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Starting rads in April 2012

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Re: Starting rads in April 2012

Good evening to you all

I have had my first 2 sessions of rads last Thursday and Friday and so far so good. I have been posting on the March thread for a bit as I was supposed to start then, but due to my wound healing so slow it dragged into this month.

Hope you don't mind me joining you

Hugs from Scotland from

Alanaa and Fat Cat xx

ChocDrop
Member

Re: Starting rads in April 2012

Hi

Happy birthday, LemonDrop. I hope you had a good day.

Well, I went for the 'Trial Run' last Thursday. I think this might have been either because of being on the current Radiotherapy trial or because they don't do the simulator bit at the Planning Session.

Anyway, it all went well. There was the inevitable delay so just went to get a coffee and brought it back, then got called in. The staff are so lovely. Once I'd got on to the table, which is so hard, isn't it, I did get comfortable. I was pulled and pushed around gently, rather feeling like a lump of putty! 😉 I have to say, I did find I was able to enjoy a time of relaxation so I just hope I can stay in the same 'mind-set' for the duration.

So, Rads start tomorrow, for 15 sessions. Because it's a trial, all the boosts are incorporated in these sessions! Hurrah!!!

I'm feeling much better now that things are underway. It's just seemed such a long time coming. I'm trying to organise some friends to accompany me some of the trips, so the drive won't get so boring.

So, hope everyone else is progressing well.

Cheers

JCJ
Member

Re: Starting rads in April 2012

Hope you had a good 'day off' for your birthday yesterday, Pam? Lucky you for finishing just in time for yours, Libby! There's a lot of us birthday girls about! Marian and I will be having lovely birthday radiation treats! 😐

I shall be visiting Arden Cancer centre for both mine, Friday, and OH's birthdays, Mon 30th. I think we'll have to have a pub lunch/dinner on way back to compensate?

First zapping Tuesday and I'm getting fed up of waiting now. Time seems to be going sooooo slowly - and the rain doesn't help! - though I know the reservoirs desperately need it. Thinkpositive thinkpositive thinkpo....

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Re: Starting rads in April 2012

Good to know your first 2 sessions went OK, Libby - aqueous cream already in stock for my first one which is a week tomorrow. I'll be there 15.48, when is yours? Strange how specific the appointment times are ...

Good that ED is coming tomorrow too - enjoy!

Best wishes to all April ladies, hope you have a great day on Tuesday, Marian.

Hugs, Mujum

libsue
Member

Re: Starting rads in April 2012

I hope you've had a lovely birthday, Pam. Happy birthday for Tuesday Marian.

I've had two rads, and they went OK, so far no side effects but early days?

Thursday's session was delayed a little (30mins), yesterday's delayed by 10mins, so not too bad.

I asked about creams etc, was given Aqueous and told it's safe to use the brand name Simple products. I've bought Simple baby wipes to cleanse under my arm when out and about, handy to keep in my handbag.

It's nice to have two days off; back to the unit Monday. On Friday I gave blood for a trial I signed up to, and next week I'm giving more blood for another trial! Good to give something back though, as feel I've received wonderful care.

My last rads is 17th May the day before my birthday, yeah!!

Looking forward to Monday as my elder dau is visiting from Berk's for a few days.

Enjoy the weekend ladies.

Libby x

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Re: Starting rads in April 2012

AmysMum - Most of my appts are between 3:30 and 3:50. I'll see how it goes. FIL is giving me a lift so he can drop me off if he can't get parked. I'm not sure how easy it will be to change the times. Most of my bras are underwired as well. As I've still to have Mx I'm not too sure about what to replace them with, but as I have fluid built up in the breast they're not very comfy, so have just bought a few cheap sports bras just now. That'll be nice if you have some company for rads too.

Teresa - Hope you're arm's feeling better and phyio is helping.

Lemondrop - Good idea to take plenty of stops on the way. At least it'll be nice to get away from it all. Hope you're having a great birthday.

Mujum - I was warned about the sharp scratch too, but at least it was better than having to find a vein for chemo. It was a nice change not having to have blood taken or be injected with anything.

Jo - No one has mentioned nausea as a SE. Hope that doesn't continue.

Marian - Hope the rest of your treatments go smoothly from now. It's annoying having to fight over presciptions on top of everything else. It all seems to be about money these days, but we have enough to suffer with.

