Would be lovely to meet up before Christmas. I am free on Mon 5, Tue 6 or Wed 7 Dec from 2.30pm - can come across to Gunwharf. This will be week 2 into 3 on the Kadcycla cycle so I should be pretty ok, fingers crossed!
Love Helen x
Hi Hants ladies.
Well, after a roller coaster few weeks I'm hoping we can sort out another date to meet up. Several of us have had changes to our treatments which of course means it's difficult to arrange a suitable time to meet as we are involved with more appointments and also more side effects!
At the moment I am not changing my treatment, which I had thought I would be, so know that my normal routine of every 3 weeks into hospital for my iv drugs is staying as it was. However other ladies may have different dates now that will affect when we can meet up.
My thoughts are to try to get a meeting, or two, before Christmas.
With that in mind one in Portsmouth for the southernmost ladies and one more central.
I can probably make most M, T, W but will keep T and F free to allow for appointments.
The weeks beginning 28th Nov and 5th Dec are best for me but not sure how they fit in with everyone else?
Can you update on here if you are interested in catching up and we can try to get at least one meeting sorted?
Beanbob I will be in touch separately regarding your email.
Hi Nicky and Helen
it was lovely to meet you both yesterday, thank you for answering my questions too. Two lovely ladies.
I'd love to meet up again, I don't mind hopping on a train to further afield places to meet others as well. Have a good holiday Nicky, and everything crossed for your scan Helen.
love to all
Hi Helen and Julia
It was lovely to meet up yesterday and weren't we lucky with the weather? A nice chance to get some sea breezes for a land lubber like me! Great to meet you Julia and let's hope it helped talking with Helen and me - who have had a longer 'journey' with SBC and therefore probably in a stronger place mentally than where you are right now being more recently diagnosed/treated. However you looked great and are coping so well - good for you.
I will come up with some other dates both South and North/mid Hants in the next few weeks, maybe for the last week in October, which more ladies can get to as well.
GOod luck with the scan Helen - well, the results! Fingers crossed and all that.
Thanks ladies for your messages. See you at 2.30 and if anyone ese wants to join us the venue is Gunwharf Quays, Portsmouth, Spinnaker Tower cafe.
I will try to remember to text you Julia with what I will be wearing so you know who to look out for! I havent decided yet as I'm still in my scruffy walking jeans, about to go out for a walk.
yes just confirming I can still make tomorrow, looking forward to it.
Just checking in to see who is meeting tomorrow? Julia has confirmed and just waiting to hear from Helen. Can you both confirm (again, Julia) by tomorrow morning that you are both still able to make it? I'm only asking as its a long drive for me and I will be leaving before lunch to allow enough time.
Sorry you can't join us this time Beanbob - good luck with the new treatment and also sorry you can't Mara. Will be in touch with you both about other possible meet ups either as a group or individually if we can't all make one place.
Ahh I'm sorry you can't make the 21st, I hope all goes well for you and hopefully meet you another time.
best of luck for 21st.
I won't be able to join you Wed 21st. Not only is it my scheduled Zometa date but I had a conversation this evening with my consultant and he is planning to tag on more treatment including the first injections for Faslodex that day. I need to keep it free.
I hope you all have a lovely afternoon. Sorry not to see you all and not to meet Julia. See you in Winchester/Portsmouth another time. Let me know if you agree on another date. I can do the last Friday of October and then Wed/Thurs afternoons in November.
Shall we agree on Weds 21st?
I will contact you, Beanbob, anyway but have had a few busy days recently so not been very active on my email or on here. Same goes for Mara.
For Julie we meet at 2.30 at the cafe at the base of the Spinnaker Tower. Helen and I have met before so know who to look out for but we can wait in the entrance to make it easier for you to spot us. If you want to send me a PM with your mobile number I can give you mine, that way if there are any last minute changes from any of us we should be able to make contact. Otherwise we normally check on here during the morning of the meet up to see if it's still on.
Looking forward to catching up and hope that you can make it Beanbob, by the way I meant to have said how sorry I am to hear about your mother in law but glad that she lived a full and healthy life.
I can do Wednesday 21st if that's the only day everyone else can do. I'm sort of flexible at work that week so I'm happy to fit in with everyone else. Hope everyone is doing well have a great weekend
A quick follow up - I have realised I should hold back on confirming my availability since either of those days might be the day of my mother in law's funeral on the IOW (please don't feel obliged to react or send condolences - she lived healthily for 91 years the lucky lady). I will know precisely what day by tomorrow afternoon.
