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Surgery & living alone

Re: Surgery & living alone

Naughty naughty Jill did you get pulled over by a good looking cop??

Re: Surgery & living alone

Hi MM
I had heard of the look good days, wasn't sure if it was ony for chemo ladies, so will def look into that
Sheena x
Jill1998
Community Champion

Re: Surgery & living alone

It has to take us to our radiotherapy appts first....... then we can do road trip ...Last time I did road trip in States , got done for speeding ...

Re: Surgery & living alone

Theres nothing like a drive down the Californian coast. Love the Winnebago idea xxx
Jill1998
Community Champion

Re: Surgery & living alone

Wonder if Enrique Inglesias is busy??He could drive the Winnebago ...
Jill1998
Community Champion

Re: Surgery & living alone

She's a busy woman,she probably be glad to get rid of him for a few days,stop him getting under her feet.

Re: Surgery & living alone

yeh! But what do we do with Amal?
Jill1998
Community Champion

Re: Surgery & living alone

Luxury Winnebago with George Clooney to take us to appointments ,I think that would make things more tolerable....

Re: Surgery & living alone

Well that's cheered me up. I've been worrying about accelerated ageing as a result of all this - don't suppose the cosmetics can do much about it but free goodies and some positive chit chat would be good. I will check it out.

Re: Surgery & living alone

The saying: "You're never too old to learn something new".

I've never heard of a Winnebago until tonight and had to Google it.  Wow!

Now I know what it is, I want one.......a luxury one, with a George Clooney lookalike to drive me to Paradise.

Sweet dreams.

Re: Surgery & living alone

Hi Ladies,

Wishing all those starting their rads tomorrow and in the near future.......good luck!  It seems daunting looking at all the sessions at the start but once you get into the routine it becomes manageable.

As well as being eligible for free prescriptions, I wondered if any of you had heard about the Look Good Feel Better charity which runs workshops around the country to help ladies going through cancer.

I went to a workshop after finishing my radiotherapy to cheer myself up and meet other ladies in the same predicament.

I can recommend it.  I met some lovely ladies.  Plus, everyone gets a fabulous bag of cosmetics to use and take home.  The makeup is donated by cosmetic companies including Estée Lauder, Clinique, Eco, Nivea and more.  Here is the link if anyone's interested.

http://www.lookgoodfeelbetter.co.uk/workshops-and-advice

Nite, nite.

M x

Re: Surgery & living alone

HI ladies,

 

Yes i can rememb er seeing notices in hospital sayng free prescription for cancer paitents, i as an over 60 who did get the state pension at 60, sadly and wrongly one of the last, get mine free anyway,  So glad thought they gave that to all pensioners, as someone with a s,mall priivate pension i get a bit fed up with reading "you will get this if on pension credit" Grrr .....i used to work sundays when i worked on directory enquiries to boost my pension, why couldnt all these people on pension credit have saved  for a pension too.they had same chance as me.,i didnt have a partner, i had to support myself,  Im sure some of them have money stashed away in kids or relatives names, so they can get pension credit.  i heard a bloke at bus stop bragging other day he had done it, Makes me mad.  I felt like challenging himlol .

 

Have let my parking space at my flat today, girl works in city so shes parking here and walking into work, so thats a bit of a little earner,  ive never let it permanently before, people do it, then they get fed up with walk, but its only about 20 25 mins at most, and parking charges in Norwich like most cities cost an arm and leg. Hooe this one dosent get fed up.

 

Junex

 

 

Re: Surgery & living alone

Good to know, about the free prescriptions -- I had no idea... And yeah, with an indefinite leave to stay, I have the same rights of a British citizen (oh man, I still need to crack on with my naturalisation process...).

 

Indeed, June, you really have good friends. It's not nothing! 

And yeah, I've been told that hair in that armpit will fall off, so, no need to shave!

 

Ladies, it's my turn to go to bed -- actually, I am going to have a bath, and test the Pitrok, even if indeed it doesn't inspire me much trust. Anyway, I don't smell, except if I am scared, in which case I reek to the high heavens. Maybe I was a skunk in a previous life. I need to not get scared, or no Pitrok will prevent the embarrassment.

