Oh dear what a drama, its amazing to realise how much infection our bodies fight without us even knowing! Hope you have a good nights sleep tonight xx
Ah Pots are you the one with bad veins, or is that some one else, I remember reading that about someone and got excited today when I was told I had beautiful veins, odd how Im now getting excited about news like that and odd that the nurse seemed excited to. Yes delighted about CT scan but as a result Ive hit a brick wall today and have practically collapsed with exhaustion, also cried heaps today particualry when I told one of my good friends my news but strangely I feel better for crying, not actually done much of that which is most unlike me, Im usually a right cry baby. I hope you get the CT scan sorted, good that they said they didnt see anything nasty but I can understand the need to have that confirmed, in all of this the waiting is dreadful, so stressful!
Jenny I went to Nottingham Trent, loved it, fab city and we still pop down for a visit once in a while!
Im quite worried about the bordum kicking in, with working full time and then some, plus 2 kids and a house Im always doing something so finding it hard being off, OH works from home so Im trying not too pester him although Im probably doing his head in, bless him he only had one day when I went back after 6 weeks off but he has been great coming to all my appointments even though he hates needle, the consultant who did my biopsies was more concerned about him that me! Love the suggestions for keeping the bordum at bay!
Take care everyone, hope you have a good nights rest!
# 1, think this classes as day 3 (but had chemo late so not sure)
have just felt very tired and headachy today (still drinking loads)
Barbs - am just taking odansatron 8mg twice a day and dexamethasone 2mgs three times a day (for the 3 days, last day is tomorrow) and I've got metaclopramide 10-20mgs as and when I need it. Did take 2 lots metaclop. (full dose - wasn't risking anything!) on 1st day and in middle of night, but since then no problem. Not sure there's a secret, maybe just lucky but onc told me if you get away with the sickness on the first cycle it usually sets the standard. Here's hoping. Those of you who've suffered - keep a record and discuss it with them at your review and they can tweak things so it's better next time.
Hwkie - sounds tough, but thoughts are with you. Another OH was using his laptop in chemo suite so am sure it'll be fine. Am sure they won't mind if he gives them a call to check it out. Fantastic news about your CT. I'm getting a little worried because mine was unenhanced (couldn't get cannula in) and although didn't see anything nasty have got to have liver checked out - just be nice to know for definite.
Can't remember who's up next - but sending general good vibes your way
Going to watch some rubbish telly now - family all out till late so it's a bit of company - as are all of you.
Hope everybody is doing OK this morning.
Thanks Lulu, I had heard that about the reactions so keeping my fingers crossed I can behave myself next week! I must say having been lucky enough to have very little to do with all things medical so far Im totally amazed at how clever it all is! I had my tonsils out when I was 5 and I was told the best thing after that was to eat lots of ice cream! Things have moved on so much since then as I have rapidly found out these past few weeks, although part of me is still hoping to get some ice cream somewhere along the way 😉
I went for my heart scan this morning to check that out before the herceptin starts and they said unofficially that that looked OK from what they had seen. When I was there the BCN rang to say my CT scan had come back clear. Left message with OH and Ill be honest I pretty much collapsed when he told me just with sheer relief! Hopefully the neighbours didnt hear my sobs as I stood blubbing on my doorstep! So now that is out of the way Im ready for the fight, or as ready as I can be. Small matter of telling the masses to deal with but Ill be relieved to get it out in the open. I work at my youngest sons school in the town we live in so as a result I know loads of people as a parent myself as well as a member of staff and havent really wanted to see anyone or be near people, OH has been doing all the school runs and if Ive had to do them Ive sat low down in my car with a cap on and have sent my eldest in to pick the youngest up. Just wasnt ready to face the world until I had the full picture so now Ive got that I can get out a bit more. Fabulous support off my family, colleagues and close friends have kept me going and Ive picked up loads of advice from everyone on here so now Im ready to hit this little s**t head on. Lets do this!!!
Bit worried now as this doesnt appear to be normal practice. drugs wont take all day to administer but need to wait around 4-5 hours afterwards. Better stock my kindle up! Might be a silly question but do the "chemo lounges" allow laptops etc in, OH needs to work if he can (works for himself).
Blimey Hakie that isn't great. On the plus side if there are no SEs you could have it all in one next time.
Look at you Pots with just a little nausea- long may it continue only being that.
Been to the cinema today to see About Time- good film. xx
Good for you Pots and as the others have said, drink loads of water...you will be peeing all the time but its worth it as it flushes the drugs through your system. Take the anti-sickness as prescribed even if you don't feel sick as prevention is better than cure. Not a lot to take away the metallic taste but it does disappear after a couple of days.
Onwards & upwards Hun xxx
felt a fraud last night - not too bad at all. Occas wave of nausea, but pop a pill the minute I feel it and am sure the amount of water how much I'm drinking has helped too (shame the bladder isn't bigger)
Avonlady - thinking of you for number 2
Seaview - hope it all goes well for your first today. You're underway now, get zappinng the the little buggers!
Hugs to all,
Hi Lisabeth, glad you found us! I'm up on Tuesday for my first cycle of FEC-T (3 of each) so will be close behind you. Most of the Stars have already had their first dunking and will be on hand to answer any questions (some are starting cycle 2 this week and next). Feel free to ask away!
Thanks Kate, I go for bloods on Monday.
Wishing all Stars a very good night! xx