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Starting chemo in September???

elma55
Member

Re: Starting chemo in September???

Hi hawkie, it’s a bit confusing with the other thread out there as well but glad you found us –  have heard of the new drug perjeta but don’t know much about it at the moment.  I start FEC-T on the 24th.  Hope all goes well for you. 

 

Good luck tomorrow Pots, will be thinking of you.

 

Kate, I can’t keep pace with everyone so you’re not on your own!

 

Sleep well, September Stars xx

Barbarella63
Member

Re: Starting chemo in September???

FEC-T #1 day 7 Hi Hawkie welcome to the group! Sorry you find yourself here but rest assured we will support you all the way! When you've got the start date let me know and I will add you to our ever growing list. You will find that Lulu is the font of knowledge when it comes to all things chemo, so if you're not sure about something ask her she's bound to have the answer! Kate glad you managed to sort of enjoy your weekend and ave a proper meal, its a start back to feeling like you again., how's your hair holding up? Mines fine but I know come day 10 onwards its gonna be a different story! At least I'm feeling well enough to deal with it.....hopefully!! It is my biggest horror losing my lovely hair but goes without saying really, and I know its temporary but its still pants! Xxxx
KatePB
Member

Re: Starting chemo in September???

FEC1, day 12.  Thanks all for good wishes.  Had a good Sunday - actually eating a meal - and feel okay today.  Hoping now I'm half way of cycle that the remaining days prior to cycle 2 will be fine.  I cannot keep pace with you all and where you are but hope that all who are suffering are feeling much better and had a reasonable day.  Try to keep smiling and stay positive.  Hugs and love to all. xx Kate. 

elma55
Member

Re: Starting chemo in September???

Hello Seaview and Helen, a big welcome to both of you.  We're all here to share and support each other on this crazy journey.  Seaview – like you, I haven’t started chemo yet (also FEC-T), will be glad when the first one is out of the way and I know what to expect!  My first dunking is on 24th September, and I’m really hoping that if there are any side effects, they wont last long.  I've been advised to drink lots of fluids to flush the toxins out of my system, and to try to eat simple starchy foods,  a little and often - this can help to reduce sickness and nausea, I will give it a go and see what happens.     Helen – if you're in a lot of pain and your current medication isn’t helping, have a word with your GP – he may be able to prescribe something more suitable.  I found that gently hugging a soft cushion when sitting, or an extra pillow in bed at night, helped to ease the pressure around my wound site - I also put a small cushion under the diagonal strap of my seat belt as a passenger, and when driving.

Guest user
Not applicable

Re: Starting chemo in September???

Hi Helen51 and hawkie,
Welcome to the constellation that is the Septmber Stars. This is where you will find the best virtual friends you will ever have.
Hope all the rest of the Stars are twinkling happily today.
Good luck to Pots for tomorrow.
Lulu34
Member

Re: Starting chemo in September???

Hiya Hawkie


I had docetaxel two years ago and was quite hard going but i have a friend who has been on docetaxel, herceptin and pertuzumab a few months and has just had her 5th cycle.... She doesnt post on here any more but she is finding it not too bad.

Shes always off galavanting and going to parties and isnt letting it infringe on her life too much.... She had secondary breast cancer in her liver so will be on the herceptin and pertuzumab forever but they tend to have lesser side effects than the docetaxel.

Good luck with it xxx
hawkie
Member

Re: Starting chemo in September???

ooooops just realised I should have posted on here rather than the other Sept thread.  Hoping to start chemo in Sept, Duxotaxel alongside Herceptin and what I believe is a newish drug called Perjeta/Pertuzumab.  Initially having the duzotaxel one day followed by the other two a couple of days later incase of allergic reactions.  Would be interested to hear from anyone being treated with these drugs and looking forward to chatting with others in a similar situation xx

Barbarella63
Member

Re: Starting chemo in September???

Someone's sent a request to the Facebook group....let me know who you are on here please, message me then ill add you xxxxx
Barbarella63
Member

Re: Starting chemo in September???

Hi pots glad to see you've started to get a kickass attitude!! Positivity is the key! I'm day 7 today and I can honestly say i feel back to my old self, shame the immune system is low as I would definitely e up for a meal out or something!! Have to say I'm feeling much better having had a poo!!!! Even got my juicer out today and whipped up a veggie juice to get my immune system back into gear, even managed to drink it without too many problems. The only thing that's playing up a bit are my teeth but I'm brushing with the xylotene and its continuing to do its job in giving me some relief! What do you look like in your sleep cap??i look like a smurf...hideous I have got 3 great wigs so hoping that they aren't going to prove to be itchy when I'm wearing them, guess ill be finding out soon as I'm now day7 and according to the chemo nurses your hair starts to come out around day 10, I'm actually having a good hair day today as well...typical just to rub salt I. The wounds when it does start to come out!! How are you feeling about to or row? What time are you there? Did you get sickness tabs to take in the morning before you go? I sound like I'm interrogating you sorry!!! Do check back in with us once you have been done so that we know you're ok!! What you doing today? Something nice I hope!! Xxxxxx
Lulu34
Member

Re: Starting chemo in September???

