Hi Laura, I too came off the codeine and am just taking the paracetamol, not great but take the edge off, didn't get great news about path results yesterday, more cancer than they thought, they took away all lymph nodes and every one of them was infected, now to go for bone scan and another CT as another tumor was found in breast as well, should start chemo in about 3 weeks, so back to playing the waiting game , Laura I got my dressings taken off by BC nurses maybe you could give them a call, hope everyone is doing ok xx
123 Ali, you will be absolutely fine with the general. I too was terrified about the GA for a few reasons but everything was all right and it really wasnt as bad as I thought. I felt that if I woke up from the GA then I would never moan again, my husband will tell you, that was a lie. What a crap ex husband you have, I have a rubbish one too, he is currently working in India for 3 months, he did phone my girls a week after my mastectomy, didnt ask how i was but called to let them know that although a tsunami was about to hit where he was, he would be ok!!!! Selfish man never even asked my 13 and 11 year olds how they were and how all this cancer business is making them feel. There are reasons why he is the EX husband!!!!!
Sorry I havent been online at all this week as I have been a witness at a court case and have been in court all week. Had a fright tuesday as I tripped over and landed on my right side where the boob was, I could have cried, what a shock!!!!!Anyway, i still have the same dressing on, 2 weeks post surgery and have been discharged by the district nurse now!!!! Is this normal????
I have to go the hospital for results Monday and they will discuss the plans for chemo etc, a bit nervous but i am looking forward to seeing it without the dressing. I have finished the anti biotics for the wound infection and am feeling better although still sore. Have come off the codeine and am trying to survive on paracetomol as the codeine has given me horrendous costipation, 2 poos in 2 weeks, hellish!!!!
Apart from that all is ok, I do hope all you lovely ladies are doing well and staying positive,
Take care all,
I took button through nightshirts with me (£6 from matalan) the nurses would just left it up to check so if you had a baggy top that would probably be ok, as for a bra I was told to take a post op bra but so far I haven't been able to wear it I have been to tender.
I'm confused about bras and PJ's for hospital! I don't wear button up PJ tops and thought I would manage with my strappy tops and I wasn't going to bother with a bra. But a nurse told me today button up tops make check ups easier and I will need a non wired bra on to hold my new breast in position (having an MX and implant).
What have your experiences been? It's quite amusing to have something trivial to stress about for a change!
It's lovely to read everyone's progress, and I wish you all well.
Jennifer x x
Good luck 123ali, have been following the April surgery ladies. Mine (WLE) was the 4th and seems such a long time ago now! I hope it all goes really well for you. Sorry I have no info regarding Mx. The GA was okay thought. Nothing to worry about ((hug)) Love the mental image of you bringing your boob home in glass jar! It has just reminded me that the lady in the bed next to me on the ward was very insistant that she got her polyp (that they'd just removed from her rectum) to take home. They wouldnt let her so she tried to take the photo from her notes.. The docs insited they have it back as it was the only one. In the end she went home with a photocopy. You should have seen their face.
AS for recovery, I only had a lumpectomy and SNB. Was 2 weeks and 1 day ago and feel normal now. Tiredness under control now. Wound looks really good. I am a 34A and was worried about the cosmetic side of things. I dont know if there is much sweeling but its not even particually lumpy or even dented. Maybe that will change? The lump was 23mm. Have shown my wound/boob to pretty much all my friends and family - whether they wanted to see it or not!
Sorry to hear youve been through the mill Gillian x
Good luck to those waiting xxx
I'm due to go for mastectomy may 2nd. Getting LD with no implant as I now have to get chemo n rads after. It's funny but I've had such a long tie to get used to the op I am not overly stressed about it at the minute... Although when the time comes I will be a wreck most likely. So good to hear such positive reports... It certainly reassures me. Thanks ladies...
