Hello there Stars 🙂
I"M BACK!!!! yay!!! absolutely fine at the mo , just slight headache but to be far , I"ve had that since this morning.
HEvg123 .... so sorry I missed your post yesterday saying you are back........good to hear all went well and I hope all is good for you today.
Hoping my fellow dunkers are ok , gold63 and Pips ??
Still no news on Avonlady or Rachels or have I missed posts??
Will pop back later to catch up with you all but have mother and sister here at the mo so off to spend some lazy time with them.
Love to you all.
samjs - my onc showed me a typical benign liver cyst - perfectly smooth and round, and definitely hairless 😄 xx
Hazey, pas the boss, and sarahsomething - thanks for the feedback on picc lines, etc.
hegv123, great news that you've no se's, hope it continues. Oh and thanks for the line info.
Thinking of all the Stars who are dunking, scanning or onc-ing today xx
Thinking of all of you who are having treatment, everything crossed that all goes smoothly - keep your eye on the prize (freedom from this hideous monster)
To gold... Sounds like you've had an awful time. Seeing you hugs for today. I'll be at Christie bar at 3pm. Hope today goes smoothly for you.
To Jo my fellow dinner stay strong nd hope the se are minimal
To Lily I'm so sorry you've found yourself here again but you have already proved that you are a formidable adversary to cancer.Kick its butt. Sending you massive hugs
To all the stars shine bright xxx
Welcome Lulu, so sorry you find yourself here, you really do need a break. I was moaning yesterday about getting it once and thinking it wasn't fair so I dread to think how you feel about it.
Good luck to Joe43, Gold63 & Pips64. gold sorry you had such an awful time yetserday. That was one hell of a day. Your BC nurse sounds wonderful though and I am glad she will be there today for you.
Jo me Kaz and Angie (pendragon) will raise our lattes to you at 12pm!!
Frencyfancy- the boob is sorted- hurray!!
Bonnie I have onc on Monday too.
Just so you know girls my Annabandana order came within 5 days, I didn't even realise it had a 21 day wait!
I keep having bad dreams that my OH will leave me cos I will put on weight with the chemo and cos I will be bald. We are getting married next year and he has told me none of the side effects will change how he feels but you know when you just over think things. I hate how this thing makes my mind work in overdrive.
How all previous dunkers report back in with minimal SEs xxxx
Having just read your posting (after my winge) I just needed to send out a big warm hug to you.
What a dreadful time you have had.
Sounds like you are really due a break.
Well as you can see I am not sleeping too well.
First round of FEC at 9.
Had a bit of a trauma yesterday having line fitted. I have a needle phobia anyway, was booked in at 8.30 in the morning. After waiting to be seen for an hour and I started to get myself worked up for the proceedure and wobbles set in! Canula was fitted, bloods were taken, radioologist visited to discuss proceedure, REALLY wobbly now!
In wheelchair to be taken to theatre then informed bloods needed to be taken again as machine in lab broken down! Then I really lost it and cried like a baby!
Back to day ward (still crying) waiting for more blood letting. This was done, another half hour wait for results, in the meantime was informed my slot had gone! Didn't think I could cry anymore but oh boy I did!
Staff struggling to get another slot later in the afternoon (they are all panicking now as I was a MESS!) I went home with canula in hand and bandage wrapped around it. Back in Christies at 2 (oh yes STILL crying) thankfully line in at 3 and home 6.30. I feel like I have been in a car crash, can't stop shaking - thought of chemo at this moment actually pales into insignificance in comparison with yesterday - hope there are no surprises.
My lovely bc nurse had found out what had happened and came to see me just before the proceedure, she took one look at me and cried as well! Lucky to have her with me tomorrow .
Will let you know how I get on.
Well Up to the bar tomorrow not looking forward to it 😞 Good news all my head scarves arrived from annabandann this morning, cheap and cheerful just how I like them 🙂
Well Im definitely getting fec'd up tomorrow 🙂
Hi lulu like the other stars say thats just crap what you've been through and are continuing to go through such a pain when the drs are on holiday too i've had that a lot throughout waiting for scans, operation and onc appointments we know they need a break too but it doesn't help matters when you just want to get on with things. Thanks for offering your support we appreciate it and hope we can reciprocate it.
hegv123- Thanks for reporting in, well done you, hope your se's continue to be minimal and you get a good nights rest. Keep us posted on your progress.
I too have been browsing the annbandana website for sleep caps and scarves and like you PTB I could buy so many in so many different colours. Will check out the other sites recommended too thanks.
Elma- I've been offered a portacath or picc line too for same reason as others to save veins as mine pretty rubbish to start off with so am going with what they think's best.
Good luck to Pips, Jo and Gold tomorrow sending hugs and hoping your se's are kind too, let us know how you're all doing when you can.
Wig fitting for me tomorrow this could be funny.
Hope you all sleep well stars
Hi there Lulu34.... echo what Barb has just said..... really sorry you find yourself going through this journey again 😞
I'm getting worried now for Avonlady, Oh I do hope she re joins us soon.
Hopefully we may hear from Rachel and HEvg123 tomorrow....hope so .
Well ladies, thank you so much for the good wishes , I'm taking my dunking at 12 so I will be thinking of you Sam having your Latte with the Maises in MK , Hopefully I will get to join you all another time....HAVE FUN!!
I already have my annabandana, soft hats x2 and a selection of mix and match scarves to wrap around them.