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Re: Starting rads in April 2012

Morning all,
Just waved my youngest son off back to university after the Easter break - will miss him but can slouch around a bit more now. Well one week down and 3 more to go -not doing too badly but swinging from feeling normal to sudden tiredness. I think I may need to rest a bit more this week which is tricky as I am still working when I can.
Pam I talked to my GP who gave me a lot of piffle about there not really being many generics available for Arimidex yet and its all Arimidex really! I didnt have the energy to argue and thought I would see what it is I get and I haven't been back to pick up yet. I live in the sticks and the Drs also dispense the medication. I do think that I am already on a generic from my Onc as it is anastrozole! You wouldn't think I was a health care professional would you - BC experience has muddled my brain.
I remain confused - but the sun is shining and no rads today. Happy birthday Pam - its mine on Tuesday.

Marian xx

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Re: Starting rads in April 2012

Happy Birthday, Pam, gosh, fancy sharing birthday with the Queen!

Hugs, Mujum

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Re: Starting rads in April 2012

Hello everyone, Marian, how did you get on with your medications? My P.C.T.are being very difficult at the moment but I am still saying no to the generic so I am having mine on a private prescription from the Oncologist until I can get it sorted. I hope you have all had a good week with your rads, mine has been apart from a few delays and a machine breakdown but they did transfer me to another room so it kept me on schedule. Firecracker I am glad I did not have the start you did but at least you can see the funny side of it now. Jube have you had to start Arimidex yet? I am looking forward to my two days off now it is my birthday tomorrow so I am glad it has not fallen on one of my rad days at least. Hope you all have a good weekend.xxxPam.

FireCracker111
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Re: Starting rads in April 2012

Hi ladeez, I'm two and a half weeks post-rads and just wanted to say hi and send some coping vibes - though it seems like you're all doing really well.

Marian, the first day of my treatment (ie, after they'd taken all the measurements) I walked into the room and the nurse said 'Oh, sorry, wrong person! I thought you were breast cancer, but of course you're womb cancer', and started to guide me to another machine. Then she stopped - 'Oh no, you are breast cancer, aren't you? Are you? What are you? Ha-ha-ha!'

I just gaped at her, wondering if she was on something! Then I sat down and got all three technicians to check EVERYTHING to make sure they weren't going to zap the wrong bit of my body... jeez.

Anyway, my confidence in them all was quickly restored - and in 30 sessions I never saw that particular technician again, phew.

Anyway, good luck, good luck,
FC

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Re: Starting rads in April 2012

I have an appointment with my GP today to broach the subject of repeat prescriptions of Arimidex. Not sure what response I will get but I can imagine what the answer will be. 3rd today and again went smoothly. Good luck all and let me know what your PCT says. Marianx

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Re: Starting rads in April 2012

Just read my post I normally sound my aitches so please read having for aving! My typing is a bit slow but obviously my brain must be even slower! Sorry about that.Pam

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Re: Starting rads in April 2012

Good morning everyone, hope you all have good treatment days today. My appt is not until 6.50pm because some of the machines are being serviced. I am taking the opportunity to have lunch with friends instead of being at the Q.E.! I am also waiting to hear from P.C.T. tonight whether they will fund Arimidex not the generic. My, not very nice encounter with a G.P. on Tuesday, suggests this is doubtful He said I haven't tried generic yet to see if I would get side-effects from them and I said no and I don't want to take the chance thanks I have enough going on at present. I also said I knew the letter from the Onc. had said Arimidex not just Anastrazole. I just have to keep my fingers crossed until I hear.Marian I so do not envy you aving such early starts. Jube sorry to hear the rad sessions are making you queazy, I hope it settles down soon.xx Pam

keepthefaith
Member

Re: Starting rads in April 2012

At last Marian! Glad it went smoothly. Not surprised you are getting cold feet about 6am starts - Obviously the best thing is to have a little nap at some point after you get back! No shame in that (I do it every day... shhhh!)

xx

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Re: Starting rads in April 2012

Morning all.
Session this morning went like clockwork - more like this please. I am now questioning my request for 8am slots as a bit ambitious as getting a bit tired with 6am starts. Re: feeling queezy - I felt a bit sick yesterday but put it down to being so wound up and tense beforehand - seem ok today.
Big hugs Marian xx

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Re: Starting rads in April 2012

Hi all,

Marian, I hope you have a better experience at rads appointments from now on, it must be so frustrating to have appointment cancelled and then further problems with equipment!