Hi Nicky, Mara, Helen and special welcome to Julia
Looking forward to a meet up since I am going through a dip. Chemo break didn't last long and I am going through tests to sort out the next treatment. It will be better once I've started....sigh...
22nd is good for me. I am in the clinic on 21st PM but could ask if they have an AM appt if that was the only date we can all meet.
i have seen both of your replies so will wait to hear from Helen and Beanbob about meeting up that week before confirming.
Hi and thank you MaraUK
Hopefully we'll meet up soon. Hope your tiredness passes. Wishing you well
i can certainly get to Gunwharf, thank you it would be nice to meet up. I can do the Wednesday 21st or Thursday 22nd.
Hello and welcome it will be lovely to meet you Julia sorry you are joining us though. Nicky so sorry I forgot to pm you thanks for the jog to the memory . I am still very tired at the moment I think I need a good boost of something lol. I will pm you later if it doesn't work let me know Karen
I see Helen has sent a welcome and, no, you are not gate crashing this thread, it's lovely to hear from more ladies who would like to meet up. As Helen has said we are a bit far flung at all corners of Hampshire which makes meeting up in one set place very difficult. We did start off with quite a few ladies and Winchester was the central point for most of us and we tended to meet there but unfortunately as time has gone on we have dwindled in numbers.
The likely place to meet next would be Portsmouth as we have done on a few occasions now. Also, afternoons are best for Helen as well so we make it about 2.30 in the cafe at the bottom of the Spinnaker Tower, an easy place to find at Gunwharf Quays.
I can't make any days next week (12th-16th). The following week I can't do the Monday (19th) or Friday (23rd) but am free T, W and Th.
If anyone who is available that week posts on here the days they can do we can try to get a date organised. I will then confirm the date, time etc. It does get a bit difficult and I'm sure you will have seen that we often have to cancel but we try to get together when we can. I realise Mara may not be able to make it but we will sort out another date and venue that she can make, or I will meet up with her once she has PMd me.
that sounds great. I think I've "spoken" with Nicky08 on here before, I'm not a newbie I've been on here since diagnosis last January but just haven't posted a lot. I have secondary bc with liver mets. No surgery, 6 sessions of docetaxol and H&P, now just maintanence H&P.
I can do Monday afternoons from 2pm or anytime Wednesday's or Thursdays.
Look forward to meeting up.
best wishes to you
Welcome! It would be lovely to meet up with you sometime. We have a few of us in the South here - I'm on the Isle of Wight, and we have others in Basingstoke, Petersfield & Andover. We try & meet up occasionally - Winchester or Portsmouth seem to be the favoured locations which are easiest to get to. Nicky08 is our 'leader', having been here for the longest and is very knowledgeable! I think we are trying to get a meeting organised in Portsmouth, previously in the Spinnaker Tower cafe at Gunwharf. I can do afternoons from 2.30pm onwards but not Thursdays. Post us when you are free and we'll see what we can come up with.
Sorry you've had to join us but it will be lovely to meet up with you.
Good luck with any treatments.
Hello ladies, I hope it's ok to gatecrash your thread but I was wondering if there are any plans to meet up near Gosport. I'm not sure how these meet ups work or if anyone can join in, look forward to hearing.
sorry to take so long replying . I had a lovely meeting with Helen it was great to catch up I will pm you about meeting you in Basingstoke it would be good see you xx
I was waiting to see if beanbob replied about dates etc before suggesting anything else so we now know you are having a good time beanbob - which is great. I would have emailed you if I'd not heard but I've been busy with both sets of parents at the moment, for different reasons, so havent had as much time as I'd have hoped.
So, we can arrange something for September but just wondering if dates in August are still OK? I can get down to Portsmouth if thats easiest, helen, or maybe Winchester if Mara wants to join in? I hope you two met recently especially as none of us have seen Mara for a while. If it's difficult in August maybe MAra and i can meet in BAsingstoke, as was suggested once before? I'm fairly easy to travel to these places if thtey are best for everyone else?
Just update on here any dates etc that are convenient. I have treatment this Friday but after that not for another 3 weeks which leaves me relatively free as we are not going away this month. However I do have a couple of short breaks in september so will try to put some suitable dates up that most of us can make.
sorry I missed this chatter about dates. I was away enjoying several post chemo holidays now my energy is back. I am going away again too, tomorrow to France. Back in September. Would love to see you all then. Happy holidays till then
I am meeting Helen on the 6th so can't make this one. So glad you got across the pond you seem to be getting about a lot which is great. Just to say hi to Beanbob hope all is ok.
