Southpool, thanks for all the info, I shall have to do some investigation! I totally agree with you about getting the right equipment! I am not sure yet whether I will have a recon or not, much depends on how I get on over this summer. Think I had my mx before you, last January 2012. I went to Egypt recently and was also snorkelling and jumping off boats etc, I managed very well with my sponge prosthesis really but in a bikini, its just a bit light.
I will have a look at the website's you mention above and am very pleased for you that you are getting on so well with everything.
Hi again Patchit I have just read your first post and I am a prothesis size 7 as well. My bikini is a sea folly Goddess and although expensive is absolutely fabulous, makes me feel 'normal' and I get no stap marks when sunbathing.
My bean bag is from About the Girl ( I got my bikinis from there) but it is the same as the bean a bag. It is quite light but heavier than a softie. It doesn't ride up in my tankini or bandeau bikini but don't know if that is because I wear them tight. My hollow back prothesis is from Women's Zone and is ABC, it is heavier than the beanie but lighter than my Amoena Natura.
I have just returned from holiday in Mexico & snorkelled with sea lions in a wetsuit and there was no movement in my beanie when I took the wetsuit off. We were on a boat trip with some Americans who couldn't believe I had a mx after they'd seen me in my bikini jumping off the boat & swimming. It has confirmed my decision not to have a reconstruction, but it is worth the effort to get the right equipment!!
I also have the Royce champagne in both colours & an adjustable bra which I can wear strapless or halter neck, they are brilliant.
Milo, I asked about a swim prosthesis but we are not issued with them in England.
Lollypop59 & Quail, thanks for your replies, I have used the Nicola jane site for a few items. Both my swimsuit & bikini came from there and I also bought a sponge swim prosthesis, which is the one which is too light and rides up in my bikini. I see they do a slightly heavier weight one (comfy breast prosthesis) for £24.50 or the bean a boob, so think I will order one of those. I might give them a call to ask which of the 2 is the heavier, will let you know what they say. Southpool, is your bean one the same as the been a boob?
Featherbird, like Southpool & Quail, I also have a Royce bra, which is the best one I have found for me. It was very frustrating sorting out the bra & prosthesis and took lots of attempts! I have ended up with the same bra in different colours (Royce, champagne, I think its called). Like Southpool, I was measured different sizes at different places, but in the end I went for one in the same size that I was pre-surgery. Now I am at a stage where I forget that I am wearing a prosthesis, its so comfy. Mind you, I had to get the first one I was given changed as it was a size too big and was very heavy. I’m a 36D, so not huge busted. I have now got an Amoena Natura 2A which is asymmetrical and perfect! Wish you lots of luck with getting sorted, it really is trial and error but I have to say now that it was worth persevering until I found the best bra for me.
Hi, I also find a Royce bra the most comfortable to wear after several trial and error ones. I also have a swimming prosthesis which I got free (I am in North West area) . I went for a fitting and asked if I could have a swimming one and was told of course and given both types. I thought it would be one or the other, but much to my surprise got both!., Not been swimming with it yet though, but hopefully very soon.
I swear by Royce mastectomy bras, but it was trial & error getting to find a brand that suited me. I was measured at John Lewis & then again at a BCC lingere evening one was 36d & the other 38c so obviously not an exact science. Is there somewhere you can get measured & then order on line? Now I have found a brand that fits well it is much easier to buy on line.
Hope this helps
Hi ladies, just popped in from february valentines to ask for some advice. I had an mx and an anc in december. I dont seem to be able to find a bra that sits comfortably, dosent gape on the top when i kean forward, and doesnt leave marks where it presses into the skin on my anc area and shoulder. Does anyone have any suggestions as i dont want to chance get lymphodema because of not wearing the correct type of bra. I live in spain and dont have the same support or freebies as you have in the uk. Any thoughts appreciated. xxx
i have a hollow backed swim prothesis & a bean bag and both are great. The bean bag is fab in bikinis as it doesn't show, takes a while to dry but doesn't leave wet patch or drip if that makes sense. I use the swim prothesis in my costume for long swims. Neither ride up. I have jumped off boats into the sea, worn wetsuits & both have been absolutely fine, you would never k ow I had mx.
