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Support group for secondary BC hampshire/Winchester?

nicky08
Community Champion

Sticki Vicki

Oh dear, I have just read a post in the treatments section about our lovely Vicki, who has sadly passed away. This was/is such a shock to me as the last time we all met she was doing OK although I know there had been some progression with her mets, but certainly hadn't expected anything like this. What a sad sad time for our Hants group of ladies and for the families involved. Anne, Liz and Vicki may you rest in peace and it was a privilege to have met you all.
Nicky x

nicky08
Community Champion

Re: Funeral for nannie spiky /Liz

Unfortunately I didn't get to Liz's funeral, I had hoped to but couldn't get there from where I was in the morning.  Knowing how Liz had planned it herself, as she told us, I'm sure it would have been very personal and moving and I hope that this would have helped Mick and the family at such a difficult time, it really had been something Liz had wanted to do.

She will be remembered by all of us Hants ladies who met her and we will raise a cuppa to her when we next meet.

I hope everyone else is coping with various changes to treatments and that as many of us as possible can make the next catch up that Jacqui has organised.  It is such a supportive group and anyone else in the Hants (or surrounding) area is welcome to join in.

Take care all

Nicky x

nicky08
Community Champion

Re: Funeral for nannie spiky /Liz

Dear Nick

I hope to be able to attend Liz's funeral on Friday however if I can't make it I will, like Jacqui (and I'm sure all of us Hants ladies), be there in spirit and thinking of you all.

Nicky x

Re: Funeral for nannie spiky /Liz

Dear Nick

You have nothing to apologise for.  Sadly I will be away that Friday and unable to attend the funeral but I will stop and think of Liz at 13.00 and be there in spirit if not in body.

 

Thinking of you and yours at this difficult time and may happy memories of Liz help see you through.

 

Jacquix

Funeral for nannie spiky /Liz

Hello sorry I haven't replied until now but have been rather busy the funeral for Liz will be at the Wessex vale crem bubb lane eastleigh hants SO30 2HH at 1pm on Friday 16th may all welcome take care god bless nick

Re: Support group for secondary BC hampshire/Winchester?

Dear Nick,

 

I was one of the priviliged one that I have met your wonderful wife Liz during our meet ups. I am deeply sorry and upset to hear the news. I send you and your family my heartfelt condolences. Liz will never be forotten and she will always stay with us in our hearts. Hope you get strenght to go through this difficult period. You and your family are in my prayers.

 

Valia

Re: Support group for secondary BC hampshire/Winchester?

Dear Nick, I briefly met you at the hospital with Liz only a few weeks ago. Although we do not know each other I would like very much to send my love to you and your family during this time of sadness. I met Liz on a number of occasions and she came across as a vibrant and very determined lady who was able to make me laugh very easily. So sad to hear she has passed. Love and prayers being said for you all.
Kirstie xxx

Re: Support group for secondary BC hampshire/Winchester?

Hi jacquix I hope to make it this time have put the date in my diary hope nothing clashes. Hope to meet you all soon x

Re: Support group for secondary BC hampshire/Winchester?

Dear All,

 

We all seem to be havin a bit of a rough time at the moment with progression and other illness all compounded by the loss of our lovely Liz.  I hope this does not put people off the idea using our little group for for courage and cheer - indeed maybe we need it more now than before.  So here is a suggest for the next gathering something a little different.

 

Friday 6 June at 13.00 - at Tiffins Tea Rooms West Street - New Alresford.

 


Quite a few people are busy at the end of May hence the delay.  Thought the earlier time would allow the option of lunch or just cake and coffee (even both) as people wish.  Tiffins has just been refurbished and Sharon the owner will reserve a table for us.  It is at the bottom of the hill.  The best place to park is the car park based at Perrins School  - Jacklyn's Lane (£1.50 for a whole day). Street parking has a 1 hour time restriction  New Alresford is just 6 miles out of Winchester on the Alton Road - very easy to find and is a pretty place wth some nice shops if you want to potter for a bit.  Also it will avoid getting tied up in Winchester rush hour traffic.

 

hope to see a few faces - take care and remember you can always organise your own thing with others if you want to meet at an earlier date.

 

Take care Jacquix

Re: Support group for secondary BC hampshire/Winchester?