Hiya Helen and welcome.... i replied to you on the october thread x
Pots14
Member

Re: Starting chemo in September???

Hi all,

 

Frechfancy - tried corsodyl this morning - tastes different but not too bad. Sods law though got a mouth ulcer last night (and haven't even started yet)  and breaking out in spots - think it's stress. Hopefully chemo will sort out the skin!

 

Seaview and Helen51 -  sorry you've joined us, but welcome. I've found the forum really helpful.

 

Seaview - got my 1st day before you (17th). Am looking at all of this as a 3 part  plus a bit olympic event  -  1 event down (surgery), now to event 2. Feel as prepared as am gonna be - bring it on!! nearly packed chemo bag, drinking  my 2L - start as I mean to go on! (rushing to the loo every 2 mins - bladder the size of a thimble.

 

Barbs - how's poogate? Really hope you've had movement

 

Helen - I found warm bath very soothing, also tried lavender soft pad - can warm up in the microwave or can be used as a cool pack (just put in freezer).  If you're getting sharp pains it'll be the nerves saying hello - warm water from the shower on the area may help. Also if you massage the scars very gently (it feels horrible at first) it can help (it's a good thing to do anyway 'cos it helps to soften the scar tissue . I found paracetamol didn't work for me, but votarol was wonderful. Don't be brave - if you need pain killers - take them.

 

Kate PB and Nicky69 - thinking of you both, hope things are better this morning. Sending virtual hugs Sun's out here - hope it is where you are and it's lifting your spirits

 

Pas the boss - really admire you coping when OH is away. Mine's out and about chemo week in the evenings which is worrying me. Hoping I can be as strong as you

 

Samjs - know what you mean about being seen with no hair. I feel my family think it's not really going to bother me (am not a makeup / hair perfect kind of girl), but the thought of it makes me feel very vulnerable. have had wig appoint postponed until next week, but have finally bought 3 sleep caps from annabandanna. Don't want to do too much more now - 1 day at a time and hopefully today you're feeling a bit stronger.

 

Can do this!

Pots 

gold63
Member

Re: Starting chemo in September???

Hi Seaview and Helen51 - welcome to the group.

 

Remember no matter how tough it gets these ladies will help you through and keep the end goal in mind.

 

This awful period in your life will eventually pass.

 

XXX

 

Nikki49
Member

Re: Starting chemo in September???

Good morning Helen & welcome x
Guest user
Not applicable

Re: Starting chemo in September???

Hi Seaview and Helen51
Welcome to the club! I'm sure you'd rather not be here but it is a great source of support, information and humour, so something for everyone!
Look forward to sharing the journey with you
Heather
Maseo
Member

Re: Starting chemo in September???

morning Helen. Welcome to the group - great group of ladies, they are my virtual family bestest family ever. aknythinkg your want to know just shout. did you read Barbarellas message?
Barbarella63
Member

Re: Starting chemo in September???

Debs you were up early my lovely!! Hope you're ok?? Welcome to Helen51 glad you decided to post on here and become a September Star, a nicer group of women you couldn't (virtually) meet!! We are all in the same boat unfortunately but you know what they say you don't really know how someone's feeling until you're feeling it too!! And we are all right there with you girl so try not to worry and fret too much...easier said than done I know! I have added your name to the list no one really wants to be on, and you'll be pleased to know you won't be going solo on 30th you have the pleasure of mine and Frenchfancy's company as we are due number 2 that day..yay!!! I am there at 2 I believe not sure about FF, what time are you there and whereabouts in the UK are you? Just try and hold onto the fact that you may be absolutely fine with no side effects- check out PTB who has got away so lightly I was beginning to think shed had a placebo!!! Unfortunately everyone is so different that you really don't know how you will feel until you have had your date with the toxic cocktail. One thing I will say is don't get too hung up on the actual procedure I was distinctly underwhelmed after building it up into the most enormous deal it really wasn't, I sat in a nice room with other nice people and nice nurses who infused me and I had several cups of tea, all pretty mundane really and not what I had expected. Other people having the same were chatty and friendly it was almost social which is a bit surreal. If you fancy more personal interaction with the girls in an easier to manage environment find our group on Facebook follow this link https://www.facebook.com/groups/Startroopers/ I know Facebook isn't for everyone but its definitely worth considering for this. If you do send a request to join pleas send me a private message on her to let me know your real name then when I see your request ill add you. Barbs xx
Here's the list for the stars


