Good to hear your op on Thurs won't interfere with Rads starting, K. Hope it all goes smoothly tmrw.
Hope all went ok 4 u Teresa. Hope this week's chemo is the last one for you.
And glad you're on track for tomorrow Louise, will have some celebratory G&B's for you! And good luck with last one Liz too. When are you in next Erica - I've lost track a bit?
Must be a bit frustrating to have slipped a cycle behind, Jayne - especially as it was you who started this thread! Oh well, just hope the Emend keeps doing the business and it won't be all that long now.
This one's going to be ok, I've decided. I do think we're getting tougher and just know how to handle it all a bit better (at last!)
Went on the Look GOod Feel Better workshop yesterday, and it's true you do get a fab goodie bag - so worth it if you get chance. Lots of posh stuff, I thought it would be full of Rimmel!
love to you all
Excellent that your finished suzanne, hope your side effects are few and far between.
Good news for the op and rads starting K and for your chemo to go ahead Louise.
Am onto no 5 tomorrow, heres hoping the Emend really is as good as it was the last time.
Been for my planning scan today. Feel a bit like a Blue Peter exhibit with pen marks, tattoos, sticky back plastic, wires. Only thing they didn't use was an old washing up liquid bottle !!!!
Bit surprised as thought I was having 15 sessions and now been told I have to have 20. Also onc has decided I can't have Tamoxifen as risk too high for me due to blood disorder so had blood test to see whether I am in the menopause. If not then it's out with the ovaries !!!
He has told me I can go ahead with op on Thursday and still start rads on Monday so that's a bit of good news for me.
Hope everyone is OK and your last chemo's don't knock you too much.
well chemo can go ahead on Thurd which i am happy about, neutrohils are very good so hopefully will be able to tolerate last TAX on that day. woop woop 2 u Suzanne hope u enjoed the cornetto
I've finished! It IS a nice feeling and I'm sure you'll all get there soon too.
Have decided this IS cause for celebration - there aren't many big milestones on this journey - we know there's no such thing as an 'all clear' announcement any time soon - so I'm happy to celebrate getting through some daunting and tough treatment instead. Will just have to make do with a Cornetto tonight and the bubbly will have to wait!....
Off to bed now - didn't sleep one wink last night with those silly steroids!
And onc gave me some cream for my feet (called Udderly Smooth because actually designed for cows!) is supposed to be v good!
Will be thinking of you tmrw Theresa and hope you don't have a long wait for results.
Good luck with treatments this week, and for you on Thurs, K.
love Suzanne x
Well go for last chemo tomorrow.
Good luck to all for the next cycle.
hi all, well i will find out tomorrow if my onc will allow for my final chemo to go ahead after being neutrpenic last week. although cout did go up from 0.3 to 17.3.
Know what u mean about the feet and hands feel like i am shredding my skin, on hands and feet no matter how much i moisturise.
Good luck for all that have had chemo today or tomorrow.
Girls we are getting there 🐵
Hi everyone, OMG doesn't time fly round quick, we are nearly all coming upto finishing chemo, can't beleive it....
Tomm I have Malage, it's nearly 40 degrees here and no doubt will be in the City...
Then thurs back to chemo, still not sure if it's my final or his going to push for another session, will find out then...
Take care all, good luck to all treatments this week...
Love T xxx
Fingers crossed for you K and you Teresa, hope it goes well tomorrow.
Good luck to you all having final chemo this week, hope it is as easy as possible.
Teresa - hope you managed to get some sleep eventually last night - it's a bit of a cliche but everything really does seem so much worse in the middle of the night doesn't it?
Suzanne - my feet (and hands)are in a right old state - the skin between my fingers has gone all red raw and is now peeling and my toes are much the same. Looks great with strappy sandals!
Thanks all you lovely ladies..... as you see by the time still not sleeping worried s/////less .... but hey we all know how that feels...
But had a good night with OH... had a few vino's possibly too many for me... but he enjoyed it...He's now snoring his little head off...
Oh... forgot to say shocked the Spanish lot tonight... Walked my dog and forgot my bandana.... OMG... Please forgive.... LOL...
Take care hunies... txxx
Really hoping that it is a cyst for you Karen, and that this is just a repeat for more clarity for you Teresa. They sound like good strong possibilities so have everything crossed 4 u both.
Glad you had a nice break Erica. Not being able to enjoy food is such a downer though isn't it. Again it's one of those things that feels trivial to moan about but it isn't really.
