Dear Debs, thank you so much for your thanks you-s! That made my day. Debs I know things have been hard for you recently but I myself have had very low points in my life and it helps me to know that my words have helped you in some way. Feel free to PM me anytime you need to, even if you just want to let off steam.
Hi to everyone else. I made red pepper/fresh tomato soup today which was delicious. Now we are having a late supper....home made bread and lots of lovely cheeses from France and Spain ( via Tesco!). The red wine aint bad either....hugs to all from snow surrounded Val X
Good evening lovely SRs,
I am humbled by the continuing kindness from you all, particularly when each & every one of you have their own challenges, troubles and busy lives to handle.
Eliza, I hope that you settle in to your new osteopenia drug regime as it sounds quite a handful. Rosie, wishing you well with all those boxes ... here's hoping that the weather isn't going to prevent you from getting to Ross and indulging in a well-deserved few drinks. Nicky, what a day you & your sister had, do hope that having to return to work in all this snow hasn't been too exhausting too. Helen, I agree with you about the snow - its a real pest, I've felt so isolated and cut-off. I hope it will start melting soon and that as many of you as possible will get to the weekend gathering. Sal, I hope that the Aromasin works for you - keeping fingers crossed for you m'dear. Jacq, here's hoping you're able to get to Dublin to celebrate your birthday.
Continuing vibing and positive thoughts being sent to those waiting for results or waiting for results for their loved ones. Huge big hugs to you all (((((())))))
Lastly, Val (SL) thank you, thank you, thank you. I've read such supportive and understanding words on here, but yours have been the most so and they have given me such heart.
Lots of love to you all - keep safe & warm everyone
Well, it’s winter wonderland time here – over a foot of snow and still falling, freezing fog forecast for tomorrow, so I don’t think I’m going to risk the 200 mile drive to Ross. Anyway, I’ve got no chance of even getting my (very low) car out at the moment. I’m sure all those who make it will have a wonderful time.
Nicky, sorry you had such a marathon on Tuesday with your sister and I hope she is coping with it all. Waiting – it’s the worst time. Wishing her all the very best of outcomes.
I hope the outstanding mammo results come soon, but can’t understand why so many people have to wait for them. I have my mammo at the same time as my clinic check and the mammo is reviewed there and then, so I know the results the same day. Simple and very stress free.
Hugs to all who have concerns/problems at the moment. Difficult times for many, but we’ve gone through lots of those over the last couple of years and you know all the storm riders are rooting for you and wishing you well. We’re hanging on to that rope!
I saw the onc last week and was sort of expecting him to just discharge me. However, I managed to get talked into trying another AI and came out with a prescription for Aromasin. I nearly chucked the packet in the bin when I saw the first “very common” SE was difficulty sleeping. I’d only just started getting enough sleep and felt so much better for it. Anyway, 7 tablets down and so far, not so bad, although I’ve had 3 nights when I was awake for ages in the middle of the night, so the jury is out.
Keep warm all. x
Sending out oodles of hugs for those that are in need and fingers crossed and positive vibes for all.
Hope you are all managing in the snow,apart from last Friday we haven't been too bad here,very cold and icey but not too much of the white stuff,but then we are on the coast and looks a different kettle of fish up in them thar hills ! The scone express is still tootling around and am keeping my market stall in the back to weigh it down. Fingers crossed that everyone able to still make the meet,am thinking of fitting a snow plough to the front of the scone express just to make sure I get there !
Right off to make the mince pies.
Big hugs to Rosie and Debs...keep your pecker up girls. Di and Jane fingers still crossed for your mums.
The waiting is the worst Nicky ...as you well know...hoping for the best for your sister. why not think of going part time...that might work out better for you, especially with the troubles you are still having....an option anyway.
Why has the snow come so blooming early. The pennines either shelters us from the worst or brings the worst. Buses stopped, schools closed 3days now and still the snow comes. Daughter and hubby walked to work this week and I've been looking after my grandson...
The East coast and poor Scotland have it bad....but yet it comes. I hope it will start melting tomorrow and Friday....what rotten timing!!!Fingers crossed!!!
take care all you out there....
ps sorry for complaining, its just a small thing in the grand scheme of things....
Deb big hugs.
Eliza glad that the osteopenia has been caught early. I took my sister to the hospital today for u/s on her neck and further excision of her melanoma. It didn't go quite as smoothly as we were hoping. A nodule has been found in her thyroid and the margins weren't clear. She had a needle biopsy done and was sent straight to see an ENT consultant. He will do an endoscopy next week. It wass then to the day unit for the further excision and she was there for 5 1/2 hours! It was then a 20 mile drive to get her home by which time the snow was coming down quite heavily, and 11 miles back home for me. It was well gone 7 by the time I got home and I'm shattered. We now have another week of waiting for biopsy results.
It's back to work for me tomorrow. 😞 I could really get used to being a lady of leisure.
Looking forward to the weekend.
Good to hear that you're feeling well, Val - and that the weather is doing you good! Thanks for the bisphosphonate tips. I'm going to start it tomorrow.
Good plan to stock up on the heavy shopping, Rosie.
Love to all,
Hello Storm Riders,
The snow is on-going here.....deeper and deeper....