NME/DIAG. DATE/TMNT. NUMBER. LOCATION


Rachelr/WLE gde3 ER/PR/HER2- 29/8 FEC-T. #1. Reading
HEvg123/MX/ANC(3/?). 29/8 FEC-T. #1. Kent coast




Pips64/WLE ER/PR/HER2- 30/8 FEC. #1. Cheshire



Tracey46/no details. 3/9 FEC-T. #1. Hertfordshire
PTB/no details. 3/9 FEC-T. #2 Wrexham

hg12/no details. 4/9 FEC-T. #1. No details
Katepb/no details. 4/9 ???? #1. No details
Maseo/WLE/ANC4/18gde1/ER/PR+HER2- 4/9 FEC-T. #1. Coventry


Beam67/WLE gde3. 6/9 FEC-T. #1. No details
Thebatman/MX/SLN(0/2)gde2ER8-PR3+HER2- 6/9 TC. #1. E. Anglia


Bonnie8862/MX/ANC(14/16)gde3HER2+\ER/PR- 12/9 #1 Gatwick


Pots14. WLE gde3 ANC 5/12 17/9. FEc-T #1

Avonlady/WLE gde3 18/9. #2. Notts
Seaview. 18/9. #1

Lulu34/TBNC lung mets. Results 20/9 EC-/Genetipib? #1. Edinburgh
Cinderssarah/WLE/ANC(1/16)gde2ER+ 20/9. #1. Abergavenny
Jo43/WLE/ANC(2/20). 20/9 FEC-T. #2 Bucks
Gold63/MX. 20/9no details. #2 No details

Ally51/no details. 24/9 no details. #2 Solihull
Elma55/MX/ANC(12/15)gde3ER/PR/HER2- 24/9 FEC-T #1 Chichester

Samjs/WLE. 27/9 FEC . #1 Northants

Barbarella63/MX ANC(2/16)gde2 ER+PR/HER2- 30/9 FEC-T. #2 Lincoln
Frenchfancy/MX/ANC(8/22)gde3 ER/PR+HER2- 30/9 FEC-T. #2. Chester
Helenr51. MX/ANC 30/9 FEC-T. #1

NIkki49/MX/ANC(0/11)gde3ER/pR/HER2- 1/10 FEC-T. #2. Fareham
Blue-topaz/MX/ANC2/? ER/PR+HER2- 1/10 FEC-T. #2 Wigan

Hazey85/MX/ANC/(24/43)gde3ER/PR/HER2+. 2/10 #2. Warwicks

Sarahsomething/MX/ANC. ". ". Berkshire

Jinxy12. Kent

Bonellie/MX/ANC(4/7)gde2 ER+|HER2? ". ". Unknown

Austigirl/MX. No other details
helenr51
Member

Re: Starting chemo in September???

Hi, I'm due to start Chemotherapy in two weeks time. I had my mastectomy on the 20th August and they found the cancer had spread to the lymph nodes. I had my bone and body scans last week and have been told unofficially that they look OK (whew). Like everyone else I am dreading the Chemotherapy, I thought I was dealing with everything OK but it just seems it's one thing after another just now. I had to have a scar that starts just under the collar bone to just under the breast due to the position of the two tumors and it is still giving me a lot of pain so the idea of more is very daunting. Any tips or support would be so welcome as I'm sure my family must be getting fed up with talking about it all the time. Thanks in anticipation x

Blue_topaz
Member

Re: Starting chemo in September???

Hi Seaview, welcome to the club. Everyone is great on here. You will get lots of advice, support and laughs. God knows we do need a laugh too.
I had mt first FEC 10th Sept and luckily not had many side effects. No sickness, but had heavy stomach, bit constipated, but Barbs is the most experienced in that department, lol x. Almost week on, and now getting quite tired and have sore mouth. Everyone as you will find will have different effects. You will be fine with the September Stars, I find them to be a great support. xx
Guest user
Not applicable

Re: Starting chemo in September???

Hi Seaview,
Welcome to the stars where I know there will be help and support to get you through this. These ladies have certainly helped me through with their wit and their wisdom.
I am also on FEC T and had my first session on 3rd. I am one of the lucky ones who has so far escaped the side effects. Although my hair is beginning to fall out now.
We have all been where you are now but it will get easier once the chemo gets underway.
Keep strong and as a Star you will shine bright. xx
Lulu34
Member

Re: Starting chemo in September???

Hi seaview

Welcome to the stars and good luck with the swamp juice on wednesday xxx
frenchfancy
Member

Re: Starting chemo in September???

