Hope you are all enjoying the Easter holiday even tho the weatther isn't very nice. Very wet in Winchester. I am going in tomorrow to have my op. starting to feel very scared, frightened, sick etc.... Now it all feels so real from the first day I found out I would be having a mx with recon it never really sank in until now. Have just got my bag ready, waiting for the time to pass. I wonder how I will feel this time tomorrow after the op.
Sorry for the rant but I'm feeling very emotional.
Hope all you ladies who have had your ops, are feeling well and are on the mend.
Snap we are both 36!!!! It is totally unexpected at this age but then again we must be the special ones!!!!! Glad you are feeling ok, i had my mastectomy the day after you so apart from our age we have something else in common. I have found this forum great, i have dipped in and dipped out but it is a community of lovely, brave ladies who gove endless support to each other. I hope all you girls make the most of this bank holiday monday.
Thought that I would say 'hi' and introduce myself. Have been lurking for a month now. Funny old club to have joined. I find saying the words 'I have breast cancer' a little surreal. After all I'm not even ill?! I'm 36.
Was diagnosed grade 3 ductal BC 16th march. This Wednesday, 4 April I had my Lumpectomy and SNB. My hospital have a machine that biopsies there and then. Lucky me was first up to have a go so woke up looking for the drain to see if I'd had clearance. Am lucky no drain. Path results due Friday 13th (lol).
Operation no problem at all. Not painful after. Am exhausted though! Also finding it hard to chill.
Hope everyone is doing well x x
Hi everyone, mastectomy went well, snb done also, bit sore and numb, cant really lift my arm, feeling a bit down today, hope everyone else is recovering well xx
Hi Girls, just to let you know that evrything went ok with my mastectomy on thursday. Had the op late thursday morning and they let me out at 9am on friday. Unfortunately, we didnt speak to the surgeon after the op and he didnt come in on friday to discharge me, he just called up and the nurses said i was ok and that i could go home!!!! (My hubby was not too happy with this!!!)
The nurse in the hospital said the district nurse would come and check the drain but they haven't arrived yet, it is nearly 6 pm on saturday and I got home at 10am Friday !!!!
Nevermind, I don't feel too bad, in bed taking it easy, watching lots of TV!!!! Feeling very hungry, so cant be that ill!!!! Thanks for your reassuring words about the anaesthetic Paula, you were right, it wasnt too bad!!!! They took the sentinel nodes out but it is not too painful.
My gorgeous hubby showered me this morning and washed my hair, he was so nice and gentle and told me that i looked beautiful!!!!! He looked where the wound was and said he loves it cause that will save me life!!! I am so lucky to have him, what a sweetie.
So whoever is still waiting for the op, honestly dont worry, it is really bearable and not so horrendous, if I can do it, any one can because I am the biggest wimp going!!!!!
Hope all you girls are having a nice holiday weekend,
Love and hugs,
PS, MY daughters have both seen the wound, the 11 year old said, it's not that bad , you cant really notice, you had small ones anyway!!!!Love it xxx
I had a great meeting with my consultant on Tues. I was able to express all my fears and concerns about which op to choose and he was great - took me seriously and gave me lots of time to go through the pros and cons of each option.
I went in thinking I might go for an LD flap or no recon (but not happy with either option) and came out agreeing to an implant! Still not sure this is best, but I realise no option is a good one, as they all mean I have to lose my breast. This option keeps the door open for alternatives should the implant not agree with me or if I just don't like it.
It's all starting to feel a bit more real to me now.
Easy to say don't worry, the general is really nothing to worry about, in fact it's much better than being awake lol. The whole team take really good care of you, constantly monitoring everything. They walk you to the operating theatre, and put a cannula in your hand and then soon after you go to sleep, all very quick and painless, then in seems in no time at all you're wide awake again and it's all over, I think I'm lucky not feeling much pain at all, only tenderness, being careful not to lift anything heavy. Managed to have a bath ok this morning with no mobility problems whatsoever, I can even lift my arm ok to get dressed etc. I was very nervous the night before the operation and on the morning, but worried needlessly, you will naturally be sad and relieved afterwards, and I have felt quite emotional today and in a bit of a daze, but just on auto pilot and concentrating on recovery and healing.
Best wishes for Thursday.
Ginger1 - hope you're ok after your operation today.
So glad you are feeling ok. You seem to be doing brilliantly posting a comment a day after surgery, good on you girl!!!!! Hope I am as brave as you on Thursday when it is my turn. Hope all you girls are hanging in there and not getting too nervous!!!! Wish i could listen to my own advice!!!! Very nervous about the general, more so than losing the boob, crazy I know but then I am a wee bit crazy!!!!
Sending big hugs to you all,
My Sentinal Lymph Node and one other Node were removed last October and they were clear, so I didn't have any Nodes removed this time, just straight forward Mastectomy. I've put my sponge boob over it today so I don't feel at such a loss of not seeing the real boob when I look down.