Got my wig fitting too on monday... Oh joy! lol
I will do my very very best to log on tomorrow when I am back, just to put your fears to rest. Unless of course my head is so far down the pan and unable to come up for breath...... Yuke!! only joking ladies , I have my bucket at the ready instaed.
Good luck to my fello dunkers for tomorow gold63 and pips64. Lots of viral hand holding!! <3<3
Night night ladies , Im of to finish a bit of ironing .
Love to you all xxx
I'm finding some great (and cheap) headwear on ebay. If you search for 'hijab bonnet' you can find some really cheap caps in all sorts of styles. It seems they are a popular alternative for chemo hair loss as some even market them as "hijab or chemo bonnets"! Also here's some instructions about how to tie a turban so you can also use your own scarves to cover up: http://moohoop.tumblr.com/post/5069305332/beturband.
Hi Elma 55. PICC lines are were recommended to me by the onc and BCNs as it means less wear and tear on your veins - the dose gets to your system quicker, they don't have to keep finding veins (which may get more tricky as treatment goes on), and it reduces/avoids veins getting harder or getting damaged. I think there's pros and cons with all approaches but I was happy to go with their suggestion even though I'm not excited about having an obvious line to look at and look after.
ALso you can get something called Gelclair for mouth ulcers when on chemo- if you go on their website you can order a free sample.
Laimon is fizzy but not overly. Nikki that's me and you with onc appointments on Monday. Elma I have begnin cysts on my liver too, they told me that these are usually picked up when being scanned for other things and are harmless and surely hairless!!!
I am having a very lazy day today. Doing a jigsaw and watching TV. Want to start a hobby when having chemo so am off to teh library tomorro wto see what books i can find on art journalling. Hope Avonlady reports back xx
Hi ladies just popping on quickly as Im off out to have my moles looked at.....long story !!! but I will catch up on your posts when I'm back 🙂
I just wanted to say ....... I hope Avonlady , you are doing ok hun after yesterday, we are all thinking of you and are eagerly waiting for you to check in 🙂
Good luck to Rachels and HEvg123 today , really hope all has gone well for you both and your back home chilling.
Speak to you all later lovely Stars!!
BonEllie and Pips64, we’re all here to share info and support each other over the coming months so welcome aboard!
Nikki, glad you got your seroma drained – Onc isn’t worried about mine either so nature will just have to take it’s course - was told it does go quite hard before it’s reabsorbed into the body so I’ve no need to worry.
Avonlady, hope you’re ok?
Barbs, thanks for the list. I’m having FEC-T x 6 and will let you have start date as soon as it comes through.
Hazey, thanks for your cyber thoughts! Like you, had my Onc appointment yesterday - scans all clear apart from a few benign cysts on liver. Will be on FEC-T followed by rads. Also having pre-chemo Echo heart scan and blood tests. Good luck with your bone scan today!
Beam67, I feel guilty about all the hassle I’ve caused despite telling myself it’s not my fault. My son is home from Uni at the moment and was keen to know what was going on through dx and surgery but resumed normal service when I appeared to be ok about a week later (meals were on the table, washing was in the tub etc - what's not normal!) – pretty sure it’s a ‘man thing’ and as others have said, probably a means of coping. It’s also normal behaviour for them if they’re anything like mine – they think I'm always fussing about something, but I know they love me to bits really! xx
General question to all Stars - still undecided about whether to have a line fitted as my Onc wasn’t very encouraging. Why have so many of you decided to go for a line and was your Onc ok about it?
Thinking of everyone who has to do something this week! Elma xx
Good luck Rach andhevg123 who are visiting the bar today- hope it goes well xx
Nikki glad you can now put your arm down. It must be a relief, that was some amount they drew out!
Hi beamy, I see onc next Monday so should start the following week but apprently our unit only does chemo for BC on Monday and Wednesdays. So looks like the 101th or 12th for me. As for guilt- hmmmm tricky one- My boys and step childrne who live with us are still exactly the same as they were before (lazy) but I do get rather moany at times and then feel guilty for moaning! However they are all going to be sat down when i have had my onc appointment and told what to expect. Selfishly this is to kick them up their backsides, if you saw the state of my kitchen this morning you would understand. They are going to be told if they cook they must clean up after themselves. They will also be told that there will be things in the house (drinks and biscuits) that are for me only for if I feel nauseous. Otherwise they will just eat and drink the lot- they are gannets!
I am totally p***ed off that I have got the flaming disease. I am a good person and do anything I can for everyone I know so I think it is really unfair.
The Laimon Chezza is on about is lovely, I got it from Tescos but waitrose sells it in cans.
JO43- think I will make some meals next week, I love homemade soup so that will definitely be on the cards for me. What time are you up for your treatment on Friday? I am meeting Kaz and Angie from the Maisies at about 11 on Friday- we will toast you!!
So I had my Hickman line in yesterday... Omg My shoulder was so sore last night and today. Lovely bruising Well all ready for 1st Fec on friday 30/08/2013
So Ive had WLE & SNB
I had a 25 mm IDC No Node involvement
Its Triple negative cancer
Im having 6 FEC T and thn 18 Rads afterwards
I currently live in cheshire and under the care of The Christies in Manchester
Good Luck Everyone
Sorry Barb , I must have read it wrong.
Have you not been asked to go in for bloods and chat re- Se"s .... given booklet with emergency contact info ect.... card to carry on you at all times....cold capping option and info.... the list is endless.
We didnt stay in the chemo room long , I think the look on my face told her alot about how I might be feeling and after a brief look around we went into a private room.
I would say.... start to finish .....the whole appointment lasted 1 and a half hours.