I phoned the hospital today as I haven't heard when I have to go for my MRI Scan. The radiologist was really helpful and kind and she looked up the computer and it will be on the 13th Dec. I am feeling resonably well just now probably helped because I cannot tire myself out as I cannot get out of the door! My kitchen and bathrooms are spotless as are the kitchen cupboards and the worktops and all the floors! Every cloud has a silver lining....I wouldn't have bothered so much with the cleaning if the snow wasn't so deep stopping me froim shopping!
Lily I hope your older doggie is recovering. What a time for this to happen when you have your puppy to look after too.
Rosie have you got to the end of that pile of boxes yet? Eliza I take the tablets Bondronate every day for my Bone Mets. Very important to drink it with a large glass of water and remain upright for an hour. Also waiting 30 minutes before you swallow any other pills. You must drink water not tea or anything else with the pill.
Debs, I am sorry you are having this set back in your life but you know that it is will turn out to be a very wise dicision for you when you look back. It will be hard but you sound positive and I think you will do well on the course you would like to study. Hugs for you. My younger daughter moved back in with us after a break up, sold the house they had, had large debt to deal with, had depression.....and now her debt is sorted and so is she and there is a new man in her life. She hasn't returned to her job but the difference in her is lovely to see. You will get there. Be kind to yourself. It is ok to weep too when you need to.
Jacq, I hope you enjoy your birthday treat in Dublin. I hope the hole is mending and that you will be fully recovered from your op soon.
Love to those I have missed. Keep warm, love Val
Big, big (((hugs))) coming through the ether to Jane and Di for you worries with your mums, and to Debs for the whole transition thing. Fingers etc etc crossed for Eliza and Jacq on the results front too.
Hope Steel has plenty of supplies stashed away, if she is snowed in as well as the other Scots!
We are getting off incredibly lightly weatherwise at present - a scant inch, but it keeps trying, so too the car and stocked up on cat litter and cat food this morning (as both items too heavy to carry if I go to local shops on foot).
Right, back to unpacking yet more boxes! Love to everyone I haven't mentioned as always.
Thanks for the good wishes - yes, this year has gone so quickly. Hope you don't have too many more posts to go before hearing good news, Jacq.
I think the weather is due to have improved by 10th Dec weekend, so you should be fine. What a lovely birthday treat.
Val, one of my old school friends says that they have masses of snow in Perth. I love the image of Sleigh Riders! We don't have much here, but everything grinds to a halt and driving anywhere takes at least twice as long. I'm working at home today and hopefully will get out on my skis at lunchtime for a quick whizz round the block!
I saw my Gp this morning and now have Alendronic Acid and Adcal-D3 to add to the pill box. The good news is that the scan shows only just into osteopenia at my spine and just a little more at my hip so the hope is that catching it early and starting treatment will off-set any loss of bone density due to the exemestane. She hasn't put it on repeat yet in case I have problems with it, but if I'm okay she'll add it next month. Just have to decide what day of the week to take the bisphosphonate...
Love & hugs to all, especially Debs and Jane,
A quick one to say thanks very much for the hugs and the confidence boost. Just posting to say that I'm thinking of Jaq & Eliza and hoping those results come back the way we want. Would like to be able to wish for a rapid result, but those always worry us too ...
No snow here (yet) but hope those who have it are safe and not having to take any crazy risks to get out & about.
Take care all
Hi all...yep its a lot of snow here now, schools closed etc. Not as bad as you scottish lassies....yet, but heading that way. Is their any snow near the venue we are going?
Jane and Di, fingers and all crossed for your mums, hope for the best outcome. ((Hugs))) to both of you. Good luck with your op as well Jane. And Di give me a ring anytime, been thinking the same thing, its just getting round to doing it. My brains lying dormant, so you can 'pick' it any time hehehe.
Jacq and Eliza good luck with your results, time has passed quickly...all good. Jacq enjoy Dublin, assuming the weather doesnt stop you. I went there for my 50th, its expensive, but we had a nice time. Glad to hear your wound is getting smaller...
Debs...what can I say, heres the biggest group hug ever (((((((((((((((((((hugs)))))))))))))))))))))))not the same as a real live one love, but given in the same spirit... take care ..
SNOW SNOW AND MORE SNOW. so bad that ALL the schools are shut as well as the airport. I have a cousin flying up from Exeter tomorrow but looks like their 4 day break Christmas shopping may be off. Thinking of all you storm riders....it's more like sleigh riders here. Hugs to all, Val
Good luck to both your mums - Jane and Di, and for your little op, Jane. Glad to hear your shoulder's improving Nicky.
And good luck to both of us too, Eliza - I got squashed last Monday, so now have giant butterflies (or maybe buffalos) diving about every time the post arrives.
Good luck too for whatever you decide on Debs, sure you'll make the right decision.
Hope you're taking deep breaths now, Rosie.
Also hope all away at the weekend manage to get there safely and have a BRILLIANT time. My girls have booked for us to go to Dublin for my birthday treat on the weekend of 10th Dec., hope the snow situation has eased by then (not that we've had any here - yet) - but you know what my luck's like! (Still having regular dressings for the hole, slowly getting a bit smaller.)
