Hi Michele, thanks for looking this information up about the restaurant. It is a lovely idea so I hope some of us can make it. I will wait to see if my chemo goes ahead this week (I've just caught a bad cold so it may not) to let you know which date/s would be good for me and we can see if anyone else wants to join in as well? I hope you appointment went well and that the nausea settles down. There seems to be quite a few ladies on Cape that get this although I was very lucky not to suffer, maybe ask about some anti sickness tablets or change the ones you may already have? Good luck on 3rd, fingerss crossed that you are getting the benefits as well as the bad bits of Cape.
It was lovely to meet up with Michele, beanbob and Jacqui on Friday, sorry that Helen and Mara couldn't make it. We had a good old natter and catch up on what's been happening with each other so it would be nice if we can get another date sorted, maybe before Christmas? I will check my diary - for timings of chemo rather than 'normal' social activities - and come up with a suggested date or two for some or most of us.
Helen - I hope you are coping OK with your first round of chemo and if you are at all able to make one of our dates we can make it nearer Southampton, but I do know how this may not happen until chemo is over and done with.
Kirsti - hope you are doing OK as well.
Hi to everyone I have missed off - hoping you are all coping as well as can be expected whatever that might be.
It would be lovely if you can join us some time, I know you've had a rough time recently so all the best until we do meet up with you.
I'll check whether we have a booking for Tiffins in case Jacqui has done it and post again today. Watch this space. Hopefully though we are still all around to meet at 1pm tomorrow in Alresford which is the plan.
Hello all (even though I've only met a few...)
Just wanted to send my best wishes to all in the Hampshire group. I've had a year of 'pretending' I don't have cancer as I've returned to work after treatment. It's been hard to sustain, although treatment progress has, so far, been good.
I check in once in a while. Nicky, I had Docetaxol + Carboplatin + Herceptin (was 3 weeks too early for Perjeta!) and whilst not pleasant, it was very effective.
It looks like I might move to part-time working in the new year and hope then to be able to join you all for regular meets.
Best wishes all... Sarah.x
I am planning to turn out and see you all. I will see what I cando about a table.
'till then all the best Jacquix
7th November is OK with me still as I have my chemo today so that will be the first Friday I will be feeling 'normal'! So far there is only beanbob and me, anyone else able to join us? Jacqui, if you are feeling better will you be able to make it to Tiffins if we make the meeting place there? I wil confirm time and place by Weds of next week if that is OK with everyone once I see who has replied.
Have a good weekend, I'll be on my steroid high!
sorry to have been a bit low profile lately. the whr has wiped me out a bit and still tending to sleep for england but i think i am finally pulling through that phase.
hope everyone else is keeping as well as expected - i will try and catch up with you at a meet sooner rather and later.
take care - cheers jacquix
I am putting 7th Nov in diary now.
thank you Nicky for organising that. enjoy your afternoon with OH and hope next cycle is bearable too
sorry Kirsty to hear about hospital and the need for a change in treatment, good luck with that.
and helen, isle of wighter, i am keen to meet you some day; i go to IOW regularly
Unfortunately your email has been deleted as the forum doesn't allow them to be shared on the open forum. However if you want to send your email details to me you can do it in a PM (private message). I can then pass on the email addresses that we gave to Jacqui earlier in the year from whoever was there. I have luckily founf her email so will also send it onto Michele who wanted it. Sorry to hear that you had to go into hospital and that Cape isn't doing it's job , I hope you have a good appontment with your onc next week and get a plan in place. Cape stopped working for me after about 18 months when a new liver met was found on a CT scan. I started docetaxol with Herceptin and Perjeta in August so I'm hoping that it is doing it's job, which I should find out at my next onc appointmetn when I get my CT results, yikes. I will PM you anyway which should turn up in your inbox or possibly your junk/spam box.
As it is ladies, I can no longer make this Friday to meet up with anyone as OH has decided to take some time off work and for us to go out as it's one of my 'good' weeks in between chemo's.
