Nikki49 - no, not on facebook - just not for me for a variety of reasons, so am very grateful for those of you popping in to let us know what might be coming up and how to cope with it (nettew). Am very worried about tax 'cos with every fec I've felt worse espec. energywise (no energy to feel/do anything; feeling better today and know that every day until next week will get a bit better). So how's it with tax?
the - on fec I've had dex 2mgs to take 3 x per day for 3 days; for the tax (coming up on 19th nov barbs) I've got 8mgs to take twice for 3 days starting the day before chemo.
If any of you have tried the go cake - I only really like it when its hot with butter, but have discovered it's lovely as a substitute for bread in bread and butter pudding - whole family loved it, even teenager!
Love to all, Pots
#3 day 10
Hi everyone, not been on for a few days as no energy at all. Am finding fatigue worse and longer with every cycle.
Am so glad others are talking about poo! Got bunged up a bit with 2nd cycle, and "go cake" recipe worked a treat; this time 9 days and oh my God - never sat on a loo so long unable to get up and coming over faint. Suppositories a godsend and am now on the laxigo which makes me retch every time I take it. I never want to go through that again! Chemo nurse advised me to pour kettle of boiling water down the loo and raise my feet on a stool to help get into a better postion. Sounds silly - but I recommend it. I would have tried anything. Still not fully ok, but much happier than have been. Right now can't wait for taxtrots - they sound marvellous!
Neutropenic again, but so far am not back in hospital - keeping an eye on the old temperature and keeping my fingers crossed.Keep telling myself am half way through, so glad fec is over.
Can't see the the light at the end of this tunnel yet, but family are being wonderful. they all seem to know now out what's ok to do and say and what and when it isn't. Emotions are somewhat all over the place, but gad I've got the enegy to have some emoition! Very puffed. Love to all of you. Onwards and upwards for those of you with some energy and for those of you who haven't cuddle up on the sofa or in bedand be kind to yourselves. Now I've some energy thinking of you all -Pots
Hi Nikki and the rest of the Septemberists
I got my gel nail polish from Boots. I've got a Collection Lasting Gel Colour and Maybelline Super Stay Gel Nail Colour.They both last much longer than ordinary nail polish. It's annoying that different units give different advice regarding nails. My unit advised that nail polish would help prevent discolouration and possibly also nails lifting, Sakura's advised the opposite. As with all these things, it seem it's up to the individual i.e. you and me! Good luck to anyone starting Tax, it's quite different to FEC but again there's no way of knowing which SE you'll get except fatigue seems to be across the board. xx
Good morning ladies
Just popping over from July Junkies to share my experience of Tax with you 🙂
I am just about to have my 3rd and last session this week and am pleased to say I have not had any of the bone pain that a lot of people get. Instead I got Palmar Plantar syndrome. It is caused when the chemo drugs seep out of the capilliaries in your hands and feet and damage your skin. Hands and feet become sore, very red, cracked and swollen.
I have found a way to keep it at bay/reduce these effects which I would like to share with you just in case anyone gets it (I am told it is a rare reaction so hopefully you won't get it!). When you start to feel tingling/heat in hands or feet or you see them going a red, almost beetroot stained colour - get hold of some cold bottles of water or canned drinks and hold them for 15 minutes. Put feet on frozen bag of peas wrapped in teatowel. The cold helps to stop the reaction and closes the capilliaries and pores back up.
Keep repeating process whenever hands and feet start to play up again. Also avoid hot water/washing dishes/baths etc as this opens pores and makes it worse.
With regards to nails, my unit told me not to paint my nails as it hides infections. I haven't put anything on them other than my normal hand cream and I have no discolouring or lifting from nail bed. Hopefully this will continue after my last session 🙂
Hair appears to be making a tentative go at growing as the wisps I was left with after the FEC and a haircut are longer now.
I have constipation issues every cycle and find that eating prunes each evening and taking lactulose sorts this. If things get a little bit obstinate then I take some Laxido (nice and gentle relef as opposed to the slightly explosive ducolax that one doctor gave me!!)
I have worked throughout my chemo with the exception of a few days here and there and a week when the palmar plantar first hit me.
Best of luck ladies, and dont forget to come visit the junkies if you have any more questions. The ladies there are lovely and have lots of advice to share 🙂
HI Michelle, sorry you find yourself here but you have come to the right place. Most of us are on the facebook page if you want to join that too. Just private message one of us your name and we will sort you out. Its a great place to share your experiences, we do have a laugh too but are helping each other thru this crappy journey no end! Where are you up to in your chemo. Ive got my 3rd docetaxel on wednesday along side herceptin and perjeata. Take care and hope to speak to you soon. Jayne xx
Hi all is this a chemo sep thread?.Started mines in sep still trying to find my way round this site and was wondering if i could join?.Could do with chatting to others going through chemo at same time as me.