I know that those snow photos are gorgeous, but it's a real pain for day to day stuff to carry on as normal .... so stay safe everyone. Love and hugs to all, xJacqx.
Prayers, thoughts and positive vibes for your mother and for you, Jane. CA-125 can be raised for a number of reasons. I think that whenever cancer is a possibility you get seen by the specialist nurse because they like to be sure that everyone can contact them if they don't understand test results.
And for your Mum too, Di. I do hope she gets good news from CT and colonoscopy.
Good to hear that the x-rays showed nothing sinister, Nicky. Hopefully the improvement will continue.
Debs, you will be in our thoughts at the weekend (as will everyone who can't be there this time). Hopefully you will find a way to pursue your dream.
I am off for my Year 2 mammogram shortly.
Love to all,
Good morning everyone,
No snow here, but forecast for overnight, so will be heading off to top up on provisions enabling me to hunker down and not need to leave the flat till it clears.
Jane, oh my dear ... loads & loads of hugs to you & your Mum. I hope that your op goes really smoothly this week and will, of course, be thinking the most positive of thoughts for your Mum's scan and subsequent results. Di, the same applies to your Mum - the most positive of vibes being sent your way for her colonoscopy and results. Nicky, so pleased to hear that your ortho appointment went well and will keep everything crossed that the injection proves to be a long term solution so you can avoid further surgery. Good luck with your return to work this week too. Rosie, thrilled that probate sorted and loved your FB post about your Mum using her influence to sort out the weather for the move. I hope that life can now settle down somewhat for you and I think you have more than earned your inebriation at the upcoming weekend. Do take care as the adrenalin must've been rushing for quite a while now and you need to avoid a crash 'n burn scenario ... big hugs to you.
I so wish I was able to attend the meet up next weekend, the need for a real life group hug feels huge, but I will be with you all in spirit and hope you have the most marvellous time. Thank you all for your continuing support and kind words. My emotions are very up & down, some days feeling strong and looking forward with enthusiasm, others just an emotional mess. I now realise that its not just a reaction to the break-up, but that he was such a marvellous support with everything else going on in my life that the fear over those things is now flooding in. I am confident that my future plans are sound, but I hate the thought of giving up my independence - it feels such a backwards step. I'm no longer sure I can indulge myself in attending university as will really need to secure my financial future, but will be making no rash decisions until I have investigated ALL the options. For those who have asked, my dream is to study Psychology and to train as a counsellor and you can be assured I won't give it up unless there is no other option.
Lots & lots of love to you all
I hope those of you 'up North' are keeping warm, we had enough snow here to make things look pretty for a while but nothing like the photo's I see Theresa has posted on FB!
Nicky, so pleased to hear they found nothing sinister, I know you can't help worrying. I've still no date for the surgery, thank you all for your kind thoughts and hope the injections work for you Nicky.
Debs you have a great attitude to things, great idea about training and a good idea to move back with the folks while you sort things out.
Jane I'm sorry to hear about your Mum, I can symapthise with you as we are going through the same with my Mum. She beat bowel cancer a few years back but now has a lot of familiar symptoms so we took her for a CT scan last week and a colonoscopy is planned this week. Will be thinking of your Mum too and hoping we both get some good news.
Sal, how is the job hunting going? My OH has been applying for jobs but there is very little about, there was an ad for a Santa a while back but as he is 6' 3" and very, very slim he would need too much padding!!! Ho Ho Ho 🙂
Pleased you have got your Mums affairs sorted Rosie, what a year you've had ((hug)).
Helen how are things with you, I really must give you a ring soon and pick your brains about the recon.
Have a good Sunday all, thinking of each and every one of you and hoping you're all doing well.
Jane - big hugs for you and your Mum. I'll be thinking of you both.
Rosie, thats good news about the probate.
Debs what re- training are you hoping to do?
I'm looking forward to hearing about the Lebed method.
I had my ortho appt - and saw the consultant(who was very nice!) without having to ask. I had several x-rays done and the cons went through them with me. I have some thickening of one bone which is consistent with the problems I'm having but nothing suggestive of anything sinister. He also had a good check of lymph nodes which were ok. He injected my shoulder and it has felt so much better since - I could do up my bra this morning without nearly crying. I just hope it lasts or I'll be following Di to the operating theatre - and how do I explain even more time off sick to work! Talking of which I go back next week 😞 I've really got used to being a lady of leisure.
I hope that everyone is keeping warm.
Jane, I'm so sorry to hear this news, but do try not to think the worst. It's all too easy to imagine things are worse than they really are. I think we were all guilty of that at times when faced with our own diagnosis. I remember all too well the visits by Captain Paranoia a 4am. I don't know about you, but after they took my biopsy I was seen in a separate room by the BCN. My diagnosis was definitely not certain, but I was treated in the same way as if it had been. Remember also that today treatments are very much better than they used to be and how successful our own treatments have been.
It's also bad timing when you have concerns of your own, but I'm sure you'll be fine and your Mum will be in good hands. I'm not a religious person, but I will be thinking of you and your Mum and sending positive thoughts to you both. And you know we don't mind you off-loading. That's what we're here for. I just wish we could all be with you physically to give you a big hug.