 

nite nite xxx

Jill1998
Community Champion

Re: Surgery & living alone

I've been told 10 years gives additional 1 % benefit ,so that is what they are recommending now .I had e mail from BCF today to say I now have 2,accounts (their error)and could they delete Joll1998 ,I said yes get rid of the imposter!!!!Think you need to do same Kim/Jo Jobey....

Re: Surgery & living alone

Hi jill,

 

yes i sometime expect too much from them i think but guess sometimes on own you do,  But all in all i couldnt have got through my treatment without them, so cant complain , No that "friend" hardly said a thing about my cancer, i think 3 lines on fb saying sorry to hear about it was about it.  I thought why bother,

 

Junexx

Re: Surgery & living alone

I appear to have changed identity again!!!!!! 

Re: Surgery & living alone

You apply again after 5 yrs and of course if your still on Tamoxifen then you will get another exemption card,I'm on them for 5 so far but I know they are trialling 10 years in my area so who knows, I'm never bloody paying for them that's for sure!! 

Re: Surgery & living alone

HI Jill,

 

Dont worry about Gorilla armpitslol , the one where i had nodes removed hardly seems to have any hairs on it at ll in fact it rarely neds shaving, Also i didnt like look of pitrock so used Santex. as again i seem hardly to perspire under that arm,  I use Mitcham hugh strengh  under the other as i still do there, So hope you will be as lucky,.  Is this just me or how how were you Dee.  Junexx

Jill1998
Community Champion

Re: Surgery & living alone

You sound like you have some v good friends June,they came through for you.Sod the one who fell out with you over being sick in car.

Re: Surgery & living alone

 Hi Jill,

 

No you are not being unreasonable she shouldnt say things didnt mean.  I know ive said recently some of my friends i now feel not as should be but i will say when i was going through my appointments 3 of them were great i never went through one appointment alone and my evenign rads one of them came with me every time, one works fuul time, one has a child and other works part time.  the friend who works full time worked 2 sat morings so she could come with me to appointments initially and she told me other week, if i need her never think i cant contact her ever,  Maybe ill look at mine differently now.

 

Junexx

Re: Surgery & living alone

Thanks a lot Sheena xxxx

Sleep tight, and have nice dreams x

Re: Surgery & living alone

Night night ladies xxxx

Re: Surgery & living alone

Just checked macmillan cancer site, you reapply after 5 years for more drugs. Mael you need to collect a form Fp92a from the doctors x
Jill1998
Community Champion

Re: Surgery & living alone

Well that would be good Sheena ,I was told 5 years and I have exemption card for 5 years .Mael are you entitled to same benefits as British nationals ? If so you get form from G.P fill it in , return to G .P for signing and they send it off , then you get a card for free prescriptions.

Re: Surgery & living alone

Amaze! thank you UK! ❤️

Re: Surgery & living alone

Jill I thought it was for the whole term of treatment?  If not we need to get out there and make some changes,  how do folk afford it after 5years!,,,,,!

Re: Surgery & living alone

Free prescriptions? O_O 

Jill1998
Community Champion

Re: Surgery & living alone

Yes, perk of having cancer free prescriptions for. 5 years.Could be expensive after that as Tamoxifen for 10 years...

Re: Surgery & living alone

Mael, free scripts in wonderful Scotland but I think cancer patients in England get free scripts as well?
Xx
Jill1998
Community Champion

Re: Surgery & living alone

I keep entering competitions to win one.( not the E45) a Winnebago or a luxury camper van would do.....

Re: Surgery & living alone

Sheena, thank you for the tip! (they sent me to buy the E45 instead...). I love Winnebagos! Wouldn't that be cool?

Re: Surgery & living alone

Jill, really, that would be awesome! We should found a charity whose purpose is bring single people to treatment appointments in style, siblinghood and mirth!

For the selfish friends, it's really very very common, a friend of mine who's a socialite with a bazillion connections was in the same plight recently and totally no-one acted on their previous offer for help (ok, I did, and it was quite fun as well, but I was the only one, and the help in question was really trivial, fetching a pair of goggles from a hospital night pharmacy). I mean, even the extremely well connected have these problems. Maybe people are really selfish.

