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Surgery & living alone

Re: Surgery & living alone

Btw, the Pitrok deodorant is literally a rock. Huh?

Re: Surgery & living alone

Jill, I am not sure why I am still working.. it's an almost obdurate persistance for no good reason.
Jill1998
Community Champion

Re: Surgery & living alone

Everyone seems to get a random selection of appointments,like shift work you will be all over the place.Cat will sulk but forgive you ,but will be hard to plan work.There is no way I could do my job amongst this chaos,you are doing well to keep that going Mael.

Re: Surgery & living alone

Nah, can't sleep; they tell you to breathe in, breathe out, they tickle you with felt tip pens...

I foresee the tedium crushing me eventually but simply because it's a whopping 30 sessions. My appointments are apparently "all over the place". If the cancer won't kill me, my boss will. Or my cat.

 

Went to buy the ointment I have to apply (E45) and the recommended deodorant (Pitrock).

Then had a whole box of mochi green tea ice cream, all for me, to bribe my poor little self. Yum.

 

Anyway, the gist of it is -- worry not; so far, almost a piece of cake. Srsly. x

Jill1998
Community Champion

Re: Surgery & living alone

Go with it then,just try not to disturb the other punters with your snoring...

Re: Surgery & living alone

The temptation of dozing off is strong, totally.

Jill1998
Community Champion

Re: Surgery & living alone

Boring is ok compared to high anxiety,you may be able to have a nap....

Re: Surgery & living alone

Not upsetting at all, just boring.

Re: Surgery & living alone

Yes Jill, I am on the bus, just out of the dry run. It's very tedious but again, very serene place in this new hospital as well.
Jill1998
Community Champion

Re: Surgery & living alone

Sheena/Mael do you both start radiotherapy tomorrow?

Re: Surgery & living alone

Dawn i hope you get some answers and a way forward. Really feel for you. I have heard of that pump type thing. We're all sending you a group hug xxxx

Re: Surgery & living alone

Morning ladies, Sorry I have been quiet, have been away for weekend caravan by beach down Gower not the Caribbean I know but comes joint first for me..
Port is in body to inflate bag inside bloob to try and make it the same size has my breast..
Aargh!!!!
Feel better now..
Will find out today at 2, to see whats happening..
What will be will be.
Thank you for all your support thinking of you xxx

Re: Surgery & living alone

Indeed, they are like Panini stickers -- I miss only Infection to complete the album. Sleep well, you too x

Jill1998
Community Champion

Re: Surgery & living alone

Would be disappointed if I didn't collect a full range of side effects , sleep well Mael.

Re: Surgery & living alone

Just passing by, and sending a big hug to all of you x

 

Too many things to comment upon, and too little time tonight, I will do it soon. Jill, I've got cording and the works as well... we are not left wanting, clearly: the full monty! Sheena, do you start radios on Wed as well?

 

good night beautiful ladies, I may be a bit silent but I do read xxx

Re: Surgery & living alone

Hi Dee,

 

Know you are getting involved at Royal Marsden and we do have a Big C centre at my hospital but to be honest i ve seen enough of hospital, and hearing about cancer, i just want to move on now,  It helps some i know but me no i just dont want to get involved with that sort thing.  it still seems a bit unreal to me as though it never happened, as said thought everything would change after my treatment finished, see more friends, people wwould stop being so childish re things that happened years ago, id get invites to parties, 2 this weekend i didnt, but to be honest, if anything i see less of one of someone i thought was a close friend, she pops up on fb seeing others, but not me,ive seen her about twice since my treatment finished and havent been round hers for weeks, she keeps saying you must come, but when i say tell me when,nothing. She has the BC gene and her mum died of BC so it isnt as though she doesent understand.And i have to say out mutual friend hasn t seen much of her either.,

 

Thats why i need to meet new people,  Im amazed the number of people who responded to my streetlife message,  Lets hope i meet some new interesting people on thurs,Need to,  Good on you with the dating thing, you are still young enought to meet someone, i  unless i want to be a nursemaid, or am desperate enough for anything,im not,  have to accept that is something i wont be doing.  Where is the idea that men wear better than us, once they hit 60, very few do,and those that do are usually bookedlol Junexx

Jill1998
Community Champion

Re: Surgery & living alone

It's a bugger that goat...Can't find my tattoo, think it's washed off ....