P.S Thanks for the supportive messages re my small (tiny) op next week. Least its taken the edge off that now.
Rosie, good news on the probate. I remember what a headache it was with my father, so I'm pleased you can at last sort things out.
Di, sorry to hear you are still having shoulder problems. Hope its soon sorted and then you can get on with having your recon. If it's not one thing, it's another! I'm sure your spring after the winter will come soon. (((((((((hugs))))))))
Debs, good luck with the uni idea and hope it helps to take your mind of other things. You can't beat having good friends in a crisis. I'm glad they are looking after you.
Nicky, hope all has gone well with your app.
Sorry I can't remember anything else I have read. I'm a bit preoccupied at the moment. Hope you don't mind me off loading, just think it helps to write things down.
My dear mother is being investigated for ovarian cancer. She has been poorly for a few months now (no appetite, losing weight, constant pain) gradually getting worse. Some blood tests last week have revealed her CA125 is high. She was then seen at the hospital on Mon. The consultant has told her this indicates ovarian cancer. She will have a scan on Tue's and then we will get the results week on Mon but it isn't looking good. When they told her, she was then sent in another room with specialist nurse who gave my mum her phone number. I'm sure that can't be normal procedure for just thinking she may have cancer. To say I am devastated is an understatement. Trying to stay possitive and hoping with all my heart, its something else. Your prayers would be much appreciated.
Love to everyone
Hi girls....great news about the probate rosie...now you can get get on with things...
Just have to ask Eliza...I feel that I've heard this word before, but is it a course you and Sal have been on....Lebed Method? Just nosy.....
take care all
So pleased to hear that the Probate is through at long last, Rosie. Hopefully it will be all go smoothly now.
There hasn't been a London meet since the ice-cream one, Val. The next one is in January, when it will be afternoon tea.
Well, Sal and I had a very busy weekend (Friday morning to Sunday afternoon) in London at the Lebed Method instructor training. We've completed the practical training and assessment and now just have the open book "exam" to do. It was exhausting, but it had some fun moments and we all went out for lunch on Sunday after the practical assessment was over.
Love to all,
Hi Rosie, I am glad they have got it all sorted out at last. You can then get things done and out of the way before the end of the year. Pleased for you. Hugs Val
Just wanted to share some good news - heard this morning that I have, at long last, been granted Probate (re Dad's affairs, that is -Mum's were totally straightforward).
This means That Perishing Bank will finally be able to open the Executor's account, and I should be able to write all the necessary cheques... just in time to get stuck in the Xmas post - lol!
Hi folks.....Glad you are being looked after Rosie and hopefully pacing yourself. You could certainly do with letting your hair down, so I think we SRs can help you a bit with that, at the meet!
Di poor you and your shoulder. And disappointing for you that your recon has been put back. Heres fingers crossed for a quick turnover for your shoulder being sorted, then you can get on with the other stuff. Have you thought anymore about living on a longboat?
Debs... you sound to have some really good friends there, all looking after you. In hard times, thats when you realise who your best friends are. You also sound to have good plans and a great goal, going to uni. You keep that goal in mind, it'll help pull you through the worst. what retraining would you do at uni?
Hey there Nicky...what a nuisance with your appts. You tell em girl. Great news about your mammo being clear....
Hi Lizzie...busy as ever I see. How do you fit it all in missus! And how about making more time for your lovely horses and you and less for work...is that possible?
Hi there Sal...I looked back on the postings because I kept hearing about this special duvet of yours. Wow its impressive...especially the connections to nasa. Does it help you to sleep, make you feel 'spaced' out so to speak....get it....eh well, glad you are sleeping better love.
Hows your S.i.l. Gennie..hugs...
Heres to everyone else....take care.
Just want to send you all my love-I wish there was a meet I could come to.Please copy me into any future plans-did I miss out on a London one?
Crumbs, there's so much going on it's taken me 20 minutes to catch up, and now I can't remember a flippin' thing...
Thank you all for your thoughts/prayers/kind words over the last couple of weeks, they were much appreciated. My half-sister and her hubby are also being brilliant, both in a practical sense (taking 8 huge bags of Mum's clothes to the charity shop... which will now need to open a new branch!) as well as psychologically/emotionally (reminding me to eat, take naps, not tire myself out and so forth) - bless 'em!
To all those with good news/clear results - yeehah!
To all those with worries, whether medical, personal or deriving from sheer administrative incompetence: big hugs, and a promise that Calam is still doing her share of holding onto the rope dangling into Black Canyon (even when her alter ego is busy packing boxes and arguing with officialdom).
Love you all, and really looking forward to the next Meet, when I shall probably get Very Very inebriated...
Sal, I so wish I could join you next month. Unfortunately I have a family gathering that weekend for 6 family birthdays, one of which is my daughter's, so its just not possible. However, I've decided to proceed with stage one of my plan for my new normal which involves getting my financial life under control. In January I will be moving back to my parents (large house, plenty of space so I can have a couple of rooms to myself). I had planned to do this on a timeshare basis, with part of every week being spent with the guy, but my girlfriends have assured me that I have boltholes with each of them where I can get away most weekends. So, I shall start paying stuff off and then saving to give me some options for the future. At the present I am looking into re-training which would involve going to university. The prospect excites me, but I'm still not sure if its practical yet ... but its my dream and I need one to work towards at the moment.