Paula, great that you're back home and all went well. Will read in the Nov thread now to catch up properly. Did they not take any lymph nodes out?
Ginger, thinking of you, hope all goes well!!
Love Christine xx
Wow, Daysie in and out on the same day is great! Hope recovery continues to go well 🙂
Thoughts are with you today Ginger1, having your MX.
I have to decide by this afternoon which option to go for, and I seem to change my mind hourly!
Just a quick post as I have written more in the November Chemo group. I had my Mastectomy yesterday morning, in theatre at 8.30am and ready to go home early afternoon. Not as bad as I thought, not too much pain either, surgeon said the operation went well, straightforward removal of right breast. Feeling emotionally numb and kind of relieved. Going to take things easy for a few days and try to recover from the horrendous ordeal of the last few months, especially chemo, so glad that is finished. Just got radio therapy to look forward to in May, then return to work in July all being well.
Best wishes to those having surgery during the next few days, don't worry, it is a cliche, but it really isn't as bad as you will be imagining. I keep looking at my scar and where my breast was, it seems very surreal. I will probably feel better when I can get a nice bra with pocket and proper prothesis, which feels like an external implant.
Ginger1, best wishes for today.
Hi all and especially Gillian,
I was reluctant to do so, but gave in eventually and I'd really recommend asking your GP for either something to reduce your anxiety or to help you sleep before your op and possibly afterwards. you'll need your stamina so getting to sleep is really important. I was SO anxious and hyped up, but took a low dose of zopiclone just a few times and it did help.
Love to you all preparing for surgery,
Sending all you ladies who are due or have had your surgery lots of hugs. I'm now on account down, mine is next week on the 10th starting to get very nervous amd having sleepless nights.
Paula all the bets for today, so nice to read of you again, will be thinking of you today and hope all goes well, please let us know.
I'm due next week wed, going in on the tue already, getting more nervous now and even dreamed about it a couple of nights ago.
Hi girls, i too am having surgery. Having my masectomy this coming thursday. No reconstruction
As i am having chemo and radio. Hope you are all ok and sending all of you love and luck, laura xx
Wishing you all the very best. I am 5 weeks post op. I can say, quite honestly that I was absolutely terrified of surgery, more so than of chemo. I just didn't know what to expect or how I was going to get through it. BUT, I did, and it wasn't the horrifying experience I expected.
I hope and trust that you will all come through smiling.
Will be thinking of you all..
How are you feeling about it? It's a scary prospect, but very necessary to go through - I'm counting the hours...
I am having a mastectomy on 3rd April, no reconstruction, sending good wishes and positive thoughts to all you ladies having surgery this month too xx
I'm having my Mastectomy tomorrow morning 2nd April, feeling very anxious. Not having reconstruction at the same time as I will be having radiotherapy next month.
I can't imagine how I'm going to feel tomorrow, I worry about everything imaginable.
I just wish today would go slowly so I can enjoy my last day feeling like a whole woman with 2 breasts :o(
Lizzylu it's good to hear I'm not the only one changing my mind daily about reconstruction! Based on my last 2 meetings with my consultant, I'm not expecting him to be as supportive as yours has been. He's young and doesn't seem to be able to see past recon with an implant, despite my concerns about it.
I think I have to say no, because I have ME/CFS and there's a slight possibility an implant might aggravate the condition. This isn't a condition he's taking at all seriously (despite the fact I've lost my house and now my job because of it), which isn't unusual for the medical profession, but it sure is unhelpful. It feels like a very lonely decision making process.
Hi Ladies, hope you don't mind me joining in. I am having mx and LD reconstruction on 30th April. In the week before seeing the consultant I changed my mind every day what I was going to have done but felt positive about it when I went into the clinic. The Consultant was very friendly, answered all my questions but when she asked if I would like her to do the operation for me on April 30th, I just burst into tears and said I didn't know! I said I just felt so scared and then kept apologising for crying. She was so nice, as was my BC nurse and showed me pictures of operations she had done and kept saying oh I could do this for you, and maybe this.
She said I could just have the mx and have the recon later, but like you ladies have said, I don't think I would be brave enough to return for surgery later so waking up knowing its all been done seems pretty good (although I'm certain we would all rather be doing something nicer)
Good luck to all of you April ladies, sure there will be lots of virtual hugs around in the coming weeks.
Thanks Lemoncake. I don't think I'll be brave enough to return for surgery later either, so it's now or never. I either get used to an unattractive scar and using a prosthesis or I get used to an implant.