Re: Surgery & living alone

Exactly Jill and our busy rehearsal schedule! And not forgetting tales of taming of the goat. Xxx
Jill1998
Community Champion

Re: Surgery & living alone

How are we going to organise the tour to Outer Mongolia without it?

Re: Surgery & living alone

I hope they get it sorted out. Without you girls i'm lost! you have all been so supportive we've laughed and cried! 8b need each other xxx

Re: Surgery & living alone

Posts have become quite impossible these day's, it's driving me mad!

Sheena 

Jill1998
Community Champion

Re: Surgery & living alone

Yes ,it wouldn't let me post for 24 hrs it was really frustrating and it gave me a new name which was very bizarre!!When do you start rads ,later this week?

Re: Surgery & living alone

Ladies

only just got into this "new improved" site! Totally rubbish I'm no technophobe, but all I could do was read and not post

bonkers

sheena x

Re: Surgery & living alone

Definetely Jill you just think lets do it. Its a good feeling as rather than listen to other people you listen to yourself for a change. I think BC after treatment makes you want to live life for the moment and it feels good 😊xxxxx
Jill1998
Community Champion

Re: Surgery & living alone

I def think that when you are "at peace with yourself" you are more likely to attract people.There is a definite element of "oh what the hell lets do it" when you are faced with your own mortality .


Re: Surgery & living alone

I agree Mustique it is. I'm so pale a spray tan would defo make me look orange. I was on a date last night will a guy i meet with a friend whilst in Chelsea. We had a great time and he wants to see me again. It seems as if finishing treatment has given me a new lease of life in the love stakes. I wasn't expecting it at all but i think its down to just being myself and enjoying and appreciating life I think it attracts things to you. And not caring what anyone thinks listening to my gut and what i really want which i'm not quite sure of yet! 😊xxxx
Jill1998
Community Champion

Re: Surgery & living alone

When do we go to Mustique ?Need to get spray tan... ....
Jill1998
Community Champion

Re: Surgery & living alone

Very good you are putting something back Dee ,any plans for the summer????

Re: Surgery & living alone

I found getting involved with the hospital opened up circles of friends for me. I want to give something back as i love The Royal Marsden. Its not for everyone but I feel alive helping other people in the same biat not just breast cancer. Is there anything you could get involved in helping out at your hospital June? Don't know if you would want this but its a thought? Xxxx
Jill1998
Community Champion

Re: Surgery & living alone

June, go girl, sounds like you have a social group in the making there ,give it a go

Re: Surgery & living alone

Bless you Dawn, what a bummer for you and such a pity you will miss spa trip, hope hols still ok.Seems unbelieveable that they could mess up like this.  Surely they do these ops all the time, think would be a matter of course, 

 

Yes i seem to have snowballed with this needing new friends thing, Loads have popped up on streetlife, saying feel same,  Norwich isnt exactly small,its a city but it does tend to have some small town attitudes sadly.  People tend to stick to people they have known years and families, new people do find it hard to break into circles here, I worked here for years but sadly many of those i worked with seem to have fallen by wayside, not my doing, i will say and now i really only see 3 friends regularly and to be honest havent seen so much  of one of them lately again not my fault,, she keeps texting saying we must meet up but nothing seems to happen  though on facebook shes popping up with others ,Seems  just the friend i dog sit for and another friend i always meet every 2 weeks, I definitely need to meet new people so must try.

Junexx

Re: Surgery & living alone

Dawn unless you're having more chemo do you actually need the port in place? Sending you hugs you have to go through another op. Hopefully this time it will heal quickly. Holiday in Sept you should be ok for?
8b ive been quiet too as i have been catching up with friends. June so relate to you and the strangeness of treatment finishing. Its a good feeling but at times you do feel a bit vunerable and tearful but i keep telling myself its all normal. I have been invited to a secret garden party next Saturday for The Royal Marsden makes me feel better i'm doing something to help other women that really keeps me going xxx
Jill1998
Community Champion

Re: Surgery & living alone

What does the port do Dawn?Will it really stuff up your plans,seems very unfair...

