Just had a phone call from the hospital's wig fitters to arrange my appointment, just in case I lose my hair – had my 8-weekly trim on Saturday (sadly haven’t got the courage of Batman just yet) and made another appointment for 8 weeks hence, just in case …
Flu Jab – Although it’s a good idea to have one providing the timing is right, my GP told me to check with my onc or BCN first, especially if chemo is close to starting or has already started.
Lulu - swamp juice actually makes it sound palatable, think I can do that 🙂 It’s good that your onc is keeping you in the loop. Wonder if you can choose which bone marrow booster to have as neulasta (probably the most expensive) would suit me fine (not good with needles, go horizontal thinking about it) – chilled drinks can for numbing the local area is a great idea xx
Hazey - good luck with your scan results today xx
PTB, Tracey and Ally will be thinking of you tomorrow, let us know how you get on if you can xx
Hi Maseo, there are plenty of wobbles here too but we’re all here for you xx
Sam – Burgundy Book rules suck! Like Nikki suggests, maybe you can meet up with them out of hours xx
Hi Kate - you’re absolutely right, keeping busy is the best thing xx
Hi DTebbs, welcome aboard! As you’ll see from earlier posts some of us have already started treatment, and are doing really well. We’re all here to share and support as and when … xx
Pips, you’ve just made me laugh out loud - go ahead and kick him! xx
Good luck today for all those of you with ONC appointments today 🙂 Day 3 of SE's all i can say is someone hit me with an acme mallet. Im alright just got a headache which I can't seem to shift. Sure I'll be ok. Off to rheumatolgists laterr, bring on the pain , he justs love to manipulate joints 😞 . I'll kick him today
Hope you don't mind me joining in. I am due to start chemo next week. Dreading it too. I was dx with invasive lobular . cancer - left breast, had mastectomy, then full axcillary clearance after SN showed cancer cells in two nodes. MRI showed the other breast is clear - although I am still considering having this removed after treatment.
I am having FEC-T , going to try the cold cap, although I know it may be uncomfortable, suffer with headaches, so not sure if this is a good idea, but I will try anyway. I was told told the first session is the worst, as you don't know what to expect or what side effects you would expect to happen. So I am sure I will be wanting loads of advice and support.
Good to read all comments and know others are going over similar emotions, etc. Thankfully I'm feeling much better today - no tears so far!! Busy today with lots of chores to complete.
Nikki I think it's cos you are triple negative the coil wasn't meantione dbefore. Mine was 8/8 on both hormones and I had that results just from teh biopsy. BC consultant told me to get it removed immediately!! Luckily I had an appointment to have it changed for a few days later.
Feeling a bit sad after reading an email. I intended popping into school to see my colleagues (if I don't get to Greece) and the head teacher has asked that I don't as he doesn't want to compromise me, the school as my employers and HR maybe on his back as they have to abide by the Burgandy Book rules . (This is a school thing). This has knocked me for 6! I do feel rather fragile today due to onc appoint this afternoon. I wante dto see them before I lose all my hair!!Sorry to those of you who have read this on FB.
4 of us with onc appointments today then. Anyone up at the bar today? xx
Thanks for replying how do I let Barbs know? Is this by pm - have a few probs negotiating around the new site?
Any extra questions I should be asking the chemo nurse tomorrow? All suggestions gratefully received.
Nikki49 - my thoughts exactly. Mine was put in to control my fibroids and is overdue for change anyway and no one would answer the question of what to do about it til last Friday - lol fibroids are the least of my problems now!
I think I have just posted to the August thread, and as I start my first cycle on Wednesday - perhaps I should be here with you guys. I still not very strong, tears and fears.............. but I am trying.
They really have changed the web site haven't they - still have a few problems on finding where everyone went!
Nikki49 Will you let us know aout the flu jab I forgot to ask??? My onc said the mirena coil had to come out (i'm ER+), just have to find someone to do it (doctor surgery don't run the service so have to try the family planning clinic and if that fails then they'll get the gynae dept to do it-large sigh)
Morning Sam good luck today - onc told me on friday it would be about two weeks to dunk day and there was some flexibilty in that so fingers crossed you'll get your Greek getaway
Looks like it's me, lulu and Bonnie seeing onc today. Harry hope your results are good, they rang me to tell me I didn't have bone Mets. Agree with lulu that getting bad news is almost better than the waiting. Each time I had a appointments I would be so worked up, then when given bad news it's was almost a relief because I knew what I had to deal with.
