Well I explained all to the Oncologist today.
The dreadful side effects I have had from the T, and the decision was taken from me. The Oncologist told me that the aim of my chemo is to get me to having my surgery and to do it with me being well enough for the surgery, so she made the decision to stop my chemo as she does not not want to kill me! I will find out when the lump is removed if I need any other chemo.
So for now I am going to enjoy the short time I have feeling normal before my surgery 🙂
Hugs everyone x
Melia - I am so anxious too! I've never had anxiety before chemo, it's really changed me 😞 I was saying to someone the other day it's not the cancer that's ruined my life but the chemo.....I read so many comments from people where they tell newbies that chemo not as bad as you think it's going to be and I want to shout that no it's much worse in many cases.... obviously I don't want to scaremonger but sometimes it is really really awful for some of us. I really hope you are feeling ok and the side effects are kinder to you this time.
Shaznee - good luck with your appt to see the oncologist today. How are feeling? Let us know what decision you make.
Chemo is at 2pm so I will be rushing around all morning to get things sorted in case it hits me for six again but forever hoping this time will be easier.
Take care all and huge huge virtual hugs x
I went to get my pre chemo bloods done today and spoke to a few of the nurses and have decided to do number 5 tomorrow as the oncologist agreed to reduce my dose. Now I'm home and I'm dreading it and kind of regretting saying yes, but on the other hand feel I should at least give the reduced dose a go, but I'll be honest and say I'm doing it because I don't want to let anyone down, especially my children, not because I want to, if that makes sense. No idea if I will do number 6 all depends how this one goes. It's so hard knowing what to do for the best.
I too am seriously thinking of stopping treatment. At this moment I feel that the treatment is as worse as the disease. Had my op, followed by three FEC's, last one finished last tuesday. three T's should follow up as well as radiation and hormone therapy. The first two FEC's weren't too bad: I could still function on my own minimum goals ( walk the dogs twice a day, clean the most and cook dinner ) and sometimes even much better. But after the last one I feel awfull. Mouth is dry and sore all the time. I need to set the alarm clock to have drinks through the night. Left arm where IV's are given is sore I cannot really fully use it. I am so tired I feel like a wreck. My head is a mess, can't get my thoughts together at times. I lost muscle strength, keep dropping things all the time. Fingers turn into fat sausages all the time. Makes it hard using them properly.
I have breastcancer grade 2 stage IIB , two nodes affected. I do not live in the UK but abroad. Treatment seems to be pretty much the same.
At this time my biggest worry is that, despite I would like to get better and live a happy life for the next years, the treatment with it's side effects is causing so much damage to my body right now, and possibly even for the rest of my future. So should it be quantity or quality for the rest of my life?
Hi, I think I'm about to stop after 4 FEC. I've had enough, side effects have been awful, it's completely broken me. I was due to have number 5 a couple of days ago but have an infection in my gums which is agony, on antibiotics and I've decided that is the last straw and I'm done.
last week when I asked the oncologist why I need 6 all she could say was it was protocol but there was no evidence for 6 instead of 4 and that my prognosis was good even just with hormone therapy (My cancer is 100% hormonally positive) I had surgery with clear margins and only 2 out of 13 nodes positive. Grade 2, stage 2b. I feel 4 is enough and just want to get on with radiotherapy now.
obviously there is that slight worry in the back of my mind that it may come back if I don't do all 6 but then there are no guarantees either way and tbh I would rather take my chances now. I'm completely broken and spend most of my day crying. It's a really tough decision to make and I admit I do waver, it's so hard to know what to do without a look into the future.
Thank you scrabble2007,
It is true what they say this is one of the hardest treatments that anyone will go through it effects you physically, mentally and the not just you but all your nearest and dearest. I appreciate your message sending a Big Hug xx
I had to have all Docetaxel that is the T for Tax (and carboplatin and Herceptin). I stopped after 4 but that was because my blood went too low to continue safely. My oncologist said we can consider 3 options, 1 was to reduce the dose, 2 was to allow be longer than 3 weeks and the last was to stop altogether and bring my radiotherapy forward plus continue with Herceptin. I said I would rather stop if it was safe to do so and he said because I had already had the previous chemo sessions at full strength dose it would be OK.
Thank you for your reply, I am going to speak to my breast nurse I will suggest reducing the dose so I can at least function. I just can not bare the though of 3 more cycles with these side effects xx
I too was floored by the T part of my chemo treatment and after the first one did consider stopping, spoke to my Oncologist who agreed to lower the dosage to 75% and this helped a lot, still had SE's but was at least able to function, so I would give your clinic a call and let them know how you are feeling.
Hugs and Best Wishes
Hi, new to posting on the forum, my heads in the shed at the minute and thought I would give it a go hopefully to gain valuable feedback/ advise/ experience from others going through this awful time.
I have grade 3 invasive ductal cancer and I have had the all clear from my nodes so the cancer is totally confined to my breast, I have had 3 FEC and one T chemo and have another 3 T too go before I have the operation. My problem is I am really struggling after the chemo this last cycle has taken me nearly 9 days to recover and it floors me to the point I can not get out of bed. I feel my quality of life is suffering and this I find hard to cope with. I am considering stopping the chemo and just going for the op, i understand why they say I should have the chemo, that i will give a better outcome of the cancer not reaccuring, however the fact it is just in my breast and no were else makes me want to stop.
Has anyone else stopped midway, I am stressing myself more thinking of the next chemo 😞