Dear Nick,

I was sort of expecting this post when we did not see Liz on Friday.  She has alway been so determined to be there no matter how bad she has felt my instincts knew some was very wrong. She struck me as a very stubborn lady when it came to not letting illness stop her doing what she wanted.

Liz was the the first person to get in touch when I first posted on the forum with the aim of getting this group together and for a while it was the 2 of us so we got to know each other quite well.  I know how much she loved her family and you were all so important to her - she threw everything she could at fighting her disease an make sure that she could stay with you as long as possible. You must all feel that a terrible hole has been left in your lives.

She was always so considerate and always asked after others and gave generous support beore pressing her own needs.  Her kindness knew no bounds and I will always remember her.

Like Nicky I would like to come to her funeral if that is possible to say my good byes.  You are welcome to PM me under my user name or perhaps Nicky can pass on the information.

It was good to have meet you when you bought Liz to our meetings - we will all be thinking of you and your family.

 

Yours in Friendship - Jacqui

 

nicky08
Community Champion

Re: Support group for secondary BC hampshire/Winchester?

Vicki, having just read Mick's post I will reply to you another time, or send a PM. X

nicky08
Community Champion

Re: Re nanniespiky/Liz

Dear Nick I am so saddened to hear of Liz's passing and feel such sorrow for you and your family's loss. I don't need to tell you that Liz was such a lovely lady and I feel privileged to have met her and spent time with her over the past year. She always had a smile on her face whatever life was dealing her and always managed to look so great even when she was feeling lousy. We all missed her on Friday and were hoping that she was not able to make it due to reasons other than her health. It was a pleasure also to have met you on a number of our meet ups and I know how devastating this must be for you all.
When you feel able I would like to know of the funeral arrangements as I would hope to be able to attend. If you do not want to make this public a PM, private message, can be left for me using my user name.
May Liz rest in peace and you will be in my thoughts and prayers.
Nicky x

Re: Support group for secondary BC hampshire/Winchester?

Hello Nicky.  The plan of action is to get things started asap.  Over the last 6 weeks or so my platelet count and liver function have been dropping, and continuing to do so.  Need an Echo CG to check my heart is ok for Herceptin, and that will be given in conjunction with Paclitaxel.  Should be starting next week and they two drugs will have to be given over maximum time at Southampton General to start with.  That means 2 hours for the Paclitaxel and 6 hours for the Herceptin.  After that, and if all goes will, I should be able to have the combo in reduced time doses at Oakhaven Hospice, here in Lymington. 

 

Brain CT showed I have nothing in my brain, that shouldn't be there, but there is an area of bony involvement in the top of the left orbital lobe of the eye, which probably accounts for the droopy eye.  This is responding to the Dexamethasone however.  My breathlessness may be because the cancer is getting in my bone marrow, but time will tell.

 

Not the best news, but at least I know what I am dealing with now and can just get on with it.  My preference was to let the Aromasin kick in, but as that can take some time they are moving ahead with the big guns.  Anyway as compensation I just bought myself a top of the range iPad Air to make it easier to keep up with life.  Hope you are doing well and that I will get to see you all soon.  Vicki xxx

Re: Re nanniespiky/Liz

Nick, so sorry to get the news that Liz has gone from your physical life. I only met her a couple of times, but she was an amazing lady. I wish you and everyone who loved her peace and acceptance, and that you come to terms with her loss and find a new life. Vicki xxx

Re: Support group for secondary BC hampshire/Winchester?

From all of us at BCC we are very sorry to read this news about nanniespiky and may I pass on our sincere condolences to all her family and friends at this sad time, she will be missed on these forums

Lucy BCC

Re nanniespiky/Liz

Hi it is with sad heart and deep sorrow I have to tell you that the love of my life nanniespiky/Liz passed away peacefully on Monday morn I would like to personally thank you for your support and friendship to her over the years I know she loved the meet ups take care all of you god bless nick

nicky08
Community Champion

Re: Support group for secondary BC hampshire/Winchester?

Hi Vicki
So sorry to hear about your ambulance/hospital drama, something I'm sure you weren't expecting or wanting to deal with. I hope your appointment went well yesterday and a plan of action is in place.
Nicky x

Re: Support group for secondary BC hampshire/Winchester?

