thanks for that - it's so reassuring to know picc probs have happened to someone else.
Got my wig sorted today - am so chuffed. Defintley needs the double-sided tape, but I feel like me. Can't stop smiling! Going to risk the coast this weekend if feel ok - hope it's not too windy.
Hope everyone has a good weekend
hope everyone's doing ok.
Has anyone had trouble with flushing their picc line ? District nurse couldn't do it and ended up pulling it out slightly, so 2 hr round trip to hosp (am begining to hate that journey) for chest x-ray and chemo nurses to sort. Fortunatley all ok, but does make me nervous for next dressing change if it gets pulled again, might have to come out and start again.. last cycle was in hosptial so being flushed several times a day so wasn't an issue.
Anyone else had this?
Lulu - super slow is what you want. Really please re results
Good luck for everyone up today esp. cinderssarah - hope you're ok
itsacrazylife, I was given the option of going back for the injection, getting a district nurse to do it or doing it myself so I went for doing it myself, it was fine, nothing to worry about. j X
Hi itsacrazylife, yeah I remember reading when I registered that we shouldn't disclose our true identities for privacy and security - that will be why the moderator removed your name xx
hey hawkie...thank you so much for your reply. Stories like yours really help to put things into perspective. Do you have to inject yourself after each T session?? I too had teenage acne spots lol (1st round of FEC)l... doc said it was foliculitis and gave me antibiotics which did the trick.. The bugs and stuff that generally live happily on our skin when we're well (and blessed with an immune system) take advantage of the fact that our bodies cannot fight infection. One thing I have learned through this journey so far is that you gota keep your PMA and sense of humoour. I sound a little bit like yourself. I like to keep going and do as many 'normal' things as possible, hate being off my feet and feeling rubbish. We're all strong women to be facing and fighting the way we do! Hope you have a great day, whatever you're doing x
Hi there, my name is edited by moderator and i did request to join the fb page but got no reply. Would love it if you agreed to let me join. Thank you x
#2 day 2
Got 2nd dunking, but the old neutrophils are still not normal so having double the bone marrow boosters and taking temp regularly. Didn't check in yesterday 'cos felt really queasy and then wasted all my lunch! Know it's only day 2, but is already completely different to first treatment; not worse or better just different, haven't got the headaches so far, but sickie all morning, but don't feel too bad at all now.
It'sacrazylife - from all accounts the facebook page is brilliant. I found the new forum tricky at first (me being a bit thick), but have found it a brilliant support. Totally agree with Lulu - we all seem to have such different side effects all we can do is be as prepared as possible and hope we get through as best we can. From my knowledge (and this is only with fec-t) if the fec is tough, t is easier and vice versa, but who knows
HG12 - hospitlalised both times what a bugger! Hope you don't make it a triple after the 16th, at least you'll be over the half way point.
Cindressarah - am so sorry you had such a tough time with the 1st you're thinking of not haveing your 2nd one. All I can say is hope you can talk honestly to your oncologist about how you feel and the side effects you had, then they should be able to do some tweaking so it's better for you next time round. Know it's really tough and hopefully you'll feel a bit stonger and more postivie come friday and make whatever the right decision is for you. Hugs.
Emmagi - what are the cold gloves / feet covers for - hairy feet??????
Geelell - sorry haven't said hello, must have missed you before, but a belated welcome.
and hi to funki - good luck with the scarf creations. i'm finding myself dress in a much trendier way than normal (never wear hats or anything like that normally) - just got to find a way to boost the old confidence. What does Gok Wan say? Look good, feel good - actually I've no idea whether he's ever said anything of the sort, but he should!
Lisbeth really feel for you - I was climbing the walls after 5 days. Hope Barbs is right and you do get out today
Thebatman - if you're still in there thinking of you loads, hope you get out soon.
Am completely confused if anyone's up for today - if you are good luck. Hope my fellow dunkees from yesterday are doing ok and sorry that my posts always seem to be so long.
Bye for now,
Hi emmagi – I didn’t do the cold cap and I haven’t heard anything about the cold glove treatment so maybe it’s not available in the UK yet. I’m FEC 1 Day 16 and my scalp is starting to itch, am also losing quite a few strands of hair after each wash – I’m expecting it to start falling in clumps at the weekend but as it’s very thick I may hang on to it for a bit longer. The timescale does seem to vary a lot so maybe it’s an individual thing.
Itsacrazylife – I find it really difficult working my way round the forum too! There are quite a few September Stars from the West Midlands area. I’m still in the FEC zone but one or two Stars are on Taxotere, I’m sure they’ll be along shortly to chat with you about it. By the way, have you sent a request to join our Facebook group? If so just send a private message to Barbarella 63 (easiest way is to click on Barbarella’s name at the top of one of her posts, then on the right hand side, it should give you the option to click and send her a private message) with your forum ID name and your real name, that way she’ll know who you are!
Funki, good luck today with your next round of TAC, hope they give you something to better control the side effects this time. Wigs take some getting used to don’t they? There are some Stars who actually prefer their wigs to their own hair, so give it time, and remember it’s not for long, it will grow back.
What a relief suzzie-g, shame about the se’s but as you say 2 down, only 4 to go. It is amazing how quickly each cycle comes around, not much time to catch your breath that’s for sure!
Pots, how are you getting on after yesterday's cocktail? Hope all's well with everyone! xx
Its a crazy life, Ive had tax, one done 5 to go and havent been too bad on it. No sickness which was a big plus for me, few days of pain in bones but warm baths and painkillers fixed that, I had a couple of days where I was literally wiped out and coupldnt be bothered to move, didnt particulalrly feel unwell just lay down and couldnt do anything if that makes sense. That made me cross cos I like to keep gpoing as normal and had been up to that point quite happily, so next time Ill make sure I plan to rest up those couple of days but have something productive lined up like online christmas shopping, that way I feel like I am more in control rather than it controlling me, thats my logic anyway 😉
Ive had a rotten taste in my mouth for over a week and oral thrush but that cleared with medicine and hopoefully Ill catch that earlier if it comes back next time. Nasty case of spots too whichj I am about to get checked out, look like a teenager lol but other than that its not been too bad so like lulu says everyone is different. My friend had tax too and was about the same as I have been and she did say she retained a covering of hair on her head at all times. Mine is probably coming off tonight which is day 13 cos its on the move but itching like mad so I figure Im just going to clipper it off on my terms!
LIke Lulu says try not to worry about it until you are there as it may be you are fine.
Yes it went ahead and I had my second FEC yesterday, feeling really spaced out and unable to sleep, quite sick yesterday but just so pleased to say 2 down leaving me 4 to go. And still on track to finish on new years eve, being really positive, as I want to put this part of my treatment behind me as so grueling.
Keep your chins up everyone, we can do this!!!