Isn't weird how different hospitals do things....I'm trying to put results to the back of my mind
but it keeps popping up...as you say if all clear we can start to move on
I hope your results come back before your surgery, i didn't need radiotherapy and the genetics said it would be better not to have any, but i guess your consultant will sort that oout. Where do you live, I have to go to Oxford for the genetics clinic and have had a battle to get testing done, it was only when i had breast cancer that they said they would test me. My mum died aged 27 of BC and my nan had BC inn her 60s, now i'm 3rd generation, big coincidence!!! i hope so.
The waiting is the worst, limbo land...
I hope you get the answers soon, will be in touch xx
I've been waiting 8 weeks for my results and its driving me nuts!!!
I went to the genetics clinic with my daughters last week too discuss screening for them, as although we don't have the BRCA gene they are in the high risk cateory because of 3 generations of BC.
My genetic councellor was lovely but the woman we saw last week just kept going on about the TP53 and I don't even know the results yet!! Alot of ifs and buts...my girls are coping really well and have been such a support to me, I only wanted testing to protect them.
I got told off for googling TP53 lol but wanted to know abit more about it. Thankfully it is rare so fingers crossed for both of us.
It's great to talk to someone who has heard of this gene and who is struggling too
keep in touch
love Erica x
I have put for you below links to some of BCC's publications you might find helpful.
Also the area of this website where breast cancer in families is discussed further:
As well as all the above, our helpline staff will be only too happy to talk to you about BC in families.
Hope this helps.
Thank you for replying.. I have looked on the internet ad the genectic's guy gave me some info. He said it was rare but wanted to check as 3 generations having breast cancer and not having the BRCA gene seemed a big conincidence!!
I will look up phyllodes and see what it says...not always a good idea I know but as you say if you don't you don't always find out.
Sorry your consultant doesn't seem very helpful, I was very lucky with mine.
I hope your surgery goes well, will be thinking of you
love Erica x
I haven't been tested for anything, but was diagnosed with a phylloid tumour which is a very rare type of breast cancer that affects 0.03% of women, on March 27th 2015. From my own research (consultant at Guy's cannot waste time with rare tumours and haven't met up with my original surgeon even once, next surgery on April 29) TP53 is associated with phyllodes (not sure about other types of Breast Cancer, phyllodes is more of conjuctive/stromal/sarcoma type of thing).
Not sure this helps but hey it's a response!
any other weirdo out there with phyllodes can you get in touch? would be fab.
Has anyone been tested for the TP53 gene? I have have been cleared of having the BRCA 1 & BRCA2 and they are now testing for TP53.
I had breast cancer last year, bi lateral mastectomy because of family history...just wondered if anyone could give me any info on this
wishing you all well xxxx