Hi Nikki and the rest of you September gals
I'm nearly at the end of second cycle of T and this has been so much better than the first.
My unit advised me from day 1 of FEC to paint my nails a solid colour to prevent light discolouring them. So I have been. I already used a product called Nail Magic because my nails split and are ridged. It really strengthens them. So I start with almond oil which I paint on and rub in, at least a couple of times to make sure it soaks in. Then 2 coats of nail magic and then 2 coats of a gel nail varnish. It lasts much longer than ordinary polish. Although my nails have felt sore for the first 10 days of each T they haven't started lifting so far. I have noticed a faint horizontal brown line across my nails, 2 showing so far and I imagine there will eventually be 6 as this is the result of the chemo.
Regarding hair, mine was gone by day 18 of first FEC but I did notice at the end of first cycle of T a bit of fuzz which has got a tiny bit longer/thicker in the last two weeks.
I should say I have been lucky with very few or severe SEs but am happy to share if anyone wants to know anything else.
Try not to worry too much, the fear of the unknown is far worse than the reality. xxx
tired, but sleep pattern up the swaney - keep thinking about work. OH off this wk 'cos of half term
little nausea this tme thank God - more like first treatment
Nicky49, - I've had trouble with my mouth every cycle so far, - oral thrush with cycle 2 which made me retch ever time I did my teeth - got some nystatin from gp - cleared up in tme to start again. Sounds as if yours has really taken hold - don't struggle - get some meds! Not found anything apart from continuously nibbling to take away the foul taste - hoping it doesn't happen with tax - mind you with tax trots to look forward to..........
Just a thought. I had Chemo from November 2012 to February 2013 and whilst i did try cold cap it wasn't successful for me and i lost all my hair pretty early on It was long thick auburn so was devastated. I had two lovely wigs from Dimples (Elle and Caroline). I know they always looked fine but were not always easy to wear particularly as i like to walk outside and i was wearing the wig throughout the winter months. I recall one Sunday where the wind blew the hair in my eyes and one eye was seriously scratched. Ouch.......
I purchased a fringe (from Headstrong about £5) which was great under hats and so much easier to wear, it just looked like i had my hair tied back / tucked in the hat. Great for walking / supermarket etc.
Hang on in there girls you are all doing great. Gilly x
#2 day 17
tested wig by sea-side on Sunday - very windy and wet. Did feel it moving up, but reassured by OH it looked fine. Feel its been well and truly tested! Still using scarves most of the time (easier!), but lovely to have wig for looking normal
Frenchfancy - picc being stuck sounds dodgy. D/nurses still having probs, but managing to flush with a 20ml syringe and a bit of effort. Hope yours is ok
Janey - I didn't try coldcap, but losing my hair was the least of my worries. My hair has thinned a lot (makes me look quite old and I couldn't go out without anything), but I do have enough left so that with a hat you can see long hair at the bottom (had very thick hair to start with). Lady garden somewhat pruned, but still hanging on in there! I would say if you're worried about losing your hair, try the cold cap - what have you got to lose?
Brillant petition - signed up already!
My next chemo's on tues 29th - dreading it to be honest, but at least will be over the half-way mark, then will be counting down.
Good Luck to all......................
I have just had my 3rd & final FEC 🙂 and have used the cold cap each time and still have a decent head of hair with no bald patches. I did have really thick hair to start with so i think that did help. I would say that it is not comfortable but is bearable if you get through the 1st 10 minutes. The rest is down to boredom as it does extend the treatment session. My oncologist encoraged me to try it and advised that if i couldn't get on with it to then drop it.
I guess my advice is try for the 1st session & see how you get on.
Good luck xx
Feeling a bit more nauseous this time but getting there.
Pots I wore my wig out on Saturday night at an event for nearly 200 people that myself and oH had arranged. I knew I would get hugs and I wa sdreading it incase my wig flew off but it didn't. Rest assured.
Camping on the sofa this afternoon. xx
Sadly I am one of the ones who tried the scalp cooling cap. Unfortunately for me after just twice my hair started to fall out. My hair was fairly short but thick, I followed all the instructions given, eg weaing a hair net to sleep, having a silk pillow, wash only once a week using "simple" shampoo, combed once a day with a wide tooth comb and the rest, eg cap size, conditioner, etc, etc was up to hospital when they fitted it as you cannot tell the nurses their job. My hair loss is the easiest of the side effects I am suffering and unless you like having a cap at -5 on your head for up to four hours I would not recommend. I would say stay postive and if you loss your hair wear a scarf, wig, etc with a positive attitude that your hair will one day grow back. Virtual hugs to all going through this dreadful stage of life. xx