Di, so sorry to hear that you will have to surgery on that shoulder - but more so that it continues to negatively affect your recon. Hope the wait isn't too lengthy. I agree with Lizzie that its wonderful to see this thread appearing higher up on the newest posting list - it continues to mean so much that you are all here and that your support and understanding is available. Nicky, agree with Sal about reading on the internet and hope the appointment next week goes the way you need it to.
Love to you all for a good weekend - I am off for a long-planned girl's night in with lovely food and lots of fizz.
Yabba dabba doooo. So glad for your good news Clare. Time to take a deep breath, relax and look forward to the meet.
Anoth yabba dabba doooo for Granny Jane. Such great news for you. Don't worry about the polyps - you'll be fine. Casey's a tough nut who can cope with anything!!
Debs, as Lizzie said, there's not much I can add. These things happen and often for a reason, which we don't discover until later. I'm jus glad you've got friends supporting you. Make sure you do things that make you happy and maybe consider joining us for the meet next month? I'll give you a lift. Go on, we'd love to have you join us.
Shame you need surgery for your shoulder Di. I sympathise. You don't realize how much you use your shoulder for until you have problems with it. I hope this will finally sort it out for you. Why do we have to put up with these things for so long before they are dealt with?
Lovely to hear from you Lizzie.
Nicky, DON'T READ THE STUFF ON THE INTERNET! And give them hell when you finally get seen next week.
Eliza, love your tale about the letters - you're a woman after my own heart. Can't stand it when I get letters that are littered with spelling mistakes etc. Mind you, it would help if I received copy letters. I've given up now, as I always had to ring to request a copy, despite having signed the form requesting them right after my dx.
Well, a busy weekend ahead. Love to all. xxx
Oh, so good to log on and our beloved thread at number 1!! - well, in that it says we are still all here for each other - when needed.
And if it does slip down the page - we know that we are all there in the background.......ready to jump in when a SR needs the hand on the rope!
Clare - over the moon with your fab news, good on Tallulah! Get that dress on and sing away, even if just in spirit! Result - my darling!
And, another fantastic result, Granny Jane! Big congratulations, lots of love xxxx And, as already said by others - sure the polyps are going to be sorted without a problem - a blip you don't need / deserve - but you'll be fine. Take the GA, I know you don't like the idea - but you'll be fine, over and done with before you know it.
Nicky, not good, having to chase up appointments, and especially when you know why you want to see cons not physio!! But, missus, just stop that looking at bone mets - you know that's what you would tell your patients off for!!
Diane, sounds like surgery is coming your way for the shoulder - at least it'll sort it out - take care, love xx
Debs - not a lot I can add - just reiterate everything already said. He's not doing things for the right reasons, quite possibly making very dodgy decisions, but, if that's what he is going to do, he's going to do it. You deserve better / stronger etc etc- and right now - YOU are number one. Look after yourself - do things that make you feel good.
Sal, duvet sounds fab! Want one!! Sandra - cakes!! - same comment!!
Life still going on for me - work = busy!! Horses = Fab, but don't have enough time for them.
Hello to everyone else - you know I'm thinking about you all even if I'm only here occasionally,
Love Lizzie xx
Sending love and [[[hugs]]], Debs. If he won't say goodbye it sounds like he knows he is doing something bonkers. But you need to take care of yourself and it is good to hear that you have such good friends who will keep you on the self-preservation track. And we are all here for you too. Thanks for the vibes for Gerry.
Sorry that the cortisone didn't do the trick, Di. Hope the wait isn't too long.
Great news about the mammo, Nicky, but isn't it thoughtless that we have to chase this up? Anyone with any degree of intelligence would know just how much we all worry until we have the results. Mine is on Monday 29th, and I have finally got an appointment to see my GP the next day re the osteopenia. It isn't surprising that there are so many missed appointments when they change things at such short notice. good that you stuck to your guns re the appointment, but not so good that you have now worried yourself. No point in saying "don't worry", but until you looked it up, your professional judgment was NOT bone mets so perhaps you can reclaim that thinking.
I phoned the hospital today to chase up the letter and scan report for me GP (considering invoicing for my administrative services!). I took the opportunity to ask if the letters were typed offshore as there were so many mistakes in it. The secretary was a bit put out, but when I started on the list of mistakes she went into panic mode and said she would get out my notes and re-do the letter and I should destroy the one (actually they sent another copy of the same letter at the weekend!) I have! I said that there was no need for that but just send the correct stuff to my GP, but she insisted she would send another letter. Needless to say I am not destroying the original ones - far too good evidence for that - she must think I am as stupid as ... yes, well. I'm sorry to say that I rather enjoyed myself.
Love to all,
Unbelievable! I've had a letter this morning to confirm the change of my ortho appt from today to next Thursday and it's to see a physio instead. Worse still it's to see someone who was a student of mine! I phoned to say I need to see the cons and they kept assuring me that a Dr would also be in clinic. Eventually after I kept telling them that I am a physio and know what the extended scope practitioners do they said to keep the appt and just ask to see a Dr instead of the physio when I get there. I even tried the cancer card and said that I'm worried about bony mets but that didn't work. Unfortunately I looked up about bony mets on the net and have just worried myself even further. I have that horrible knot in my stomach again.