From what I can see, it's only free in Wales. : ( . I've just bought the swimsuit, and am debating the prosthesis problem--Lorraine, I never even though of one of those been-a-boobs!! What a great idea--I don't like the idea of having to squeeze the foam one out, but I just can't afford the posh amoena aqua-wave. What's it like to swim with it? Does it ride up? I think I'm going to order it!
hi patchit, i have just been reading you post, i found a site her name is nicola jane she had breast cancer herself she will send you a catalugue for prothesis, bras, swim suits, are have just bought one called beenie boob but there are alot of others. if you just goole nicola jane prothesises it will com up hope this helps. lorraine x
Hi Patchit, Like Oyster I was having my treatment in wales and was given a sports/swim prosthesis as well as a normal set (bilateral mx) by my bcn for free, not sure if you just need to ask for them. x
Glad to hear you are gettin gon ok with your amoena. They do take some getting used to! I am fine with my everyday one now but it was a good few months before I got to that point. I think I will buy a swim prosthesis from Nicola Jane. They are under £30 and even if I only use it infrequently, its probably worth the investment.
Hi, I'm new to this forum. I had a mastectomy in Jan 2012. I havea prosthesis by amoena which is self adhesive. You wear normal bras and can swim with it. I've been using it since Oct every day, and it has been a godsend. Its comfy, and you just forget that its there. I just wish that I had waited before getting a prosthesis that fits into a pocket in your bra ( which I couldn't get used to) and then I would have been able to get it on the nhs.
I was given an Amoena Aqua Wave swim prosthesis from my BCN (free in Wales). Although it appears bigger it is the same size, but weighs more, than my everyday prosthesis...and it is oh so comfy.
I have only gone in the swimming pool a few times since having my mastectomy, but have done very little swimming.
My swim prosthesis is ridged, therefore you do not have to "drain" the water away from the back like you would if wearing your everyday prosthesis for swimming.
Hi Patchit. Not posted for ages and ages but started chemo etc at the same time as a lot of you in March last year. Although not posted have a look at post most days. Noticed your post regards about swim prosthesis. I am a swimming teacher so it is a must for what i do. I bought a swim one in silicone which works and stays put very well and not very heavy cost about £35.00 so not bad at all when you feel comfy and secure. Cant speak for a bikini though but in swim costume great. Have a great time in brum sounds good the last time. Pam
Christine, thanks for your reply, I have tried my bikini on with my everyday prosthesis but it is just too heavy. Maybe I have a different type than you have but mine would not be any good. Glad you get on with yours o though. I didnt think the chlorine would actually damage it, its just a problem with the weight.
Sian, that's much cheaper than I thought it would be. I know the everyday ones can be quite expensive so just didnt look to see how much the swimming ones are. Thanks for the tip!
I was shown a proper swimming prosthesis when i get my normal one. They are more or less the same except they are slightly hollow on the inside and are a little lighter. the nurse told me its ok to swim with a normal prosthesis and wont cause it too much damage but one of the main reasons for not using it is the weight. She said you may notice when you get out of the water that 1 side is still draining water or a little lower than the other due to the weight. She also said if you were to do things like say have a water fight in your clothes, the side with the prosthesis would take a lot longer to dry that the normal side so it would be a bit obvious. The swimming prosthesis are only around £30 to but so maybe it would be worth investing in one even if it is just for a few months. Hope this helps.
Thanks for your reply and the suggestion from your BCN. I will try the curtain weights, they sound like a good idea. I'm not going away again until June, but will try to remember to post again about how I get on. I may go swimming before then but wouldnt wear a bikini down the local leisure centre for fear of clearing the pool!!
Best wishes for your recovery
HI Patchit, I haven't yet got to the place where I can swim yet, but my breast care nurse has suggested using small weights (such as curtain weights, the ones like buttons) sewn into the lining. I have not tried this yet, so don't know if it would work, but might be worth a try. Would be delighted to know what works!
I am hoping somone can suggest something to help me please. I have just got back from holiday and managed just fine with my swimsuit and swim prosthesis. However, when I wore my bikini, the top rode up slightly so I was sort of a bit lop-sided. It wasnt much and I am sure no-one really noticed, but I knew I wasnt 'level'! The swim prosthesis I have is just a simple sponge one which has no weight. I dont really want to spend money on a 'better' prosthesis yet, as I am still undercided whether I will have a recon or not. I want to go through this summer and see how I manage in the warmer weather before making any decisions.
So, what I want to know is, can anyone suggest something I can put in the pocket to weigh down the sponge? Obviously I have to take into account what will happen once its wet. I dont want stuff falling out of the bottom! I am not particulary big busted, 36D, prosthesis is size 7.
Thanks for your help!