Going through genetic testing and being given a diagnosis of an altered gene can be daunting. It may mean having to make difficult decisions around preventative treatment and it can be difficult to meet others in a similar situation. Our Someone Like Me service – where trained volunteers offer phone support – now has a new team of volunteers made up of people who have had a genetic diagnosis. They can speak to you over the phone and offer a listening ear, an insight into their experience and the decisions they made, practical tips and emotional support. Jo is one of the team and has told her story in a blog post on our website.
If you’d like to talk to one of our Someone Like Me volunteers about dealing with family history, genetic testing and genetic diagnosis: