Hello - I had a v similar experience - 4 x EC plus 10 paclitaxel and after that they still removed another 2 lymph nodes with tumours and a further tumour in my axillary sac all seemingly unaffected by the chemo. My Onc also said I'd had "a lot of chemo". Ha. Like you, this was the first time I began to think seriously that I am going to die of this disease. You realise the limitations of the treatments. However, although I am a bit scared I am feeling very happy otherwise and focusing on getting on and enjoying my life now that 11 months of treatment has ended (apart from further "cosmetic" surgery later). Unexpectedly, I felt so much better after the operation (mx with recon, although it needs further work). I take it you will have radio as well after surgery given the spread within your breast. Or rather, make sure they give you radio too!! It makes me very angry that your choices are being limited by waiting lists but on the other hand lots of surgeons won't do immediate recon anyway if you are having radio. Although the mx is obviously upsetting, the feeling that the cancer has been cut out is very good! Sending you all my best wishes. Xx
Good luck Zena and any other ladies going to the theatre this week.you will all feel so much happier once its overxxx
I had the lat dorsi flap recon, overan implant. Rads or something anyway made it go very hard. i kept having i fections and eventually had to have it removed. That was my experience...now I wished Id had the rads before the recon...but will never know xx
best wishes whatever you choose.xx love to you💖💖💖
Agree - we need to feel like ourselves. Some people are happy flat and others not. I have quite large breasts so would have found one large breast and one flat weird and inconvenient. I do have to have my real breast reduced slightly in due course to match the foob though. They def won't let you have an implant before rads. For the DIEP or any other own-tissue recon (they can also use tissue from other areas sometimes) you would need a specialist plastic surgeon in addition to your cancer surgeon. I am 47 and stage 3(a) - it's pants isn't it? But 11 months on from diagnosis I finally feel quite well and happy again, although still a bit scared about the future. It is good news that your tumours have responded so well to chemo. Good luck with the surgery. Do feel free to pm me with any questions. Lots of love, Susan xx
Hi Zena - it seems that some surgeons think you should have DIEP recon before rads and some after. I was told there is some risk that the "foob" will be damaged but then again delayed recon after rads has problems too. I certainly know others who have had DIEP then rads. I am coping so far whereas I really couldn't have done a mx without recon. I just hope the foob will be ok. It is pink from rads now but have just finished and hope for the best. The foob is great by the way - it's an amazing operation provided you can live with the tummy scar! An alternative might be to have an expander now and DIEP later?
I really, really didn't want the ANC. However, even after 5 months chemo, 3 live tumours were found in my lymph nodes by the pathologist after surgery. Knowing that now, I am so pleased I did have the ANC! I don't know how big any tumours need to be for the scan to see them? Maybe a question to ask the consultant? It's such a tricky decision - I really empathise with your dilemma. Best wishes, xxx
Hi Zena - could you have an immediate DIEP recon with your mx? I did and have still had rads after. Also had full ANC and got a lot of cording (painful) but it has all cleared up now 12 weeks later and mobility in my arm is more or less normal. You need to do the exercises and get a referral to physio starting about 2-3 weeks after your op. Take care. Xxx
Hope you manage to stay cool through the heat wave, I totally understand how uncomfortable it must be for people recovering from surgery.
It takes a lot of bravery to face breast cancer, as you're doing, I hope you have some support around you to help you feel proud and strong after the operation.
Becca at Breast Cancer Care.
try Heather's Hair...am wearing a false fringe under a scarf and its sooo coolxx
Have pmd u agaijxx
I have ordered some CBD capsules from a UK company to give them a try, they are 10mg ones which they suggest as a starting dose twice daily. I am hoping they don't upset my tummy to much,as I am susceptible to IBS. I did a bit of research on this company and their products,which include a Body Salve to massage into painful areas so I may get some next time. Ann xx
Thank you for all your replies I am seriously considering using the CBD oil, the way I feel is what have I got to lose and hopefully it will keep the neuropathy under control. Ann xx