On a brighter note I chased my mammo results this morning and all was ok there.
Di have you any idea when the op will be? Hope that you don't have to wait too long.
Clare, what great news - dropped in hoping to hear exactly that, so am a whooping and a hollering with you!
Debs, sorry to hear your news, hope you're coping okay - so pleased to hear you have good friends there for you, take care.
Sandra,- hope your Christmas cakes sell like hot cakes (groan!!) - just the thought is giving me the tummy rumbles.
I am on the waiting list now for shoulder surgery as the cortisone didn't really do the job. I knew deep down it would need it, but it's messed up my reconstruction plans as they won't start that until my shoulders sorted, hey ho - looks like I'll need a season ticket for the car park ;-).
Great to hear from you Carole, Congrats to Granny Jane - fingers crossed for good news from you too. Sorry that I can't remember everything else I was going to comment on but am thinking of you all and sending the old SR vibes through cyber space to all in need of them, big hug to all, Di xxx
Clare that is such fantastic news.
Jane cervical polyps are very rarely anything sinister. I have had several over the years and infact had one which was mentioned on the path report after my hysterectomy. I've had them removed in the past but not had a general for them. However it is not pleasant and I've very nearly fainted which is apparently quite common. They try to avoid GA's so if you're being offered one it'll be for a good reason.
Debs I'm so sorry that he's decided to go. Big hugs.
Oh Clare, what a big relief, I'm sooooooo pleased for you m'dear. Big big big congratulations to you Jane and I'm so sorry to hear that you've been hit by the polyps thing. A friend from my other forum had the same issue, but with a positive outcome, so I'm keeping everything crossed for you to be likewise. Sal, I'm loving the sound of that duvet ... may have to start putting some pennies away with that in mind. Eliza, glad that your friend is going well with chemo - vibes being sent in his direction via you. Victoria, love the sound of your Christmas plans ... and I do hope that the counselling is proving helpful.
Thank you all for your kind and supportive words, they are so appreciated. He has gone and I couldn't agree more that its the wrong decision - even if I wasn't personally involved, I'd think he was bonkers to go back where he's been so badly treated. But ... love is blind and maybe there is unresolved business, maybe the pull of his young teenage children is too strong ... I don't know. He doesn't want to say goodbye so I am having to extricate myself which is proving very hard. Luckily I have some wonderful friends who are determined that I will put my own self-preservation first in this instance. Hey ho ... another post-breakup Christmas ahead. I shall have to make sure I get some of that StormRider grit and determination so that I'm not a wuss.
Sandra, love the idea of all that mixed spice ... might have to do a bit of baking myself, as that sounds a positively uplifting smell.
Take good care all
Oh Clare I am so so happy for you now you can relax and enjoy Christmas.It doesnt seem like a year since Ashbourne does it?I am marking again-last lot till May 🙂
take care my loves.
Brilliant news, Clare! So pleased to hear it.
Yes, Sandra, definitely time for a group hug and all those positive SR vibes. And thanks for the mixed spice - just sniffing for it now!
Hopefully it is nothing serious, Jane, love and hugs for the waiting. And, yes, we know what it is like. Remember we are all here for you. I haven't seen my GP yet as she is on holiday. I couldn't even book the appointment last week because of this ridiculous can't-book-more-than 2 weeks ahead policy! As I've been away at a conference since Sunday evening, I will have to try to get an appointment tomorrow for when she is back. Mind you, when I spoke to the surgery she hadn't received her copy of the letter or the scan report and they won't chase it up so I have to do that too! I feel a complaint coming on ...
Vibes heading towards you too, Debs. What a difficult situation for you. You too, Victoria. Remember that we are in grabbing distance of the rope to help keep you out of the abyss. I'm already looking forward to reading about the hotel in Banbury.
On Sunday I saw my friend who was diagnosed with bowel cancer that had spread to his liver. He is doing well with the chemo all things considered and there is some evidence of shrinkage of the liver tumour. We were talking about Black Canyon and I'd already told him about the SRs ready to haul each other out.
Duvet sounds interesting, Sal. Yes, you're right about the risk business. Looking forward to seeing you on Friday.
I'm rather hoping my curling will improve, Nicky, but not holding out too much hope!
Love to all,
Oh flipping , double somersaulting, tripple yee ha's to you Clare. So thankful it isnt anything else. Bet you are ready to do a bungee jump!!! well maybe not. Just sent you an e.mail then came on here....der! should have done it the other way round!!So pleased for you love! What a relief!
Aww Jane...a waiting game for you love too now. Well I'm gonna keep my fingers crossed for you that the polyps are just fine. My OH has just had polyps taken from his nose and sinuses....and he's doing just fine. We are here for you love. Feel those SR vibes.
CONGRATULATIONS MISSUS, at last, well a couple of months late, but yeeha you are a grannyma as my grandson calls me.Bet she is bootifull, good enough to eat! take care love.
Nicky I hope that your man, makes the right decision. You are one special lady, I'm sure he can see that. big big hugs love, gentle, fluffy thoughts coming to you over the airways. you take care now.
