No, I haven't got district nurses, I'm an ex district nurse and current practice nurse and have looked after drains before so I declined them, silly me probably especially as it's so different being the patient!!!
The breast care nurse rang me back and was excellent and told me to see what happens within the next 24 hours. It's actually still draining and no more leaks so I'm hopeful it was just a blip as it looks like it's still working, phew!
Im terrible for trying to keep in control 😊
Aw Carole, it's such a constant worry isn't it. I hope you get some answers soon.
good news is I slept much better with a load of pillows round me, but then earlier I caught my drain on a corner as I was walking past and when I checked it I noticed it's leaked a bit from the insertion site, I have rang the breast care nurse but it was an answerphone so have left my details, I hope I haven't done any damage as its still been discharging 100ml a day!
i had mx with reconstruction with expanding implant on 12 May. They had thought my nodes were clear but the two tested during the op, one was cancerous and the other showed pre cancer cells, so I had axillary clearance. I had breast drain removed on day 4 and came home with lymph drain. Although still discharging 100ml a day I had my lymph drain out on Friday last week, so now the fluid is collecting in new boob and trying to work out a new route from the site. When I had the drain I swapped sides with OH in bed and put the drain bottle in a clean bucket on the floor next to bed. I found I didn't actually move much in bed for the first week, just lay on my back. Carried my drain around in a little bag I made, like a drain Dollie bag, and although I caught it a couple of times I never pulled it out.
My main worry now is the results that I get on Wednesday this week and whether it has spread. I have a headache and feel constantly tired so very worried. Probably stress and general anaesthetic, but everything is a worry at this point.
I was was supposed to just need hormone therapy after surgery, but now I need chemo and then hormone therapy and that's best case scenario.
Good luck with your treatment and results. x
Hi Debbie,welcome to the Warriors club. You are sounding great. Very positive and matter of fact, so you will do great. You need a v shaped pillow to keep you propped up in bed, so no danger of rolling re drain. You put the drain in a small shopper type bag with longish handles, and then hook the handles over the back of a chair,then pull the chair right up next to your bed. Lots of length then, so no pulling. Hope you're sleeping in a supportive bra as that does help. I was told to sleep in one for six weeks, and I'm still in one 12 weeks later! You can keep your book, I pad, hair brush,hankies and lippy in the bag as you wander about. I've had a 23mm ductal carcinoma removed by WLE, with full Lymph node excision. Means i have to be a bit more careful from now on re infections. Gloves for housework and gardening. No cuts or nicks on the hand that side. Probably 5 days until the drain is out, and really it's all systems go then. I had friends over rather than go out, but it's not impossible if you get your little bag organised . Very very important to do your arm exercises. Prevents Lymphodema, and you will need to lay with arms behind head for some of the tests they will do to make sure there's nothing floating about - just a precaution. Unfortunately I think you may well have chemo. It's not bad. I'm going into second session on Friday. Bit of nausea and hay feverery symptoms, tiredness but ok so far. Don't be frightened , you'll make it. Wish I could help more on the sleep side. Some ladies use camomile tea, or herbal sleep stuff, or see the GP? Anyway, good luck, and let us know how you get on. X
This is my first post. Quick history, found lump about 3 months ago, mammogram, ultrasound, biopsy. Diagnosed with grade 1 Invasive Ductal Carcinoma. Ultrasound said lymph nodes clear.
had Wide Local Excision on Friday, Sentinel Node Biopsy showed cancer in it and the next node but third one clear, auxiliary clearance done ended up staying in overnight, drain in situ.
I'm home, obviously feeling sore and if I'm honest feeling very sorry for myself knowing it spread to the lymph nodes. Original plan was radiotherapy but I'm assuming I will now need chemo as it spread to the lymph?
Also, does anyone have any tips for sleeping with the drain, I'm paranoid I'm going to pull it out and it's so uncomfortable trying to sleep on my back trying not or move, hence no sleep last night! I tried going onto my good side but the bad boob feels draggy and when I try my bad side it just aches!!!
i really want to get back to normal as soon as possible but I need sleep to do it!!! any help or ideas would be much appreciated.