Is anyone else having nausea immediately after treatment? I've had six now and straight after the last two have felt queazy.

Wishing everyone well with treatment today.

Jo x

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Re: Starting rads in April 2012

Marian So sorry to hear about your experience yesterday hope it all goes smoothly now. My radiographers have all been female so far and very pleasant and friendly. Not sure I would be that comfortable with two male ones. Trouble is if you ask for females it would probably delay things and there are enough waits already! Good luck for the rest of your sessions. Hope everyone has a good week. I am off for my next prescription in a bit so I am ready for a bit of confrontation if they try to put me on the generic one this time, hope I they don't try though. xx Pam.

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Re: Starting rads in April 2012

Poor Marian - by the law of averages, you should have trouble free sessions from now on.

Thanks for all snippets about bras/tops etc - the hospital gave me a front-opening cotton bra and softie before I was discharged, and it's not too bad, even with the seroma, which does not seem to be shifting. Good news is that I still seem to have a hint of cleavage when I wear it, hope it's not wholly dependent on the seroma! But sloggi options sound good, will follow up. Have noticed that there is a Nicola Jane only a mile away from us - never noticed it before of course, not on my radar - so I may pop in and check it out, at least get some advice.

Prep session yesterday went well, although I found 2 of the 3 tattoos quite painful, though obviously they didn't last long; but one had to be done again because it was too small, so I got the "sharp scratch" (they lied) on that one twice. The third one was round the side, an area where obviously I am still numb from the Mx. But the radiographers were all just lovely - all colours of the rainbow, all young and attractive women, and with great patient manner; training must be good. Also got list of appointments for 1st week of treatment, beginning on 30th; the list doubles as car parking pass, so that also was trouble free.

Ref creams, the advice was aqueous cream, but make sure it's well absorbed before treatment or it will fry the skin. Makes sense.

Now 2 weeks before zapping begins - must try to get some jobs done during that time, and tiredness begins to strike again (actually, I was pretty whacked when I came back yesterday, went food shopping on way back). I am looking forward so much to getting back to normal levels of energy and stamina...

Hope all of you have good week, hugs Mujum

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Re: Starting rads in April 2012

Aaww Marian,
If your Rads position is half as (un)comfy as mine, that must have been such joy. Hopefully the computer know all about you now and tomorrow will go smoothly. I had my second session today and it was far quicker setting me up this time - it helped that I knew just wear to put my chin while they zapped my collar-bone. I didn't even have time to lose all feeling in my fingers 🙂
I actually met another BC patient today in the waiting room. I had met her before - browsing the non-wired bra's in Asda the week before we both had our op's so back in late September/early October. We got chatting then as it seemed unlikely she would be in such a glamorous department unless medical requirements had driven her there. It was nice to catch up. She started Rads yesterday too, so we will probably bump into each other lots in the waiting room over the next 5 weeks.
Hope everyone else is having hassle-free appointments.
Sue

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Re: Starting rads in April 2012

Morning All
Just back from first session - a bit odd with 2 blokes and chilli peppers on the sound system. All went well until 3rd bit when the computer detected a problem and cut out. Apparently whoever did the programming hadnt put in the safety margins had made a mistake. They had to reprogrammed and this took time and I was still lying on the bed keeping still - for 45 mins. Head of department came to see me to apologise and said they would have to fill in an incidence form. Hope they get it right tomorrow - starting to loose confidence. Have a good day all. Marian x

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Re: Starting rads in April 2012

Gail5 No I am stuck with the driving but I have told the others we take a few breaks on the way! I seem to be okay at the moment though, I keep waiting for the Arimidex side effects and the rads ones. I seem to be getting off lightly at the moment so I keep waiting for the rude awakening. I did a 140 mile trip Saturday and hope to again this Saturday too. Hope everyone has had a good day. xxPam.

JCJ
Member

Re: Starting rads in April 2012

Blue tit - I love it! My neighbour brought round a get well card for us both just after I came out of hosp. It had 2 blue tits on the front. OH nearly had a choking fit trying not to laugh. At the time I wasn't in the mood to see the funny side - and poor neighbour just thought we'd like it as we enjoy the birds on the feeders in our garden! 🙂 Makes me chuckle every time I look at it now.

