Went to Headstrong which was good and sound advise given. I came away with a free very large and a smaller scarf which I did not expect. Also purchased a hat - although I've plenty of hats not sure they will be ideal for this winter given what may lie ahead. Well worth the visit and volunteers time.
Elma 55 - good luck for 24th. My 2nd cycle is on 25th with blood tests, etc previous day.
Naturalgirl - welcome. sorry to read of your sickness and hope you are feeling a little better with the tablets.
Barbarella63 - hair okay. I'm trying the cold cap. Despite being -5 it was not at all bad for the three hours once I'd got used to the cold and my cancer hospital provided towels for my neck, heat blanket and blankets so I was snug. Hating recommendation of only washing hair once a week using Simple shampoo - managed 5 days so far - and only combing once per day with a wide tooth comb. I've hidden my brushes as it was a natural re-action to grab one. Ordered silk pillowcases, as recommended, which arrived today. Looking to trying them. Just hoping it is worth it.
Kraftireader - re cold cap read what I've written above.
Thankfully I've had another reasonable day so hoping the next 7 days prior to cycle 2 will remain good and I can put behind me the very bad first days. Good luck to all starting tomorrow - hope you do not suffer too many side effects. Stay positive. Hugs to all. xx
am back and feel absolutely fine (so far) Staff really lovely - trouble getting cannula in (but knew I had rubbish veins) - having portacath next week. Woman next to me had cold cap (I'm not - hope I don't regret it) and was freezing despite being wrapped up in blankets - lent her my hot water bottle so that's my tip for the day.
Welcome to all the newbies and will be thinking of all of you up tomorrow and those still in the afterglow!
All the best for tomorrow Avonlady and Seaview, will be thinking of both of you, let us know how you get on when you can, love and hugs xx
Here's the link to the thread 'Top tips to help you through chemo' which is what I think you might be referring to:
If there's anything you need to ask then our helpline team are also just a free phone call away 0808 800 6000 lines open Mon-Fri 9-5 and Sat 10-2.
Also meant to say the team at North Tyneside Hospital in Newcastle (and the staff at the Bobby Robson Cancer Care Centre - how odd is it to walk into a nuclear medicine department eh) have been amazing, cant fault how they have been with us so far. Even though its felt like an eternity its not yet been 2 weeks since diagnosis so I take my hat off to them, they do a fab job!!
Glad Im not alone although the fact any of us are here is pretty crap.
I was told Ill be getting the Docetaxal one day this time round followed by the herceptin and perjeta a couple of days later incase of allergic reactions but #2 onwards will be altogether if Im OK. The BCN mentioned comlimentary therapies, Im not into stuff like that normally but may see what they offer. I clench my teeth when Im stressed and my whole neck and head hurt with that at the minute so maybe its what I need! Ive only had 1 day sick in 5 years so to be told Im off for the next 6 months plus is rather sureal, work in a school with reception kids mainly so little germ machines, going to be rather bored!! I have two boys aged 9 and 11 and work full time so my time is never my own so having a bit of "me" time is also rather odd, not quite sure what to do with myself!! General moping around whilst my stomach does sommersaults with the CT scan hanging over my head seems to be the main thing at the minute!
Need to make a shopping list for things Ill be needing, someone posted a huge long list possibly on another forum. Dreading the sickness part, didnt flinch during 4 biopsies last week but Im truly rubbish with vomit, Ive been known to leave a small child standing in a pool of vomit at work whilst I ran to get someone to deal with it and I cant even cope with my own boys vomit so Ill be taking as many anti sickness tablets as I can!
This forum has been great though, Im sure it will be a lifesaver when it comes to keeping sane 😉
Welcome Naturegirl ! As others have said you will find lots of support here from those going through it too xx
Pots - good luck for today Hun xxxx
Welcome naturegirl, yes no one wants to here but it's a great place to be. Lots of support and giggles and feel free to rant and moan when you need to, we all do at times.
Nikki I would say the day you are dunked is day 1 but not been dunked myself yet xxx
Welcome aboard Seaview , Hawkie and Helen.
Pots I hope you are ready for tomorrow, go sock it to them girl.x
Kate I get confused too especially as I am in the maisies too as I thought I was going to start in August, as it is I am not starting until the 27Th so nearly in the October group. But not joining another one.
Hope you lovely stars are shining brightly- sure some may have the dimmer switch on so it maybe a subtle shine.
If anybody is interested I can thoroughly recommend the following book, its the story of a friend of mine who, like us all, found herself in this situation almost 2 years ago. It was written by her husband and was initially an online blog but with the help of a breast cancer charity he published it as a book. Its an amazing read and has kept me positively sane these past 2 weeks since diagnosis. It may also be of interest to OH's who may not know where to turn. Its a truthful yet humerous story that will make you laugh and cry (just to warn you) but I have found it invaluable! Hope some of you do to x