Hopefully they will come up with a plan on Tuesday. At least my new GP listens and does something, and A&E likewise. At my old GP surgery the standard this was not listening, "what do you want me to do about it?" (hint, YOU are the doctor that is why I am here) and "come back when things get worse"!!!!!!!!!!

Hope your problems get sorted, and are more to do with the house move than health. Vicki xxx

Re: Support group for secondary BC hampshire/Winchester?

Glad your ok Vicki I didn't get there either we are all having so many problems at the moment hope you feel better after a rest.

Re: Support group for secondary BC hampshire/Winchester?

Sorry I didn't make it in the end.  Was taken to hospital by ambulance at 5am with pains in my left arm.  Everything has turned out to be ok, but I do have an enlarged heart at the moment and having just started steriods and had a CT scan yesterday morning, as well as starting on Aromasin I though it best to get it checked out so I wasn't having a bad interaction going on.  Or something worse.

 

I was eventually released about 2.30 when my sister-in-law picked me up and it was all a bit late by then, and all I wasn't to do was go to bed and sleep.

 

Back to the oncologist on Tuesday and possibly they will have a plan Stan.

 

Vicki xxx

nicky08
Community Champion

Re: Support group for secondary BC hampshire/Winchester?

Dear ladies, what a rotten time our group is having at the moment Smiley Sad

Sorry to see so many of us are having further progression but hope the new treatments, once decided, are quick to kick in and bring back some greater stability.  Also sorry to see there won't be many of us there today but will be thinking of all of you who can't make it.  Having just had a great big thunder clap overhead  and pouring rain I think I will be swimming down to meet up today Smiley Wink

Take care all and looking forward to seeing everyone that is able to make it.

Nicky xx

Re: Support group for secondary BC hampshire/Winchester?

Good Evening ladies,
Just to say I will not be joining you tomorrow at M&S. A previous engagement with my great nephew at the Polka Theatre, Wimbledon somehow takes preference !!!!!
I am living the life down in Poole at present and the off to Palma in two weeks so I guess I'll see you all in May unless anyone fancies a meet up in the interim if the are over Pompey way ?
Hope you are all as well as can be expected and that you enjoy your time together tomorrow putting the world to rights. Take Care
Michele

Re: Support group for secondary BC hampshire/Winchester?

Hi ladies, unfortunately I won't be able to make the meet up tomorrow- hope to see you all next time.
I had the results of my CT scan today and it wasn't as bad as I'd feared. Mets in hips have spread so I will be having radiotherapy shortly - that should help deal with the pain too. Chemotherapy will also be needed as cancer has spread to lung but can wait until I get back from holiday.
Take care and keep your spirits up.
Sue

Re: Support group for secondary BC hampshire/Winchester?

Mara, I have just changed surgery, though only across Lymington, but even that seemed to be a bit traumatic because my notes still had to go via Winchester rather than about 200m through the churchyard!

 

Make it if you can, but there is always next month ... though at the moment everything is going very pear-shaped on me with a chest infection, passing kidney stones, liver function still going downwards, enlarged heart and a confirmation that I now have liver mets.  Had another CT scan today and have to get another blood test on Monday and back to clinic at Southampton General next Tuesday.  Looks like I may need to go on to chemo because the liver function is getting worse and there may not be time to allow the Aromasin to kick it after a change from Letrozole.

 

Energy is low, but still hoping to make it tomorrow on the grounds that I need some new slippers anyway and M&S will probably have a good selection being the extra motivation other than meeting other metsters.

 

Vicki xxx

Re: Support group for secondary BC hampshire/Winchester?

Hi Vicki not sure if I will be able to make it this month. Just changed doctors and my appointments may get in the way just waiting for a phonecall. I was hoping to meet you all saying that I am not sure who goes lol

Re: Support group for secondary BC hampshire/Winchester?

Hi Kirsty,

 

Sorry to hear you have been a bit poorly recently. Make sure you rest plenty and eat whatever you can enjoy.I hope the results of the U/S tomorrow to help with the diagnosis and you will receive better treatment for your current problems. If you like at any time some help, company, lifts from to our meetings etc please let me know. The days I have not chemo I could be a bit useful 😉 Lots of love. Valia x

Re: Support group for secondary BC hampshire/Winchester?