As this is next week it's a bit tight for me as a couple of things have come up in the last few days - typical! I hope you get to meet up with Mara, maybe we should all come over to the IoW instead! How are you fixed for later in August? After next week I'm hoping things calm down and my weeks keep as free as they were when I posted.
Hi Nicky, Beanbob, Mara et al
I can come up on the train from Southampton to Winchester, not a problem. I'm free Mon 1st, Wed 3rd, Thu 4th, Fri 5th Aug - any of those days fit with you all? I think Mara is coming to Isle of Wight 5 - 8 Aug so we were going to meet up here as well.
Let me know asap - hope to see you!
Love Helen xx
Ive had a few frantic weeks what with being away on holiday and generally fitting in things between the few appointments I've had.
As we're now into summer holiday territory are we able to arrange a meet up that we can all get to?
I'm thinking of Winchester as a central point but not sure how doable this is for you, Helen? I expect it would mean a full days travel more or less? We could meet in Portsmouth again but this I think is a problem for Mara? I would suggest Basingstoke again but having researched it over the weekend the train times up from Portsmouth (for Helen) make it far too long a trip for her - and there's not much here to see whereas Winchester might be a nice day out!
I am pretty free for August and early September except for every 3rd week for treatment on a Friday. If anyone is interested please add a message on here and we will see if we can get this organised in the next few weeks.
Helen - good to see you got to Paris and enjoyed theTdF again! Hope the headache that you mentioned before has gone and it's nice not to be going to work every day for a few weeks.
sorry your feeling off. Just thought I would let you know in case your worrying there is a real headachy bug going around just like. Flu it's ages since I saw you all I hope to make August but I can't do the 5th to the 9th of to the Isle of Wight again . Thanks for worrying about me Nicky but I am not to bad at the moment except for stress overload lol take care Mara x
Just checking that there will be at least 3 of us meeting this Thursday, 23rd, in Portsmouth?
If none of us can still make it can we post on here as we could re arrange and save the journey. I'm still fine to be there and if anyone else with secondaries based in Hampshire would like to join in please let me know on here or by sending a PM (Private Message)
ps will try next time to make a date and place that you are able to make Mara, hope you are coping OK with current treatments.
brilliant news about your scans. I hope to see you all in the summer unfortunately I can't make it this time
take care Mara x
Brilliant news Nicky - I bet you are relieved at that. Will be lovely to see you on 23rd and I should be able to make it up to Winchester one day in the summer holidays.
23rd is good for me as well. 2.30 at the cafe at the bottom of the Spinnaker Tower? Mara, if you can make it we'd love to see you, along with any other ladies in Hampshire who have secondaries.
After that maybe Winchester if Helen can make it in the holidays?
ps great scan results yesterday for me, phew, the drugs are still doing a good job xx
Hope you're all getting on ok with your treatments at the moment.
I am free 23rd June that week for a Portsmouth meet up - can be at Gunwharf for 2.30.
Hope we can sort a date out between us.
Take care, love Helen
Either 22nd or 23rd June in Portsmouth would be good for me.
Thank you Nicky, and best wishes to all Hampshire girlies
Apologies for not adding anything sooner. Beanbob and I did manage to meet up which was great to catch up.
Due to a couple of short holidays and some other things, i think we both said late June would be the next best time that we both might be around. The idea is to next go to Portsmouth so Helen44 can join us. So the week of 20th June was mentioned. Are any days that week OK with anyone? I know it's in term time but we thought the afternoon would work? Just reply on here anyone who can make it and we can hopefully sort it out.
Mara, hope you are doing OK and maybe you can join us as well if it's not too difficult? Otherwise we will have to sort out a more central location for the next one.
i hope you had a good meet up we had a really great few days such wonderful weather it felt like the med. hope to eventually meet soon.
Have seen your message - have a great time on the IoW!
Will try to contact Beanbob regarding today's meet up (which I'm still happy to go to btw Beanbob) and will post another date soon.
Great! See you at the entrance of the 1st floor cafe in John Lewis Basingstoke (it's near the station) Thursday at 2pm
Hi Nicky and beanbob
i should be ok for Basingstoke I f that's ok with you both 2pm is fun me with me.
I hope everyone is enjoying the Bank Holiday.
Just checking to see if Thursday is still OK? I can still make it but probably not get to Winchester for 2pm as I'm busy in the morning. We can try the John Lewis cafe in Basingstoke if that suits? 2pm or 2.30? Just say whether you can make it or not and we will confirm on here.
ps new and old SBC ladies all welcome.
The Thursday is fine with me. I can do any of the places mentioned (and assume you can?) so we can see what Mara thinks, either now or nearer the time. If we put it in our diaries now we can make sure we all meet up whoever is available?