just to let you know, chemo is do-able. i am not saying it is fun, but please try not to dwell on posts people make when they are at their lowest.
i finished fec-t at end april. i wasnt sick once - i took all drugs as told and was fine
i have 2 young boys aged 5 and 7 and i took them to school every day and picked them up
i even managed to work some of the time
its very emotional and tough at times but try and make the most of when you feel good
lots of luck to you all
Pas-the-boss - glad to hear everything went well today - I too found the actual experience was far better than what I had been expecting. It's so good to feel that you have actually started on the chemo "journey" .I hope that you manage to avoid the side effects.
Georgina - you made me laugh about the wig - my hubbie was very hopeful about a lovely long blonde wig until I ruthlessly opted for the short practical bob that just looks like my own hair (except it is styled far better than I usually achieve). I am trying the cold cap, altho' I know that FECx4 will test it and Tx4 may well get rid of any that has hung on - and so I have been told not to wash my hair more than twice a week just to try and help it survive - you can't blow-dry it or do anything much with it as it will be too fragile. I'm willing to give it a go as I know that even if I lose alot of hair, apparently it will grow back quicker once chemo has finished.
Deb - It's good to have a start date - try not too worry about it too much if you can - certainly I imagined that the whole dunking thing would be awful and I would be struck down with all manner of SEs, but, touch wood, it has all been straightforward so far.
Best of luck to Katepb and Hg12 for tomorrow.
Just read a posting about washing your hair after chemo? I didn't ask that question, is it best to leave it for a few days then................ appreciate any advice.
Well had my pre-chemo talk today, also had a wig fitting, OH wanted me to try the long blonde wig, we did laugh. At present I have a bob, more grey than auburn. So have chosen a longer bob in a almond with hi lites that didn't look too bad. OH very disappointed his dreams were shattered.
Well stepping up to the bar for my dunking tomorrow at 1:30pm in a ward full of others also hooked to IV drips, think I will take my kindle. They have given me some anti nausea drugs to take one hour before treatment and then one for the following two days. Nausea is my nemesis - rather hang onto it than throw it down the toilet. Anyway heres hoping the tabs will work.
Golly they really load you with info don't they. Got CT results - clear - phew. But bone density showed osteopoenic in lumber and neck regions - I am post menopausal so was sorted of expected. Will deal with this when all treatment over, have looked up that diet, walking etc can put a halt or at least help with this. Now I know why I was always in pain after yoga - not my imagination, not me being too fat! Mind you I have now lost a stone and now weigh in at a svelt 9st 13lbs.
All my love to those stars doing the IV shuffle tomorrow. Lets hope SE's are minimal.
Thanks for welcoming me to the site. I start chemo 10th September. Nervous to say the least. My cancer was Grade 2, 50mm, node positive (1/2). Although the consultant has asked that nodes be tested again, as there were two reports which contradicted each other. ER 95% pos, PR 50% pos, Ki-67 I 1%, HER2 neg. I was told what all this meant, but some of it has gone out of my head now. I know the HER neg is a good thing. I am seeing breast nurse again next week, so will go over the figures again. She will probably think I'm thick lol. Still new at all this. No doubt will be as experienced as everyone else in a few weeks.
As I said, dreading chemo, and worried about side effects. I am a strong person, so know I will get thr ough it, you have to don't you. Just the unknown really. Thought I'd got away with not having to have chemo, as at first treatment was mastectomy, then radiotherapy. However, because of the node involvement - chemo here we come.
Again thanks for welcoming me, I will let you know how I get on.
PTB, Ally and Tracey - hope today went ok for all of you xx
French Fancy and PTB - I’ve now spoken with GP and BCN about over the counter treatments – both say that as chemo is systemic, anything (within reason) required to treat a specific area of the body affected by chemo should be included within the exemption so that’s good news.
Lulu, sorry to hear about the TN trial – we might be swamping together if it’s the last week in September. Hope your first day back wasn’t too hectic for you. xx
Nikki – good news about your scan results. Thanks for the line info – I’m still deliberating over which one to go for. Are you having portacath in chest or under good arm?
Jenny – relieved that you’re back in touch but sorry to hear you’ve had a bumpy ride. Hope things improve from now on. xx
KatePB – I’ve also been told to have flu jab during week 3 (our ‘good’ week), if I don't get it before my first cycle starts. Glad things are finally moving – it does make a huge difference. Good luck for tomorrow, will be thinking of you. xx
hg12 and Maseo, good luck for tomorrow xx
Just a quick update. I haven't gone to Greece. I was too scared of getting dvt as I am just less than 4 weeks post ops, also because I have had 3 ops in 8 weeks. I hate this bloody cancer thing for changing how I think about things, I would have just gone prior to this bloody thing! Spent most of the day in tears or close to tears. Haven't answered any calls cos I don't want to talk to anyone. OH went for a kip hours ago, just to get out of my way I think and he is still there. Kids staying out of My way too. Dad popped to see me earlier and I just cried on him bless him.
Rachel the burgundy book is pay and conditions booklet, not to be messed with obviously!
Nikki I am the same as you regarding about what we put in our bodies. After I had my mirena removed although I had the normal coil on prescription, I couldn't bear the thought of having it put in and having something else in my body. Also I used to drink quite a bit of pop and a fair few coffees a day but now I have 2 coffees and water. Unless I am down the pub obviously!
Hope everyone at the bar today fares ok.
Glad others are keeping us posted and glad to see avonlady back.
All that is left to say is barbs is officially a potty mouth! Obviously on fb not on here!