Re: Surgery & living alone

June, I think it is difficult at any age being single and having breast cancer...It is difficult to just get out there and meet new friends, but we have to try..
I live in Wales and its a very small place too, so I xan understand what you are saying..
8b I have been quiet for a while because I am p***off
Not a great word but it sums up directly how I am feeling..
Spa break all booked ( 2 weeks time) jealous friend been put in her place, so I was really looking forward.
Only to go and see my BC and to find out the skin over my port is not healing,
Why?
Because the surgeon has put it in wrong place, rubbing against bottom of bra!!
The nurse told the surgeon previously, so now I have to go back Tues..Have been warned surgeon may have to move port..
So I am not a happy Bunny, why is it I may have to go through an unessary procedure..
What is worse, I will not be knocked out for it!
My spa break will have to be cancelled and my 50th holiday in Sept I will have to wait and see.
I even bouhght the surgeon a lovely bottle of red to thank her for doing a good job..
Want to cry, but I am so Angry I can't...xxx

Re: Surgery & living alone

Hi mael,

 

Norfolk is a lovely county and Norwich a njce city  but its so small minded, at times, it drives me mad,  Ok im in my 60s, but i dont want to han g around with a load of retirees i like to be friends with all ages, ive always had younger friends, and  im very young for my age cancer hasnt changed that or giving up HRT,But here most people i know expect women of a certain age to behave in a certain way,This "friend" i mentioned her mum isnt much older than me, but is very po faced she spent all night at her wedding sitting down looking miserable and is very religious,perhaps she expects all woman that age to be same,well not me.  No it dosent spoil things if we go to others events, i dont let it, but i never feel comfy with her, always  feel shes judging me

 

I need to meet new single people so i took bull by horns and mentioned on our local street life site, was there anyone like me, mature, single, no kids friends all wih patners, not much family, Got quite a lot of contacts, and one woman has suggested we all meet at her house one night next week wating for confirmation when. They all seem to be 40s upwards which is what i want so who knows, None of them seem to like social groups, quite a few dont seem to originate from Norfolk, which brings me back to my orginal story how it is here,but they can say what they like about it, dosent bother me im half norfolk and half suffolk, very similarlol, but ill probably agree with them,  lol Junex

Jill1998
Community Champion

Re: Surgery & living alone

Boob getting more alarming in appearance Sheena and definite signs of cording in boob and armpit, joy, let's add that to the list !!
Jill1998
Community Champion

Re: Surgery & living alone

Thank goodness for that....

Re: Surgery & living alone

Jill, Twiglets are never wrong.

Jill1998
Community Champion

Re: Surgery & living alone

No mention of Galaxy Cookie Crumble, twiglets or beer... disappointing cos I am using them as antidote to Tamoxifen side effects ...all this is a minefield isn't it.

Re: Surgery & living alone

For Jill and Sheena -- an interesting page, seems research-based: 

 

http://foodforbreastcancer.com/articles/what-should-breast-cancer-patients-eat-during-radiation-trea...

 

I checked because I've been stuffing my face with idiotic quantities of sprouts since one month; since they are strongly antioxidant, I might ask the radiotherapist if it's ok to continue. The page doesn't say, but contains other interesting info. x

Re: Surgery & living alone

June, I understand what you write, the sense of "well, there was all that tragedy. And now? Why is everyone going about their live like nothing happened to me? How they cannot understand?" and, I know it's little consolation, but I relate, even if, unlike you, I haven't been ferried to the other side of this dreadful river yet.

 

On a ligher note, it's so colourful how you express how you're not in awe of Norfolk, that I've started to think about all it's bad with Norfolk (note: I've never been!!): Alan Partridge, and a very narcissistic ex of mine who was born in London but from a Norfolk family... gah! 🙂 x

 

Jill1998
Community Champion

Re: Surgery & living alone

Seems very,very petty June what a shame it means you are excluded from things other friends are part of.Is she secretly a bit jealous of you or thinks that because you are single you are somehow a threat??Norfolk sounds a beautiful but lonely place if you are single like you say.

