So pleased to hear from you and you are doing so well. It will be wonderful to see you if make it on Friday.
to everyone Winchester City centre is in a state of christmasmania when i was in on Tuesday the one way system was pretty gridlocked so if you can avoid that so much the better.
Really looking forward to seeng so many people - take care
I hope operation went well! I only got online today (after 2nd chemo). Previous one made me a bit unwell with high temperature etc. Better now. Let us know how you are getting on. You are in my thoughts and you will be in my prayers.Stay strong girl.
Kirsty sorry to hear your news.I totally sympathise. I wish and I hope E/E to work well for you. It's agood treatment, you are flexible with it and SEs are bearable.
Looking forward to see you all on Friday
Lots of love to all and especially to Liz
Hope everything went well for you Liz. Just got internet access yesterday evening where
I am at the moment, so busy trying to catch up. Been off the web since Wednesday. Hope to make it on the 13th. Thinking of you all especially Liz and Kirstie.
Hi there - it looks like we will be quite a merry throng on the 13th. If you are not sure where Winchester Discovery Centre is you can google it. I will try and get some tables sorted for us. If you like looking at pretty things they have an exhibition of Japanese Cloisenne enamal work on as well. If you fancy taking out books, DVD's etc remember you can drop of off at you local library when you are finished with them.
another thing if you are currently using urea based cream for hands and feet I can get the following at trade price for you. Simply Feet Cream is really nice it is parabens free and contains olive oil and papaya, lavender and mint amongst othe nice stuff and smells pleasant as well. Big (500ml) tubs are £10.99 and small (56g ) tubes of the 25% urea heel balm are £2.99. If you are interested let me know by Friday this week and I should have it by 13th. I have an account so you can pay when you collect.
Beginning to get excited about Christmas now
Have put the 13th in my diary and on the Calendar on my PC so I should remember ... watch this space ...
Hello lovely ladies.
Thank you for all your kind words/thoughts. I had the 1st chemo yesterday. Feeling not too bad today but still early days to judge the SEs.
Sounds like the 13th of December it will be a popular meet up:-) Can't wait to be honest.It will be very good to see you all and have a proper catch up.
Nicky,Kirsty, Jacqui: you are so kind and your words moved me. I hope I will be able to walk- I try to go out for a walk everyday. That's my strategy 🙂
Take care ladies.
See you soon in Winchester and of course please keep post your news here.
Great news that you have had your RT I am sure you will start to feel more comfortable soon. I stopped work a few weeks ago and like you I found it both a relief and rather weird and sad, I have worked for so many years - since I was 17 and over the last 3 years worked hard to build up my own private Podiatry practice. It was hard to finally admit I was not able to hold it all together. The plus side is that I have the time and energy for lots of other things as I am sure you will. Look forward to seeing you on the 13/12/13.
Cheers for now Jacquix
Brainwave - suggest we meet at the Discovery Centre (library in old speak) at 14.30 they have a big coffe cafe area and it is a nice environment. Also very near the station. The 2 nearest carparks are the Cattle Market on the corner the Andover Road and Worthy Lane and the Tower Car Park (google parking Winchester).
The Christmas Market is open until quite late - 9.00pm I think so folk can visit before or after coffee and chat. If you fancy going as a group post your ideal time and see ehat we can do.
Valia - so sorry you scans were so bad, bad news about having to go back to IV Chemo. If you find you want to come but cannot drive/walk I am happy to pick you up from home or nearby.
Kirsti - hope you have had you rads as Valia said not so good to start with but excellent once the bad bit os over.
Liz- hope your brain is OK and we get to see you..
I am on my 3rd day of Cap and so far so good few SE's long may it last.
Look forward to seeing you all and getting my Christmas Mojo going
I haven't been online for a while. After I had a lovely catch up with Jacqui, I had my 6months scan- rubbish results. Significant diseases progression. It was so difficult/ hard/harsh/ upsetting/scary to be at the low side of the roller coaster again. I start chemo tomorrow. I had a port fitted, generally have been very busy seeing doctors, thinking about treatments etc. I went away for my birthday- 09/11 and that was such a good present to me. It helped to get myself together and kind of find my strength.
