Aw Pots, it's good to rant, no need to apologise. Nice that you've sorted things with your folks though. Haha birds nest, brilliant idea - wouldn’t take much visual tweaking either if you know what I mean! Good luck for tomorrow with your next taste of the swamp juice – if I’ve got the date wrong btw, forgive me, I’m still semi-immersed in chemo fog.
Hope all’s well with everyone else, and good luck to those with appointments tomorrow. It’s nearly the weekend, have a good one, everyone! xx
thanks for your lovely comments. Ended up writing a letter to try to explain what was (and what was not) supportive. They've both reacted brilliantly and have had a long chat with them today. So easy to for misunderstandings! My parents live extremely close so sometimes getting the balance right is difficult. I didn't realise I was quite as emotionally on the edge as I am, probably because every time I look in the mirror I see a bad version of Professor Trelawney from Harry Potter looking back at me!
Went out for walk today and feel much better.
Suggestions for hair garden sculpture - birds nest.
Take care all of you, onwards and upwards,
awww Pots sorry you are having a tough time with your parents. i think all of us feel we can't deal with things like we did before, it's natural, we are in a crap situation. Sometimes people (not only parents) don't listen and misinterpret what we tell them, possible because they are struggling too. If you are well and on a good week go out. I have been told I don't need to lock myself away but need to be careful so I have antibac and wipes at the ready for week 2 of the cycle.
Hope you feel a bit more like you and you are right we are doing brilliant!!
sorry to spout off. Feel guilty about being unreasonable, just can't cope with what I'd normally cope with.
Should have said:
SuzzieG - sorry your chemo's been delayed, but glad your feeling better and when your body is stronger you'll be in a much better position for the zapping.
Elma55 - don't think you need to worry about your seroma becoming infecting. Can't remember all your seroma history, but a seroma is sterile within your body. It's only when they drain it there is a risk of infection so the chemo in itself shouldn't cause it to become infected.
take care all of you, none of us deserve this and we're all doing brilliantly!
why is it that some parents are incapable of treating their kids (I'm 45 for God sake!) with a modicum of common sense? Misunderstanding some information, repeating it as if it's fact and not listening to OH when he tries to correct it with the effect that I feel guilty going out (even though I feel fine) in case my f..................in neutrophils go down. just has the effect that if my chemo is delayed or have to have the dose reduced it'll be my fault even though I know that's absolute rubbish. Have cried my eyes out and now I'm absolutely furious.
Hi ScottyB and welcome to the BCC forums
Alongside the support you have here our helpliners are on hand with practical and emotional support weekdays 9-5 and Sat 10-2 on 0808 800 6000
You may find the links to our 'Younger women's' information pages helpful where you will find lots of inforamtion regarding diagnosis and treatments as well as further support ideas from BCC :
Hi ScottyB, glad you found us here on the September thread. I had my first cycle of FEC-T on 24th September so not far behind you, I'm also TN like you but a lot older. You're right about the struggle to keep occupied, I'm still working on that one! Hoping it will get easier as we move along. One thing I have noticed is that I'm enjoying doing mundane chores - got really excited this morning when I managed to change the bed and load the washing machine, a bit sad really but hey, it's an improvement on yesterday! I get fidgety if I sit around for too long so I'm off for a walk this afternoon, something I'm hoping to do more of over the next few months. Let me know what ideas you come up with. Be safe xx
I was diagnosed with TNBC in August and had my first chemo on 20 Sept now 'looking forward' to the second one next week! I felt ok with the first dose just not myself. I am 31 and there is no family history of cancer of any type so this is all so new to me and my family. At the moment part I struggle with is being off work and not seeing people very much so now trying to find a hobby to keep myself occupied. Hope everyone is getting on best they can
Take Care All x
Good to hear that you seem to be better this time round. My next date at the bar will be 15th October, my last one of FEC (yeah FEC off !) before i start on the T.