As we are struggling to get a date organised that suits us I'm going for Friday 7th Nov as the next date. Let's see who can make it and then we'll sort a place. Add to this thread and we'll go from there.
Take care all
Apologies but I cannot make October dates - am going to Portugal on 24th before starting docetaxol on 4 Nov. Really hope to see you all at some point soon. Best of luck with your treatments.
Love Helen x (the Isle of Wighter!)
Sorry, I have been a complete numbskull but blame it on the chemo and/or too many appointments at the moment. I had forgotten that I have to have my denosumab injection on Thursday afternoon, plus having to be in until 11 for an arranged visit, so will not be going anywhere other than the hospital, and it will be too much of a rush to get back from Alresford in time.
I don't think I can now make the 30th as I have an oncology appointment in the morning and need to get a few things organised in the afternoon reaady for chemo the next morning.
So that does leave us with this Friday, 24th, which beanbob can also do. Is anyone else around? Or shall the two of us meet? Or set a date for early November when more of us might be around? Decisions, decisions! I think Jacqui did a great job getting us organised over the last year or so, let's hope we can continue. Any dates and venues we do agree on, or the majority, I will let her know in case she's not using the forum at the moment so hasn't seen this.
hello lovely friends - hope all is well as can be and sending you lots of hugs. i can meet on 24th anywhere (from about 1.30 since i am having another of my regular reflexology sessions so, if i do see you, expect me to be floating on a cloud like that last time!) but not on 30th. best wishes to all, beanbob xxx
Sorry to hear about the infection, Jacqui, I'm sure it was something you really didn't need. Hopefully the side effects, other than hair loss, arent too bad from the rads.
I am doing Ok on the chemo but it hits you at the low wbc point so I seem to have a dip in the middle of the cycle, something I'm expecting to happen this time around as well which it has made it a bit difficult to try to organise a meeting. I had hoped to arrange some dates instead of Jacqui having to do it but have been on my learning curve about the side effects! If you (Jacqui) are not up to sorting out a date and venue I am happy to take it on but probably wont be around next week or the following one. After that I'm back on the chemo on the Friday so wouldn't be able to make that day either, however, if anyone is interested I don't mind making it a day other than a Friday?
Maybe a meeting more centrally in Winchester would be useful as we've not met up there for a while?
If anyone who is around the week of 6th October, possibly the Thursday, wants to reply then we could see about setting a time and place?
Hope everyone is keeping well whatever your circumstances.
HI Ladies - it was nice to see you. Apologies for total blankness. seemed to go through a strange phase where people spoke to me but I could not understand what they were talking about - it was like being in the early stages of alzhiemers.
Finished radiotherapy treat and have just escaped Southampton Hospital. Picked up a chest infection so had 10days of i.v. antibiotics. seem to be wanting to sleep for England. Apparently this is standard. hair is dropping out all over the place so getting fitted for a wig tomorrow.
I will try to pull somethig together soonish. Or maybe someone else would care to do it.
Hope the chemo is being kind to you Nicky and everyone else is as well as can be expcected.
It was lovely to meet you as well. I was glad I was able to make it, having not felt too rough after my chemo, as I know it's difficult for you to get to out regular meet ups. A very long day for you so I hope you had a relaxing evening.
Hi also to Mara and Jacqui - lovely to see you both as well and good luck with scans/results/treatments that are coming up.
Noticed that you were all meeting on Friday 29th August at Tiffins - I don't suppose that there is anyone coming from Southampton area who could pick me up from the Red Funnel terminal @ Southampton please? I am on the Isle of Wight, work in a school so can't normally make your meet-up but I am off on Friday & would really like to come along. If you can help let me know & we can fix a time etc.
Many thanks, Helen x
I have dates - get my mask fitted next Tuesday and start the following week - so should be OK to meet on Friday. Looking forward to my devilishly unhealthy - teenage throwback - the Cocacola Icecream Float!!
Excellent - the more the merrier.
Still waiting to start WHR. so hope to be there.
All the best - love Jacqui