Tried some false lashes last night, looked ok and didn't realise they stick to your lids rather than the few remaining lashes. The only downside was that one fell off halfway through my meal! Think I need more practice.
Had my radiotherapy planning appt on Fri, which was really nice to have. Appt was no big deal - in and out in 20 mins and have 4 tiny tattoo dots now. I start 2 weeks on Mon.
Final tax is this mon, and then on tues I have a place at Look Good Feel Better, so hope am well enough as it seems to have come at a good time given my whinges about my looks.
Oh - and is anyone else's feet falling apart? You'll know what I mean if they are!
Hope you're having a nice weekend. love to you all, Suzanne x
Back from hospital now and specialist was very cute. Not sure it was that enjoyable having my bits examined by him especially wearing blue gloves but hey the joy of this crap !!
He thinks it is probably a cyst but have to go in Thursday for surgery and a full girlie bits scan as long as oncologist says it's OK when I see him tuesday for my CT scan pre rads. If not then I have to wait till rads is over and then some time to get my strength back which would make it late July. Really don't want to wait that long.
Now going to have a lazy day and Mary is cooking curry for tea.
Enjoy the sunshine everyone.
Hilary- know what you mean, I too am not jumpimg about last Tax, my mum said surely you should be happy, but its one more lot of se, maybe another hosp admission, allergic reaction not something i am looking forward too. Sorry your se have been cr*p
Erica- Well a jam sanwhich and magnum diet in other circumstances it would be funny but like you said it was cheap
Theresa- fingers crossed
Kay- fingers crossed as well.
Lets enjoy this weather before it no doubt changes
My God, I go away for a week and everyone is in a bad way when I get back. I am so sorry for you Karen and Theresa worrying about your new lumps.I really hope it works out OK for you. Too much waiting as well.
Louise, not the best way to spend bank holiday but glad you're back at home and don't have to worry about the kids for a few days.
Hope you pick up soon Hilary, I'm sick of people telling me only one to go.
Suzanne, I too am having a total downer with my body. I think its the sunshine. I want to wear summery clothes but most don't fit as I've put on too much weight. Anything with a lowish neck shows off my lovely hickman line. My eyelashes have disappeared and my skin looks like old and dry.
Yes, its all irrelevant in a some ways but its not because how we feel about ourselves is all we've got in many ways. Who cares what other people think about us and how great the shape of our heads is.
I have had a lovely time away in my rented motor home but my mouth was a nightmare - 2 weeks after chemo and I still can't taste properly and still sore. Spent most of the holiday on a jam sandwich and Magnum Classic diet - saved loads of money on eating out as there was no point even though it was my birthday.
Big hugs to all plodding on with all this c**p.
Back after a few good days in Skegness.
Ended up on the beach yesterday and now have a red face then white where bandana was on !!
Managed to get appointment with specialist tomorrow so picked up letter from GP today ready. Obviously opened it and read that lump is 8mm well at least it's smaller than breast lump but still very worried.
Hoping he will just say I am a hypochondriac and bugger off and get on with life but not convinced it will work that way.
On the good news front have found 3 underarm hairs so celebrating !!
Louise - know exactly how you feel as had the same with them thinking I had meningitis when it was neutropena. Glad you are home again and hope you get well soon
That sounds like a scary moment Louise - glad you're now having a bit of a rest now. Good luck with your scan next week Theresa - they often have to re-do scans because they can't see things clearly enough so try not to worry (easier said than done I know and horrible not to be able to drink when it's really hot).
I'm still feeling pretty cr**p after the last Tax. 10 days ago -spent two days unable to get out of bed on Mon and Tues. so I'm dreading the next one (even though everyone keeps saying "only one to go!" - I can't quite share their excitement!).
Have a good weekend everyone.
Good luck Teresa, hope it all goes well, keeping my finges crossed. Let us know how it goes. Is that today?
Hi Louise, bless you once again gone through the mill, BUT you still came out fighting.... nice one....
I'm feeling a little better although a little concerned, iv'e been called back to Malaga for another body scan !!!!! Don't know why, i'm there on Tuesday, the problem is no food or drink after 2am and my appointmant is not until 1.30pm, in this heat, talk about dehydration, hours drive there !!!
Hope everyone else is well....
Take care love Teresa xxx
well slept like a log in my own bed last night. Thank god that mum and dad have the boys so that over the next couple of days i can get rest
Not so good Louise, hope you are feeling much better and enjoying the sunshine.