Good Luck Teresa, I hope your arm problem easily sorted.

keepthefaith
Member

Re: Starting rads in April 2012

Hi all

Marian I totally love your working title - very clever!

Gail I fear it is probably mild lymphoedema, sadly which is annoying in the extreme. I cried om Friday evening when I found it 😞 Really wasn't expecting it as I am not a large lady, and am relatively fit, thought I would be OK.

Vests - the Primark ones are great and at £2.50 each I bought about 10 - 2 in each colour. Comfy and as they have the support you can pop your softie in there when you want to pop out.

Number 4 session and hopefully some answers from the physio about my arm tomorrow!

Teresa x

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Re: Starting rads in April 2012

Hi All
I have calmed down now. They just don't seem to realise how you build up to this and how let down you feel when it goes wrong. They are hopeful that tomorrow will be fine so fingers crossed. Anyway it's more detail for the play I am writing - which started off as therapy but is rapidly turning into a very good staff development piece. My working title is "Blue Tit - a bird in your hands"
The radiographer today also told me that their Royal College has withdrawn all advice re creams as they don't have evidence for any! I am going to go with washing with aqueous cream and using aloe Vera if I feel I need to cool my skin I think. I also bought a couple of sloggi crop bras and they are sooooooo comfy - just hope they don't get ruined. Tonight I am going to relax have a glass of wine and toast us all for smoother times and good health. Big hugs all. Marian x

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Re: Starting rads in April 2012

I have some oldish vests with support (and am wearing one now), but since my reconstruct, I have been wearing either a light-support bra + vest or medium support bra. The medium ones aren't cotton, so are out of the question for now.
I'll see how I go with just the vest top - must make sure I am not late for the school-run on Thursday and Friday as breaking into anything other than a sedate walk will be uncomfy.
All of my older bra's are underwired, and I certainly am not ready to go with one of those. Maybe this is why some hospitals don't do immediate rebuilds.
Gail, if getting up early doesn't appeal, try going for appts late morning, the early birds will be coming out of their spaces and you shoudl be before afternoon visiting time (a parking-nightmare at our hospital).
JCJ, I agree, go for the holiday. I managed to squeeze in a holiday between chemo and rad's (by doing rads a bit later than normal) and definitely enjoyed it.

Lakeslover
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Re: Starting rads in April 2012

I have used a M & S vest top which was OK. To travel to rads I used a halter neck bikini top which was easy to take on and off and flexible so it didn't rub.

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Re: Starting rads in April 2012

Weme - I don't think I could handle getting up early enough for 9 o'clock appts just now, although I normally would get up at 5:30 for work.

JCJ - I'd take the chance on your holiday, you just might miss some of the scenery if you dose off but at least you don't have to do the driving or walk too much.

Lemondrop - You're brave planning all that driving. Can't anyone else share it with you?

Teresa - I considered getting my GP to say on the prescription I couldn't have any of the ones with lactose if I had problems with Wockhardt, but hopefully won't need to bother now. How's the swelling? Hope it turns out to be nothing significant and not lymphoedema.

Marian - That must have been so frustrating having a wasted trip. When do you go back again?

Caroline - Sorry to hear you've been delayed. Hope the wound heals soon so you can get on with things.

Amysmum - Might be worth getting some vests with supports in them. Not sure if they're any good but saw some cheap ones in Primark and have thought about getting them.

JCJ
Member

Re: Starting rads in April 2012

AmysMum: I was told to avoid wearing a bra too - or if necessary, to use an old one that's got a bit baggy. (Typical! Threw all the old saggy ones out just a couple months ago!)

I've invested in some cotton seamless support crop tops to try, as I can't leave the house without any means of support (I'd trip up! 😞 )

A friend also suggested those bra extenders that you hook between the hooks and eyes of your bra. This would make the bra a bit looser, so hopefully it won't chafe as much? I've ordered some dead cheap extenders from Ebay to see if it helps.

Someone on one of these forums also said that wearing a cotton vest UNDER a bra helps, so I may try that in combination with the extenders!

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Re: Starting rads in April 2012

What a PITA Marian. I hope they get it fixed soon. Can you call them tomorrow before leaving home, to check it is fixed?

I had my first zap today. Well, actually it was 3 - one on each side of the breast and then one to my collarbone to get any problems wiuth lymph nodes up there. I didn't realise that there were lymphnodes there. The lymph one is a bit tricky, as I have to hold my head at a pretty awkward angle to make sure that they don't do my chin as well. They assured me that set-up for it would be quicker tomorrow as they know how to position me.