Hi ladies, I have been silent lately I know. I have been feeling very unwell and losing weight by the day. The consultant now thinks it may be gallstones so I have an ultrasound tomorrow to see if this is the case. I cannot come again this Friday because I am feeling poorly so please have a laugh and a piece of cake on my behalf. Best wishes to you all love Kirstie xxx

Re: Support group for secondary BC hampshire/Winchester?

Hello ladies. I will try to be there too.Possibly a bit later around 2.30 as I work half day. Looking forward to meet the news ladies.

Happy Easter everyone. God blessing all.

Valia x

Re: Support group for secondary BC hampshire/Winchester?

Welcome back Mara.  Not sure that some of the roads in Devon are too quiet today, it sounds chaotic out there today! 

 

Looking forward to seeing you on 25 April, a week today!  Hope the weather will be as good as it is today.

 

Vicki xxx

Re: Support group for secondary BC hampshire/Winchester?

Hi everyone now I'm finally back in Hampshire Andover. I would love to meet you all will try and organise a lift not got my car at the moment also I am a bit chicken on these roads after the quieter roads of a Devon but hubby says he's happy to take me if that's ok xx
nicky08
Community Champion

Re: Support group for secondary BC hampshire/Winchester?

Hope the MRI doesn't show up any nasties Vicki but, as Jacqui has said, ask away regarding treatment options if the little blighters have moved around.  Hope you can make it next time especially as you've set so many self reminders!  

Looking forward to seeing as many of us as possible in a week or so time.  Hope treatments are being kind to you all and you have time to enjoy the sun we're getting - it makes such a difference doesn't it?

Wishing you all a lovely Easter with family and or friends

Nicky x

Re: Support group for secondary BC hampshire/Winchester?

I had my MRI done today and will get the results next week.

 

I have just changed GP surgery and hope I can make a new start with a completely new crew.  After just one visit they seem far more supportive.  I had to go to the new surgery last week because I have a bit of a chest infection and so I am nearing the end of a week on penicillin.  Still can't breath completely normally, which made the MRI a bit difficult because I had to do quite a lot of breath holds, but the lady doing the scan was very good and tried to make them as short as possible, and let me know the second I could start to breath normally again.  I got through everything without having to do a second take, though I have to admit that I nearly lost it a couple of times!  I did remember to smile for the magnets, so hopefully the pictures will be good and show up everything that it needs to show.

 

I have the date in my diary and on my computer callendar, and I will also put a sign out somewhere to remind me, and I should make it this time ... fingers crossed.

 

Vicki xxx

Re: Support group for secondary BC Hampshire/Winchester?

Hiyah All

 

especially Vicki.  You have every reason to forget it sounds life is very frenetic at the moment for you.  I really hope that the progression is a false alarm if not there are several folk with Liver and bones (our Nicky being one) who I am sure will be of help to you.  It just seem awful when things go so slowly.  I think if your relationship with your GP is falling apart it is good to change I feel so lucky with mine and it is a real help.

Hope you can make the next meeting but remember they are for you and not compulsory - we just missed in 'a where is Vicki hope she is OK way.'

 

Hope all you other folk are OK and moving forward - and yes I confess I suggested M&S because I need to shop for spouses PJ's - he is going through PJ jealousy because I hve some and he doesn't.

 

I will be in the M&S Coffee shop at Hedge End from 14.00 onward - see you when you get there.

 

Love Jx

 

               

Re: Support group for secondary BC hampshire/Winchester?

Hiyah All

 

especially Vicki.  You have every reason to forget it sounds life is very frenetic at the moment for you.  I really hope that the progression is a false alarm if not there are several folk with Liver and bones (our Nicky being one) who I am sure will be of help to you.  It just seem awful when things go so slowly.  I think if your relationship with your GP is falling apart it is good to change I feel so lucky with mine and it is a real help.

Hope you can make the next meeting but remember they are for you and not compulsory - we just missed in 'a where is Vicki hope she is OK way.'

 

Hope all you other folk are OK and moving forward - and yes I confess I suggested M&S because I need to shop for spouses PJ's - he is going through PJ jealousy because I hve some and he doesn't.

 

I will be in the M&S Coffee shop at Hedge End from 14.00 onward - see you when you get there.

 

Love Jx

 

               

Re: Support group for secondary BC hampshire/Winchester?