Dropped off the kids at the ex's - they all gave me a big hug and said goodbye to the 'booby' - funny its a bit like the hamster - they didn't take any notice of that until it was gone!! The seven year old asked if I could bring it home in a jar like my wisdom teeth, I didn't ask why! Kids ah - put a smile on your face at the most inappropriate times. They were upset but I think that was because Friday is big bag of sweets day which they will miss out on this week!!! Still more worried about the GA - as far as I am concerned get over the GA and that will be a result.
I know its one step at a time but I was never that patient.
It really helps that there are unfortunately so many of you out there who have been through the same thing and are comiing out the other side - it really helps.
take care everybody xx
Not long to go now on countdown for the op tomorrow - have a feeling that the house is going to be cleaned from top to bottom tonight especially as the children will be at my exhusband's - it could be that the dogs will be walked off their feet too! Hopefully it won't be four days in hospital, I have the marathon to run on Sunday! My very best wishes and gentle hugs to everyone who is dealing with this - xx
I went to see the nurse yesterday who said the dressings looked good, clean and dry and she would leave them until the surgeon sees me next week. It's amazing how tired I feel,also not being able to get on with the housework while I'm home. Haven't been able to wear a bra yet, it's till to sore.
Lots of hugs
Sorry your first op didn't go well, hope you are starting to feel a bit better, I felt really tired at first and still get waves of it now , have been told it can take anything up to 12 weeks to feel " normal " again, take as much rest as you feel you need , sending lots of gentle hugs xx
Sorry you are having such a hard time, I had mx and snb 2 weeks ago no reconstruction tho, was in for 4 days, I have been told no driving for 4 weeks, BCN always available to answer your questions and nothing is too trivial , good luck with the op tomorrow , sending lots of positive thoughts and hugs xxx
Diagnosed with DCIS multiple sites in March and after having the operation cancelled once due to have the mx and sentinal lobe removal (four I think) on Friday 20th April 2012 along with a reconstruction using a saline expander - want it all over and done with now and at this precise point more worried about the GA and how long I am going to be in hospital as ex husband has stopped my maintenance payments whilst he has the children - he said he would not charge for the three nights that he would normally has them every six weeks but for every night over he would make a deduction - more angry about that than the mx at the moment - is there anyone that has had the same treatment and able to give an indication of how long I will be in hospital - the booking in nurse said two days if everything went well - is that estimate realistic. Also is anyone able to give an estimate of how long it took to drive a car after having treatment similar to mine. Sorry for the questions but I forgot to ask the BCN and Consultant at the time and now they seem a bit trival to ring up and ask!
Hi have now had my op, didn't all go to plan unfortunately. Had my surgery on the 10th mx and LD flap recon. Had 2 drains in ( weren't as bad as I expected them to be) felt poorly after the GA. on the 12th I was told the surgery hadn't worked the blood vessels were to small so I had to go back for surgery on the 13th to have the flap removed and an implant put in and had the drains removed. Came home on the Saturday feeling battered and bruised my boob is looking good. Feeling quiet tired at the mo, trying to take it easy being well looked after. I go for a check up next Tuesday.
Good luck to all you ladies who are waiting for their surgery and I hope all you ladies who have had your surgery are doing well.
Take care lots of hugs
Hi Alanaa *waves*
Good to read you start rads, at last. Your oP is quite a while ago, has the wound finally healed?
just saw your post and realised you had your surgery by now. Hope you are feeling okay and that all is going according to plan so far with you. I am starting my rads tomorrow finally so one step ahead of you. Do take care and let me know how you are getting on
Hugs to all of you from
Alanaa and Fat Cat xx
I don't know quinni, next tuesday is nearly a week away so you have time to get better. I would guess they go ahead, but don't know of course. You could ring the ward and ask a nurse there.