I am a little confused as to their policy on creams etc. At the planning meeting, I was given a tube of Aqueous to check and the BCN was supposed to call me re an Aloe Vera deodorant. Today I was advised to use nothing at all on the breast or armpit and to try to ensure that any showergel or shampoo washes off thoroughly in the shower. And only apply moisturiser if I start to react and with their say-so.

I have also been told to avoid wearing a bra as much as possible, but I find my silicone boob isn't so comfy unsupported, even just sitting in a waiting room. So I have to decide which of 2 evils to put up with. Maybe I will go with alternate days.

Reading some of your posts, I am mighty glad that my local hospital is only 20 minutes or so drive away. Going every day at a longer distance must be pretty draining (or at least inconvenient).

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Re: Starting rads in April 2012

Hope everyone is doing ok. I was meant to be starting rads in April, but won't be able to do so due to the slow healing of one of my wounds after my op on 15th March. I'm soooo fed up as just want to get this over and done with and get on with my life!
Guess I'll have to join a 'starting rads in May' thread.. or June ..or July....at this rate!

Caroline
xx

keepthefaith
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Re: Starting rads in April 2012

What a PITA Marian. Do they think it will be mended by tomor? I had the same thing when I went for my planning appt, but at least they didn't keep me waiting although I did have an hour plus round trip and so it pretty much wasted a morning!

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Re: Starting rads in April 2012

Fed - up! Day one - machine broke - waited for 2 hours and then sent home - hope this isn't the shape of things to come.
Marian x

keepthefaith
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Re: Starting rads in April 2012

Hello all!

My it's been quite busy on here.

JCJ I wou;d just go for it if I were you - it's not as if you're driving, you can doze and enjoy the scenery while you're awake. Have you decided what to do!

Weme sorry I haven't been in touch, I am doing OK but was getting over nasty bug and starting rads last week so either tired out or at Cheltenham! This week no easier as have Spanish exchange girl arriving Wednesday! Hope your toe is doing OK. I'm in Tues and Thurs this week too but later on so won't see you. Pink Princess, when are you in? I might see you if you're there later on in the mornings, give me a PM and we can say hi. M

Gail I have got the APS tamoxifen and the Generics to try as the pharmacist is giving me one of each. I won't be able to try the Wockhardt as am lactose intolerant.

I've been using aloe vera, my unit said use anything you like, but nothing perfumed. They seem very chilled.

Just one problem - I have got a little swelling in my affected arm, which has been fine up till now (except for the cording of course). I noticed it on Friday, and I'm sure it must be related to the rads. I was really hoping I wouldn't get lymphoedema, have been religiously doing exercises, and now addding in some lymphatic drainage massage but no change so far. Am seriously depressed about it 😞

Lovely weather, been enjoying the sunshine and feeling relatively normal!

Teresa xx

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Re: Starting rads in April 2012

Hi JCJ I finish my rads on 2nd May and I already had a holiday booked for the 14th May, my Oncologist said I should be fine for it. I didn't tell her the bit where I am the driver and it is 150 miles each way but hey ho I shall do it! I think the holiday with 5 girlfriends will be just what I need. It is a harder decision for you when you haven't booked yet. What is the latest time you can decide? Best Wishes whatever you choose to do. xx

Lakeslover
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Re: Starting rads in April 2012

Hi,

Hope you don't mind me adding to your thread. I finished my rads on the 22nd Feb and went on holiday to the Lake District (from Hampshire) 3 days later.

I did find the soreness and blistering under my breast continued to develop for the first couple of weeks, and wearing a bra was sometimes sore. The nurse gave me some dressings to apply when I finished rads and they were very good. Apart from that I lost my appetite, and felt tired, and that lasted a least 4 weeks. But I still enjoyed the break.

I don't see any reason why you shouldn't enjoy a coach break, although if it involved early starts you might find yourself snoozing on the coach!

Lynda

JCJ
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Re: Starting rads in April 2012

I have a dilemm: 15 sessions rads starting 24th April - so presumably finishing, (allowing for Bank Hol on 7th), on 15th May.