Forgive me Mother, for I have sinned ... I know, 4 Hail Mary's and don't do it again ... but I have to confess that I forgot all about it until about 3.30, which was a bit too late by then.

 

I have a possible progression into my liver and have spent four weeks hassling Southampton General to get a scan done.  Not pleased that the CT scan showed this on 22 January, and by the time I eventually get the results it will be three months later with no change of treatment.  Will be having a MRI done and they say that my artificial hips won't be a problem because they are probably titanium, and the newer one may be ceramic (I even have the bar codes of the items they put in!), though I know less about the first one done in Jan 2008.

 

I am also in the middle of changing GPs after one screw-up too many, so hopefully I can forge a relationship with someone who won't constantly tell me to go away and come back when things get worse.  Like Stage IV, how much worse does she want.  Have also nearly got my retirement on health grounds sorted out at work and access to my pension as though I was retiring at the usual age (don't think I will make it for another 13, or more years the way things are going).  Still trying to sort things out with my personal pension.

 

In about a month they should be starting work on the extension of the back of my house, which will involve taking down the existing lean-to conservatory (to big it up) and extend it right across the back so I can have downstairs facilities which I don't have right now.  That can be a problem now I am not as fast on my feet as I once was!

 

Will put the date in my diary and try to remember it in time this month!

 

Vicki xxx

Re: Support group for secondary BC hampshire/Winchester?

Hello Ladies - I hope you are all well enough to enjoy some of this lovely spring weather. I can only repeat what Nicky said - it as lovely to see so many and aren't those naughty little stories coming out.  You now all tell the family we don't just talk about cancer.

 

As discussed the next meeting will be taking place at the M&S coffee shop Hedge End to give the Southern county ladies a break from driving north.  Suggestd date 25/4/2014 Friday.  How does 14.00 sound ? I think 13.30 was just a bit too early.

 

Hope this helps Vicky - we missed you.

Liz hope this helps you as I believe you will have been nuked yet again but then on the road to being so much better.

Kirsti hope to see you and your glamorous holiday snaps.

Valia if you need a lift let me know.

 

Had a up down week - Monday full bone scan results - rubbish they have really spread so we have decided to stop denosumab etc as that is not doing anything now.  I have started back on Anastrozole - so far with out any ill effects.  On the plus side the lungs are finally fixed - the pleurodisis has worked well and the right side does not have enough to drain - so no more lung procedures for a while - hoping to hold out through the summer.  My breathing is so much better.  Waiting for physio from the hospice as I keep getting spaghetti leg syndrome and I will not even go into the pelvic floor issue.

Have now organized a fun few days in Holland with daughter and niece.

 

I hope everyone else has good news to share - love and Friendship Jacquix

nicky08
Community Champion

Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

It was lovely to see so many of you (us?) on Friday - well done Jacqui again for organising us. Liz - what a big effort it must have been to be there but it was so nice seeing you and I hope things get sorted out asap with the nausea and also the next lot of treatment.  Take care and look after yourself.

It was good to have a chat with so many of you and also to be able to have a laugh about things.  It's so easy to talk to everyone and that has been a great support over the last year since we started meeting.  I'm sure we must all feel the same - we can say things that won't shock us as they may do our loved ones so it is a welcome release not to bottle things up.

Looking forward to meeting up again very soon.

Nicky x

Re: Support group for secondary BC hampshire/Winchester?

Definitely on for tomorrow, beanbob x
nicky08
Community Champion

Re: Support group for secondary BC hampshire/Winchester?

Hi Liz, have sent you a PM, which I'm sure you will see.  Hoping that you are able to come on Friday but I think we will all understand if you can't make it.

Hope everyone's treatments are working - or getting tweaked in Liz's case to improve things like nausea.

Looking forward to meeting up again.

Nicky x

Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

Well, I think I am slowly returning back to the land of living, but I'm not quite there yet.

After having spent a week in our local hospice, lovely place, trying to get the nausea under control,I thought we had managed it, but oh no!, the sickness and nausea is causing me real grief and between my doctor, onc,community nurses and McMillan nurse they are all still trying to find the right combination of drugs to deal with it as best as possible. Due to the WBRT it may never be completely eradicated, but it won't be for lack of trying by my medical team.

