WOW that is tight going...126 days...from surgery to end of chemo.....takes you to September 10th...so a goal to aim for!!
I don't know if you know your plan of care...but it is usually surgery followed by a 5 week break and then chemo every 3 weeks for 6 sessions. You will have to consider your herceptin too to fit around your journey which is also every 3 weeks. Radiotherapy usually starts about 5-6 weeks post end of chemo.... and is daily for 3 weeks approx'. I know of people who have delayed the radiotherapy but no longer than 3 months after finishing chemo.
I would say think ahead and contact your lymphodema nurse...my hospital still recommend wearing an arm sleeve during the flight and the same number of hours post flight.
You may find it difficult to get insurance when you will still be having treatment..so would advise looking around now. The Macmillan site has some contacts for insurance companies.
Keep positive though....and you will find strength.....it's all so scary at first......
I am only 16 months ahead of you.... just finished my herceptin... I had operation, FEC-T, radiotherapy, Herceptin and I am on anatrazole for 5 years.
The journey flew by ...just waiting for every 3 weeks to come around...... on the FEC - I would feel rough for a few days post chemo...but still managed to go out shopping etc...and by day 5-7 I felt nearly normal...The T part of the chemo tougher and this took me about 7 -10 days to feel "normal" but again nothing horrendous....tired, lack of energy and not great at sleeping.
The medication for sickness is fantastic...I was never sick or felt sick......
I wish you well .....put your goal up and aim for it...striking off the days.Check you will be able to fly so soon because we are at increased risks of complications when we first stop treatment
Hi Sazza, do you have to have any other treatment,i.e. chemo or rads? as I was thinking that October was pushing it a bit if you do have to have anything else? You will be closely monitored now they know about the heart thing, and I am sure there will be no problem with anaesthetic and OP if you didnt have any probs with the twins. good luck anyway
you echo my thoughts of last year when I started my journey. I too feared not waking from the anesthetic...but what choice do we have...and the silly thing is I am a nurse and know the very slim and I mean very slim chances of anything going wrong. It is natural we fear everything at this time.... just trust it will all be good...and the procedure does not take that long.
The herceptin will still hopefully go ahead once you start your chemo.....with regular scans of your heart.If you cannot have the herceptin there are alternatives.
Just think this time next year you will have completed your journey and this will all be in the past
Take care and good luck
You will be fine