Hope you are looking after yourself Rosie...pace yourself love.
what a beautiful day its been today. Hope we have many more of em!
take care all
Well a great big Yeehaah, whoop de doop, fandabee dozzee - The lump is just an oil filled cyst formed as a result of the surgery. I had an ultrasound this afternoon and the consultant radiologist confirmed that is what it is. I am just so relieved I had convinced myself it had to be suspicious, but my worries were completely unfounded.
Hi Eliza - what a pain to have to be on more medication, hope you are OK.
Hi Debs - I don't know what to say really but any fella should be proud to be befriended by you.
Jane - way to go girl - many congrats and you are quite right to be a proud grandma - have you done any baby sitting yet?
Love and Hugs to all and so may thanks for all your thoughts and messages.
So much to catch up on again.......
Sorry it's taken me so long to let those of you not on F.B know, I became a granny on 24th Sept to a beautiful baby girl. She was 9lb 8oz and has gone on to gain a further 14oz. So, as you can imagine we are all thrilled to bits.
Rosie, I was so sorry to read about your mum. Sending you special hugs, at what must be a very difficult time.
Don't think you'll have a problem selling your Christmas cakes, Sandra. If they are half as good as your scones they will be delightful.
Positive vibes for you Debs. Hope things settle down for you soon.
Clare, thinking of you and got everything crossed for your up and coming appointment.
Eliza, there's always something, isn't there? Hope things went well at your GP appointment and that you have been able to stay on the Aromasin.
Victoria, rather you than me. I wouldn't get a wink of sleep thinking about haunting. Hope you have a fabulous time though. And sorry to hear you are still struggling with all this crap!
Great to hear from you Carole. Have you got planning permission for those expander's? tee hee. Hope the cholesterol is coming down nicely with all the sacrifices you are making. I love my cheese too and would go mental if I wasn't able to have it at least 3 times a week.
Well, I'm back in the waiting game...... Since June this year I have had 3 quite painful periods. They have stopped again now but mentioned it at my last onc appoint and was sent for a colyoscopy. I have been today and they have found polyps in my cervix. I have to have them removed on 3rd December and they will be tested for cancer and so the wait for results begins again......... I have no idea why but the consultant says I must have an anesthetic to have them removed???? As you all know, I am frightened to death of being put to sleep, so worrying times ahead. Probably nothing but you all know what its like.
Love to everyone
Just looking to see if there is news from Clare but not yet.
Hi Carole-I'm waving to you!
I'll pop back later.
Debs big hugs and positive vibes coming your way. Must say that I agree with Sandra and if he's going back for the teenagers it won't be long before they're leaving home for their independence.
Sal the duvet sounds wonderful.
Carole thanks for the advice about the cholesterol. Mine was checked recently and was 4.9 which is higher than it has been in the past. I now have an explanation. Hope that the expansion continues ok.
Well it looked like I would be running from hospital to hospital on Wednesday as my sister had an appt for further excision in the afternoon at one hospital and I had an ortho appt for my shoulder at a hospital 20 miles away. I was going to have to throw her out the car for her appt dash to mine and then go back and collect her. However my appt has been cancelled until next week and hers has been put back until 30th November - my first day back at work! I've had to phone and ask for that day as annual leave - I made sure to play the cancer card for the first time. Thankfully they hadn't started to book patients in for me otherwise their appts would have had to be cancelled too!
Eliza I hope that you can stay on the Aromasin. For very selfish reasons of course I'm glad to hear that you feel better on it. I used to go curling when I lived in Canada and used to spend a lot of time on my backside or face saying hello to the ice. Never did seem to improve.
I'm in the real book camp but as I've never tried an e book I may be a little biased.
Group hug I think for the Storm Riders, my absence been due to mince pie fatigue. Don't seem to get on here or facebook much to catch up at the mo.
Rosie,I'm so sorry to hear of your loss,you have had such a time of it these past two years,here's hoping that 2011 is going to be a good year for you.
Debs,positive vibes for you,sounds like a nightmare,but if they are divorced surely him going back is not a step in the right direction for anyone in the long run.Look after yourself,I think emotional stuff tires us out more than the physical.
Hugs for you too Victoria,hope you can see light at the end of the tunnel, it helps me to look back at where I was and look at where I am now. I think we will always have a back of our head niggle but I try to live for the moment and look forward to what's ahead.Am taking huge delight that the sun is shining today and there are a load of birds out feeding on my bird table!
That was interesting to know re the cholesterol,thank goodness for us sharing info,we wouldn't find out half these things otherwise ! Hope you finish with the expanding soon,sounds like a right pain,literally !
Glad to hear of your duvet purchase Sal,can't put a price on a good nights sleep !
Hope you are ok after your bit of a shock Eliza,something else to get your head around but at least they have caught it early and hopefully manage it.
Hi Helen,how is that bench of yours? Was just thinking about it the other day !
Hope time passing quickly for you Clare til your appointment,big hugs.
Whoo hoo Lizzie,nice to see you,hope the stables are doing well.
I'm in the proper book camp as I love the smell of them ! Catch me in my local bookshop sniffing at the covers ! Think there is probably a medical term for that ...lol,however , do appreciate the absoulte handiness of the ebook.