Welcome aboard Seaview!
Sorry you find yourself amongst us here but it's a fantastic source of support for this awful experience we all find ourselves going through. It's a great way to get the best tips and advice to help ease your mind as you start on this journey. We have all had our moments of fear and uncertainty and I can only speak from my own point of view but couldn't have got this far without these wonderful ladies.
Don't be afraid to ask anything, no matter what it is. It's what we're all here for xx
I appreciate you're probably very scared about what's about to happen but once the first one is over, you'll have a better idea what to expect and hopefully it wont be as bad as you're thinking right now.

Stay strong, keep smiling and as a new Star, shine as brightly as you feel able to!!
Barbarella63
Member

Re: Starting chemo in September???

Updated list









NME/DIAG. DATE/TMNT. NUMBER. LOCATION


Rachelr/WLE gde3 ER/PR/HER2- 29/8 FEC-T. #1. Reading
HEvg123/MX/ANC(3/?). 29/8 FEC-T. #1. Kent coast




Pips64/WLE ER/PR/HER2- 30/8 FEC. #1. Cheshire



Tracey46/no details. 3/9 FEC-T. #1. Hertfordshire
PTB/no details. 3/9 FEC-T. #2 Wrexham

hg12/no details. 4/9 FEC-T. #1. No details
Katepb/no details. 4/9 ???? #1. No details
Maseo/WLE/ANC4/18gde1/ER/PR+HER2- 4/9 FEC-T. #1. Coventry


Beam67/WLE gde3. 6/9 FEC-T. #1. No details
Thebatman/MX/SLN(0/2)gde2ER8-PR3+HER2- 6/9 TC. #1. E. Anglia


Bonnie8862/MX/ANC(14/16)gde3HER2+\ER/PR- 12/9 #1 Gatwick


Pots14. WLE gde3 ANC 5/12 17/9. FEc-T #1

Avonlady/WLE gde3 18/9. #2. Notts
Seaview. 18/9. #1

Lulu34/TBNC lung mets. Results 20/9 EC-/Genetipib? #1. Edinburgh
Cinderssarah/WLE/ANC(1/16)gde2ER+ 20/9. #1. Abergavenny
Jo43/WLE/ANC(2/20). 20/9 FEC-T. #2 Bucks
Gold63/MX. 20/9no details. #2 No details

Ally51/no details. 24/9 no details. #2 Solihull
Elma55/MX/ANC(12/15)gde3ER/PR/HER2- 24/9 FEC-T #1 Chichester

Samjs/WLE. 27/9 FEC . #1 Northants

Barbarella63/MX ANC(2/16)gde2 ER+PR/HER2- 30/9 FEC-T. #2 Lincoln
Frenchfancy/MX/ANC(8/22)gde3 ER/PR+HER2- 30/9 FEC-T. #2. Chester

NIkki49/MX/ANC(0/11)gde3ER/pR/HER2- 1/10 FEC-T. #2. Fareham
Blue-topaz/MX/ANC2/? ER/PR+HER2- 1/10 FEC-T. #2 Wigan

Hazey85/MX/ANC/(24/43)gde3ER/PR/HER2+. 2/10 #2. Warwicks

Sarahsomething/MX/ANC. ". ". Berkshire

Jinxy12. Kent

Bonellie/MX/ANC(4/7)gde2 ER+|HER2? ". ". Unknown

Austigirl/MX. No other details
Barbarella63
Member

Re: Starting chemo in September???

Hi Seaview and welcome to the gang that no one really wants to be in!!! You are not alone on the 18th the lovely Avonlady is up for dunking number 2. Honestly the build up to it is worse than the doing, I found the actual injecting distinctly underwhelming. The chemo nurses are lovely and put you at ease. Have you been given any sickness meds to take on the morning? If not give them a ring and ask as they didn't give me mine which is why I think I was poorly. You only really feel off for three or four days and some people don't seem to,have had any effects at all!! Guess you won't know till you try it! Anyway I will add you to the ever growing list, where are you in the country? There might be someone on the forum that is near to you and you could meet up! Don't know if you are on Facebook but we've got a September group no there with the lovely ladies who post on here its a little more personal, if you want to join follow this link https://www.facebook.com/groups/Startroopers/send me a message with your real name and ill look out for your request to join. Try not to panic too much and remember we are all here to help each other through this nightmare blip in our lives xxxBarbs
Cinderssarah
Member

Re: Starting chemo in September???

Hi seaview and welcome 😄 I can't help on side effects i'm due on the 20th but there is loads of advice to be found x
Nikki49
Member

Re: Starting chemo in September???

Welcome Seaview, yes you're in the right place, sorry you've found yourself here.
I have already found the support from the others here invaluable.
I too am on FEC T, I had my first FEC dose last Tuesday, I felt nauseous by the time I got home & unfortunately then had a rare reaction to the anti sickness meds they'd sent me home with.

I have not been sick at all but have felt varying degrees of nausea right up to today although it is getting better.
Please don't let my experience worry you as I said I was told it was a rare reaction to one of the drugs, they have given me different ones now so fingers crossed the next poisoning will be much easier.