Our 30th wedding anniversary is on 2nd June, and I've seen a Shearings Coach holiday to Scottish Highlands, 4th - 8th June, that I'd like to book as a W.A. treat and a "thank god that's over" reward for both my BC and OH's gradually recovering broken leg. BUT I'm worried I might still be suffering SEs which may spoil my enjoyment of the holiday (and make me not want to spend HOURS on a coach??)I've heard that SEs peak at 2 weeks after rads finish, so 29th May; and Onc told me the bigger the surface area of bust the greater the SEs (fantastic! I'm an E cup!! 😞 ) I shall be back at school the following week, hopefully, so I can't delay the holiday by a week or 2!

Holiday insurance won't pay up if I have to cancel, if I book whilst undergoing treatment. Don't know what to do! 😐

weme
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Re: Starting rads in April 2012

Hi pp, I'm getting rads at Cheltenham too at the moment, what time are your appointments? Most of mine are 9ish as I asked for early ones to ease the parking problem. Might see you there one day, I'm having mine every other day for 5 weeks, starting week 3 next week so I'm there tuesday and thursday next week.

I hope everyone is having a good weekend, the suns out here so happy days.

Weme

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Re: Starting rads in April 2012

TTM - Good to hear you're also OK with Wockhardt. I noticed lactose is listed as one of the ingredients, so maybe it's a problem if you have a food intolerance. It was suggested it might be better to take it at night (so maybe sleep through any SEs) so I thought I'd take it with the evening meal.

Mujum - That'll be great having a holiday to look forward to at the end. Seems to be the consensus that rads is much easier than chemo, so hoping it's true.

Saskia - I wouldn't have thought one day off would make a difference. They seem happy to miss a day if the machine is due for maintenance and for weekends. Hope you get your scan soon and everything is fine. What kind of scan are you getting? I'm having a MRI on 30 April for a lesion on the liver. Surgeon thinks it's benign but wants to make sure, so know what it's like waiting for tests.

PP - Good to hear from you again. It's been a while since you posted on the 'Starting Chemo in Nov 2011 thread' so hope you've been getting on with life. That's so handy having transport organised for you. One less thing to have to deal with.

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Re: Starting rads in April 2012

Hi,
Can I join in? I start rads on Monday I did put in for the import trial but was still given the 4.5 weeks everyday! Had my planning the other week and my first herceptin also started tamoxifen the same day so far so good no side effects but really wanting to shift some of this chemo weight!

I'm getting transport to Cheltenham hospital each day which saves me faffing about with parking x

tired1
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Re: Starting rads in April 2012

Everything has happened very quickly, having winged a few days ago about delay after delay, and I will start on 26th April, so not quite the last to begin. Lots of encouraging posts from those of you who have started, so I hope not to be too anxious. Still more worried about weak/numb leg, especially as the mdt has requested a scan and that I return to see an onc for a check. Oh, the waiting game again - just thought I was away from that for now.

Anyway, have made myself go for a walk to prove that I still can - OH asked teenage son if he would go with me to help my recovery - teenage son accused him of 'playing that card again'; teenagers can be quite hurtful sometimes .....

There seems to be so much conflicting advice: do/don't use aloe vera, swim when having rads, take tamoxifen during rads. My latest offering is that my onc has said that I can stop having Herceptin if I wish - he feels that as long as I've had 9 weeks of treatment (3 cycles), that is sufficient and that a year is probably too much. But who am I to make that decision? I asked radiographer if I could take a day off rads on Herceptin day, as the whole process takes 3 hours (at home) and the round trip to Leeds is another 3 hours. He didn't think I should but onc has OKed it, so hooray!

Mujum - I still have a seroma and they seemed fine with it - just hope it doesn't inflame it.

Saskia

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Re: Starting rads in April 2012

Hello

I seem to be just sneaking into this thread, scheduled to begin 15 rads on 30th April, planning apt on Monday 16th. I am hoping that treatment will not be delayed since I still have a seroma following MX on 28 March.

I want to get this next stage over so we can go to Greece in late May - and swim, of course. When we saw the onc and BCCN last week (after surgeon had inspected MX wound and approved of healing & mobility), they bothe entered into the spirit of getting me "done" in time. Will ask about swimming when I go to planning appointment.

Have been using aqueous cream on my feet since the docetaxel chemo, which was stopped after 2 treatments because it didn't shrink the tumour, hence the MX. So now I am slathering it one at both ends ... Must say that it's decent stuff to use, doesn't stain clothes, and sinks into skin easily too.