 

Sheena, you're right, I should take time off. But as a consultant, a long time off means the boot, and anyway my contract ends in Sept (I think) and I plan to not look for another one for a few months. I'll see how it goes. Today I was bored out of my skull, I am beginning to care little: I don't like half of the clique there and I am beginning to lack the passion to defend my technical choices. Boss wants me to stay but I feel the mule of the situation and, if I can allow myself a little sexist rant, I am a bit fed up of cleaning up after a bunch of guys with more ego than coding sense. D'uh. On the other hand, I know that in another contract it would be the same if not worse. Oh, let me recuperate, and then next time I will sell myself so dear, oh, so dear...

Re: Surgery & living alone

Thanks dee
funny thing is that I am looking forward to having the rads and moving on to the next phase of my life, but the trip to hospital on Friday by public transport will be two hours each way, so the friend has really annoyed me x

Re: Surgery & living alone

True, we could have just set up a winnebago outside the hospital and camped there for the duration lol x

Re: Surgery & living alone

Mael, the rads department gave me some tubes of Diprobase for free and more if I need.  It's used for extreme sunburn,  ask for a prescription and it is free x

Jill1998
Community Champion

Re: Surgery & living alone

Shame we don't all live closer,we could have had a camper van taking us to appointments together and looked after each other (and the goats),sod the hopeless friends ...we could have fridge with ice cream and Prosecco and twiglets ...

Re: Surgery & living alone

Glad i'm not the only one whos had too. Anything just ask and then nowhere to be seen! But girls just remember your all on the home straight now. Rads is fine and after that look forward to embracing the new you. Its a great feeling to finish treatment😊. If you get the fatigue i did rest up and know it does pass. Xxxx was also very relieved to shave soon after!!!!

Re: Surgery & living alone

Totally Jill, it's the only time I have asked her for anything. My bf is away on holiday or she would have been there for me

Re: Surgery & living alone

Sheena, you're not being unreasonable nor selfish: you're right. Your friends sounds like a taker; sounds like my last sweetheart, or my cousin: "will do absolutely anything for you as long as it doesn't cost me anything". She sounds rather callous as well, unless she was having a really bad day for some reason, but you're right to rant.

 

Dee, thanks x

Jill, I admire your scientific approach, although to be completely definitive, you should have not known which armpit received what :*) 

Re: Surgery & living alone

Hi mael
wishing you all the best for tomorrow, you have a huge amount of sessions to get through, now might be the time to think about taking time off work and simply getting to the hospital and back without absolutely knackering yourself. I worry about you and the need to battle on, please cara take a few weeks to look after the body and mind. Get out and about on your own terms, walk and enjoy the outside and read with the cat on your lap.
sending you a huge amount of love you can give me the details of what I can expect on Thursday
sheena xxxx
Jill1998
Community Champion

Re: Surgery & living alone

Yes, Ive had that one ,"any appointment you need support with just let me know."...first request for assistance ,it's a bit inconvenient...sod that I will go on my own then....I hate asking for help,it is really not me ,I am the one that supports others ,but at this point in my life I need support,most people are pretty selfish I'm afraid.

Re: Surgery & living alone

Hi Jill

I'm Thursday

just a side note and a huge rant......... you know the friend,  not your best friend,  but someone who you took to the undertakers when her mum died and held her hand and was on the end of the phone in the middle of the night,  yeah that one.  Well I asked if she would be able to give me a lift to hospital on Friday on the way to work, it's a small 10 min detour for my appointment at 9.30 because my car is having an mot.  Quelle suprise, response I got was, oh I was going to go into work later on Friday so it won't be any good for you! !

Ladies,  am I being unreasonable, selfish?  she sent me a card last week saying that if I need anything just ask

soòooooo annoyed

sheena x

Jill1998
Community Champion

Re: Surgery & living alone

Not looking forward to gorilla armpit either...,

Re: Surgery & living alone

Good luck with the radiotherapy and i was delighted to be able to use normal deo after i finished. Thinking of you xxx
Jill1998
Community Champion

Re: Surgery & living alone

Well I have practised with it ,one armpit with crystal,one with normal deo,you don't stink but you don't have quite the same fragrance....

Re: Surgery & living alone

Hahaha 😄 does it work?
Jill1998
Community Champion

Re: Surgery & living alone

That's the deo not the cat...
Jill1998
Community Champion

Re: Surgery & living alone

Yes it's a crystal.

Re: Surgery & living alone

So decadent! 😄
Jill1998
Community Champion

Re: Surgery & living alone

Go sick and eat ice cream with the cat....