So yes, I will be able to join the group on 13/12. Happy to meet wherever. Well, chemo number 2 will be on 9th of December so I hope I will be well enough to drive/travel. Anyway I look forward to see you all. One little change, maybe I will be covering my head with scarf again... 😞 I am sure you won't mind.
Catching up with previous messages:
@Liz: so pleased to have the best treatment! Hope you are doing OK
@Kirsty: hope you started radio now. I found it quite painful at the begging (doctor said it was a good sign as it meant treatment worked) but it will get better!
@Jacqui: I am so pleased you started your treatment. Hope the pericardiac fluid will be get absorbed without the need of a drain
See you all in December
It was lovely to see folk last week especally a new face ace Vicky and what a surprise to see liz looking so bright after having STR - hope you are still feeling bright and nasty SEs have not kicked in, rads can be sneaky like that.
Also a big thank you for the push to get myself sorted. Saw the ONC today after my GP contacted him - I am now on the peachy wonders (Capcitabine), took the first dose this evening. Also they have found quite a bit of fluid around my heart so had an echocardiogram and saw the cardiologist today as well. They are going to do another scan in 8 weeks and if there is no improvement drain.
Thought that Friday 13/12/13 would be a good date to meet next time. The Chistmas market is on so I have mixed feelings about meeting in Winch - the refectory could be packed and parking tricky. I will rack my brains - if anyone has other ideas do let me know.
PS Kirsti - hope you are OK. Let us know if we can help, support etc...
Great to meet some of you in Winchester yesterday. I picked up a copy of Christmas in Winchester 2013 in the Refectory and they have an advert for a panto at the Theatre Royal in Winchester 11 Dec - 5 Jan http://www.theatreroyalwinchester.co.uk/snow-white/
Don't know if anyone is interested because going to a show was mentioned and we could do a show and Christmas all in one ... just an idea.
Really looking forward to meeting some of you ladies tomorrow. Will look out for the magenta coat ... I always have a big black backpack with a teddy bear reflector dangling from a zip (really!!!) with me and will be wearing a glittery Poppy brooch. I walk with two Nordic poles.
It will be great to see a new face Vikki. Look for a lady with a bright Magenta coat when you arrive.
It was good to catch up with Valia - it sounds like she is doing well after having her liver mets zapped and has enjoyed seeing her family. The good news is that she should be able to join us on Fridays from the end of Novemebr onwards.
Hoping to see Kirsti and Nicky on Friday all going well.
Love to you all - Jacquix
Hi Hants ladies
Hoping that Jacqui and Vallia got to meet up on Weds, sorry I couldn't be there but hope to be at the next one. Nice to have a few extra members joining us as well.
Kirsti, that is Cr@p, as Jacqui has said. Hope that the rads sort out the pain and the different hormonal will do its job as well. Are you on denosumab? Or maybe a different bone strngthener? I wonder if it's worth asking to change if you're not on denosumab yet, as it does seem to be the one that quite a few oncologists are switching people to. Anyway, good luck with everything and I hope you get to the next meet up, it would be lovely to see you again.
Hi to everyone else, hope you are doing Ok with your various treatments.
I can make it to Winchester on 8 Nov 2013 for 2.30pm if it is ok that I join you. I have put it in my PC calendar and diary. Think I might make a day of it in Winchester.
Don't know if you are aware that there is a Christmas market at the Cathedral between 21 Nov and 22 Dec 2013. I went to the last day last year and got some great bargains and had a really good day in Winchester with some friends from work. There is an ice rink there as well, but I think you need to book for that.
Kirsti that is total c*$p I was so hoping that your pain was 'just one of those things'. It is so frustrating when you are not listened to. I hope the rads help and the change of drugs. We would love to see at the next get together - at the moment it looks like Nicky and myself, Liz has a hospital appointment. If it turns out you can't I would be happy to meet you some other time and be a shoulder for you and I am sure others would as well.
Take care Jacquix
We will be sorry not to see you Beanbob. Do keep an eye on the thread and hope to see you next time. Hope all is well with you - I seem to remeber you had scans a while back. Have a lovley weekend away.
Are you OK Kirsti and Sarah.