I have a friend in Northern Ireland who has been through all of this, and she tells me that rads are "wee buns" compared to chemo - hope she's right!

Best, Mujum

tommyticklemou
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Re: Starting rads in April 2012

hi there, gail5,

just wanted to say i am wockhardt brand of tamoxifen. only started taking it about 4 weeks ago. at moment it seems ok! a couple of hot/sweating spells in night but thats it. i try and take it after something to eat.

also my GP said he could specify on perscription which brand if i wanted - if i found one suited me better in terms of se's.

TTM xxx

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Re: Starting rads in April 2012

On the subject of parking. We get free parking at most hospitals in Scotland apart from a small number of newer hospitals where they had contracts with private companies in place. Only problem is they can have commuters using them as free park and ride facilities so can be harder to get spaces.

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Re: Starting rads in April 2012

Have just started on Tamoxifen last night. I was a bit worried about the fillers in Tamoxifen as well. GP said they can't state a specific brand on prescription. Went to Boots for first prescription and they only do Wockhardt which has been mentioned as a problem in other threads. Took the chance as didn't want to hold up starting on it while I tried shopping around since I still have tumours to shrink and want to feel I'm dong something positive while waiting on rads. Only had one night so far, but no problems yet.

libsue
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Re: Starting rads in April 2012

Odd isn't how all Health Authorities are different? At my unit we are given our rads schedules on paper, we show the appointment schedules to the man on car park barrier who then issues a free ticket to exit.

Enjoy your weekend free of rads ladies. Mine start on Thurs, I've been preparing my boob by applying aqueous cream regularly. Going to H&B on Sunday to get Aloe Vera Gel.

Wishing everyone a great weekend.

Libby x

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Re: Starting rads in April 2012

Hello everyone, had my fourth rads today,looking forward to my two days off now. On the subject of bras I got some Ahh bras off ebay they have several suppliers on there. They seem to be okay. I do hope you all have a good weekend. I am very lucky because we have free parking, the radiologist just gives you your ticket at the end of each session. I will be thinking about you xx

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Re: Starting rads in April 2012

Hi Chris
Thanks for the bra info - really helpful. I think I will try a sloggi one and maybe order a couple from Amazon as well. Great about the swimming- I will continue for as long as I can I think.
My birthday is on the 24th! So also thinking about how to celebrate in between zaps

Have a great weekend and those of you who have started rads enjoy the days off.
Marian x

JCJ
Member

Re: Starting rads in April 2012

ChocDrop - I *did* get the form signed - just didn't think I'd need it as parking free for 30 mins. Still got the (now useless) signed form. Hey ho More funding for the NHS? 🙂

Sloggi bras don't come big enough for me! At least I've been unable to find any to fit 44E otherwise I'd have had them.

Twinky, I declined chemo, so I can't say for sure what the timing will be, but onc did say RT would start 4 to 5 weeks after end of chemo - (and if that's just the planning session you could add another week?) I'm sure some other ladies who've had chemo will be able to be more accurate/helpful. An end date is so helpful to get through all this isn't it? I feel so much better now I know when the 'last lap' (apart from 2 x hormone therapy + REACT trial drugs) is starting. Love and minimum SEs to all.

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Re: Starting rads in April 2012

Hi

Just a quick to you ladies as you're much further ahead than me. I'm halfway through chemo. What sort of gap can I expect between finishing chemo & starting Rads? Just trying to work out when all this will be over for me.

Twinky x

ChocDrop
Member

Re: Starting rads in April 2012

Hi

Sorry to hear about the 2 mins/£2 parking. What a bummer! As if we need extra hassle, eh? Hope you are ok in the future. Maybe worth taking the ticket and claim form in with you anyway, and get it signed if there is any delay in future?

I've learnt today that the 'Dummy run' next week is because I'm on a trial that's in progress. So, JCJ, I suspect you won't be having a Dummy run - hope so!

So, my treatment is for 15 sessions, starting 23 April, and finishing Mon 14 May (a day into the next week because of Spring BH). I'm pleased I'm not in the category for 23 sessions!!!

I have tried the Genie bra but not too keen. I have a Sloggi bra which I find more comfortable, but very similar to the Genie although without the inserts. What I like about the Sloggi is that it's cotton. The Genie, and others I've seen, aren't cotton so I'm going to stay away from them.

Cheers