I also was worried about the drains, possible sickness after GA and constipation LOL. None of these fears has come true, drains are 100% painless when being removed for example (everybody says it but I didn't believe it!). I imagined the healing process easier and more painfree though, here I sit eight days post OP and can't get my upper arm up to shoulder height I do the exercises after taking 2 paracetamol but it is really sore.
hi all sorry to jump in this thread but can anyone help me ..im having second op on tue ..but have had water infection .now coming down with cold sorethroat etc and think thrush from the antobotics from water infection will they still do the op im so scared of having op as it is xx
soz yes after ga im glad there was no catheter i was worried about that lol and the drains im a bit worried about them as well im not looking forward to recovery either not bothered about being put to sleep or the op itself just what comes after it been having things done since middle of january and no sooner have i started to heal and feel better i have been in for the next thing done and each time i seem to have felt worse afterwards and took longer to heal
thanks for posting x karen
Agree with you Christine , I wasn't worried about waking up, but getting a bit fed up with recovery, seem to be fine one day and in pain next day , swelling in arm and hand and having problems doing some of the exercises, seem to have taken a step backwards and tiredness not getting any better , hope everyone else doing ok xxx
babes you mean wake up after GA? I remember waking up or probably rather being woken up and people were standing round me and I looked round the room and thought I'm still in recovery as I didn't recognise the room and it was big. The other thing I remember was that they had a bag in their hand attached to me , must have been saline, but I thought it was a catheter bag and thought oh no they gave me a catheter LOL. The next thing is I remember they wheeeled me back on the ward, i fell asleep on and off.
I wan't worried about the GA or the operation. It's the recovery I do not like, sore armpit etc.
ive found myself panicking today about when i wake up not so bothered about being put to sleep not sure what exactly to expect when i do wake up can anyone tell me their experience as im imagining alsorts
No quinny, sorry can't help there.
Babes all the best for thursday.
Ginger all the best for friday. I'm exactly one week after you to get the results. Although I had chemo already so the nodes are a mystery in the end.
Exactly one week post OP today and I'm very slowly improving. Saw the BCN this morning, she gave me a softie and a bra. I feel very positive towards the softie. Nurse said although arm and round my wound site it's still puffy she thought it looks really neat and ti doesn't need draining, looks like I'm not developing a seroma as such. At last something positive!!
i have got a second op on 24th april to remove lymph nodes as 1 was infected im so scared of goin back in is anybody else having same or been thro same? xx
Babes367 we all need to have a rant every so often , I've done it many times and it does feel better to get it all out of your system, will be thinking about you on Thursday , 1J I found the waiting the worst part of it, I go to see consultant on Friday for path results seems like I have been waiting forever but it's only been 2 weeks since mx, been having problems with swelling in hand and arm , see bc nurses again tomorrow , sending hugs and positive thoughts out to all those who are waiting on surgery or results xxx
My first appointment was on 21st March. My first biopsy didn't work but left me black and blue. Still not completely gone.
The next one found a lump in left breast, only small breasts 38b hence the mx. The specialist radiologist was on holiday so had to wait for right breast exam last Friday. May not know the results of that test till day of op. as I am going to a wedding so can't attend the Friday clinic.
Operation on 24th April. It has been a long wait and still waiting.
Thank you all for sharing your experiences. It really helps.
well only tuesday and wednesday to go then that's me in for my mx it suddenly seems so real today and i know people only care but if one more person asks me what's wrong i think i will scream when sure'ly its obvious whats wrong with me rant over thought it might make me feel better xx
I have just found this group. My mx and snb are on 24th April. I have found all your comments very useful. Don't know what to expect but do appreciate the idea of keeping busy beforehand. I am going to a wedding on 21st April and staying over from Thursday to Monday 23rd. Hopefully this will keep my mind off the op. as no one there will know.
I can't have recon at the time as I am expected to have chemo and radiotherapy. Any one know roughly how long the op. takes?
I am on the afternoon list and expected to leave hospital the next day.
i had similiar experience after my snb nearly four weeks ago only just started getting feeling back in top of arm and armpit must say its a strange experience well only four days now till i go for mx getting pretty nervous now though just hoping i can cope as well as all you ladies seem to have been my kids are coping better than i am with it all lol
Hi Christine, loveley to see you back!
You will be amazed how much better you will feel in one week, never mind two. Just take all the rest you need, have naps when you feel like it, and tears when you feel like it too..it's all your body's way of healing.