Hope everyone is ok and apologies for not always posting on FB just find it hard trying to juggle work & home life etc. I always make sure that i read every post, just dont always have the time to have input....MUST TRY HARDER 🙂
Hi there Jackpot, you must be shattered after your day. I had a radioactive jab with one of my scans - they do sting a bit don't they! Yes, you're definitely right about the waiting being the norm, just keep yourself busy until then. Hope you haven't had too many chemo side effects - it does seem to be an individual thing. I felt like a zombie today for the first time (day 😎 so slept for most of it - now trying to catch up with posts, but think I'm ready for bed again already. You take care too xx
Pots, there you are – we were all wondering where you’d got to! Sorry you’ve had to spend time in hospital but glad they looked after you really well. The neutro-sepsis thing is a bit scary especially as you say when symptoms aren’t that obvious. Thanks for the warning signs! Glad you’re out of the woods now. Crazy that the phlebot’s can’t take blood from piccs – there are a few like that at my hospital. I like that you’re collecting your hair, that is a cool idea, fascinating stuff isn’t it! I’m going to ‘do’ something with mine, maybe a garden sculpture … who knows. Stay safe xx
Oh Sue (suzzie-g) that really sucks! It's bad enough trying to psych yourself up for chemo without being told you can't have it. Weird that you feel so well too but that must be a good thing. I'm day 8 of first cycle and the chemo appears to have flattened most of my seroma, just left with armpit fluid now, but have to say I'm a bit worried that low immunity this week might have an affect on what's left. Things to do - difficult when you're used to working. I would get out and about as much as you can, fill the time that way - of course there's always xmas shopping!!! 🙂 or just give yourself a few little treats to make up for it. Hope you're back on track next week xx
Home from hospital, delayed for another week as infection still present, another week of antibiotics, carn't complain feel better than I have in months, so this infection must have been growing undetected for awhile now. wondering what was side effects of chemo and what was infection, I guess I will find out next week if they go ahead.
I will use the time to catch up on all the jobs I have saved for when feeling better, sounds like a new year resolution (might not as got in the habit of watching trash tv) could go to work for the week ( no mess up my sick leave) could find some artistic gene I don't know about and create something ( probably just a mess) could take up exercise (that really is a new year resolution) Anyone any ideas? what are others doing to pass the time?
Hope others that were up today and this week for poisoning feel ok, and your se's are minimal.
#1 day 15
Escaped yesterday from hosp. Admitted via A & E last week with neutropenic sepsis.Little buggers (neutropils) had taken flight and nowhere to be seen (despite 5 days of injections by OH). So IV antibiotics, more injections, daily bloods, quite a bit of blubbing from yours truly (my poor OH) and being kept in my room with door shut and people coming in having to wear gloves and aprons (and for one day masks as well). Staff were all lovely but am so glad to be free..............................Was on phone arranging to be picked up before the drs had got out of the room!
So sorry some of you had grotty time in A&E. My experience was superb. Don't know if this was 'cos oncology team had phoned ahead, but was whisked straight through and although I was there for a few hrs before got admitted, had cannula in, bloods taken and first lot of antibiotics going within 20 mins. Cake and card going to them!
Ended up with PICC rather than portacath and is no prob at all. and yes it is frustrating that it often can't be used because of lacking of training (none of the phlebotomists could use it to take blood, which I find surprising).Had to have a cannula in A&E but that was because to start with they didn't know where the infection was so if they used the PICC line and that was the source of the infection it would have just made things worse.
Turned out buggie source was just my sore mouth, and the only signs that my neutrophils were in my boots (couldn't detect them at all in A&E) was felt very tired when I had been feeling better and a one off feeling I was going to faint. At least I know what to expect next time and won't be lulled into a false sense of security Oncologist said will try giving the injections for longer next time, but may have to consider reducing chemo dose - thought of that makes me pancky. Even though felt like a caged tiger and so so bored would rather spend 1 wk every cycle in isolation than not get the fullest dose I can stand to kill off the bastards.
Hair literally coming away now. Morbidly facinated if I'm honest. Thought would lose it in clumps but it's just thinning and thinning. Must have had v. thick hair 'cos looks the same on my head so far despite plaky bag with birds nest in it! Am running hands through it and brushing it every few hrs to add to collection. Son still thinks it's "cool"
Have tried to catch up where everyone is but am muddled with who's who and what's what, so please excuse the generic welcome all newbies and whoevers up now - hope it goes as well as it can.
Going to pull some hair out now.......
FEC-T FEC 1 Day 7
Hello all, thought I’d look in as it’s the start of a new week, and I’ve been away on the foggy chemo train since last Tuesday. I was a wee bit sick on the first day of chemo but took the meds as prescribed, drank gallons of water, and touch wood, nothing further to report apart from feeling a little sluggish first thing. One thing I have noticed is that I do need to eat small amounts on a fairly regular basis otherwise I do start to feel a bit queasy, but I’m eating as normal – have gone off all chocolate except Picnic bars, can’t get enough of them!
Good luck to Barbarella, FF and Helen with your dunkings today, and to all Stars with appointments, etc. Sorry to hear you’ve had such a rough time suzzie-g, and like you surprised they didn’t use your portacath, hope you’re on the mend now and ready for tomorrow. Hope Icle-V, samjs and hevg123, are ok and keeping those side effects at bay. Welcome Jackpot, glad you found us – there are lots of us having our next cycle of chemo around the same time as you so you’ll have plenty of company. Sending get well wishes to cinderssarah, hope you’re back home soon. Also lots of luck to Nikki, Blue and suzzie-g for tomorrow, hope any side effects are minimal, let us know how you get on when you can.
Keep shining all of you wherever you are! xx