Well,my kitchen heaving with Christmas cakes at the mo, smells heavenly,just need to sell them now and remember to feed the cakes with brandy and not myself !
Love and mixed spice
Sorry for my continued flakiness in posting ... life has been a bit of a roller-coaster.
Firstly, I wanted to say huge hugs to Rosie - I can't imagine the emotional impact of such a double loss. Do take as good care of yourself as you are able m'dear, although I know there must be such a lot to get done. Also hugs to Eliza - what a shock and what a pain in organising a GP appointment so that you can start to deal with it. This whole appointment system is so ill-thought out in such frustrating circumstances. Clare, continuing hugs to you whilst you're waiting. Lastly, Nicky I do hope your sister's treatment progresses smoothly and successfully.
Great to see so many posting again - especially those for whom the ride to Normality is generally moving forward. I'm a real book person too ... am interested in the idea of the readers, but don't travel sufficiently to make it worthwhile.
I'm in the midst of a bit of a meltdown. Been seeing this guy since just before diagnosis and had moved nicely into the serious making plans for our future phase. He's been a tremendous support throughout and has been helping me decide what I want my new normal to be which involves a two year period of change and upheaval. I've not just been in receive mode, but have been helping him move into a new flat and office, and been working with him organising and running his business. However, we are now apart as his ex-wife (who divorced him) has asked him to return home. There are teenage children involved and so it is likely he will do so, although he is still making the decision. I am devastated, totally numb and am overwhelmed by how much life can change in just a few days. But I have to go back to work and do all those other normal things that are expected of us as mothers/daughters/sisters and so I'm drawing on that StormRider determination and strength. So whilst not needing your vibes for anything health related, would seriously appreciate them anyway.
Hello SRs, and sorry for my absence again which is due to a combination of work, house improvements and still having a difficult time mentally coping with the disease. Every so often (at least once a day) I feel as if I'm only just out of the abyss and it is so easy to fall into it again.
I'm another proper book person. I see people reading the e-ones on buses and trains and they look, well, just too electronic for me. I like to flick through the paper pages - and cheat if I want to by taking a glimpse at the last page..
I shall go and get my cholesterol checked again Carole, thanks for the advice on this, as I was always on the borderline of having raised levels. Sorry the expanders are expanding only slowly - eventually they may try to finish the expansion in one go they did with me and it felt uncomfortable for a day or so and was then fine.
Rosie, so sorry again for your double loss and how so difficult it must all be for you at the moment. (((Hugs)))
Hope you are okay with the tests Claire.
I've just booked a Christmas break in Banbury in a hotel next to the cross. The hotel has secret staircases and tales of hauntings associated with it. Apparently Jonathan Swift once stayed there, though I'm not sure he's the source of the hauntings.
Thinking of everyone - and promise not to leave it very long until i'm next on here!
Just a quicky to share something with you. I decided I needed to replace my very old duvet and in my research I came across a Climarelle duvet. This is NASA technology and the fibres detect when you are too hot and draw the heat away from you. When you cool down, the fibres release the stored heat. Anyway, I ordered one and it arrived about 10 days ago. It's brilliant! I don't get anywhere near as hot as I used to and when I do have a flush, I cool down in a matter of minutes. Bliss!
The duvet wasn't cheap, at over £100 for a king size, but it's worth every penny, as I'm finally getting enough sleep.
Good to hear from you Carole, but a shame about your cholesterol. I would suggest low fat cheese, but having tasted it once, I'd personally rather go without.
Eliza, I'm sure that was a shock for you, to hear you had osteopenia, especially when you haven't thought you were at risk from it. However, if the bc experience has taught me anything, it's that just because you're not in the at risk group, it doesn't mean it won't happen to you. I'll see you Friday and we can catch up.
Hi, Helen, yeah, isn't it just! Bisphosphonates are bone strengthening drugs. They are often given to people with bone secondaries and also to people with osteoporosis. I think Victoria takes
one ???? Any tips from those who do/have would be welcome as I think my onc is leaving it for me to discuss with my GP so I'd like to go into the conversation well-informed. BCC do have an factsheet, but it would be good to get some real experience. I'm hoping to stay on Aromasin; I really do feel so much better on it.
Hija, Carole! Yes, if it hadn't been for the study and through it the switch to Aromasin, I wouldn't have known until it became a problem. And I do tend to fall a lot when I'm curling! Glad to hear that you are expanding, albeit slowly! I know what you mean with the cheese, but I think we've had this conversation ages ago. It is difficult though; I've cut down on diary since dx, but has that contributed to the bone density loss? How do we balance all the competing ideas/theories? I now only eat cheese or drink wine at the weekends (Friday counts as weekend!), although this may be challenged next week as I'm at a conference and many of us fear that our funding may be cut - I can foresee some late night conversations in the bar, which are challenging when you're on hormone therapy!
I don't use ebooks when I'm at home - although I do use the digitalised historical ones for study purposes (especially if the original is in New York!). I love reading a good book in bed (or in the bath come to that!) and it is always a paper one. I also read 'real" books at my Mum's house. But for traveling when luggage is limited, I wouldn't be without ebooks now.
Love to all - especially Rosie & Clare,