Deal with each day as it comes and the ups and downs which are normal.
Big hug to you and hope you heal well xxxAnnxxx
Hi Christine, have all the same sensations in my arm was told this is normal , still pretty sore and numb, i too am finding the exercises a bit tough, hoping too get more movement soon xx
Back today after spending three days in hospital for MX / ANC and have to say upper arm and armpit feel butchered, tender, raw, swollen, thick, bruised and uncomfy. I have a burning shooting sensation in my upper arm when doing some movements which stop me in my tracks. They let me out today and say it is a bit puffy (feels like having a rugby ball under the arm but nurse laughed and said it's only a tennis ball LOL), like when you had an injection from the dentist and lip feels really thick and numb, that's how the upper am and the arm pit feels. They are happy with the little wound swelling there is and i go back on tuesday to see the BCN, she'll have a look at it then again. i had two drains in, one was pulled out yesterday the other one this morning. I do the exercises the physio assistant has given me, but i'm somewhat careful. I feel quite insecure of how much I can do. It's early days yet. But I'm really glad to be back home and just wish I could fast froeward the time by at least two weeks, where I expect to feel a lot better!
Love Christine xx
Laura hope you are feeling better, snb wound still a bit sticky but not red or inflamed, went on to second lot of exercises but finding them quite difficult to do, still no feeling in upper arm hoping it comes back soon, hope everyone is doing ok xx
Poor Laura, just when it was all going so well. Hope you are on the mend now. I'm paranoid that I am going to get an infection. Touch wood and all that nonsense. Hugs to you x
Results day for me tomorrow. Not really feeling anything about that. (Already know that SNB was alright). People keep asking if I am nervous. Should I be?
I too have been tired, and i only had a WLE. I think the anesthetic takes it out of you. Sleep has also been a little tricky - keep wanting to lie on my front! I'm still sticky ginger1 not the best look.
Good luck to those going in x
Hope you are all struggling on. Afetr being on a high after the mx, I now have a bacterial wound infection which ended up in me having to go back to hospital. On strong anti biotics 4 times a day now, honestly feel the op was nothing compared to this, i felt so ill, but i have had 2 days anti biotics now and I am feeling myself starting to get better. Really felt like giving up the other night but this is just the beginning, had a wee cry and pulled myself together. Was moving about really really well until this infection and now I have to start again......typical!!!!
Hope you are all keeping your spirits up, we can do this!!!!!
Take care all,
yes had tiredness. the first few days nearly a week after mx was ok, then it caught up with me all of a sudden and was always tired by afternoon and ended up having couple of hours sleep every day. still get tired now if i have been out doing something or been somewhere then when i get back i am wacked. told GP last week and he says completely normal can take upto 12 weeks to physically get over a mx? i thought 4 weeks was nearer mark but he disagreed. i suppose its mental and emotionally exhaustion as well. i am just 6 weeks on from op.
if you are tired then have a snooze, like everyone says so often on here listen to you body.
sending lots hugs to everyone having surgery this month.
Hi everyone, feeling a bit tender today, got dressings off yesterday, bit of sticky residue , wound looks good, snb wound a bit sticky but will just have to keep an eye on it, don't get results until next Friday so playing the waiting game again, seem to be ok then a wave of tiredness suddenly hits me, does anyone else feel like that?? babes367 welcome and join in anytime xxx
i too go in this month 19th of april im now on countdown it is good to read that the thought is worse than the outcome i to have been told i will be in for at least three days before they will consider letting me come home i have opted to have a expander put immediately in incase i need further treatment i can't believe that some have come out almost imediately so it can't be all bad i have just looked in on comments as been having hard time in last two weeks emotionally and physically got an infection after snb but feel loads better today still nervous but no where near as scared about waking up after reading everyones comments xxx thanks and sorry for gatecrashing
Ann, that's such an encouraging post. thank you! I shall keep reading it, and the others which say the surgery is a breeze, on the lead up to my op.