One or two of the girls in our group have had no side effects whatsoever, life is as normal for them, fingers crossed you'll be more like them.
Take care x
Lucy_BCC
Member

Re: Starting chemo in September???

Hi Seaview and welcome to the BCC forums
In addition to the support and shared experiences you will have here our helpliners are on hand 9-5 weekdays and 10-2 Saturdays on 0808 800 6000 with practical and emotional support

You may find the following link useful as its to the 'Treatments' page of the BCC site where you will find lots of Information and further support ideas :

http://www.breastcancercare.org.uk/treatment?utm_source=Homepage&%3Butm_medium=help_you&%3Butm_campa...

Take care
Lucy BCC

Guest user
Not applicable

Re: Starting chemo in September???

Hello all, my first post so not not sure if even in the right place! I'm starting chemo om 18th September so starting to get quite uptight about it. I'm on FEC-T, I know everyone is different but can anyone tell me how quickly they started feeling sick and/ or tired after the first one???
Guest user
Not applicable

Re: Starting chemo in September???

That's what we are all here for Nikki. I bet there isn't one of us feeling any different from you despite the brave faces we are putting on. Believe me it's only because I have made my family and friends promise me that we keep laughing about everything we can that's keeping me going through this. I have my little weepy moments too and like you the thought of losing my hair is one of the worse things. None of us really know what that's going to be like.
If you feel up to it treat yourself to something naughty out of the fridge or the larder, put your feet up, stick a laugh a minute comedy film on or failing that put X Factor on, that's always good for a laugh and just take it easy. Tomorrows another day and closer to the finish line. Take care my lovely. xxxxx
Nikki49
Member

Re: Starting chemo in September???

Ff that is so true, I really don't know how I'm gonna last till bloomin December I'm fed up with this chemo lark controlling my life already & I've still got 5 to go.

everyone has gone home, teenage daughter popped out to a mates & I'm home alone feeling a bit sorry for myself now.

I'm sitting here looking at my lovely but poxy wig wondering not only how I'm going to cope when my hair falls out but also wondering how long it'll take to grow again.
Soz everyone just being a mizer at the moment
frenchfancy
Member

Re: Starting chemo in September???

So sorry you didn't make it out Nikki. Not worth taking the risk though if you're not feeling 100% xx It's just one more thing to remind us we are not in control when the ability to go out & drive when we want is taken away from us as well. Sounds like you got a bit of looking after though courtesy of mum. Hope it was a nice lunch xx
Nikki49
Member

Re: Starting chemo in September???

Good afternoon Stars, unfortunately I didn't drive to my parents in the end as when I started getting ready I realised I still felt a bit half drunk so not a good idea to be behind a wheel, I'll give it another couple days & try again.

On the plus side they came to me and brought lunch with them, Mum did a bit of tidying up the garden & finished off the laundry I'd started.

The weather on the south coast is now the pits 😞 absolutely chucking it down. Gonna get in my pj's in a minute & snuggle on the sofa.

Take care xx
frenchfancy
Member

Re: Starting chemo in September???

Hi Pots,
Thanks for your kind thoughts. Am starting to come out the other side, thankfully, and not before bl00dy time!!
Regards your Corsodyl toothpaste, get ready for it as it is indeed an acquired taste. Stick with it though as I've used it before having had sensitive teeth for years and it does help. Beware, it's nothing at all like a 'normal' toothpaste though. Let me know how you get on!

Am slowly getting back to the real world ladies so catching up with all the news I've missed from the last few days so bear with me.

Hope everyone is doing reasonably, or even fantastically, well and you've all been enjoying your weekends xx
samjs
Member

Re: Starting chemo in September???

Thanks for teh list Pots- Barbs I think  you  need to get that chef of a hubby making the GO CAKE!!!

I have a box of head gear but i really don't want to have to wear it . (Current feeling) Going to feel so self conscious- don't want OH  or my kids to see me without my hair! Have been ok up to thsi point but I guess now I have  start date reality is kicking in. Possibly the moment the nurse said, you will lose your hair- was when my attitude changedxx

Barbarella63
Member

Re: Starting chemo in September???

Update on poogate day 5 and still waiting!! Have taken some heavy duty laxatives so here's hoping 👍😀💩
Guest user
Not applicable

Re: Starting chemo in September???

FEC 1 day12
Good morning Stars
After waking at 6am to a wet and windy Sunday I am pleased to say it is now sunny. Just like me. Still feeling ok although my hair is definitely beginning to loosen now. I had hoped it would last another week for my Grandaughters birthday celebration but doesn't look like that is going to be the case. Maybe time for Grade 3(won't forget that one easily) and to give the wigs an airing. At least I have the glamourous blonde one!
Hope everyone's Sunday is going ok and that everyone who has been feeling poorly is feeling perkier today. x
Thanks very much for those tips Pots. They will be really handy when my body finally decides to give in to the SE's.
I just keep hoping it doesn't happen.
Take care beautiful Stars. Love and hugs to all. xx
Barbarella63
Member

Re: Starting chemo in September???

