Sorry too hear this one was a rubbish one, nearly there though! Sorry Im not on here too much, I find facebook much easier and its more annonymous too, hopefully you will come and give it a try as most of us still have a long way to go on this journey and will be around for a good long while. I hope you have the best christmas and new year possible, take care, Hawkie xx
Glad you are nearing the end of the chemo, have you considered coming to the FB page to join us ? Constant support even after chemo has finished and we are all here to help after as well as during. Good luck with the final Chemo, its a harsh ride but your'e nearly there x Have a merry christmas, hope its a good one xx
Sorry you have had a bad time Pots. Please come join us on facebook. I had never been on facebook & just joined because of the stars. Its much easier on there & there is always someone there to help you when you are feeling down. Please please come join us, we are all sisters that are going through this hell together. xx
fec -t #5 day 13
looks like everyone has deserted to the facebook page! I had a grotty time with this cycle - infection and neutropenic sepsis again so back in hospital for a few days. Now on the mend and relieved that have only 1 more to go on New Yrs Eve! Roll on 2014................
I probably won't post on this thread anymore, but I wanted to thank you all because I've found your support invaluable.
I wish all the Sept Stars the best Xmas and New Year they can have.
good luck for those up at the bar today.
Had a bit of a panic this morning 'cos my hair is definitely starting to come back (2 more tax to go) - starting thinking chemo wasn't working, but have checked on other postings and now feel calmer. Very commom apparently - means I have strong hair follicles! How're the rest of you doing on the hair front?
Omnishambles you should be able to find us now the group has been changed to closed until you're in then it will revert to secret 😄 xx
Hi again all, thanks fhe welcome.
Shall get my arse in gear and sort the facebook stuff in a bit. Pains have pretty much gone now, got a furry mouth which is delightful, but am still eating a heroic amount of comfort food so obviously can't be too bad.
Glad you are doing OK Pots
Omnishambles I have sent you a PM re the facebook page so if you send your name over we will keep an eye out.
Hi - sorry you've been having a painful time with tax Nikki and omnishambles.. I'm still counting my chickens - little achy, and the odd joint pain, but nothing I couldn't ignore and my energy hasn't been zapped lke the 3rd fec which I found dreadful. I figure if I was going to get the joint probs it would have happened by now. Next one's due 10th Dec.
Here's hoping the next one won't be so bad for you both. Me, I'm taking every day as it comes and looking forward to the end of this part of the treatment.
Love to you all,
Morning all (very very early morning admittedly)
I started chemo in September, have wiled away many sleepless hours reading this thread with you wonderful lot but never posted before.
Am 38, have grade 3 TNBC lymph node positive, but no nasty mets spotted. Had lumpectomy and WLE in August, all healed nicely apart from little cording and general wonkiness.
Am on FEC-T: three FEC done and dusted (only SE a bit of tiredness really); first T last Wed, felt bit odd but generally ok on Thursday, but then Friday EVERYTHING HURT!!! Including my earlobes, I didn't think they COULD hurt ?!?
Blimey. I'm normally a tough old bird but this knocked me sideways. Next T due for 18 Dec so am hoping SEs bigger off in time for Christmas Day.
Am on FB, can I just check how I join your group please - a pm to someone here is it? What info do you need?
Thanks all, it's fab that you all share so much. I've taken huge comfort from your experiences and openness from afar.
Fec done, Tax 1 Day 9
Well the tax truck hit me day 4 and continued to hit me daily until today, I've never been in a car crash but I imagine that's how it would feel, every bone in my body hurt. I found the best thing was to not let the painkillers run out I took paracetamol & ibuprofen alternating them every 2 hours during waking hours. My electric blanket has been a god send, as were my hot water bottle & wheat hotties. I have been hearing some rumours that first tax is the worst, so hoping that is true
# 4 day 2
maybe counting my chickens too soon, but tax much better than fec so far. Feel a bit sluggish in the head, but not stopping me doing anything today and feel very positve. Hope my fellow dunkees doing ok.
10 lots of GCSF starting today - can see light at the end of the tunnel!
Love to you all,
#3 day 17
Ooh the thought of coffee - tried a couple of times, but it tastes horrid. Feeling better and stronger every day now. Feel safe enough to drive today. OH has and is being great, but looks exhausted. Can't wait for energy to come back so I can be more useful.
If anyone tries the go cake bread and butter pud - it's nice hot with vanilla ice cream.
Good luck to all of you who're going through it now