rest of you a like socialising and feel I'm only about 30
Sam glad the plug has stuck this time hopefully tha'll be an end to your legendary leaky boob saga though I will miss the updates
Hazey, me and mum are having different treatments as we have different diagnosis. Mum had DCIS intermediate I think. She had to have mx as it was so large, RADs and is now on Antrozol(spelt wrong I am sure). I had high grade DCIS, IDC grade 2, lymph node involvement and vascular invasion. I ahve had two WLEs a third op due to a haematoma which they removed and an aspitaion for seroma. I am having chemo, RADs and Tamoxifen. Mums treatment, whilst it was a more major op, has been straight forward. But I feel like she had to get it for me to find mine if that make sense. If I hadn't of found it when I did, god knows where it would have travelled to by the time i did. So mum says, So I saved your life! And yes she possibly did but not in away you would wish on anyone. xx
A little about me. I am 46 and like you Barbs still feel about 30. I live in Northants with my partner of 6 years, my two sons (21 and 19) and his son and daughter(22 and 14). We also have two boxer dogs and a cat. I am a primary school teacher and have been for 10 years. 14 years ago I was a hairdresser and decided I wanted career change so off I trotted to college to get A levels and then Uni. I love my job, it is so rewarding and every day is different. I taught years5/6 for 9 years and for the past year I taught year1/2. I was gutted I wasn't there for the last half term with them. I love lunches with friends and OH and we have quite a good social life. We both love Ska and reggae music and once a year put on a charity ska night in memory of a friend. This year the monies raised are going to a local breast cancer charity. My diagnosis came a month after my mum's diagnosis with BC. I checked myself about 10 days after she told me she had it and I found a lump. I thought I was going mad and making the whole thing up but every time I checked it was still there. So it has been a bit of a year for our family!! But we will get through it. xxxx
Boob update- I forget (ridculous I know when all I have talked about for 2 weeks is the flaming leaking boob.) Both holes have plugged themselves (fingers crossed). No need for my dad to call the plumber or OH to get his felt and gas gun out!
Like you barbs I missed out on a trip to London for my bday in June, I wanted to go up the Shard. Also lost two holidays, Turkey and Portugal. I am having a mega party next year as we are getting married. xxx
Hope you all slept well, I didn't as I was drinking with friends and alcohol sleep is never good for me. I am so making up for all the times I will not feel like going out once the chemo starts. I am social butterfly and I think I will really struggle with the limitations that chemo can cause. My MiL has told me to start some sort of project for when my immunity is low to keep me busy.
Welcome all new Stars. Helen, we will all keep you company, don't worry.
Free prescription card- the hospital gane me the form when I was first diganosed. Can't understand why dental can't be added to it especially when it affects your ability to work so you are likely to have reduced pay at some point.
Ladies you chould have a dental check before chemo starts I picked up on this from other groups. I had mine a couple of weeks ago. The dentist said the healthier you mouth is prior to chemo the better. Was told to use floss, mouth wash etc daily. The mouth really does go through it as the chemo kills all fast growing cells and we have those in our mouths. If you need any dental treatment this should also be done prior to chemo because of the risk of infection.
I have a wig and several purchases from Annabandan as I expected to start chemo in August- The wig I brough was £7 off ebay and is fabulous- not sure the NHS one I will get which is worth £80 will be any better. My hair has gone from shoulder length in May- to shortish layered bob. I am having the length cutt a bit more today. Gradually getting short in the hope I don't have a complete melt down when I need to shave it!!
Have a good day Stars xx