Morning all thanks pots for the chemo tips, may have to get asking that go cake as no action yet!!! Feeling much better today thank goodness will venture out for a little walk I think. Hopefully the day will pass with no dramas for a change!!! Glad you're feeling better Nikki have a lovely lunch with the folks! Hope everyone has a nice Sunday xxxx
Nikki49
Member

Re: Starting chemo in September???

Good morning Stars,
I have woken up to a beautiful sunny morning on the south coast today. This is the first morning since dunking that I have not felt nauseous, I have had porridge for breakfast & providing I continue to feel this good I may drive myself to my parents today for lunch, although its only a 15 min drive this will be quite a mile stone for me as it will be the first time I've driven since surgery in early August 🙂
Hope you all have a lovely Sunday xx
Pots14
Member

Re: Starting chemo in September???

you may well have seen this and sorry couldn't work out how to just do the link, so ended up cutting and pasting but it's got a "GO CAKE"recipe right at the end (as well as lots of other tips) might help with the flow Barbs

Pots

  Top tips to help get you through Chemotherapy

As requested here's the compilation of all the top tips for going through chemo! A big huge thanks to all the contributors who have added their tips and to Princess for starting it!  Please do continue to add your own top tips to this thread.

For the Gums: - Bonjela - Cordsyl daily for x 3 and Cordsyl normal for 1 (dentist recommended) - ultra soft bristle brush/baby toothpaste - aloe vera based toothpaste, Beverley Hills gum strengthening toothpaste.

For the mouth: - Gelclair, salt water wash, Oraldene, tonic water, Difflam mouthwash - aloe dent lip balm with lysine (good for coldsores also)

Bad taste: - pineapple (fresh/chunks/drinks/lollies) - haribo (not tangtastic) - celery, mints, fresh fruit, pear drops, cola cubes, sherbert lemons.

Water tasting odd:  - flavoured/sparkling water, lemon squash

Nausea: - Ginger (beer, biscuits, sweets, fresh) - smaller, regular meals - V8 vegetable juice - Manuka honey with hot water and peppermint oil - Slippery elm powder mixed into natural yoghurt - Banana for early morning with the anti-sickness tablet - Flavoured/green tea if can’t face milk or dairy products in tea.  - Lite bites suggestions – cream cheese and bread sticks - Nothing spicey - Flat lemonade - Plain biscuits - Banana/peanut butter sandwiches - Travel bands/anti sickness bands (Poundland cheaper than Boots).

General Wellbeing/During Chemo:  - Carry your card and thermometer with you all the time and keep bag packed - Chemo Caddy – see below - Pin up emergency numbers where everyone can see them – who to contact and when - Check with your consultant who to phone at eves and weekends - Store emergency numbers in your phone - Digital thermometer if not given one by hospital (Poundland cheaper than Boots) – take temperature under armpit as more accurate - Lifemel honey to boost white blood cells - Drink LOTS of fluid before and after chemo - Lucozade for energy - Light meal before chemo - If having CMF and nose issues when Chemo being administered then sweets or lolly (mini callipo) to suck during (small cool bag also recommended to keep lollies frozen) - Bath pillow (helps prevent cold bald head on cold bath) - Don’t take 2nd steroid dose after 2pm (awake/energised at wrong times) - Eat fruit when you need to eat whilst/before taking tablets - Avoid alcohol for 2/3 days after chemo - Keep out of direct sunlight - Pregnancy type diet to avoid risk of infection – ie no un-pasturised dairy products, wash veggies, meat properly cooked - Accept help wherever offered! - Prepare/buy nice food in advance for bad days - Smash! When you can’t eat but must and mouth is sore! (Needs ketchup though)

Sleep when you can - Fresh air - Exercise - Laughter - Ask for help if really sick! Docs etc for additional drugs! - Steripen to sterilise water of nasties (works through UV and no nasty chemicals and easy to use but £90)

- Runny nose through loss of nose hair – tissues! - V-pillow - Check and see if GP can refer you to local leisure centre for cheaper use of fitness suite and swimming pool. - Constipation - breakfast of high fibre cereal/fruit smoothie/prune juice - “Go Cake” – see below for recipe.

Sore Eyes - Boots hayfever relief drops - Cooling/chill eye mask

Headaches - gel pads (stick on kind used for infants/migraine)

Dry skin/rashes/spots from Taxol - gentle moisturiser for hands and feet - drink lots of juice and water but leave spots on face alone as skin sensitive.