Poor you, Sarah. It sounds like you have a heck of a lot to get your head around. Sorry I can't help with the nodes thing. Good luck. x x
I had mx/tram flap recon on 16/2/12 and just wanted to say to Jennifer that I to was undecided if I should go for a reconstruction at the same time as the mx but I am so glad I did. It was a big op (12hrs) but now I don't really feel as if I've had a mx because the recon looks exactly like my old breast minus the nipple - which I will have done in 8mnths. The only difference is that I have no feeling in it. If you have an immediate recon you usually keep the breast skin so it is sort of like emptying out the old breast and refilling it which gives a better cosmetic result. I haven't felt I needed to adjust to losing my breast because I woke up with one still there.
I also had DCIS (3cm) plus 4mm of invasive cancer and I will now have Zoladex injections starting in 2wks to make me post menopausal and Arimidex tablets daily for 5yrs. I took Tamoxifen for a previous breast cancer in the same breast 13yrs ago so won't be having that this time.
I don't think I would have been brave enough to go back for another op if I hadn't had it all done at the same time.
Posted on behalf of new user Sarah
just heard that my surgery (bilateral mastectomy no recon, bilateral oopherectomy and left axilla clearance) is booked for April 25th. Don't think the enormity of it has hit me yet, but sure it will in the intervening time. Worried about bloods etc. thereafter as I have no lymph nodes on my previously (right hand) cancerous side. They seem unwilling to fit a port(a-cath) at the same time as the rest of the surgery.
More worried about my armpit than my breasts or ovaries. Anyone else out there with no lymph nodes left? Any advice?
I'll just make it into April, having a MX on 25th. The reality of losing a breast is just starting to sink in with me, and I don't feel I'm ready for recon at the same time - need to adjust to losing a breast first. But, if I don't go for recon now I will have to return later which I really can't see myself doing. Got a week left before my onc wants to know my decision....
Like others, I've got mainly DCIS (5cm) plus a small tumour (8mm) and don't expect to need rads or chemo so I count myself lucky in some ways.
Is anyone else on Tamoxifen before their op? I started on it last week.
I too am having an MX with immediate LD flap reconstruction sometime in the week commencing 16th April. I have an appointment with the breast surgeon tomorrow so I'll find out the exact date then. Have my pre-op assessment on Friday. Never thought I'd ever see the day that I'd say I'm looking forward to my mastectomy, but after 4 months of chemo (finished 14th March), I'll be glad to get it over and done with. Not sure yet if I'll need rads but pretty sure I will. Have already resigned myself to it so it won't be a surprise if I do. Am not worried or nervous about the op at all but am really trying very hard not to worry about the results a week or two later. That, for me, will be the absolute hardest part.
I had my pre op assessment today as well. I go in on the 10th April midday having op in the afternoon. Now I'm going to have all morning to worry about it.
Had the pre op assessment today, went well, had to have another chext x-ray as the last one was done four months ago, took some blood and asked me all sorts of questions, one was "any mental health problems?" Me "No I managed to keep my sanity through this all" LOL
I have my pre op on 28th march as well.
Nonsuch, I think one of my main worries is what will it look like after!!! I'm 42 and have been with my husband for 24 years. He is very supportive also I have a 17 year old daughter who seems to be coping ok. I do feel I have to keep a brave face for those I'm close to.
It seems very hard having ti have such big surgery for DCIS, doesn't it? I had same diagnosis, in fact one of the two tiny areas was all removed in the SNB, so in the end there was just one tiny bit remved in the mx. So, I'm pleased that was all, though it was major surgery and so thankful I haven't had to have any other treatments.
The LD flap is really different from the diep but Rev Cat and so many others are really pleased with the results. These mx/recon ops are hard Initially, because they affect so much of our lives, but in most cases, it's not actuallly painful, more uncomfortable. you just feel you can't get on with anything till it's sorted!
Not TQOO long now...!
Me!! I'm just one day later than you. Will be admitted on the 10th and MX on 11th. I finished chemo nearly two weeks ago and have rads after surgery, so no recon for me.
I have pre op assessment on 28the of March.
I'm having mx with ld flap recon. I do think the waiting is the worst bit, its the not knowing...I'm now starting to come to terms with having to have the op. I have widespread DCIS, I have been told I won't need chemo or radiotherapy.
Sounds like you are doing well after your op,
What type of recon are you having? I had a mx and diep at the end if November so I'm exactly four months post op. It was a big deal, especially for me who had never had hospital treatment before. But actually it wasn't nearly as bad as I feared. The op was shorter than I expected as there were two teams, one doing the mx and the other the diep, and they are very very experienced with DIEPs. My daughters told me to go for the best option while I was having the mx done anyway. The results are really impressive...I think the waiting is the worst bit!
I've been to see the plastic surgeon today to see what she suggested as finishing touches and I'm signed up for q package of various titivations that should make me much better body wise than I started with!!
Happy to send you more details if you PM me your email address...
Don't worry, enjoy the nice days and get out and about...!
Hi, I'm due to have a mastectomy/reconstruction on 10th April. All of a sudden it seems very real. Feeling very scared. Now on count down for the day to arrive. Anyone else due to have sugery next month?
Hugs to all