Saw onc today and she has set the ball rolling for me to have rads to nodes in neck and chest done. So much so that when I arrived home from hospital there was a call from the rads department to say that my onc had been to see them and could I go in for planning tomorrow afternoon! I will need to have another face mask made as I did with the WBRT, but at least I will know what to expect this time. I can only hope that I will be able to tolerate another 5 sessions of rads.

I hope to be well enough to join you on Friday but I can only see how I am on the actual day.
Jacqui, glad you were able to come to a decision about your skull mets and that you are still keeping well.
Hope every one else is keeping ok.

Take care.
Liz x

Re: Support group for secondary BC hampshire/Winchester?

Hi there

Hope your scan goes well Valia and thankyou for your kind words.  

 

I had a bone scan this morning results next Monday so I guess we will all have stuff to chew over next meeting.

 

I think Liz is slowly crawling back up the hill of feeling better and will make it next meeting.  Fingers crossed.

 

Looking forward to seeing you all don't forget earlier start of 13.30 .

 

Love and friendship - Jacquix

Re: Support group for secondary BC hampshire/Winchester?

Hello lovely ladies,

 

I haven't been on line for a while. Going through chemo at the moment is a funny game. Mood is all over the place...

 

It was lovely to catch up with you recently and also to meet the new friendly faces. I hope to get to know each other a bit more in the following tea sessions.

 

So sorry to hear Liz is a bit poorly at the moment. I send her positive vibes, thoughts, energy. All my love.

 

Jacqui, please do not thank me for something so small. I did nothing really. I was sorry to see you unwell but you are a strong girl. By the time we arrived you were back to your lovely self!

 

Look after yourselves ladies.

I have a scan next week to see if my treatment works... Stressful times.

 

Enjoy the sun!

 

Valia x 

Re: Support group for secondary BC hampshire/Winchester?

Thinking of Liz and hoping that Hospital/Hospice can sort things out for her and keep her comfortable Heart 

 

Got home later than expected from checking on my aunt.  Got caught in the Oxford rush-hour on the ring road from Cowley to the A34 and then heard that the southbound side was shut because of a van fire.  That was after my junction, but it was still slow for a while before the Sutton Scotney turn off, although by then they had one side open.  Nice to be home though.

 

Vicki xxx

Re: Support group for secondary BC Hampshire/Winchester?

Hi there every - here is a new rebooted Jacqui - the magic potion, morphine, steroids mixed in with a bit of weekend sunshine.

 

Kirsti - are you OK I missed you want to hear about your hoilday.

Michele - there is no case of allowing abut it - this is just a meeting for tea for anyone who fancies joining in, I am just the bossy ex-teacher who tells everyone when to turn up.  So pleased it was of help to you, the forum is great but there is nothing better than having personal contact.  this is bleak and lonely disease sometimes especially at 3.00am sitting in pain on the sofa with the word asleep.  Hope to speak next time.

Beanbob - hope you can make the next session work permitting.

 

Thoughts go to Liz who is beng very sick at present - she is being aken into hospital/hospice to get sorted fingers crossed for her.

 

Nicky - thinking of you relaxng in Nice - nice one.

 

Love to you All see you 28/3/14 13.30 (note new start but we will still be there at 14.30)  Winchester Catherdral Refectory.

 

Must go for the Archers - Love Jacquix

nicky08
Community Champion

Re: Support group for secondary BC Hampshire/Winchester?

Hi ladies

It was lovely to see everyone last Friday - well done again Jacqui for organising us for then and the next one. Nice to meet you Michele and I'm glad we helped give a different perspective on secondary BC.  If you havent done already have a look on the inspiring stories section of this part of the forum.  Many stories on there of ladies living with secondaries (mets) for many years.

Sorry to hear that you wwere feeling so unwell Jacqui.  Having not got round to having a chat with you it was difficult to understand how horrible the treatment is being at the moment.  I hope that your onc does listen to you and can sort this out as well as explain a bit more about the bone mets!  Maybe a rads blast to your ribs if that is waht is causing some of the pain?

Sorry also to hear that you are still suffering Liz with the SEs of the rads and that other people's treatments are changing.  A real up and down sort of a meeting in a way but I suppose that's what happens when we are all on different treatments.

Hope everyone has a better month than last month, however good or bad that was, and look forward to meeting again in Winchester.