I've messed up dates: we're away that weekend for a long weekend. So so sorry.
8th november is in my diary - thank you for naming a date and keeping us in the loop. wishing you well till then.
Thanks for replying Nicky - it will be lovely to see you in November. It looks like Liz will able to make it as well so can we stick to Winchester, it will be easier for you.
See you on the 23rd Valia, don't know if anyone else will be coming.
Take care all of you - Jacqui
Sorry, I don't think I can make the Weds meet up as its a bit late for me to be tackling the traffic back from Winchester. However, I hope to make the one in November, fingers crossed and all that!
So far I am recovering from my latest heart procedure and hoping it keeps me out ouf Atrial Fibrillation, all brought on for those who I've not told, by my chemo back in 2008. It is an ongoing recovery with 3 months being the normal amount of time needed for the heart to fully recover from the ablation procedure I had done. I will, most likely, need it done to a lesser extent again and, again, this can't be done before the 3 months recovery is over. I hope that this does put me on the road to being able to have more intensive, and required, treatment sooner rather than later.
Hope everyone is coping with their treatments and all of the rubbish that these things bring to our everyday lives. I'll keep checking here in case the dates change but it would be nice to catch up with whoever can make it on whichever dates we manage.
Good afternoon Ladiesit looks like Autumn is well and truely here. I have 5 rather soggy chickens down the bottom of the garden.
Great news Nicky about your scan and the heart jolt has work so far - fingers crossed you finally get the best treatment for you.
Hope things are looking up for Liz and no more scary episodes an your pain getting sorted Kirsti. Also your scan has't got any new blobs in the picture Beanbob.
Some new dates (note the plural here!!) I am meeting Valia at the Cafe Nero coffee shop (top end of Winch High street near the Butter Cross) on Wednessday the 23/1013 at 4.00pm if this works for you please join us.
If you are happier with the Friday 2.30pm slot I will grab a table for us at the Cathedral Refectory in Winchester on Friday the 8/11/13. Sorry it is such abig gap but I am away for a couple of weekends and being greedy do not want to miss out.
It would be helpful to know who is plannig to show on Friday - if it is just me and Liz I will relocate to Hedge End to save Nick the drive.
Take care and hope things improve for you all.
Blimey - you all seem to be going through the mill at the moment.
Kirsti - will PM you, have some thoughts.
Beanbob - yes it is horrible when these things happen - waiting for scan results is really tough. I get quite unnerved. Keep us posted.
Liz - what a fright. Poor Nick, fits are quite scary to watch, especially when it is someone you love. Pleased that the scan did not show up new grow. Hope that get moving on some some definite treatment soon. You don't want too many moe of these episodes.
Nicky - hope thing are OK with you and you are recovering from you last proceedure.
Just a suggestion - hoe would an occassional weekend meet-up go down with you? It would allow the workers to join in. Doesn't have to be every time. You may feel it takes away from valuable family time. Please feed back in the the week then i will post a date.
Hope your proceedure went well Nicky and yu get good results - it makes it seem worthwhile then.
Sorry you couldn't it Kirsti and Sarah. Hope your scan is good Sarah and that you are Ok Kirsti.
I will post another date up soon - hope more folk get on board now that the holiday seaon is drawing t o a close. Liz and I would love to see more of you and hear your news.
If Friay pm is tricky for a lot of people please let me know and suggest an alternative- maybe we can work round it.
Take care all - Jacquix
Hello all, hoping I'll be able to join you next Fri, pending scan appointments. Sarah.x
Unfortunately I won't be able to make it on Friday as all my appointments have landed in the same week, having been contacted late on Friday about the heart one.
Hope you catch you all at the next meet up and wishing everyone well with their treatments.
Hey Kirsti -
It will be great to see you. I have been wondering about you and hoping that you are OK.
I will be there Winch. Cath. Refectory at 14.30 27/9/13, also I am expecting Liz, maybe beanbob and if appointments permit Nicky.
Take care Jacquix
Hi Nicky and Beanbob I am happy to meet you folk on the 27/9/13. Is Winchester stillOk for you both?
14.30 Catherdarl refectory.
It would be lovely to see you both
Nicky - I can still meet up with you on the 20/9/ if you like.