To those asking about flu injection - cannot remember who as I've read so many comments in last 10 mins or so. I saw my oncol this morning and she said it will be not as effect as normal but have it the week prior to next cycle. I start my chem tomorrow and was hoping to have had my annual flu jab prior to commencing but my GP practice do not have he vacine yet so will have to wait for the appropriate week.
After two bad days over the weekend feeling much better now. I've had my first blood test, seen my oncol again and met my lead nurse. Feeling as if I'm going somewhere again but also cannot wait until the end of the journey - heres hoping January 2014 and then five years on tablets. Also praying that I do not have another recurrence.
Big hugs to all you other out there commencing chemo tomorrow or this week. Take care. xx
Hi Avonlady, I was wondering where you were - did PM you but my PMs seem to be going astray!
Poor you having to go into hospital - at least it was only overnight but it is awful, isn't it? Hope you're feeling better soon.
I had ECMF x8, 11 years ago. The worse thing for me was the nausea. I think the anti sickness drugs are much better now. As well as ginger, pineapple etc I found what worked best for me was soft bread. It sort of soaks up the acidy sicky feeling albeit temporarilly.
Good luck ladies. You are fighting back now.
Nikki thats awful I read so many reports on how to avoid seromas before my op. eg to exercise straight after the op or to delay, drainage tubes or not etc. So i decided to delay the exercise a bit after the op. (Still not doing it to be perfectly honest!) Still didnt stop me getting a seroma though! I drained only 160ml, so half your amount. It must be awful for you. Hopefully the antibiotics & aspiration will sort it out once & for all. Try get some sleep whenever you can.
Hope everyone that had their 1st session today is ok.
FEC-T - 1st FEC - Day 5
Great news Nikki- I bet that's taken a weight off you mind. Thanks for the flu jab info - I thought I had missed the boat for that but will ask my onc if can have it - one less thing to worry about catching!
Another night of a buzzing mind and a very loudly beating heart and therefore not much sleep but at least I have talen my last steroid - I wonder if they would let me reduce the dose next time as I have had virtually no nausea ?.
And I have washed my hair for the first time since chemo - such a fantastic feeling to have clean hair, altho' without been able to even blow-dry it it does resemble a mouse's nest!
Good luck to PTB, Ally & Tracey today - hope it all goes well.
Enjoy the sun if you can.
Just a quickie to wish PTB, TRACEY46, ALLY 51 Good luck tomorrow for your chemo cocktails, Let's hope it all goes well for you and SE's are minimal.
Big hugs to all the Stars
PS Elvis like my headache have finally left the building 🙂 Thankyou very much xx
Welcome along newbies, i'm sure you will find the stars just as supportive, helpful and lovely as I have.
Hope everyone got on ok with oncology appointments today.
Just sending hugs and wishing PTB, Tracey and Ally a smooth trip to the bar tomorrow hope the se's are minimal. Let us know how you get on.
Thanks Jo and Rachelr for keeping us posted on your post chemo se's so I can feel at least a little bit prepared for what may arrise glad they aren't too bad so far, may this continue.
Pips- I really hope your headaches gone now and the rheumatologist went easy on you.
Good Luck to all those who have appointments, scans and results this week.
Love and hugs to all xxx
Had forgotten about Maelor - you must be more north than me! Yes, I think Glan Clwyd is the only hospital in N Wales that does radiotherapy. I'm doing OK this cycle, although was hospitalised last time with neutropenia - good luck with your treatment, hope everything goes as well as....x
Hi, all - just popping in from the August thread and was interested to see your post, pas-the-boss. I'm in N Wales too, which hospital are you attending? I had my mx and ANC at Bangor, but am having chemo and rads at Glan Clwyd.
Would PM you but I think mine get lost!
Afternoon all Stars
Just trying to do a list of essentials that I might need before I start, so I don't get left high and dry. I know that any cancer related prescription meds are free of charge with the NHS Exemption Certificate but does anyone know if this covers 'over the counter' cancer related items like mouthwash, bonjela, oral thrush treatments, aqueous cream etc? Would a GP issue a prescription for this sort of thing? I'm working on the basis of 'if you don't ask, you don't get'!
Pips, Rachel, Gold and Jo, you're all doing so well and glowing proof that it's definitely doable, go all of you! Hope Avonlady and HEvg are still ok? xx
Hi there Stars!!
Welcome to the newbies , sorry forgotten names already as I have serious chemo brain these last 2 days , cant string a blinking sentantance together sometimes.
In terms of SE"s ,I think i"m getting away quiet lightly and touch wood it stays that way.
Like many of you, its the sleeping that seems to be a problem.
Had my wig fitting today and really not looking forward to the end result , I look hidious!!....... think it will be hats and head scarves for me .
Good luck to PTB, Tracey and Ally tomorrow. Remember ladies to follow all the tip for your first dunking and hopefully all will go well 🙂
Hope to hear from all you ladies with oncol appointments today , Sam try and keep your chin up hun......bloody rules!!! 😞
Seen a couple of posts on here about Mireena coil....... I had mind removed on advise of my oncol.
Hope the rest of you stars are enjoying your day 🙂
Love to you all .
FEC-T - 1st FEC - day 4
Hi Stars - welcome to DTebbs and any other newbies.
Well day 4 now and still feeling fine. Keep waiting for some bad side effects but nothing so far. Did get fed up with not sleeping but took a sleeping pill last night and managed to get a few hours - so feeling much more human today.
Sorry for being stupid Sam , but what are the Burgundy Book rules?
Good luck for all those with onc appointments and those getting their first dunking this week.