Re: Surgery & living alone

Hi Jill,

 

Thats the one, it was 3 years ago and ridiculous thing was she got married last dec and i got asked tto reception but not to afternoon tea or weekend at coast hen nights, so that should have told me how it was. I think actually thats why i got asked to the wedding a friend probably did have word with her about that, but nothing else.  I really didnt want to go to reception but was Xmas  all my friends were going, they went all day! and i went thinking it might be the start of being welcomed back into fold., but seems not, You cant believe someone bhaving so childishly? .  Jill my dear this is Norfolk, it dosent surprise me Being single here is like a social disease, you rarely get invites anywhere any way, Being a single mature person in Norfolk is social death. couples socialize with couples, thats how it is,And if join singles groups they are so clicqy you can break into them   I dont know why i thought my cancer would change things but im back the other side and it hasnt. Junexx

Re: Surgery & living alone

Good night! x

Jill1998
Community Champion

Re: Surgery & living alone

Start on 21st ,so couple of weeks of freedom yet.Need to do something productive with them.Good night.

Re: Surgery & living alone

And you as well, Jill -- hope you can relax a bit, now that the planning is behind you. When do you start the rads? I start on Wednesday, apparently (I am never 100% sure of anything, nowadays -- but yea, it should be the 5th). Time to spend that last swimming pool voucher, till I can.

 

Jill1998
Community Champion

Re: Surgery & living alone

Mael,have nice calm night with your DVD and sleep.
Jill1998
Community Champion

Re: Surgery & living alone

June,I think cancer has the effect of making you feel isolated or different ,no matter how you may have felt before, that is why this forum is so helpful.Is the friend who has BBQ the one whose car you were sick in?If so I cant believe she is still having a problem with you ,could another friend you trust speak to her,as we are all realising life is to short to fall out over such petty things ,...

Re: Surgery & living alone

June, you write with great intensity, and I understand your plight very well. It's mine as well, although I admit that, right now, my isolation is mostly of my making. I sometimes wish my friends were more there for me, but if I only I felt a bit less disconnected, I am sure I would be fine-ish. Nevermind, but both you and I need to find something new, something to be passionnate about. I think connectedness may come, once this is done, as an added benefit. What do you think? 

 

Magical Moon, I am sorry you're struggling with anastrazole, all more since I am meant to take it as well 😞 (or was it the other -zole? oh, nevermind). I was struck by a very early menopause, at 42 and looking half that age (sadly, I've caught up big time since). I didn't take HRT, unlike both mum and grand-mum, because I was afraid of breast cancer (that my ancestors didn't get!). I have a possibly interesting reflexion on hormonal changes: my mood flattened a lot going through menopause -- gone were the flights of fancy, the sense of poetry, much of the imagination; rationality hit me like a ton of bricks. There was a little silver lining tho: all of a sudden I had a sort of gravitas, of authoritativeness... please don't laugh, but to survive the boredom of getting down a lifetime stoned on oestrogen (yes -- stoned!), I had to embrace my inner male part, and learn to love different thrills. It did work (to an extent). I expect the -zole to only make that more extreme; I guess I will have to buy a motorcycle 😄 Having blabbed all that, your symptoms are mostly physical, right? And for a 0.8%... gawk, that's very little. Is that over five year, ten, or more? Would be worthy to discuss it with the oncologist, next time? I mean, on the face of it it doesn't seem a bargain in the least, and I am a bit puzzled that you weren't discouraged from taking it in the first place (unless there's something that I am missing, obviously).

 

Jill, well done keeping the goat at its place! A bra is, overall, a small price to pay -- I would have paid it for a tattoo less (I got three, always the exaggerating one...).

 

Me, I had a quite tranquil day at work, then a good session with the shrink, ate out, now I am knackered and I'll go and watch a dvd. I have other bits and bobs maybe worth telling, but not now, my brain got enough of a workout today, not the right time to open other lil' cans of worms 😄

 

hugs all xxxx

mael

Re: Surgery & living alone

Hi Magical m oon,

 

I feel bit like you with HRT, i know if probably caused my breast cancer, but it did make me feel great and i miss it.

 

Im on tamoxifen which is supposed to be better for bones, and i dont feel too bad without HRT but i know im more creaky than i was, i get the night sweats, and i just felt better on it, and like you if i could without the risk id take it again.    June