Lots of love
Hi Louise, you dont do anything by halves do you. Glad you are feeling better and hope you stay well now. Love and Hugs Liz.
oh my, Louise - you've had quite an ordeal - really hope you're feeling much better.
Take care, and hope you're getting fussed over.
love Suzanne x
Well i went away for the Bank holiday........... To Ealing hospital. woke up on the Monday still feeling pants vomitted everywhere I could have given Damien a run for his money had temp of 38 so went to A &E at 6 in the morning,after bloods etc were done was told i was neutropenic- neutrophils were 0.3 :os. so that was it was put into isolation given GCSF injections to boost blood counts IV antibiotics and then paracetemol to bring down temp. Then Dr who assessed me went " Louise you don't have a chest infection, waterworks are ok you may have meningitis " Well let me say i was severely panicked then "... and we may have to do a lumbar puncture" i was also having constant headaches . Well to cut long story short i don't hyave menigistis my neutrophils are now 17.3 and more importantly I am home enjoying being in the sunshine rather than looking at it from my hospital room.
hi notverybrave - good name by the way! - I've been lurking and picking up tips too. Have just started a thread for people starting about now so we can look out for one another. Looks like we're starting similar times, so come and join if you'd like to. xj
thanks everybody for all your comments I am totally hooked on this forum & can see its going to be a source OF great help. I think its a really good idea to give yourself a treat after each cycle it does help getting through one by one. The tips you have all given me have been v helpful thanks againX
Totally agree with Hilary, Suzanne & Billia. Try not to be too scared the thought is scary but once you start things will feel easier. Apart from all the other advice i would say eat little and often the few days after, and just go with the way you feel and eat what you fancy and drink lots of water. I have started acupuncture in the last month and it's great, would really recommend it. Also if you get bad nausea ask for Emend, it is really good.
I think everybody is different but you will find your way to go through it. I can hardly believe we are all coming to the end of chemo, i felt the same as Suzanne and wasn't sure if i was strong enough either. But we are all getting there and so will you. Doing it with other people makes all the difference and will help you loads.
Good luck with your treatment if i can help just let me know.
LOL Jayne xxx
Ditto to everything Hilary has said, she's spot on. And it has been a real lifeline for me to have these guys along the way so good idea to find some other people who are starting when you are. I was terrified that I just wasn't a strong enough person to deal with all of this but it's amazing how you get through it. It is tough treatment, but I just have to tell myself that it has to be because it really is going to do the job.
And some cycles have been harder or easier than others, for no obvious reason. So if you find one cycle gets you down, try not to be too scared of the next one because it might be ok. One at a time is a good motto. In terms of real practical tips, try to drink as much fluid as you can manage because I really find I feel better if I can stay hydrated and flush the stuff out of my system as soon as possible.
We do understand how you're feeling so keep in touch if you have any questions.
Hi Not so very brave,
i have been reading posts for days but only just registered, i am on 4 fec and 4 tax and half way through my fec, everyone is so different but as Hilso said if you can find someone starting when you are it will be useful to talk to them. Under latest posts 'what are the advantages of different types of chemo' Julie has posted that she starts 3 and 3 on thursday so its worth chatting to her.
it is so reassuring to read comments by all
Sorry you're having to start chemo - it's a drag but it's not quite the nightmare you might imagine. Most of the side-effects are only at their worst for a few days to a week so my tip would be to try and focus on one cycle at a time and plan some treats (spa day, nice meal out, large glass or three of wine - whatever works for you!) to aim for at the end of each cycle. It might be worth putting out a message on the forum to see if there is anyone else who is starting at the same time as you because it's been really helpful for us to be able to compare notes as we've gone along as well as sharing the worries.
All the best,
I am starting my chemo soon exactly the same regime as you ie 3X FEC & 3X taxotere. I am scared to death reading the short & long term side effects. Any good advive would be gratefully received from anybody. thanks a lot.
Teresa and Louise - I totally have everything crossed for you both. Please let us know how you get on.
Louise - what a complete IDIOT, it's just unbelievable how inhuman some people can be. He doesn't deserve an ounce of your energy feeling angry (though I completely understand that you are) and I agree, I bet he couldn't cope with a tenth of what we've been through.
Take care all
love Suzanne x
Hope you have a good week K.
Keeping my fingers crossed for both of you.