I am not up until 4-15 and am praying we can nip off to Greece for a week,already found flights for tomorrow afternoon. Will check back in later, hopefully with news I can go.
Not sure if anyone is at the bar today, if so good luck.
Ps French fancy think I may have accidentally declined friend request on Facebook can you send again please.
Ive Just shaved my head ready for my 1st chemo this Friday.
For those of us apprehensive about starting chemo this month i want to say this:
This is a battle with cancer.
We have to fight it hard with everything weve got.
Chemotherapy, Radiotherapy & Endocrine treatment are our weapons.
We are ready for the fight ladies. Dont dread the day the chemo starts because every day until then the **bleep** cancer can multiply away without any resistance.
Thanks for the good welcome. As I wrote yesterday I start chemo on Weds 4th, with blood tests on Tues 3rd. Not been a good couple of days for me. But as some of you have written sounds like par for the course. Been very tearful which just is not me and apprehensive. Cannot wait for Tuesday and the whole process to start. Thankfully the seroma appears to have gone, or at least reduced and just draining naturally in my body, so no more visits to hospital to have that drained. Best wishes to you all.
It probably is the steroids keeping us awake - I am having to take Dexamethasone for 4 days - I thinks it is to prevent sickness/nausea and then I have some back up pills called Domperidone which I can take if I feel nauseous (and these have been really good ).
Neulasta is an injection (or a course of injections) which help you to produce more white blood cells from your bones and so reduce the risk of the dreaded neutrpenia sepsis. Some hospitals give you it automatically but others wait and see if you have a problem with your WBC levels as I believe that it is very expensive. And of course, as with everything that is supposed to help us, there may be side effects ; I was warned about pain in my hip & leg bones.
Hi Nikki - poor you. Seromas are such a pain (literally). I have still got mine 5 weeks after surgery altho' it is about half its original size. It felt like it would never go - I had to have it aspirated twice but they were happy for me to have chemo just as long as they thought it would need no further aspirations. Mind you it seems to have got a bit bigger since my chemo which is a little worrying after it was decreasing nicely until then!?
Hey girls its officially star season now!!!
Good luck to you all intrepid pioneers!!. Dont be scared its DOABLE!!!!!!!! Not pleasant by any stretch but most definitely doable.
It will soon be October and then you will feel like wise old sages no longer the new kid so the block so to speak!!!
massive hugs to you all xxxxxx
FEC-T, First FEC, Day 3
Hi Stars ,
Welcome Kate , best of luck for the 4th .
Jo, like you I found that the Neulasta jab was fine - I didn't look but hubbie said it worked! I'm only having one jab after each chemo so that's not too bad.
Gold, I have been drinking lots as well - my nurse said that the 24hrs after chemo were the most important - but I found it really hard as I did not like the taste of tea, coffee or tap water any more and the only things I can manage now are sparkling water and squash.
Bonnie, we will all be thinking of you on Monday - like Elma says, try not to worry too much xx
Pills are still keeping nausea at bay but only 3 hrs sleep last night - an improvement but I am feeling rather zombie -like.
Hi Cinderssarah, sorry I almost missed your late night post yesterday cos it’s been so busy on here today. So you’ll be having chemo with the rest of us, much better that they throw everything they can at it, and as you say it means you get to stay with us lovelies! xx
Jo, thanks for all your tips especially the one on checking our temperature at different times of the day BEFORE chemo starts so that we know what's normal for us - brilliant idea! No I'm not dunking just yet, hoping it will be 24th September but still waiting for confirmation.
Nikki - good luck on Monday with your onc appointment and scan results – hope the seroma is behaving itself now? Also Samjs - hope you can squeeze a week away before your start date – my onc was fairly flexible with me as long as further treatment started within 12 weeks from surgery. Bonnie, you too – I’m Grade 3 TN with large tumour and high nodal involvement and my scans came back clear, easy for me to say but please don’t worry xx
Hello Kate, welcome aboard!
PTB have fun hunting for those unicorns tomorrow.
Thanks Lulu for all your tips on possible side effects – fresh pineapple always makes my mouth sore so will be interesting to see what chemo and fresh pineapple does to it, ho-ho xx
Looks like a starry night tonight, sleep well all xx