Nicky x

Re: Support group for secondary BC Hampshire/Winchester?

Glad that we could help.  The medical profession tend to give a sense of hopelessness rather than hopefulness that the cancer can be controlled and we can even get a bit better.  Groups like this give you a reference point that there are others who have their unique diagnosis, but we are also the same.  There is no need to explain what having metastatic breast cancer is like - we all just get it.

 

Hope you enjoyed Miranda Hart and that her gig was a suitable end to an inspiring day.

 

So you have been fired by the palliative care nurses ... I have been fired by Hospice twice already!  The only things that matter is today and doing the best we can on the day.  The day may be one for tears and anger, or it might be soaking up the winter sun and enjoying daffodils and other flowers that are in bloom.

 

If you have been scraping ice off your windscreen does that mean that you are considering driving again?  Go on, become a Toad with the open road in front of you.  Maybe a little bit at a time to get some confidence back that you are in control.  Vicki xxx

Re: Support group for secondary BC Hampshire/Winchester?

Hi Jacqui and ladies.
I just wanted to THANKYOU for allowing me to join the group. My visit to Haskins on Friday was truly inspiring. It was good to meet others who are in the same boat as me, I had spent many days in my living room dwelling on my illness thinking I was unique. Having meet you all on Friday has given me so much hope for the future, however long that maybe !!!
Thanks to Vicki, for telling me of the group and I will definitely be at Winchester the end of this month.
It being Ash Wednesday, my palliative care nurse came round yesterday to tell me she's giving me up for lent and beyond. This is great news because 9 months ago they had given up on me and didn't see me making it to September let alone 9 months later.
I hope that next time we meet up, I will get to know some of you a little better. The Breast Cancer Care website is so informative I'm glad I have been directed to it. It is amazing that the health professionals that I have met with do not give you info regarding it. I have discovered and learned so much since last week.
Once again, THANKYOU. I hope you are all managing to enjoy the sunshine, seeing things start to blossom in the garden is so nice, although scraping ice off the windscreen at 7am this morning was not as nice!
Speak soon.
Michele

Re: Support group for secondary BC hampshire/Winchester?

1.30pm, Winchester Cathedral Refectory, Friday 28 March 2014 - in my diary as we speak. 

 

Glad to hear you are feeling a bit better Jacquie.  It is just good to see everyone, no matter their mood.  ❤️

 

Vicki xxx

Re: Support group for secondary BC Hampshire/Winchester?

Good evening ladies - it was great seeing so many of you, sorry I didn't get round to chatting to you all.  Also a big thank you for your good cheer in the face of my rather gloomy mood - it is not like me but I think things are feeling better.  A special thank you to Valia who not only drove me there but also dealt kindly with a vomit fest.

 

I have a bone scan booked for the 17/3/14 - looks like things are bit wider spread than the Dr lead me to believe.  Why do they do that?  Any way all be be clear soon.  Hope everyone else is progressing well with treatment and things stay stable.  Good luck with your next lot of rads Liz - you have certainly had more than your fair share.

 

NEXT MEETING - thought we would go back to Winchester Catherdral Refectory.  How do you feel about meeting a bit earlier - say 13.30 so that people can avoid the evening rush hour traffic.  Proposed date Friday 28th March.

 

In hope of spring - Blue Skys and Happy Trails  Jacquixx

Re: Support group for secondary BC hampshire/Winchester?

Good evening ladies - it was great seeing so many of you, sorry I didn't get round to chatting to you all.  Also a big thank you for your good cheer in the face of my rather gloomy mood - it is not like me but I think things are feeling better.  A special thank you to Valia who not only drove me there but also dealt kindly with a vomit fest.

 

I have a bone scan booked for the 17/3/14 - looks like things are bit wider spread than the Dr lead me to believe.  Why do they do that?  Any way all be be clear soon.  Hope everyone else is progressing well with treatment and things stay stable.  Good luck with your next lot of rads Liz - you have certainly had more than your fair share.

 

NEXT MEETING - thought we would go back to Winchester Catherdral Refectory.  How do you feel about meeting a bit earlier - say 13.30 so that people can avoid the evening rush hour traffic.  Proposed date Friday 28th March.

 

In hope of spring - Blue Skys and Happy Trails  Jacquixx