Hairloss/head coverings - buffs from buffwear - baseball cap - headcovers website – sleep caps, scarves, bangs, eyebrows, eyelashes, wigs etc - don’t  wash it too often, use baby shampoo - Browzings by Benefit – good eyebrow make up - Boots

CHEMO BAG AND CHEMO CADDY Chemo bag (A bum bag has been suggested as keeps both hands free and no restrictions on your shoulders and particularly snugpak response pack (online) as “tested in war, never beaten” and big enough to take a tool kit/chemo caddy or chemo bag).

Keep a bag packed in case of emergency hospital visit and to take on chemo days. Pyjamas, warm socks, clean knickers, wash bag with spare toothpaste and brush, face wipes, mirror, tissues, bag of pineapple pieces, anti bacterial hand gel, book.

Chemo Caddy A basket with a handle (previously from delivery of pot plants) with everything needed in it so that you can have it by the bed upstairs or carry it down to crash in front of TV. - Edibles – ginger bics, minty chewing gum, root ginger to nibble. - Treats – nice hand cream, chocolate, octopus shaped back massager, nail cream, buffer.  - Essentials – tissues, glasses, lipsalve, bottle of water, straw (in case can’t lift head from pillow), little bell (to summon family to fetch/make tea)

“GO CAKE"  4oz All Bran, 5oz sugar, 10oz mixed dried fruit (basically whatever is in the cupboard – use a nice mixture) – apricots, sultanas, cranberries etc, lots of chopped prunes for extra “GO”. ½ pint of milk 4 oz self raising flour.  Put All Bran, sugar and fruit into a bowl, mix, add milk and allow to stand for at least half an hour (while you recover from the physical effort so far). Sieve in the flour, mix well and pour into well greased 2lb loaf tin. Bake in moderate oven (180 degree c) for about an hour, until a knife comes out dry. Cover with foil after 30 mins if its browning too much. Turn out of tin and cool. Serve in thin slices with butter as thick as you like it!

Once again, all credits to the ladies who have added to this thread making it an invaluable reference tool and thanks to Princess for starting it! Good luck and much love, xxxx

 
Pots14
Member

Re: Starting chemo in September???

Hi all,

after sobbing ridiculously this morning normal service has resumed! Thanks for all the teeth tips. I've gone for corsodyl toothpaste (described as having a unique taste, whatever that means), but I know corsodyl mouthwash is recommended so figure it must be ok.

 

Annie62 don't know if you've seen jojos blog (it's on the bcc website somewhere and I'm dammed if I can find it again, but you should be able to find it on http://thelittlejojo.blogspot.co.uk/2012/11/top-tips-for-getting-through-chemo.html. She had horrible problems with her mouth and there are some good suggestions that worked ofr her which might be worth trying.

 

Frenchfancy - really hope you're begining to feel a little better or at least sleeping through it

 

Samjs - great idea for a fun weekend - madness very apt!

 

I've been trying on scarfs this afternoon (am getting my wig the morning of my chemo, but am sure will only wear it at xmas. Teenage son seems bizzarly enthusiastic about the baldness to come. He thinks it'll be cool - bloody freezing more like! mind you he fell off his chair laughing at the sight of me trying on one headgear contraption - I looked like a jedi knight. Think I'll get a hat.

Pots

Guest user
Not applicable

Re: Starting chemo in September???

Hi there Stars,
Just packed OH on his travels again. Thankfully still doing ok here. Just having a nice chill out on the sofa with some catch up soaps and a nice cup of tea. Hope everyone is enjoying the weekend in the best way possible.
KatePB sorry to hear you have been feeling so poorly. Hope that you have been improving throughout the day. Well done for going with the cold cap. I'm just waiting for the fallout!
Sounds like you are in for a fun weekend Sam. Hope you ha ve a fab time. x
Frenchfancy, hope you are feeling a bit brighter. Sorry we missed one another the other day. I'm sure we will get together at some point. Just take it easy and perhaps save the anniversary celebration for the massive party we are all going to be having some of when all this crap is behind us. x
Love and hugs to everyone. xxx
Barbarella63
Member

Re: Starting chemo in September???

Meant user name doh I know the real name just don't know what username it is!!!! Please DM me your user name and real name that way I might actually manage to cope
Barbarella63
Member

Re: Starting chemo in September???

Still got one outstanding request to Facebook, let me know your real name via DM and ill add you once I'm happy you're on this forum xxxx
Barbarella63
Member

Re: Starting chemo in September???