How you doing today Teresa?
I really do know how you feel and I too want to bury my head and pretend everything is fine. Have only told a couple of people, well except for this forum !!) and both have said "sure it will be nothing". Strange but I heard those words 6 months ago and it was bl**dy cancer.
Hope it has disappeared but even then you would worry where it had gone !!! I think we should be given our own carpark space at the hospital for such time as this.
Am off to Skegness with Mary for a few days today so will be catching up on the posts on Friday. sure there will plenty to read.
Will be thinking of you and keeping everything crossed.
Hope everyone is ok and enjoying the bank holiday
Hi K, So sorry to hear your news on the lump thinking of you lots of positive thoughts.... I too have a little concern, tonight i found another lump in my other breast, haven't told OH yet not quite sure what to do, to be honest im hoping to get up in the morning and it will be gone..... This is such a Sh// time for all by the sounds of things, the hairloss , eyebrows, lashes etc,
I have sores inside my mouth, my lips are dry and cracking then my OH gave me a lovely compliment, each time I have chemo I age 2 yrs.... Thanks Mate, really good positive booster, I know he didn't mean it nastily and to be honest I think it's true, as one of you others said you become to look like a cancer victim....
good luck K, keep us all informed, as I will you all, it's just with this new lump I want to bury my head, I don't want it and the thought of a new battle terrifies me.....
Look at me it's 3am and Im still wide awake, thank god for the internet...
Love to all Teresa xxx
K - sorry to hear you have found another lump, thoughts are with you, I know its no good saying not to worry, but sending you big hugs (((((k))))) and you know we are all here rooting for you. xx
Louise, try not to let some complete waste of space get to you - I wonder how he would cope if it was him - i bet he wouldn't. And as for using his male bits as a lollypop - well it would be a very small lopllypop.
Well the sun is shining here again today, but still very windy so am feeling cold. Hope everyone is ok and having a fab time.
he made a comment not be in the pub as i was putting him of his drinking and could i leave. People like me are a waste of resources for the NHS and the clasic was myt name Kojak and would i like his male bits as my lollipop> Like i said totally tw*ttish things to say and have not been feeling brill so i am ruminating a lot on what he said.
Don't know what he said to you but don't let him get to you Louise. Some people are so cruel but it's usually the ones with the biggest issues and the least concern for other people. Hope you have a good day today and things go easy for you.
Lots of love
well yesterday was a day written off, the boys loved that my voice had gone, my feet hurt and i had a headache from hell. took painkillers drank plenty did not eat as could not face food. felt low in mood that t**t from the pub is getting to me still, i know he should not but it has really affected my confidence and i have to see my mum and dad today and i know my mum is going to say something about my mood. have also woken up with a headache and cough is still with me.
will be glad when the boys are at mum and dads for the week
hopefully we will have nice weather today!!!! although my plants loved yesterday
Kay - sorry that you've got another wait now to be reassured that it's okay - it's so horrible feeling scared. I got hiccups the other day and convinced myself it was a symptom of liver secondaries (must have read about it somewhere). Sounds stupid but once you've got a thought lodged in your head its hard to shake it off. I'm feeling pretty cr**p after last Tax. and am sick of having watery eyes - partly a result of wearing eyeliner all the time so that they don't look like p*ss holes in snow. Time for a takeaway curry and then off to bed for me.
Unfortunately the lump is nowhere near my boob. It's down below in my other lady bits area !!!!
Have got to wait till 11th June to see the specialist then take it from there. My GP says the lump will have to come out so now worrying that may delay my rads or maybe they will wait till after my rads though not sure I can cope waiting that long.
Have my ct scan on 8th June so going to talk to oncologist about it then.
Can't believe it's rained all day here. Where has the summer gone ??
Take care all
Hope all turns out well for you. Sometimes this all seems endless, lots of love to you.
K - Just a thought - I don't know where you found the lump, but is there any chance it could be scar tissue. I'm still quite lumpy with scar tissue from my lumpectomy in Jan. I had my Onc have a feel a few weeks ago to check it over, as I was wondering how I would know if there was a new lump. Sorry, you may already have been through this possibility?
Really sorry to hear that. I am going to be thinking of you and really hope that you get good news. sending you lots of love and hugs and hope that you don't have to wait too ,ong for results
k - so sorry to hear that - my thoughts are with you, i really hope all turns out to be ok. I'm sending you lots of love and hoping for the very best.