I"m changing my mind about an implant and think I won't bother with recon either (although I'm a bit younger, 43, and a bit bigger 34C). I want to keep things simple for my body and my surgeon promises he can give me a smooth, non-lumpy look so I shall have to trust him on that!
Hi to all you lovely ladies, this is my first post as my head was a bit muddled last week, leading up to my mastectomy. Well it's over and done with now (11pm Mon 2nd Apr) and I just want to reassure anyone who is understandably nervous or anxious...don't be!!! The op is a breeze from beginning to end and for some reason I haven't been all that emotionally affected either..only get very weepy when I get that god-awful tiredness that just suddenly hits you. I didn't want recon (why bother, age 57 and only 34B) my main reason being I'm pretty slim and don't have the spare flesh. I didn't even have to think twice about that! No, I've been wearing a softie in my M & S post surgery bra since about 18 hours after surgery and it's very comfortable. Had only one period of "pain", which was really only inflammation, on the day after, but the nurses quickly had me sorted out as they really want it to be completely painfree for everyone.If what they routinely give you isn't working for you, just tell them and they will up the dose or try something stronger.The best advice I got was, remember it's your pain and you are the only one who knows how that feels, so don't be scared to ask for more pain relief.I think it's being in pain that scares the hell out of most of us, but trust me, you do not suffer.Best of luck to everyone waiting and hope you all have a good outcome.Christine, I am posting this a bit late, sorry, but you know you are in my thoughts today and tomorrow...you will be just fine xxx Ann xxx
Nice to "meet" you all.
Jefner: My diagnosis was 16th March and operation (WLE/SNB) was 4th April. 19 days - pretty quick?! Athough they are loooooong days!
Laura: Snap! Special hee hee. That's been said about me many times, usually in a different context 😉 I agree, great forum, lovely ladies.
Good luck to those ladies still waiting for their ops this month. Have just popped to my practice nurse to have my wounds checked. Bit tender now that the dressings have been taken off. Lots of sticky residue from the dressings which is a bit yuk. The WLE looks really good. Just a thin line about 3 inches long. The SNB looks more messy. For some reason I was expecting 2 dots? Dont know why because they did tell me it would be a line.
Results Friday. Feels like I am ticking things off a list. Next....
Take care all
Hi Christine, I was in for 4 days after mastectomy and snb, think it might be because you will have a drain in, I had to wait until mine came out before they would let me home, will be thinking of you on wed, keep strong xx
I go in tomorrow and the MX and node clearance is on wed. They said they keep me in 3-5 days, everyone else seems to just hop in and out within 24 hours, wonder why they think I need to be kept in that long!? I have no underlying illnesses whatsoever, youthful age of 42 LOL. Never mind.
I'm not too anxcious at this moment, I hope I sleep well tonight and tomorrow night when in hospital. Can't imagine what it looks like to have just one boob, unfortunately soon find out.
Hi jefner, I was diagnosed 7th March, had surgery 3rd April, on 4 week wait, feeling a bit better tonight but still sore and really tired, hope everyone else feeling ok, agree with other comments keeping busy is best xx
I know what you mean about trying to keep busy, I went out for lunch with my husband and daughter, and spent the rest of the day doing housework trying to keep busy. The waiting is the worst part. It is all surreal, I think going into hospital not feeling poorly knowing I'm having an op that will change my body!!!!!
Hey Gillian, I so feel for you today. I will be just the same when it's my turn. An MX just seems so surreal. I don't know what I'll do with myself on the days leading up to surgery, but I guess it's important to keep occupied with something fun.
Jennifer x x
It's great to hear the ops all went well, and I hope you pick up soon Ginger. I'm sure we'll all be affected by the surgery in different ways and at different times. 16 days and counting for me.
How soon were you operated on after diagnosis? I was diagnosed 14th Feb and will have my op 25th April. It seems quite a long wait, but I don't know how it compares. I'm on Tamoxifen so at least I feel the cancer is being targeted already.