Aw Kim good to hear from you, I was a bit worried as you'd been quiet bless you. My anti sickness tabs made me feel really spaced out and drunk like I couldn't focus properly and felt dizzy but it was better than being sick. I've stopped taking them today and so far so good fingers crossed!! My MX site feels really stretched I think it's the chemo that made it feel like that, I'm trying to keep doing the exercises but its a struggle. Sorry you missed the anniversary celebrations but don't lose sight of the f act you're doing this so you can have many more and if you have to sacrifice one its not the end of the world. Big hugs to you rest and let OH look after you xxxxxx
frenchfancy
Member

Re: Starting chemo in September???

Morning Stars,

Have decided today will need to be a much better day after the rest of the week seems to have been a 'write off.

Collected wig on Thur (just missing PTB in the process, so sorry!) had my Headstrong session (not as good as Sarah's btw) and then popped onto chemo ward as had not been feeling too good since dunking. (Nausea, headaches, no appetite, not sleeping) was given diff anti sicktabs which seemed to do the job yesterday but felt really achy, sore throat & spaced out instead (Has anyone else felt like that?) so spent the day doing very little, Again!! 😠
So disappointed as was supposed to have been celebrating 10th wedding anniversary and am certain this is not what hubby was expecting for the 'in sickness & in health' bit all those years ago. And he's still waiting for the new me to be revealed!! 😟

Anyhooo, am going to risk not taking anti sick tabs and am hoping to do a little bit of anything today to stop me feeling so sluggish. Have also found my lack of activity has really made me stiffen & am not ready for my mx site to start playing up as well now!!
Crikey, am feeling really sorry for myself now. Snap out of it woman!!

I have tried to keep an eye on you all over last few days and really hope everyone is doing ok. Will have a proper catch up later to see what & who I've missed.

Have a good day everyone xxx
samjs
Member

Re: Starting chemo in September???

Morning maisies, sorry I have been AWOL but thanks for the concern. Echo was good I think. Yesterday I had a manic day, dentist for a filling, shopping, cleaning hanging pictures and then pre chemo assessment. Well I am having a picc line on the 25th then start chemo on the 27th. I could have started next Friday but there are two reasons I chose not to. First, the nurse who does the picc line isn't there next week so I would have had to have had one session via cannula then go back for a picc line at a later date. Also, remember I wanted to go to Greece for some friends wedding last week, well it is there wedding reception a week today and we also have tickets to see Madness next Sunday so I thought I would have one really good weekend before it starts. Hope SEs are minimal. won't be on much ove r the weekend as OH is back from working away all week.

 

Welcome to Pots xxxxxxx

Barbarella63
Member

Re: Starting chemo in September???

FEC-t #1 day5 Aw Kate sounds like you're suffering poor you,, I've found my heart seems to be thumping quicker and I've got a heavy feeling in my tummy. Am giving the anti sickness tablets a miss today hopefully ill be ok, feeling a bit scared about it but can't take them forever. I would love a bit of diarrhoea to be honest I haven't been since Tuesday am contemplating a laxative........ooh goody more pills!! Hope you manage to have a reasonable day xxxxxx
Cinderssarah
Member

Re: Starting chemo in September???

Pots well done for being brave enough to talk sense to yourself and join us. Think its fair to say we all going round in circles but these groups help to  put a few straight lines in in place of the round bits - youll get there just give yourself time xx

KatePB
Member

Re: Starting chemo in September???

FEC cylce 1, day 10.

Not very good again yesterday.  Shortness of breath/difficulty breathing, dreaded diarrhoea, complete fatigue.  After only two hours up managing a few chores but not a shower or getting dressed went back to bed and slept virtually the reminder of the day and also a good nights sleep.  Hoping today is better.

Pots - welcome to forum.  Hope you find us all friendly and useful advise/our experiences.

Elma55 - I am trying the scalp cooling cap.  It was on for the full length of chemo being injected into my cannula, eg just over three hours.  It is -5 (extremely cold!!) but got used to it after 10 mins or so.  The worst part was not expecting ice on my hair when it was removed, not being able to comb it and also the horrendous headache I developed immediately the cap was off, but I know for cycle 2.  Only 10 days in and I'm hating only being recommended to wash my hair once a week and comb once a day with a wide tooth comb.  These days I'm used to washing my hair daily whilst showering but the six months will quickly, I hope, pass.  Hopefully it will be well worth the effort.

Good luck to all those commencing next week.  We are individuals so react differently to which chemo we are receiving.  Never realised how many chemos there are.  Just keep your chin up, keep smiling, accept help and we'll all get there in the end.  Hugs to all.  Try to have a brill weekend with your loved ones.  xx 

Barbarella63
Member

Re: Starting chemo in September???

Annie I've been wetting my toothbrush and dabbing it in some I'd it and brushing it straight on my teeth, it hurts to start with but seems to coat my teeth then they are ok for eating. I've found it really good, I then swallow everything no spitting it out. It is like brushing with sugar though which is bizarre xxxx
gold63
Member

Re: Starting chemo in September???

Thank you - think I have managed it!